[ Search ] [ Legislation ] [ Bill Summary ]
[ Home ] [ Back ] [ Bottom ]
[ Introduced ] | [ Engrossed ] | [ Enrolled ] |
[ House Amendment 001 ] |
90_HB0725sam001 LRB9001282DJmbam01 1 AMENDMENT TO HOUSE BILL 725 2 AMENDMENT NO. . Amend House Bill 725 by replacing 3 the title with the following: 4 "AN ACT concerning health care, amending named Acts."; 5 and 6 by replacing everything after the enacting clause with the 7 following: 8 "Section 5. The Right of Conscience Act is amended by 9 changing Sections 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 10 and 14 and adding Sections 11.2, 11.3, and 11.4 as follows: 11 (745 ILCS 70/1) (from Ch. 111 1/2, par. 5301) 12 Sec. 1. Short title. This Actshall be known andmay be 13 cited as the Health Care"Right of Conscience Act". 14 (Source: P.A. 80-616.) 15 (745 ILCS 70/2) (from Ch. 111 1/2, par. 5302) 16 Sec. 2. Findings and policy. The General Assembly finds 17 and declares that people and organizations hold different 18 beliefs about whether certain health care services are 19 morally acceptable. It is the public policy of the State of -2- LRB9001282DJmbam01 1 Illinois to respect and protect the right of conscience of 2 all persons who refuse to obtain, receive or accept, or who 3 are engaged in, the delivery of, arrangement for, or payment 4 of health caremedicalservices and medical care whether 5 acting individually, corporately, or in association with 6 other persons; and to prohibit all forms of discrimination, 7 disqualification, coercion, disability or imposition of 8 liability upon such persons or entities by reason of their 9 refusing to act contrary to their conscience or conscientious 10 convictions in refusing to obtain, receive, accept,or11 deliver, pay for, or arrange for the payment of health care 12medicalservices and medical care. 13 (Source: P.A. 80-616.) 14 (745 ILCS 70/3) (from Ch. 111 1/2, par. 5303) 15 Sec. 3. Definitions. As used in this Act, unless the 16 context clearly otherwise requires: 17 (a) "HealthMedicalcare" means any phase of patient 18 care, including but not limited to, testing; diagnosis; 19 prognosis; ancillary research; instructions; family planning, 20 counselling, referrals, or any other advice in connection 21 with the use or procurement of contraceptives and 22 sterilization or abortion procedures; medication; or surgery 23 or other care or treatment rendered by a physician or 24 physicians, nurses, paraprofessionals or health caremedical25 facility, intended for the physical, emotional, and mental 26 well-being of persons; 27 (b) "Physician" means any person whois entitled to28provide medical services or medical care oris licensed by 29 the State of Illinois under the Medical Practice Act of 1987 30to practice medicine in all its branches, whether as intern,31resident, medical trainee, or fully licensed practitioner of32medicine; 33 (c) "Health careMedicalpersonnel" means any nurse, -3- LRB9001282DJmbam01 1 nurses' aideaid, medical school student, professional, 2 paraprofessional or any other person who furnishes, or 3 assists in the furnishing of, health caremedical care4 services; 5 (d) "Health careMedicalfacility" means any public or 6 private hospital, clinic, center, medical school, medical 7 training institution, laboratory or diagnostichealth care8 facility, physician's office, infirmary, dispensary, 9 ambulatory surgical treatment center or other institution or 10 location wherein health care services aremedical care is11 provided to any person, including physician organizations and 12 associations, networks, joint ventures, and all other 13 combinations of those organizations;and14 (e) "Conscience" means a sincerely held set of moral 15 convictions arising from belief in and relation to God, or 16 which, though not so derived, arisesobtainsfrom a place in 17 the life of its possessor parallel to that filled by God 18 among adherents to religious faiths; and.19 (f) "Health care payer" means a health maintenance 20 organization, insurance company, management services 21 organization, or any other entity that pays for or arranges 22 for the payment of any health care or medical care service, 23 procedure, or product. 24 The above definitions include not only the traditional 25 combinations and forms of these persons and organizations but 26 also all new and emerging forms and combinations of these 27 persons and organizations. 28 (Source: P.A. 80-616.) 29 (745 ILCS 70/4) (from Ch. 111 1/2, par. 5304) 30 Sec. 4. Liability. No physician or health caremedical31 personnel shall be civilly or criminally liable to any 32 person, estate, public or private entity or public official 33 by reason of his or her refusal to perform, assist, counsel, -4- LRB9001282DJmbam01 1 suggest, recommend, refer or participate in any way in any 2 particular form of healthmedicalcare service which is 3 contrary to the conscience of such physician or health care 4medicalpersonnel. 5 (Source: P.A. 80-616.) 