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90_HB0725enr 745 ILCS 70/1 from Ch. 111 1/2, par. 5301 745 ILCS 70/2 from Ch. 111 1/2, par. 5302 745 ILCS 70/3 from Ch. 111 1/2, par. 5303 745 ILCS 70/4 from Ch. 111 1/2, par. 5304 745 ILCS 70/5 from Ch. 111 1/2, par. 5305 745 ILCS 70/6 from Ch. 111 1/2, par. 5306 745 ILCS 70/7 from Ch. 111 1/2, par. 5307 745 ILCS 70/8 from Ch. 111 1/2, par. 5308 745 ILCS 70/9 from Ch. 111 1/2, par. 5309 745 ILCS 70/10 from Ch. 111 1/2, par. 5310 745 ILCS 70/11 from Ch. 111 1/2, par. 5311 745 ILCS 70/11.2 new 745 ILCS 70/11.3 new 745 ILCS 70/11.4 new 745 ILCS 70/12 from Ch. 111 1/2, par. 5312 745 ILCS 70/13 from Ch. 111 1/2, par. 5313 745 ILCS 70/14 from Ch. 111 1/2, par. 5314 Amends the Right of Conscience Act. Changes the short title of the Act to the Health Care Right of Conscience Act. Changes defined terms "medical care", "medical personnel", and "medical facility" to "health care", "health care personnel", and "health care facility", respectively and makes other changes in definitions, including changes in definition of "physician". Adds definition of "health care payer"; provides that a health care payer is not civilly or criminally liable by reason of a refusal to pay or arrange for payment of any particular form of health care services that violate the payer's conscience as documented in its ethical guidelines or other governing documents. Prohibits discrimination against a health care payer in matters of licensing and other privileges and prohibits denial of grants or benefits to a health care payer for similar reasons. Makes other changes. LRB9001282DJcd HB0725 Enrolled LRB9001282DJcd 1 AN ACT concerning health care, amending named Acts. 2 Be it enacted by the People of the State of Illinois, 3 represented in the General Assembly: 4 Section 5. The Right of Conscience Act is amended by 5 changing Sections 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 6 and 14 and adding Sections 11.2, 11.3, and 11.4 as follows: 7 (745 ILCS 70/1) (from Ch. 111 1/2, par. 5301) 8 Sec. 1. Short title. This Actshall be known andmay be 9 cited as the Health Care"Right of Conscience Act". 10 (Source: P.A. 80-616.) 11 (745 ILCS 70/2) (from Ch. 111 1/2, par. 5302) 12 Sec. 2. Findings and policy. The General Assembly finds 13 and declares that people and organizations hold different 14 beliefs about whether certain health care services are 15 morally acceptable. It is the public policy of the State of 16 Illinois to respect and protect the right of conscience of 17 all persons who refuse to obtain, receive or accept, or who 18 are engaged in, the delivery of, arrangement for, or payment 19 of health caremedicalservices and medical care whether 20 acting individually, corporately, or in association with 21 other persons; and to prohibit all forms of discrimination, 22 disqualification, coercion, disability or imposition of 23 liability upon such persons or entities by reason of their 24 refusing to act contrary to their conscience or conscientious 25 convictions in refusing to obtain, receive, accept,or26 deliver, pay for, or arrange for the payment of health care 27medicalservices and medical care. 28 (Source: P.A. 80-616.) 29 (745 ILCS 70/3) (from Ch. 111 1/2, par. 5303) HB0725 Enrolled -2- LRB9001282DJcd 1 Sec. 3. Definitions. As used in this Act, unless the 2 context clearly otherwise requires: 3 (a) "HealthMedicalcare" means any phase of patient 4 care, including but not limited to, testing; diagnosis; 5 prognosis; ancillary research; instructions; family planning, 6 counselling, referrals, or any other advice in connection 7 with the use or procurement of contraceptives and 8 sterilization or abortion procedures; medication; or surgery 9 or other care or treatment rendered by a physician or 10 physicians, nurses, paraprofessionals or health caremedical11 facility, intended for the physical, emotional, and mental 12 well-being of persons; 13 (b) "Physician" means any person whois entitled to14provide medical services or medical care oris licensed by 15 the State of Illinois under the Medical Practice Act of 1987 16to practice medicine in all its branches, whether as intern,17resident, medical trainee, or fully licensed practitioner of18medicine; 19 (c) "Health careMedicalpersonnel" means any nurse, 20 nurses' aideaid, medical school student, professional, 21 paraprofessional or any other person who furnishes, or 22 assists in the furnishing of, health caremedical care23 services; 24 (d) "Health careMedicalfacility" means any public or 25 private hospital, clinic, center, medical school, medical 26 training institution, laboratory or diagnostichealth care27 facility, physician's office, infirmary, dispensary, 28 ambulatory surgical treatment center or other institution or 29 location wherein health care services aremedical care is30 provided to any person, including physician organizations and 31 associations, networks, joint ventures, and all other 32 combinations of those organizations;and33 (e) "Conscience" means a sincerely held set of moral 34 convictions arising from belief in and relation to God, or HB0725 Enrolled -3- LRB9001282DJcd 1 which, though not so derived, arisesobtainsfrom a place in 2 the life of its possessor parallel to that filled by God 3 among adherents to religious faiths; and.4 (f) "Health care payer" means a health maintenance 5 organization, insurance company, management services 6 organization, or any other entity that pays for or arranges 7 for the payment of any health care or medical care service, 8 procedure, or product. 