HR1133 99TH GENERAL ASSEMBLY

HR1133 LRB099 21339 MST 47156 r

HOUSE RESOLUTION

WHEREAS, Peroxisome Biogenesis Disorder - Zellweger Spectrum Disorder ("PBD-ZSD" or simply "PBD") is a rare genetic disorder that affects 1 in 50,000 births within the United States of America; and

WHEREAS, PBD causes life threatening symptoms for most infants and children who have the disease; and

WHEREAS, PBD results in poor muscle tone, hearing loss, vision loss, low bone density, seizures, liver and kidney dysfunction, and developmental delays; and

WHEREAS, PBD causes a mutation in any of the 13 genes termed PEX genes; and

WHEREAS, Max Chapman, born October 17, 2013 and a resident of Bloomington, was diagnosed with PBD at the age of 14 months; with his loving heart, his cheerful disposition, and boundless personality he has inspired countless family members and friends in Central Illinois to spread awareness of this devastating disorder; and

WHEREAS, Max Chapman's parents, Corin and Todd Chapman, and his grandparents, Alan and Kathie Chapman and Greg and Patty Garbe, hope to create awareness for PBD by sharing Max's story through blogging, social media, video, and fundraising events; and

WHEREAS, May 19, 2016 is the inaugural Tee it Up! For the GFPD Golf Outing at Illinois State University's Weibring Golf Club to honor Max Chapman and to raise funds for The Global Foundation for Peroxisomal Disorders (GFPD), in support of their mission to advocate for awareness of PBD and support new avenues for medical research in the development of treatments and cures; therefore, be it

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE NINETY-NINTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we recognize the plight of those fighting Peroxisome Biogenesis Disorder, such as Max Chapman, and its devastating effects; and be it further

RESOLVED, That we urge more awareness be brought to the condition of PBD and the struggle to develop treatments and possibly a cure; and be it further

RESOLVED, That a suitable copy of this resolution be presented to Max Chapman as an expression of our esteem and respect.