6 (745 ILCS 70/5) (from Ch. 111 1/2, par. 5305) 7 Sec. 5. Discrimination. It shall be unlawful for any 8 person, public or private institution, or public official to 9 discriminate against any person in any manner, including but 10 not limited to, licensing, hiring, promotion, transfer, staff 11 appointment, hospital, managed care entity, or any other 12 privileges, because of such person's conscientious refusal to 13 receive, obtain, accept, perform, assist, counsel, suggest, 14 recommend, refer or participate in any way in any particular 15 form of health care servicesmedical carecontrary to his or 16 her conscience. 17 (Source: P.A. 80-616.) 18 (745 ILCS 70/6) (from Ch. 111 1/2, par. 5306) 19 Sec. 6. Duty of physicians and other health care 20 personnel. Nothing in this Act shall relieve a physician 21 from any duty, which may exist under any laws concerning 22 current standards, of normal medical practices and 23 procedures, to inform his or her patient of the patient's 24 condition, prognosis and risks, provided, however, that such 25 physician shall be under no duty to perform, assist, counsel, 26 suggest, recommend, refer or participate in any way in any 27 form of medical practice or healthmedicalcare service that 28 is contrary to his or her conscience. 29 Nothing in this Act shall be construed so as to relieve a 30 physician or other health caremedicalpersonnel from 31 obligations under the law of providing emergency medical 32 care. -5- LRB9001282DJmbam01 1 (Source: P.A. 80-616.) 2 (745 ILCS 70/7) (from Ch. 111 1/2, par. 5307) 3 Sec. 7. Discrimination by employers or institutions. It 4 shall be unlawful for any public or private employer, entity, 5 agency, institution, official or person, including but not 6 limited to, a medical, nursing or other medical training 7 institution, to deny admission because of, to place any 8 reference in its application form concerning, to orally 9 question about, to impose any burdens in terms or conditions 10 of employment on, or to otherwise discriminate against, any 11 applicant, in terms of employment, admission to or 12 participation in any programs for which the applicant is 13 eligible, or to discriminate in relation thereto, in any 14 other manner, on account of the applicant's refusal to 15 receive, obtain, accept, perform, counsel, suggest, 16 recommend, refer, assist or participate in any way in any 17 forms of healthmedicalcare services contrary to his or her 18 conscience. 19 (Source: P.A. 80-616.) 20 (745 ILCS 70/8) (from Ch. 111 1/2, par. 5308) 21 Sec. 8. Denial of aid or benefits. It shall be unlawful 22 for any public official, guardian, agency, institution or 23 entity to deny any form of aid, assistance or benefits, or to 24 condition the reception in any way of any form of aid, 25 assistance or benefits, or in any other manner to coerce, 26 disqualify or discriminate against any person, otherwise 27 entitled to such aid, assistance or benefits, because that 28 person refuses to obtain, receive, accept, perform, assist, 29 counsel, suggest, recommend, refer or participate in any way 30 in any form of healthmedicalcare services contrary to his 31 or her conscience. 32 (Source: P.A. 80-616.) -6- LRB9001282DJmbam01 1 (745 ILCS 70/9) (from Ch. 111 1/2, par. 5309) 2 Sec. 9. Liability. No person, association, or 3 corporation, which owns, operates, supervises, or manages a 4 health caremedicalfacility shall be civilly or criminally 5 liable to any person, estate, or public or private entity by 6 reason of refusal of the health caresuch medicalfacility to 7 permit or provide any particular form of healthmedicalcare 8 service which violates the facility's conscience as 9 documented in its ethical guidelines, mission statement, 10 constitution, by-laws, articles of incorporation,or11 regulations, or other governing documents. 12 Nothing in this act shall be construed so as to relieve a 13 physician or other health caremedicalpersonnel from 14 obligations under the law of providing emergency medical 15 care. 16 (Source: P.A. 80-616.) 17 (745 ILCS 70/10) (from Ch. 111 1/2, par. 5310) 18 Sec. 10. Discrimination against facility. It shall be 19 unlawful for any person, public or private institution or 20 public official to discriminate against any person, 21 association or corporation attempting to establish a new 22 health caremedicalfacility or operating an existing health 23 caremedicalfacility, in any manner, including but not 24 limited to, denial, deprivation or disqualification in 25 licensing, granting of authorizations, aids, assistance, 26 benefits, medical staff or any other privileges, and granting 27 authorization to expand, improve, or create any health care 28medicalfacility, by reason of the refusal of such person, 29 association or corporation planning, proposing or operating a 30 health caremedicalfacility, to permit or perform any 31 particular form of healthmedicalcare service which violates 32 the health care facility's conscience as documented in its 33 existing or proposed ethical guidelines, mission statement, -7- LRB9001282DJmbam01 1 constitution, by-laws, articles of incorporation,or2 regulations, or other governing documents. 3 (Source: P.A. 80-616.) 