9 The above definitions include not only the traditional 10 combinations and forms of these persons and organizations but 11 also all new and emerging forms and combinations of these 12 persons and organizations. 13 (Source: P.A. 80-616.) 14 (745 ILCS 70/4) (from Ch. 111 1/2, par. 5304) 15 Sec. 4. Liability. No physician or health caremedical16 personnel shall be civilly or criminally liable to any 17 person, estate, public or private entity or public official 18 by reason of his or her refusal to perform, assist, counsel, 19 suggest, recommend, refer or participate in any way in any 20 particular form of healthmedicalcare service which is 21 contrary to the conscience of such physician or health care 22medicalpersonnel. 23 (Source: P.A. 80-616.) 24 (745 ILCS 70/5) (from Ch. 111 1/2, par. 5305) 25 Sec. 5. Discrimination. It shall be unlawful for any 26 person, public or private institution, or public official to 27 discriminate against any person in any manner, including but 28 not limited to, licensing, hiring, promotion, transfer, staff 29 appointment, hospital, managed care entity, or any other 30 privileges, because of such person's conscientious refusal to 31 receive, obtain, accept, perform, assist, counsel, suggest, 32 recommend, refer or participate in any way in any particular HB0725 Enrolled -4- LRB9001282DJcd 1 form of health care servicesmedical carecontrary to his or 2 her conscience. 3 (Source: P.A. 80-616.) 4 (745 ILCS 70/6) (from Ch. 111 1/2, par. 5306) 5 Sec. 6. Duty of physicians and other health care 6 personnel. Nothing in this Act shall relieve a physician 7 from any duty, which may exist under any laws concerning 8 current standards, of normal medical practices and 9 procedures, to inform his or her patient of the patient's 10 condition, prognosis and risks, provided, however, that such 11 physician shall be under no duty to perform, assist, counsel, 12 suggest, recommend, refer or participate in any way in any 13 form of medical practice or healthmedicalcare service that 14 is contrary to his or her conscience. 15 Nothing in this Act shall be construed so as to relieve a 16 physician or other health caremedicalpersonnel from 17 obligations under the law of providing emergency medical 18 care. 19 (Source: P.A. 80-616.) 20 (745 ILCS 70/7) (from Ch. 111 1/2, par. 5307) 21 Sec. 7. Discrimination by employers or institutions. It 22 shall be unlawful for any public or private employer, entity, 23 agency, institution, official or person, including but not 24 limited to, a medical, nursing or other medical training 25 institution, to deny admission because of, to place any 26 reference in its application form concerning, to orally 27 question about, to impose any burdens in terms or conditions 28 of employment on, or to otherwise discriminate against, any 29 applicant, in terms of employment, admission to or 30 participation in any programs for which the applicant is 31 eligible, or to discriminate in relation thereto, in any 32 other manner, on account of the applicant's refusal to HB0725 Enrolled -5- LRB9001282DJcd 1 receive, obtain, accept, perform, counsel, suggest, 2 recommend, refer, assist or participate in any way in any 3 forms of healthmedicalcare services contrary to his or her 4 conscience. 5 (Source: P.A. 80-616.) 6 (745 ILCS 70/8) (from Ch. 111 1/2, par. 5308) 7 Sec. 8. Denial of aid or benefits. It shall be unlawful 8 for any public official, guardian, agency, institution or 9 entity to deny any form of aid, assistance or benefits, or to 10 condition the reception in any way of any form of aid, 11 assistance or benefits, or in any other manner to coerce, 12 disqualify or discriminate against any person, otherwise 13 entitled to such aid, assistance or benefits, because that 14 person refuses to obtain, receive, accept, perform, assist, 15 counsel, suggest, recommend, refer or participate in any way 16 in any form of healthmedicalcare services contrary to his 17 or her conscience. 18 (Source: P.A. 80-616.) 19 (745 ILCS 70/9) (from Ch. 111 1/2, par. 5309) 20 Sec. 9. Liability. No person, association, or 21 corporation, which owns, operates, supervises, or manages a 22 health caremedicalfacility shall be civilly or criminally 23 liable to any person, estate, or public or private entity by 24 reason of refusal of the health caresuch medicalfacility to 25 permit or provide any particular form of healthmedicalcare 26 service which violates the facility's conscience as 27 documented in its ethical guidelines, mission statement, 28 constitution, bylaws, articles of incorporation,or29 regulations, or other governing documents. 30 Nothing in this act shall be construed so as to relieve a 31 physician or other health caremedicalpersonnel from 32 obligations under the law of providing emergency medical HB0725 Enrolled -6- LRB9001282DJcd 1 care. 2 (Source: P.A. 80-616.) 