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1
HOUSE RESOLUTION

 
2    WHEREAS, Peroxisome Biogenesis Disorder - Zellweger
3Spectrum Disorder ("PBD-ZSD" or simply "PBD") is a rare genetic
4disorder that affects 1 in 50,000 births within the United
5States of America; and
 
6    WHEREAS, PBD causes life threatening symptoms for most
7infants and children who have the disease; and
 
8    WHEREAS, PBD results in poor muscle tone, hearing loss,
9vision loss, low bone density, seizures, liver and kidney
10dysfunction, and developmental delays; and
 
11    WHEREAS, PBD causes a mutation in any of the 13 genes
12termed PEX genes; and
 
13    WHEREAS, Max Chapman, born October 17, 2013 and a resident
14of Bloomington, was diagnosed with PBD at the age of 14 months;
15with his loving heart, his cheerful disposition, and boundless
16personality he has inspired countless family members and
17friends in Central Illinois to spread awareness of this
18devastating disorder; and
 
19    WHEREAS, Max Chapman's parents, Corin and Todd Chapman, and
20his grandparents, Alan and Kathie Chapman and Greg and Patty

 

 

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1Garbe, hope to create awareness for PBD by sharing Max's story
2through blogging, social media, video, and fundraising events;
3and
 
4    WHEREAS, May 19, 2016 is the inaugural Tee it Up! For the
5GFPD Golf Outing at Illinois State University's Weibring Golf
6Club to honor Max Chapman and to raise funds for The Global
7Foundation for Peroxisomal Disorders (GFPD), in support of
8their mission to advocate for awareness of PBD and support new
9avenues for medical research in the development of treatments
10and cures; therefore, be it
 
11    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE
12NINETY-NINTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we
13recognize the plight of those fighting Peroxisome Biogenesis
14Disorder, such as Max Chapman, and its devastating effects; and
15be it further
 
16    RESOLVED, That we urge more awareness be brought to the
17condition of PBD and the struggle to develop treatments and
18possibly a cure; and be it further
 
19    RESOLVED, That a suitable copy of this resolution be
20presented to Max Chapman as an expression of our esteem and
21respect.