4 (745 ILCS 70/11) (from Ch. 111 1/2, par. 5311) 5 Sec. 11. Denial of aid or benefit to a facility. It 6 shall be unlawful for any public official, agency, 7 institution or entity to deny any form of aid, assistance, 8 grants or benefits; or in any other manner to coerce, 9 disqualify or discriminate against any person, association or 10 corporation attempting to establish a new health caremedical11 facility or operating an existing health caremedical12 facility which otherwise would be entitled to the aid, 13 assistance, grant or benefit because the existing or proposed 14 health caremedicalfacility refuses to perform, assist, 15 counsel, suggest, recommend, refer or participate in any way 16 in any form of healthmedicalcare services contrary to the 17 health care facility's conscience as documented in its 18 existing or proposed ethical guidelines, mission statement, 19 constitution, by-laws, articles of incorporation,or20 regulations, or other governing documents. 21 (Source: P.A. 80-616.) 22 (745 ILCS 70/11.2 new) 23 Sec. 11.2. Liability of health care payer. No health 24 care payer and no person, association, or corporation that 25 owns, operates, supervises, or manages a health care payer 26 shall be civilly or criminally liable to any person, estate, 27 or public or private entity by reason of refusal of the 28 health care payer to pay for or arrange for the payment of 29 any particular form of health care services that violate the 30 health care payer's conscience as documented in its ethical 31 guidelines, mission statement, constitution, by-laws, 32 articles of incorporation, regulations, or other governing -8- LRB9001282DJmbam01 1 documents. 2 (745 ILCS 70/11.3 new) 3 Sec. 11.3. Discrimination against health care payer in 4 licensing. It shall be unlawful for any person, public or 5 private institution, or public official to discriminate 6 against any person, association, or corporation (i) 7 attempting to establish a new health care payer or (ii) 8 operating an existing health care payer, in any manner, 9 including but not limited to, denial, deprivation, or 10 disqualification in licensing; granting of authorizations, 11 aids, assistance, benefits, or any other privileges; and 12 granting authorization to expand, improve, or create any 13 health care payer, because the person, association, or 14 corporation planning, proposing, or operating a health care 15 payer refuses to pay for or arrange for the payment of any 16 particular form of health care services that violates the 17 health care payer's conscience as documented in the existing 18 or proposed ethical guidelines, mission statement, 19 constitution, by-laws, articles of incorporation, regulations 20 or other governing documents. 21 (745 ILCS 70/11.4 new) 22 Sec. 11.4. Denial of aid or benefits to health care 23 payer for refusal to participate in certain health care. It 24 shall be unlawful for any public official, agency, 25 institution, or entity to deny any form of aid, assistance, 26 grants, or benefits; or in any other manner to coerce, 27 disqualify, or discriminate against any person, association, 28 or corporation attempting to establish a new health care 29 payer or operating an existing health care payer that 30 otherwise would be entitled to the aid, assistance, grant, or 31 benefit because the existing or proposed health care payer 32 refuses to pay for, arrange for the payment of, or -9- LRB9001282DJmbam01 1 participate in any way in any form of health care services 2 contrary to the health care payer's conscience as documented 3 in its existing or proposed ethical guidelines, mission 4 statement, constitution, by-laws, articles of incorporation, 5 regulations, or other governing documents. 6 (745 ILCS 70/12) (from Ch. 111 1/2, par. 5312) 7 Sec. 12. Actions; damages. Any person, association, 8 corporation, entity or health caremedicalfacility injured 9 by any public or private person, association, agency, entity 10 or corporation by reason of any action prohibited by this 11 Act, as now or hereafter amended,may commence a suit 12 therefor, and shall recover threefold the actual damages, 13 including pain and suffering, sustained by such person, 14 association, corporation, entity or health caremedical15 facility, the costs of the suit and reasonable attorney's 16 fees; but in no case shall recovery be less than $2,500 for 17 each violation in addition to costs of the suit and 18 reasonable attorney's fees. These damage remedies shall be 19 cumulative, and not exclusive of other remedies afforded 20 under any other state or federal law. 21 (Source: P.A. 80-616.) 22 (745 ILCS 70/13) (from Ch. 111 1/2, par. 5313) 23 Sec. 13. Liability for refusal to provide certain health 24 care. Nothing in this Act shall be construed as excusing any 25 person, public or private institution, or public official 26 from liability for refusal to permit or provide a particular 27 form of healthmedicalcare service if: 28 (a) the person, public or private institution or public 29 official has entered into a contract specifically to provide 30 that particular form of healthmedicalcare service; or 31 (b) the person, public or private institution or public 32 official has accepted federal or state funds for the sole -10- LRB9001282DJmbam01 1 purpose of, and specifically conditioned upon, permitting or 2 providing that particular form of healthmedicalcare 3 service. 