3 (745 ILCS 70/10) (from Ch. 111 1/2, par. 5310) 4 Sec. 10. Discrimination against facility. It shall be 5 unlawful for any person, public or private institution or 6 public official to discriminate against any person, 7 association or corporation attempting to establish a new 8 health caremedicalfacility or operating an existing health 9 caremedicalfacility, in any manner, including but not 10 limited to, denial, deprivation or disqualification in 11 licensing, granting of authorizations, aids, assistance, 12 benefits, medical staff or any other privileges, and granting 13 authorization to expand, improve, or create any health care 14medicalfacility, by reason of the refusal of such person, 15 association or corporation planning, proposing or operating a 16 health caremedicalfacility, to permit or perform any 17 particular form of healthmedicalcare service which violates 18 the health care facility's conscience as documented in its 19 existing or proposed ethical guidelines, mission statement, 20 constitution, bylaws, articles of incorporation,or21 regulations, or other governing documents. 22 (Source: P.A. 80-616.) 23 (745 ILCS 70/11) (from Ch. 111 1/2, par. 5311) 24 Sec. 11. Denial of aid or benefit to a facility. It 25 shall be unlawful for any public official, agency, 26 institution or entity to deny any form of aid, assistance, 27 grants or benefits; or in any other manner to coerce, 28 disqualify or discriminate against any person, association or 29 corporation attempting to establish a new health caremedical30 facility or operating an existing health caremedical31 facility which otherwise would be entitled to the aid, 32 assistance, grant or benefit because the existing or proposed HB0725 Enrolled -7- LRB9001282DJcd 1 health caremedicalfacility refuses to perform, assist, 2 counsel, suggest, recommend, refer or participate in any way 3 in any form of healthmedicalcare services contrary to the 4 health care facility's conscience as documented in its 5 existing or proposed ethical guidelines, mission statement, 6 constitution, bylaws, articles of incorporation,or7 regulations, or other governing documents. 8 (Source: P.A. 80-616.) 9 (745 ILCS 70/11.2 new) 10 Sec. 11.2. Liability of health care payer. No health 11 care payer and no person, association, or corporation that 12 owns, operates, supervises, or manages a health care payer 13 shall be civilly or criminally liable to any person, estate, 14 or public or private entity by reason of refusal of the 15 health care payer to pay for or arrange for the payment of 16 any particular form of health care services that violate the 17 health care payer's conscience as documented in its ethical 18 guidelines, mission statement, constitution, bylaws, articles 19 of incorporation, regulations, or other governing documents. 20 (745 ILCS 70/11.3 new) 21 Sec. 11.3. Discrimination against health care payer in 22 licensing. It shall be unlawful for any person, public or 23 private institution, or public official to discriminate 24 against any person, association, or corporation (i) 25 attempting to establish a new health care payer or (ii) 26 operating an existing health care payer, in any manner, 27 including but not limited to, denial, deprivation, or 28 disqualification in licensing; granting of authorizations, 29 aids, assistance, benefits, or any other privileges; and 30 granting authorization to expand, improve, or create any 31 health care payer, because the person, association, or 32 corporation planning, proposing, or operating a health care HB0725 Enrolled -8- LRB9001282DJcd 1 payer refuses to pay for or arrange for the payment of any 2 particular form of health care services that violates the 3 health care payer's conscience as documented in the existing 4 or proposed ethical guidelines, mission statement, 5 constitution, bylaws, articles of incorporation, regulations 6 or other governing documents. 7 (745 ILCS 70/11.4 new) 8 Sec. 11.4. Denial of aid or benefits to health care 9 payer for refusal to participate in certain health care. It 10 shall be unlawful for any public official, agency, 11 institution, or entity to deny any form of aid, assistance, 12 grants, or benefits; or in any other manner to coerce, 13 disqualify, or discriminate against any person, association, 14 or corporation attempting to establish a new health care 15 payer or operating an existing health care payer that 16 otherwise would be entitled to the aid, assistance, grant, or 17 benefit because the existing or proposed health care payer 18 refuses to pay for, arrange for the payment of, or 19 participate in any way in any form of health care services 20 contrary to the health care payer's conscience as documented 21 in its existing or proposed ethical guidelines, mission 22 statement, constitution, bylaws, articles of incorporation, 23 regulations, or other governing documents. 24 (745 ILCS 70/12) (from Ch. 111 1/2, par. 5312) 25 Sec. 12. Actions; damages. Any person, association, 26 corporation, entity or health caremedicalfacility injured 27 by any public or private person, association, agency, entity 28 or corporation by reason of any action prohibited by this 29 Act, as now or hereafter amended,may commence a suit 30 therefor, and shall recover threefold the actual damages, 31 including pain and suffering, sustained by such person, 32 association, corporation, entity or health caremedicalHB0725 Enrolled -9- LRB9001282DJcd 1 facility, the costs of the suit and reasonable attorney's 2 fees; but in no case shall recovery be less than $2,500 for 3 each violation in addition to costs of the suit and 4 reasonable attorney's fees. These damage remedies shall be 5 cumulative, and not exclusive of other remedies afforded 6 under any other state or federal law. 7 (Source: P.A. 80-616.) 