4 (Source: P.A. 80-616.) 5 (745 ILCS 70/14) (from Ch. 111 1/2, par. 5314) 6 Sec. 14. Supersedes other Acts. This Act shall 7 supersede all other Acts or parts of Acts to the extent that 8 anysuch priorActs or parts of Acts are inconsistent with 9 the terms or operation of this Act. 10 (Source: P.A. 80-616.) 11 Section 10. The Health Care Surrogate Act is amended by 12 changing Sections 5, 10, 15, 20, and 25 as follows: 13 (755 ILCS 40/5) (from Ch. 110 1/2, par. 851-5) 14 Sec. 5. Legislative findings and purposes. 15 (a) Findings. 16 The legislature recognizes that all persons have a 17 fundamental right to make decisions relating to their own 18 medical treatment, including the right to forgo 19 life-sustaining treatment. 20 Lack of decisional capacity, alone, should not prevent 21 decisions to forgo life-sustaining treatment from being made 22 on behalf of persons who lack decisional capacity and have no 23 known applicable living will or power of attorney for health 24 care. 25 Uncertainty and lack of clarity in the law concerning the 26 making of private decisions concerning medical treatment and 27 to forgo life-sustaining treatment, without judicial 28 involvement, causes unnecessary emotional distress to the 29 individuals involved and unduly impedes upon the individual 30 right to forgo life-sustaining treatment. 31 The enactment of statutory guidelines for private -11- LRB9001282DJmbam01 1 decision making will bring improved clarity and certainty to 2 the process for implementing decisions concerning medical 3 treatment and to forgo life-sustaining treatment and will 4 substantially reduce the associated emotional distress for 5 involved parties. 6 (b) Purposes. 7 This Act is intended to define the circumstances under 8 which private decisions by patients with decisional capacity 9 and by surrogate decision makers on behalf of patients 10 lacking decisional capacity to make medical treatment 11 decisions or to terminate life-sustaining treatment may be 12 made without judicial involvement of any kind. 13 This Act is intended to establish a process for that 14 private decision making. 15 This Act is intended to clarify the rights and 16 obligations of those involved in these private decisions by 17 or on behalf of patients. 18 This Act is not intended to condone, authorize, or 19 approve mercy killing or assisted suicide. 20 (Source: P.A. 87-749) 21 (755 ILCS 40/10) (from Ch. 110 1/2, par. 851-10) 22 Sec. 10. Definitions. 23 "Adult" means a person who is (i) 18 years of age or 24 older or (ii) an emancipated minor under the Emancipation of 25 Mature Minors Act. 26 "Artificial nutrition and hydration" means supplying food 27 and water through a conduit, such as a tube or intravenous 28 line, where the recipient is not required to chew or swallow 29 voluntarily, including, but not limited to, nasogastric 30 tubes, gastrostomies, jejunostomies, and intravenous 31 infusions. Artificial nutrition and hydration does not 32 include assisted feeding, such as spoon or bottle feeding. 33 "Available" means that a person is not "unavailable". A -12- LRB9001282DJmbam01 1 person is unavailable if (i) the person's existence is not 2 known, (ii) the person has not been able to be contacted by 3 telephone or mail, or (iii) the person lacks decisional 4 capacity, refuses to accept the office of surrogate, or is 5 unwilling to respond in a manner that indicates a choice 6 among the life-sustaining treatment matters at issue. 7 "Attending physician" means the physician selected by or 8 assigned to the patient who has primary responsibility for 9 treatment and care of the patient and who is a licensed 10 physician in Illinois. If more than one physician shares 11 that responsibility, any of those physicians may act as the 12 attending physician under this Act. 13 "Close friend" means any person 18 years of age or older 14 who has exhibited special care and concern for the patient 15 and who presents an affidavit to the attending physician 16 stating that he or she (i) is a close friend of the patient, 17 (ii) is willing and able to become involved in the patient's 18 health care, and (iii) has maintained such regular contact 19 with the patient as to be familiar with the patient's 20 activities, health, and religious and moral beliefs. The 21 affidavit must also state facts and circumstances that 22 demonstrate that familiarity. 23 "Death" means when, according to accepted medical 24 standards, there is (i) an irreversible cessation of 25 circulatory and respiratory functions or (ii) an irreversible 26 cessation of all functions of the entire brain, including the 27 brain stem. 28 "Decisional capacity" means the ability to understand and 29 appreciate the nature and consequences of a decision 30 regarding medical treatment or forgoing life-sustaining 31 treatment and the ability to reach and communicate an 32 informed decision in the matter as determined by the 33 attending physician. 34 "Forgo life-sustaining treatment" means to withhold, -13- LRB9001282DJmbam01 1 withdraw, or terminate all or any portion of life-sustaining 2 treatment with knowledge that the patient's death is likely 3 to result. 4 "Guardian" means a court appointed guardian of the person 5 who serves as a representative of a minor or as a 6 representative of a person under legal disability. 7 "Health care facility" means a type of health care 8 provider commonly known by a wide variety of titles, 9 including but not limited to, hospitals, medical centers, 10 nursing homes, rehabilitation centers, long term or tertiary 11 care facilities, and other facilities established to 12 administer health care and provide overnight stays in their 13 ordinary course of business or practice. 14 "Health care provider" means a person that is licensed, 15 certified, or otherwise authorized or permitted by the law of 16 this State to administer health care in the ordinary course 17 of business or practice of a profession, including, but not 18 limited to, physicians, nurses, health care facilities, and 19 any employee, officer, director, agent, or person under 20 contract with such a person. 21 "Imminent" (as in "death is imminent") means a 22 determination made by the attending physician according to 23 accepted medical standards that death will occur in a 24 relatively short period of time, even if life-sustaining 25 treatment is initiated or continued. 26 "Life-sustaining treatment" means any medical treatment, 27 procedure, or intervention that, in the judgment of the 28 attending physician, when applied to a patient with a 29 qualifying condition, would not be effective to remove the 30 qualifying condition or would serve only to prolong the dying 31 process. Those procedures can include, but are not limited 32 to, assisted ventilation, renal dialysis, surgical 33 procedures, blood transfusions, and the administration of 34 drugs, antibiotics, and artificial nutrition and hydration. -14- LRB9001282DJmbam01 1 "Minor" means an individual who is not an adult as 2 defined in this Act. 3 "Parent" means a person who is the natural or adoptive 4 mother or father of the child and whose parental rights have 5 not been terminated by a court of law. 6 "Patient" means an adult or minor individual, unless 7 otherwise specified, under the care or treatment of a 8 licensed physician or other health care provider. 9 "Person" means an individual, a corporation, a business 10 trust, a trust, a partnership, an association, a government, 11 a governmental subdivision or agency, or any other legal 12 entity. 13 "Qualifying condition" means the existence of one or more 14 of the following conditions in a patient certified in writing 15 in the patient's medical record by the attending physician 16 and by at least one other qualified physician: 17 (1) "Terminal condition" means an illness or injury 18 for which there is no reasonable prospect of cure or 19 recovery, death is imminent, and the application of 20 life-sustaining treatment would only prolong the dying 21 process. 22 (2) "Permanent unconsciousness" means a condition 23 that, to a high degree of medical certainty, (i) will 24 last permanently, without improvement, (ii) in which 25 thought, sensation, purposeful action, social 26 interaction, and awareness of self and environment are 27 absent, and (iii) for which initiating or continuing 28 life-sustaining treatment, in light of the patient's 29 medical condition, provides only minimal medical benefit. 30 (3) "Incurable or irreversible condition" means an 31 illness or injury (i) for which there is no reasonable 32 prospect of cure or recovery, (ii) that ultimately will 33 cause the patient's death even if life-sustaining 34 treatment is initiated or continued, (iii) that imposes -15- LRB9001282DJmbam01 1 severe pain or otherwise imposes an inhumane burden on 2 the patient, and (iv) for which initiating or continuing 3 life-sustaining treatment, in light of the patient's 4 medical condition, provides only minimal medical benefit. 5 The determination that a patient has a qualifying 6 condition creates no presumption regarding the application or 7 non-application of life-sustaining treatment. It is only 8 after a determination by the attending physician that the 9 patient has a qualifying condition that the surrogate 10 decision maker may consider whether or not to forgo 11 life-sustaining treatment. In making this decision, the 12 surrogate shall weigh the burdens on the patient of 13 initiating or continuing life-sustaining treatment against 14 the benefits of that treatment. 15 "Qualified physician" means a physician licensed to 16 practice medicine in all of its branches in Illinois who has 17 personally examined the patient. 