8 (745 ILCS 70/13) (from Ch. 111 1/2, par. 5313) 9 Sec. 13. Liability for refusal to provide certain health 10 care. Nothing in this Act shall be construed as excusing any 11 person, public or private institution, or public official 12 from liability for refusal to permit or provide a particular 13 form of healthmedicalcare service if: 14 (a) the person, public or private institution or public 15 official has entered into a contract specifically to provide 16 that particular form of healthmedicalcare service; or 17 (b) the person, public or private institution or public 18 official has accepted federal or state funds for the sole 19 purpose of, and specifically conditioned upon, permitting or 20 providing that particular form of healthmedicalcare 21 service. 22 (Source: P.A. 80-616.) 23 (745 ILCS 70/14) (from Ch. 111 1/2, par. 5314) 24 Sec. 14. Supersedes other Acts. This Act shall 25 supersede all other Acts or parts of Acts to the extent that 26 anysuch priorActs or parts of Acts are inconsistent with 27 the terms or operation of this Act. 28 (Source: P.A. 80-616.) 29 Section 10. The Health Care Surrogate Act is amended by 30 changing Sections 5, 10, 15, 20, and 25 as follows: HB0725 Enrolled -10- LRB9001282DJcd 1 (755 ILCS 40/5) (from Ch. 110 1/2, par. 851-5) 2 Sec. 5. Legislative findings and purposes. 3 (a) Findings. 4 The legislature recognizes that all persons have a 5 fundamental right to make decisions relating to their own 6 medical treatment, including the right to forgo 7 life-sustaining treatment. 8 Lack of decisional capacity, alone, should not prevent 9 decisions to forgo life-sustaining treatment from being made 10 on behalf of persons who lack decisional capacity and have no 11 known applicable living will or power of attorney for health 12 care. 13 Uncertainty and lack of clarity in the law concerning the 14 making of private decisions concerning medical treatment and 15 to forgo life-sustaining treatment, without judicial 16 involvement, causes unnecessary emotional distress to the 17 individuals involved and unduly impedes upon the individual 18 right to forgo life-sustaining treatment. 19 The enactment of statutory guidelines for private 20 decision making will bring improved clarity and certainty to 21 the process for implementing decisions concerning medical 22 treatment and to forgo life-sustaining treatment and will 23 substantially reduce the associated emotional distress for 24 involved parties. 25 (b) Purposes. 26 This Act is intended to define the circumstances under 27 which private decisions by patients with decisional capacity 28 and by surrogate decision makers on behalf of patients 29 lacking decisional capacity to make medical treatment 30 decisions or to terminate life-sustaining treatment may be 31 made without judicial involvement of any kind. 32 This Act is intended to establish a process for that 33 private decision making. 34 This Act is intended to clarify the rights and HB0725 Enrolled -11- LRB9001282DJcd 1 obligations of those involved in these private decisions by 2 or on behalf of patients. 3 This Act is not intended to condone, authorize, or 4 approve mercy killing or assisted suicide. 5 (Source: P.A. 87-749) 6 (755 ILCS 40/10) (from Ch. 110 1/2, par. 851-10) 7 Sec. 10. Definitions. 8 "Adult" means a person who is (i) 18 years of age or 9 older or (ii) an emancipated minor under the Emancipation of 10 Mature Minors Act. 11 "Artificial nutrition and hydration" means supplying food 12 and water through a conduit, such as a tube or intravenous 13 line, where the recipient is not required to chew or swallow 14 voluntarily, including, but not limited to, nasogastric 15 tubes, gastrostomies, jejunostomies, and intravenous 16 infusions. Artificial nutrition and hydration does not 17 include assisted feeding, such as spoon or bottle feeding. 18 "Available" means that a person is not "unavailable". A 19 person is unavailable if (i) the person's existence is not 20 known, (ii) the person has not been able to be contacted by 21 telephone or mail, or (iii) the person lacks decisional 22 capacity, refuses to accept the office of surrogate, or is 23 unwilling to respond in a manner that indicates a choice 24 among the life-sustaining treatment matters at issue. 25 "Attending physician" means the physician selected by or 26 assigned to the patient who has primary responsibility for 27 treatment and care of the patient and who is a licensed 28 physician in Illinois. If more than one physician shares 29 that responsibility, any of those physicians may act as the 30 attending physician under this Act. 31 "Close friend" means any person 18 years of age or older 32 who has exhibited special care and concern for the patient 33 and who presents an affidavit to the attending physician HB0725 Enrolled -12- LRB9001282DJcd 1 stating that he or she (i) is a close friend of the patient, 2 (ii) is willing and able to become involved in the patient's 3 health care, and (iii) has maintained such regular contact 4 with the patient as to be familiar with the patient's 5 activities, health, and religious and moral beliefs. The 6 affidavit must also state facts and circumstances that 7 demonstrate that familiarity. 