18 "Surrogate decision maker" means an adult individual or 19 individuals who (i) have decisional capacity, (ii) are 20 available upon reasonable inquiry, (iii) are willing to make 21 medical treatment decisionsregarding the forgoing of22life-sustaining treatmenton behalf of a patient who lacks 23 decisional capacityand is diagnosed as suffering from a24qualifying condition, and (iv) are identified by the 25 attending physician in accordance with the provisions of this 26 Act as the person or persons who are to make those decisions 27 in accordance with the provisions of this Act. 28 (Source: P.A. 87-749; 88-670, eff. 12-2-94.) 29 (755 ILCS 40/15) (from Ch. 110 1/2, par. 851-15) 30 Sec. 15. Applicability. This Act applies to patients 31 who lack decisional capacity or whoandhave a qualifying 32 condition. This Act does not apply to instances in which the 33 patient has an operative and unrevoked living will under the -16- LRB9001282DJmbam01 1 Illinois Living Will Act, an operative and unrevoked 2 declaration for mental health treatment under the Mental 3 Health Treatment Preferences Declaration Act, or an 4 authorized agent under a power of attorney for health care 5 under the Illinois Power of Attorney Act and the patient's 6 condition falls within the coverage of the living will, the 7 declaration for mental health treatment, or the power of 8 attorney for health care. In those instances, the living 9 will, declaration for mental health treatment, or power of 10 attorney for health care, as the case may be, shall be given 11 effect according to its terms. This Act does apply in 12 circumstances in which a patient has a qualifying condition 13 but the patient's condition does not fall within the coverage 14 of the living will, the declaration for mental health 15 treatment, or the power of attorney for health care. 16 Each health care facility shall maintain any advance 17 directives proffered by the patient or other authorized 18 person, including a do not resuscitate order, a living will, 19 a declaration for mental health treatment, or a power of 20 attorney for health care, in the patient's medical records 21 for the duration of the patient's stay. This Act doesnot22 apply to patients without a qualifying condition. If a,23unless thepatient is an adult with decisional capacity, then 24in which casethe right to refuse medical treatment or 25 life-sustaining treatment does not require the presence of a 26 qualifying condition. 27 (Source: P.A. 87-749.) 28 (755 ILCS 40/20) (from Ch. 110 1/2, par. 851-20) 29 Sec. 20. Private decision making process. 30 (a) Decisions whether to forgo life-sustaining or any 31 other form of medical treatment involving an adult patient 32 with decisional capacity may be made by that adult patient. 33 (b) Decisions whether to forgo life-sustaining treatment -17- LRB9001282DJmbam01 1 on behalf of a patient without decisional capacity are 2 lawful, without resort to the courts or legal process, if the 3 patient has a qualifying condition and if the decisions are 4 made in accordance with one of the following paragraphs in 5 this subsection and otherwise meet the requirements of this 6 Act: 7 (1) Decisions whether to forgo life-sustaining 8 treatment on behalf of a minor or an adult patient who 9 lacks decisional capacity may be made by a surrogate 10 decision maker or makers in consultation with the 11 attending physician, in the order or priority provided in 12 Section 25. A surrogate decision maker shall make 13 decisions for the adult patient conforming as closely as 14 possible to what the patient would have done or intended 15 under the circumstances, taking into account evidence 16 that includes, but is not limited to, the patient's 17 personal, philosophical, religious and moral beliefs and 18 ethical values relative to the purpose of life, sickness, 19 medical procedures, suffering, and death. Where 20 possible, the surrogate shall determine how the patient 21 would have weighed the burdens and benefits of initiating 22 or continuing life-sustaining treatment against the 23 burdens and benefits of that treatment. In the event an 24 unrevoked advance directive, such as a living will, a 25 declaration for mental health treatment, or a power of 26 attorney for health care, is no longer valid due to a 27 technical deficiency or is not applicable to the 28 patient's condition, that document may be used as 29 evidence of a patient's wishes. The absence of a living 30 will, declaration for mental health treatment, or power 31 of attorney for health care shall not give rise to any 32 presumption as to the patient's preferences regarding the 33 initiation or continuation of life-sustaining procedures. 34 If the adult patient's wishes are unknown and remain -18- LRB9001282DJmbam01 1 unknown after reasonable efforts to discern them or if 2 the patient is a minor, the decision shall be made on the 3 basis of the patient's best interests as determined by 4 the surrogate decision maker. In determining the 5 patient's best interests, the surrogate shall weigh the 6 burdens on and benefits to the patient of initiating or 7 continuing life-sustaining treatment against the burdens 8 and benefits of that treatment and shall take into 9 account any other information, including the views of 10 family and friends, that the surrogate decision maker 11 believes the patient would have considered if able to act 12 for herself or himself. 13 (2) Decisions whether to forgo life-sustaining 14 treatment on behalf of a minor or an adult patient who 15 lacks decisional capacity, but without any surrogate 16 decision maker or guardian being available determined 17 after reasonable inquiry by the health care provider, may 18 be made by a court appointed guardian. A court appointed 19 guardian shall be treated as a surrogate for the purposes 20 of this Act. 21 (b-5) Decisions concerning medical treatment on behalf 22 of a patient without decisional capacity are lawful, without 23 resort to the courts or legal process, if the patient does 24 not have a qualifying condition and if decisions are made in 25 accordance with one of the following paragraphs in this 26 subsection and otherwise meet the requirements of this Act: 27 (1) Decisions concerning medical treatment on 28 behalf of a minor or adult patient who lacks decisional 29 capacity may be made by a surrogate decision maker or 30 makers in consultation with the attending physician, in 31 the order of priority provided in Section 25 with the 32 exception that decisions to forgo life-sustaining 33 treatment may be made only when a patient has a 34 qualifying condition. A surrogate decision maker shall -19- LRB9001282DJmbam01 1 make decisions for the patient conforming as closely as 2 possible to what the patient would have done or intended 3 under the circumstances, taking into account evidence 4 that includes, but is not limited to, the patient's 5 personal, philosophical, religious, and moral beliefs and 6 ethical values relative to the purpose of life, sickness, 7 medical procedures, suffering, and death. In the event 8 an unrevoked advance directive, such as a living will, a 9 declaration for mental health treatment, or a power of 10 attorney for health care, is no longer valid due to a 11 technical deficiency or is not applicable to the 12 patient's condition, that document may be used as 13 evidence of a patient's wishes. The absence of a living 14 will, declaration for mental health treatment, or power 15 of attorney for health care shall not give rise to any 16 presumption as to the patient's preferences regarding any 17 process. If the adult patient's wishes are unknown and 18 remain unknown after reasonable efforts to discern them 19 or if the patient is a minor, the decision shall be made 20 on the basis of the patient's best interests as 21 determined by the surrogate decision maker. In 22 determining the patient's best interests, the surrogate 23 shall weigh the burdens on and benefits to the patient of 24 the treatment against the burdens and benefits of that 25 treatment and shall take into account any other 26 information, including the views of family and friends, 27 that the surrogate decision maker believes the patient 28 would have considered if able to act for herself or 29 himself. 30 (2) Decisions concerning medical treatment on 31 behalf of a minor or adult patient who lacks decisional 32 capacity, but without any surrogate decision maker or 33 guardian being available as determined after reasonable 34 inquiry by the health care provider, may be made by a -20- LRB9001282DJmbam01 1 court appointed guardian. A court appointed guardian 2 shall be treated as a surrogate for the purposes of this 3 Act. 4 (c) For the purposes of this Act, a patient or surrogate 5 decision maker is presumed to have decisional capacity in the 6 absence of actual notice to the contrary without regard to 7 advanced age. With respect to a patient, a diagnosis of 8 mental illness or mental retardation, of itself, is not a bar 9 to a determination of decisional capacity. A determination 10 that an adult patient lacks decisional capacity shall be made 11 by the attending physician to a reasonable degree of medical 12 certainty. The determination shall be in writing in the 13 patient's medical record and shall set forth the attending 14 physician's opinion regarding the cause, nature, and duration 15 of the patient's lack of decisional capacity. Before 16 implementation of a decision by a surrogate decision maker to 17 forgo life-sustaining treatment, at least one other qualified 18 physician must concur in the determination that an adult 19 patient lacks decisional capacity. The concurring 20 determination shall be made in writing in the patient's 21 medical record after personal examination of the patient. 22 The attending physician shall inform the patient that it has 23 been determined that the patient lacks decisional capacity 24 and that a surrogate decision maker will be making 25 life-sustaining treatment decisions on behalf of the patient. 26 Moreover, the patient shall be informed of the identity of 27 the surrogate decision maker and any decisions made by that 28 surrogate. If the person identified as the surrogate 29 decision maker is not a court appointed guardian and the 30 patient objects to the statutory surrogate decision maker or 31 any decision made by that surrogate decision maker, then the 32 provisions of this Act shall not apply. 