8 "Death" means when, according to accepted medical 9 standards, there is (i) an irreversible cessation of 10 circulatory and respiratory functions or (ii) an irreversible 11 cessation of all functions of the entire brain, including the 12 brain stem. 13 "Decisional capacity" means the ability to understand and 14 appreciate the nature and consequences of a decision 15 regarding medical treatment or forgoing life-sustaining 16 treatment and the ability to reach and communicate an 17 informed decision in the matter as determined by the 18 attending physician. 19 "Forgo life-sustaining treatment" means to withhold, 20 withdraw, or terminate all or any portion of life-sustaining 21 treatment with knowledge that the patient's death is likely 22 to result. 23 "Guardian" means a court appointed guardian of the person 24 who serves as a representative of a minor or as a 25 representative of a person under legal disability. 26 "Health care facility" means a type of health care 27 provider commonly known by a wide variety of titles, 28 including but not limited to, hospitals, medical centers, 29 nursing homes, rehabilitation centers, long term or tertiary 30 care facilities, and other facilities established to 31 administer health care and provide overnight stays in their 32 ordinary course of business or practice. 33 "Health care provider" means a person that is licensed, 34 certified, or otherwise authorized or permitted by the law of HB0725 Enrolled -13- LRB9001282DJcd 1 this State to administer health care in the ordinary course 2 of business or practice of a profession, including, but not 3 limited to, physicians, nurses, health care facilities, and 4 any employee, officer, director, agent, or person under 5 contract with such a person. 6 "Imminent" (as in "death is imminent") means a 7 determination made by the attending physician according to 8 accepted medical standards that death will occur in a 9 relatively short period of time, even if life-sustaining 10 treatment is initiated or continued. 11 "Life-sustaining treatment" means any medical treatment, 12 procedure, or intervention that, in the judgment of the 13 attending physician, when applied to a patient with a 14 qualifying condition, would not be effective to remove the 15 qualifying condition or would serve only to prolong the dying 16 process. Those procedures can include, but are not limited 17 to, assisted ventilation, renal dialysis, surgical 18 procedures, blood transfusions, and the administration of 19 drugs, antibiotics, and artificial nutrition and hydration. 20 "Minor" means an individual who is not an adult as 21 defined in this Act. 22 "Parent" means a person who is the natural or adoptive 23 mother or father of the child and whose parental rights have 24 not been terminated by a court of law. 25 "Patient" means an adult or minor individual, unless 26 otherwise specified, under the care or treatment of a 27 licensed physician or other health care provider. 28 "Person" means an individual, a corporation, a business 29 trust, a trust, a partnership, an association, a government, 30 a governmental subdivision or agency, or any other legal 31 entity. 32 "Qualifying condition" means the existence of one or more 33 of the following conditions in a patient certified in writing 34 in the patient's medical record by the attending physician HB0725 Enrolled -14- LRB9001282DJcd 1 and by at least one other qualified physician: 2 (1) "Terminal condition" means an illness or injury 3 for which there is no reasonable prospect of cure or 4 recovery, death is imminent, and the application of 5 life-sustaining treatment would only prolong the dying 6 process. 7 (2) "Permanent unconsciousness" means a condition 8 that, to a high degree of medical certainty, (i) will 9 last permanently, without improvement, (ii) in which 10 thought, sensation, purposeful action, social 11 interaction, and awareness of self and environment are 12 absent, and (iii) for which initiating or continuing 13 life-sustaining treatment, in light of the patient's 14 medical condition, provides only minimal medical benefit. 15 (3) "Incurable or irreversible condition" means an 16 illness or injury (i) for which there is no reasonable 17 prospect of cure or recovery, (ii) that ultimately will 18 cause the patient's death even if life-sustaining 19 treatment is initiated or continued, (iii) that imposes 20 severe pain or otherwise imposes an inhumane burden on 21 the patient, and (iv) for which initiating or continuing 22 life-sustaining treatment, in light of the patient's 23 medical condition, provides only minimal medical benefit. 24 The determination that a patient has a qualifying 25 condition creates no presumption regarding the application or 26 non-application of life-sustaining treatment. It is only 27 after a determination by the attending physician that the 28 patient has a qualifying condition that the surrogate 29 decision maker may consider whether or not to forgo 30 life-sustaining treatment. In making this decision, the 31 surrogate shall weigh the burdens on the patient of 32 initiating or continuing life-sustaining treatment against 33 the benefits of that treatment. 34 "Qualified physician" means a physician licensed to HB0725 Enrolled -15- LRB9001282DJcd 1 practice medicine in all of its branches in Illinois who has 2 personally examined the patient. 3 "Surrogate decision maker" means an adult individual or 4 individuals who (i) have decisional capacity, (ii) are 5 available upon reasonable inquiry, (iii) are willing to make 6 medical treatment decisionsregarding the forgoing of7life-sustaining treatmenton behalf of a patient who lacks 8 decisional capacityand is diagnosed as suffering from a9qualifying condition, and (iv) are identified by the 10 attending physician in accordance with the provisions of this 11 Act as the person or persons who are to make those decisions 12 in accordance with the provisions of this Act. 13 (Source: P.A. 87-749; 88-670, eff. 12-2-94.) 14 (755 ILCS 40/15) (from Ch. 110 1/2, par. 851-15) 15 Sec. 15. Applicability. This Act applies to patients 16 who lack decisional capacity or whoandhave a qualifying 17 condition. This Act does not apply to instances in which the 18 patient has an operative and unrevoked living will under the 19 Illinois Living Will Act, an operative and unrevoked 20 declaration for mental health treatment under the Mental 21 Health Treatment Preferences Declaration Act, or an 22 authorized agent under a power of attorney for health care 23 under the Illinois Power of Attorney Act and the patient's 24 condition falls within the coverage of the living will, the 25 declaration for mental health treatment, or the power of 26 attorney for health care. In those instances, the living 27 will, declaration for mental health treatment, or power of 28 attorney for health care, as the case may be, shall be given 29 effect according to its terms. This Act does apply in 30 circumstances in which a patient has a qualifying condition 31 but the patient's condition does not fall within the coverage 32 of the living will, the declaration for mental health 33 treatment, or the power of attorney for health care. HB0725 Enrolled -16- LRB9001282DJcd 1 Each health care facility shall maintain any advance 2 directives proffered by the patient or other authorized 3 person, including a do not resuscitate order, a living will, 4 a declaration for mental health treatment, or a power of 5 attorney for health care, in the patient's medical records 6 for the duration of the patient's stay. This Act doesnot7 apply to patients without a qualifying condition. If a,8unless thepatient is an adult with decisional capacity, then 9in which casethe right to refuse medical treatment or 10 life-sustaining treatment does not require the presence of a 11 qualifying condition. 12 (Source: P.A. 87-749.) 13 (755 ILCS 40/20) (from Ch. 110 1/2, par. 851-20) 14 Sec. 20. Private decision making process. 15 (a) Decisions whether to forgo life-sustaining or any 16 other form of medical treatment involving an adult patient 17 with decisional capacity may be made by that adult patient. 18 (b) Decisions whether to forgo life-sustaining treatment 19 on behalf of a patient without decisional capacity are 20 lawful, without resort to the courts or legal process, if the 21 patient has a qualifying condition and if the decisions are 22 made in accordance with one of the following paragraphs in 23 this subsection and otherwise meet the requirements of this 24 Act: 25 (1) Decisions whether to forgo life-sustaining 26 treatment on behalf of a minor or an adult patient who 27 lacks decisional capacity may be made by a surrogate 28 decision maker or makers in consultation with the 29 attending physician, in the order or priority provided in 30 Section 25. A surrogate decision maker shall make 31 decisions for the adult patient conforming as closely as 32 possible to what the patient would have done or intended 33 under the circumstances, taking into account evidence HB0725 Enrolled -17- LRB9001282DJcd 1 that includes, but is not limited to, the patient's 2 personal, philosophical, religious and moral beliefs and 3 ethical values relative to the purpose of life, sickness, 4 medical procedures, suffering, and death. Where 5 possible, the surrogate shall determine how the patient 6 would have weighed the burdens and benefits of initiating 7 or continuing life-sustaining treatment against the 8 burdens and benefits of that treatment. In the event an 9 unrevoked advance directive, such as a living will, a 10 declaration for mental health treatment, or a power of 11 attorney for health care, is no longer valid due to a 12 technical deficiency or is not applicable to the 13 patient's condition, that document may be used as 14 evidence of a patient's wishes. The absence of a living 15 will, declaration for mental health treatment, or power 16 of attorney for health care shall not give rise to any 17 presumption as to the patient's preferences regarding the 18 initiation or continuation of life-sustaining procedures. 19 If the adult patient's wishes are unknown and remain 20 unknown after reasonable efforts to discern them or if 21 the patient is a minor, the decision shall be made on the 22 basis of the patient's best interests as determined by 23 the surrogate decision maker. In determining the 24 patient's best interests, the surrogate shall weigh the 25 burdens on and benefits to the patient of initiating or 26 continuing life-sustaining treatment against the burdens 27 and benefits of that treatment and shall take into 28 account any other information, including the views of 29 family and friends, that the surrogate decision maker 30 believes the patient would have considered if able to act 31 for herself or himself. 