33 (d) A surrogate decision maker acting on behalf of the 34 patient shall express decisions to forgo life-sustaining -21- LRB9001282DJmbam01 1 treatment to the attending physician and one adult witness 2 who is at least 18 years of age. This decision and the 3 substance of any known discussion before making the decision 4 shall be documented by the attending physician in the 5 patient's medical record and signed by the witness. 6 (e) The existence of a qualifying condition shall be 7 documented in writing in the patient's medical record by the 8 attending physician and shall include its cause and nature, 9 if known. The written concurrence of another qualified 10 physician is also required. 11 (f) Once the provisions of this Act are complied with, 12 the attending physician shall thereafter promptly implement 13 the decision to forgo life-sustaining treatment on behalf of 14 the patient unless he or she believes that the surrogate 15 decision maker is not acting in accordance with his or her 16 responsibilities under this Act, or is unable to do so for 17 reasons of conscience or other personal views or beliefs. 18 (g) In the event of a patient's death as determined by a 19 physician, all life-sustaining treatment and other medical 20 care is to be terminated, unless the patient is an organ 21 donor, in which case appropriate organ donation treatment may 22 be continued temporarily. 23 (Source: P.A. 87-749.) 24 (755 ILCS 40/25) (from Ch. 110 1/2, par. 851-25) 25 Sec. 25. Surrogate decision making. 26 (a) When a patienthas a qualifying condition andlacks 27 decisional capacity, the health care provider must make a 28 reasonable inquiry as to the availability and authority of a 29 health care agent under the Powers of Attorney for Health 30 Care Law. When no health care agent is authorized and 31 available, the health care provider must make a reasonable 32 inquiry as to the availability of possible surrogates listed 33 in items (1) through (4) of this subsection. The surrogate -22- LRB9001282DJmbam01 1 decision makers, as identified by the attending physician, 2 are then authorized to make decisions as follows: (i) for 3 patients who lack decisional capacity and do not have a 4 qualifying condition, medical treatment decisions may be made 5 in accordance with subsection (b-5) of Section 20; and (ii) 6 for patients who lack decisional capacity and have a 7 qualifying condition, medical treatment decisions including 8 whether to forgo life-sustaining treatment on behalf of the 9 patient may be made without court order or judicial 10 involvement in the following order of priority: 11 (1) the patient's guardian of the person; 12 (2) the patient's spouse; 13 (3) any adult son or daughter of the patient; 14 (4) either parent of the patient; 15 (5) any adult brother or sister of the patient; 16 (6) any adult grandchild of the patient; 17 (7) a close friend of the patient; 18 (8) the patient's guardian of the estate. 19 The health care provider shall have the right to rely on 20 any of the above surrogates if the provider believes after 21 reasonable inquiry that neither a health care agent under the 22 Powers of Attorney for Health Care Law nor a surrogate of 23 higher priority is available. 24 Where there are multiple surrogate decision makers at the 25 same priority level in the hierarchy, it shall be the 26 responsibility of those surrogates to make reasonable efforts 27 to reach a consensus as to their decision on behalf of the 28 patient regarding the forgoing of life-sustaining treatment. 29 If 2 or more surrogates who are in the same category and have 30 equal priority indicate to the attending physician that they 31 disagree about the health care matter at issue, a majority of 32 the available persons in that category (or the parent with 33 custodial rights) shall control, unless the minority (or the 34 parent without custodial rights) initiates guardianship -23- LRB9001282DJmbam01 1 proceedings in accordance with the Probate Act of 1975. No 2 health care provider or other person is required to seek 3 appointment of a guardian. 4 (b) After a surrogate has been identified, the name, 5 address, telephone number, and relationship of that person to 6 the patient shall be recorded in the patient's medical 7 record. 8 (c) Any surrogate who becomes unavailable for any reason 9 may be replaced by applying the provisions of Section 25 in 10 the same manner as for the initial choice of surrogate. 11 (d) In the event an individual of a higher priority to 12 an identified surrogate becomes available and willing to be 13 the surrogate, the individual with higher priority may be 14 identified as the surrogate. In the event an individual in a 15 higher, a lower, or the same priority level or a health care 16 provider seeks to challenge the priority of or the 17 life-sustaining treatment decision of the recognized 18 surrogate decision maker, the challenging party may initiate 19 guardianship proceedings in accordance with the Probate Act 20 of 1975. 21 (e) The surrogate decision maker shall have the same 22 right as the patient to receive medical information and 23 medical records and to consent to disclosure. 24 (Source: P.A. 87-749.)".