32 (2) Decisions whether to forgo life-sustaining 33 treatment on behalf of a minor or an adult patient who 34 lacks decisional capacity, but without any surrogate HB0725 Enrolled -18- LRB9001282DJcd 1 decision maker or guardian being available determined 2 after reasonable inquiry by the health care provider, may 3 be made by a court appointed guardian. A court appointed 4 guardian shall be treated as a surrogate for the purposes 5 of this Act. 6 (b-5) Decisions concerning medical treatment on behalf 7 of a patient without decisional capacity are lawful, without 8 resort to the courts or legal process, if the patient does 9 not have a qualifying condition and if decisions are made in 10 accordance with one of the following paragraphs in this 11 subsection and otherwise meet the requirements of this Act: 12 (1) Decisions concerning medical treatment on 13 behalf of a minor or adult patient who lacks decisional 14 capacity may be made by a surrogate decision maker or 15 makers in consultation with the attending physician, in 16 the order of priority provided in Section 25 with the 17 exception that decisions to forgo life-sustaining 18 treatment may be made only when a patient has a 19 qualifying condition. A surrogate decision maker shall 20 make decisions for the patient conforming as closely as 21 possible to what the patient would have done or intended 22 under the circumstances, taking into account evidence 23 that includes, but is not limited to, the patient's 24 personal, philosophical, religious, and moral beliefs and 25 ethical values relative to the purpose of life, sickness, 26 medical procedures, suffering, and death. In the event 27 an unrevoked advance directive, such as a living will, a 28 declaration for mental health treatment, or a power of 29 attorney for health care, is no longer valid due to a 30 technical deficiency or is not applicable to the 31 patient's condition, that document may be used as 32 evidence of a patient's wishes. The absence of a living 33 will, declaration for mental health treatment, or power 34 of attorney for health care shall not give rise to any HB0725 Enrolled -19- LRB9001282DJcd 1 presumption as to the patient's preferences regarding any 2 process. If the adult patient's wishes are unknown and 3 remain unknown after reasonable efforts to discern them 4 or if the patient is a minor, the decision shall be made 5 on the basis of the patient's best interests as 6 determined by the surrogate decision maker. In 7 determining the patient's best interests, the surrogate 8 shall weigh the burdens on and benefits to the patient of 9 the treatment against the burdens and benefits of that 10 treatment and shall take into account any other 11 information, including the views of family and friends, 12 that the surrogate decision maker believes the patient 13 would have considered if able to act for herself or 14 himself. 15 (2) Decisions concerning medical treatment on 16 behalf of a minor or adult patient who lacks decisional 17 capacity, but without any surrogate decision maker or 18 guardian being available as determined after reasonable 19 inquiry by the health care provider, may be made by a 20 court appointed guardian. A court appointed guardian 21 shall be treated as a surrogate for the purposes of this 22 Act. 23 (c) For the purposes of this Act, a patient or surrogate 24 decision maker is presumed to have decisional capacity in the 25 absence of actual notice to the contrary without regard to 26 advanced age. With respect to a patient, a diagnosis of 27 mental illness or mental retardation, of itself, is not a bar 28 to a determination of decisional capacity. A determination 29 that an adult patient lacks decisional capacity shall be made 30 by the attending physician to a reasonable degree of medical 31 certainty. The determination shall be in writing in the 32 patient's medical record and shall set forth the attending 33 physician's opinion regarding the cause, nature, and duration 34 of the patient's lack of decisional capacity. Before HB0725 Enrolled -20- LRB9001282DJcd 1 implementation of a decision by a surrogate decision maker to 2 forgo life-sustaining treatment, at least one other qualified 3 physician must concur in the determination that an adult 4 patient lacks decisional capacity. The concurring 5 determination shall be made in writing in the patient's 6 medical record after personal examination of the patient. 7 The attending physician shall inform the patient that it has 8 been determined that the patient lacks decisional capacity 9 and that a surrogate decision maker will be making 10 life-sustaining treatment decisions on behalf of the patient. 11 Moreover, the patient shall be informed of the identity of 12 the surrogate decision maker and any decisions made by that 13 surrogate. If the person identified as the surrogate 14 decision maker is not a court appointed guardian and the 15 patient objects to the statutory surrogate decision maker or 16 any decision made by that surrogate decision maker, then the 17 provisions of this Act shall not apply. 18 (d) A surrogate decision maker acting on behalf of the 19 patient shall express decisions to forgo life-sustaining 20 treatment to the attending physician and one adult witness 21 who is at least 18 years of age. This decision and the 22 substance of any known discussion before making the decision 23 shall be documented by the attending physician in the 24 patient's medical record and signed by the witness. 25 (e) The existence of a qualifying condition shall be 26 documented in writing in the patient's medical record by the 27 attending physician and shall include its cause and nature, 28 if known. The written concurrence of another qualified 29 physician is also required. 30 (f) Once the provisions of this Act are complied with, 31 the attending physician shall thereafter promptly implement 32 the decision to forgo life-sustaining treatment on behalf of 33 the patient unless he or she believes that the surrogate 34 decision maker is not acting in accordance with his or her HB0725 Enrolled -21- LRB9001282DJcd 1 responsibilities under this Act, or is unable to do so for 2 reasons of conscience or other personal views or beliefs. 3 (g) In the event of a patient's death as determined by a 4 physician, all life-sustaining treatment and other medical 5 care is to be terminated, unless the patient is an organ 6 donor, in which case appropriate organ donation treatment may 7 be continued temporarily. 8 (Source: P.A. 87-749.) 9 (755 ILCS 40/25) (from Ch. 110 1/2, par. 851-25) 10 Sec. 25. Surrogate decision making. 11 (a) When a patienthas a qualifying condition andlacks 12 decisional capacity, the health care provider must make a 13 reasonable inquiry as to the availability and authority of a 14 health care agent under the Powers of Attorney for Health 15 Care Law. When no health care agent is authorized and 16 available, the health care provider must make a reasonable 17 inquiry as to the availability of possible surrogates listed 18 in items (1) through (4) of this subsection. The surrogate 19 decision makers, as identified by the attending physician, 20 are then authorized to make decisions as follows: (i) for 21 patients who lack decisional capacity and do not have a 22 qualifying condition, medical treatment decisions may be made 23 in accordance with subsection (b-5) of Section 20; and (ii) 24 for patients who lack decisional capacity and have a 25 qualifying condition, medical treatment decisions including 26 whether to forgo life-sustaining treatment on behalf of the 27 patient may be made without court order or judicial 28 involvement in the following order of priority: 29 (1) the patient's guardian of the person; 30 (2) the patient's spouse; 31 (3) any adult son or daughter of the patient; 32 (4) either parent of the patient; 33 (5) any adult brother or sister of the patient; HB0725 Enrolled -22- LRB9001282DJcd 1 (6) any adult grandchild of the patient; 2 (7) a close friend of the patient; 3 (8) the patient's guardian of the estate. 4 The health care provider shall have the right to rely on 5 any of the above surrogates if the provider believes after 6 reasonable inquiry that neither a health care agent under the 7 Powers of Attorney for Health Care Law nor a surrogate of 8 higher priority is available. 9 Where there are multiple surrogate decision makers at the 10 same priority level in the hierarchy, it shall be the 11 responsibility of those surrogates to make reasonable efforts 12 to reach a consensus as to their decision on behalf of the 13 patient regarding the forgoing of life-sustaining treatment. 14 If 2 or more surrogates who are in the same category and have 15 equal priority indicate to the attending physician that they 16 disagree about the health care matter at issue, a majority of 17 the available persons in that category (or the parent with 18 custodial rights) shall control, unless the minority (or the 19 parent without custodial rights) initiates guardianship 20 proceedings in accordance with the Probate Act of 1975. No 21 health care provider or other person is required to seek 22 appointment of a guardian. 23 (b) After a surrogate has been identified, the name, 24 address, telephone number, and relationship of that person to 25 the patient shall be recorded in the patient's medical 26 record. 27 (c) Any surrogate who becomes unavailable for any reason 28 may be replaced by applying the provisions of Section 25 in 29 the same manner as for the initial choice of surrogate. 30 (d) In the event an individual of a higher priority to 31 an identified surrogate becomes available and willing to be 32 the surrogate, the individual with higher priority may be 33 identified as the surrogate. In the event an individual in a 34 higher, a lower, or the same priority level or a health care HB0725 Enrolled -23- LRB9001282DJcd 1 provider seeks to challenge the priority of or the 2 life-sustaining treatment decision of the recognized 3 surrogate decision maker, the challenging party may initiate 4 guardianship proceedings in accordance with the Probate Act 5 of 1975. 6 (e) The surrogate decision maker shall have the same 7 right as the patient to receive medical information and 8 medical records and to consent to disclosure. 9 (Source: P.A. 87-749.)".