| Name | Firm, Business Or Agency | Representing |
| Hearing Date and Time: Human Services (H) 4/19/2023 8:30 AM |
| Aaron Myers | MLD Foundation | Princess Amelia Myers Daughter |
| Abby Warrner | Advocate representing Reed Warrner HDLS ALSP Leukodystrophy child | |
| Alayna Davis | Advocate representing Axel Riordan, MLD Child | |
| Alejandra Balicki | Personal | |
| Alexandra Madison | Myself | Myself |
| Alicia Colter | NA | |
| Alyssa Terven | State farm | |
| Amanda Capodice Kinsella | advocate | |
| Amy Hatfield | Advocate for Maggie Larson | |
| Angela Maloney | Chicago Public Schools | |
| Angelo Lozano | Advocate for axel rordan, MLD child | |
| Ashley hankins | Advocate for axel | |
| Barbara Burton MD | Ann & Robert H. Lurie Children's Hospital of Chicago | |
| Beth Wong | Advocate representing myself - Kirkland and Ellis | Advocate representing myself |
| Bob Evanosky | The Evanosky Foundation | The Evanosky Foundation |
| Breanna Stewart | Advocate representing Axel Riordan, MLD child | |
| Brianna Cochran | Advocate for Axel Riordan, MLD child | |
| Brittany Amell | Advocate for Axel Riordan MLD child | |
| Brittney Samek | MLD Foundation | MLD advocate |
| Brooke Iyer | MLD Advocate | Axel Riordan |
| Carolyn Rasmussen | Ann & Robert H. Lurie Children's Hospital | Self |
| Carrie Maloney | None | |
| Charlotte Lilley | Advocating for Alice Kohut MLD child | |
| Christen Bollig | General Assembly | |
| Colby Riordan | Advocate for Axel Riordan, MLD child | |
| Conrad Devon Riordan | Advocate representing Axel Riordan for MLD child | |
| Corin Chapman | The Global Foundation for Peroxisomal Disorders | The Global Foundation for Peroxisomal Disorders |
| Courtney Railey | Advocate representing axel Riordan | |
| Courtney Riordan | Advocate representing Axel Riordan, MLD child | |
| Curt Annis | Chicago Fire Department | |
| Dane woodard | Representative for Axel Riordan | |
| Dave Gross | Illinois Health & Hospital Association | Illinois Health & Hospital Association |
| David Schwartz | Self | Self |
| Dean Suhr | MLD Foundation | MLD Foundation, Families with Metachromatic Leukodystrophy |
| Debbe Harris | mother of MLD child | self (parent of child with MLD), MLD Foundation |
| Devan Flessner | Advocate representing Alex Riorden, MLD child. | |
| Devon Busick | Nons | |
| Dr Paul McDermott | Summit Hill School District 161 | Myself |
| Eileen Pappas | Self | |
| Elizabeth Bloomberg | Advocate representing axel riordan, MLD child | |
| Elizabeth Brady | Aunt | |
| Elizabeth Crabtree | DND | |
| Elizabeth M Madison | None | |
| Emily Conquest | On behalf of an MLD child | Self |
| Erica Mocilan | advocate representing for Axel Riordan, MLD child | |
| Ericka Schroeder | Advocate representing Axel Riordan MLD child | |
| Heather Davison | Na | Metabolic newborn screening |
| Holly Stoner | Carle Health | Axle |
| Jacob Jording | Advocate | |
| Janelle Cross | Advocate representing Axel Riordan, MLD child | |
| Janet Hunt | Advocate representing Axel Riordan, MLD child | |
| Jazmin Patterson | Advocate, representing Axel Rordan MLD Child | |
| Jean Riordan | Axel Riordan | MLD |
| Jenna Law Yarborough | Self | |
| Jennifer Davis | Self | Self |
| Jennifer Walter | Cousin of MLD child , Axel Riordan | Cousin of Axel Riordan, MLD child |
| Jessica Riordan | Advocate representing Axel Riordan, an MLD child | |
| Jim E Walters | Advocate of Axel Riordin, MLD child | |
| Joshua Baker | Ann & Robert H Lurie Children's Hospital of Chicago | Joshua Baker |
| Joyce E Williams | Advocate representing Axel Riordan , MLD child | |
| Julie Serrano | Self | |
| Kaileigh Lake | Advocate representing Axel Riodan, MLD child | |
| Kailey Westerfield | State Farm | |
| Kaitlyn Kindig | Advocate representing Axel Riordan, MLD child | |
| Karen Woolridge | Advocate representing Axel Riordan, MLD child | |
| Kathleen Katrenak | private citizen | |
| Kawaiya Stearly | Advocate Representing Axel Riordan, MLD child | |
| Keisha Patel | Lurie Children's | Lurie Children's |
| Kelli Riordan | Advocate representing Axel Riordan, MLD child | |
| Kelly Breedlove | Advocate representing Axel Riordan, MLD Child | |
| Kristen Grubich | Self | MLD Community |
| Kristin | No | |
| Kristin Larson | Advocate representing Maggie Larson | |
| Krystle MYERS | MLD Foundation | Amelia Myers |
| Kylie little | Advocate | |
| Laura Cripe | Advocate for Axel Riordan | |
| Laura Worth | Advocate for Axel Riordan MLD | |
| Lauren K Lype | Advocate for Axel Riordan, MLD child | |
| Laurence Madison | None | None |
| Leigh Hayes | Advocate representing Axel Riordan, MLD child | |
| Leo Worth III | MLD NBS | For MLD Axel Riordan |
| Leo Worth Jr | MLD NBS | For MLD Axel Riordan |
| Lexi Worth | Advocate representing Axel Riordan, MLD child | |
| Linda Holzner | Caring Relative | |
| Linda Wagner Greene | Want inc. | |
| LIONEL LENZ | None | |
| LOGAN MCKEON | Advocate representing Axel Riordan, MLD Child | |
| Lori Pacura | LJP Watercolors | MLD |
| Lucas Woolridge | Advocate of Axel Riordan | |
| Madalyn Lee-Ann Prichard | Advocate representation Axel Riordan, MLD child | |
| Margaret Madison | Advocate representing myself | |
| Maria Dombrowski | Deloitte | Self |
| Marlene Greenberg | Advocate representing myself | |
| mary keen | Marianjoy rehabilitation Hospital | |
| Melissa Adamson | McHenry County Department of Health | McHenry County Department of Health |
| Michelle Myszka | Viking Liquors | |
| Molly McCready | Advocate representing Axel Riordan, MLD child | |
| Monica Arcaro | Monica Arcaro | |
| Olivia Worth | Advocate for MLD and Axel Riordan | |
| Orla Conlon | Supporter | Supporter |
| Paige DeVary | Advocate representing Axel Riordan, MLD child | |
| Priscilla Montalvo | Advocate representing Axel Riordan, MLD child | |
| Rebecca Randolph | Self | |
| Richard Harris | MLD foundation, parent of MLD child | self (parent of child with MLD), MLD Foundation |
| Rosella Young | self | self |
| Roxanne Birriel | Ann & Robert H. Lurie Children's Hospital of Chicago | |
| Rozlyn Gray | None | |
| Ruth Brady | Axelstrong. MLD child | Axel Riordan |
| ryder riordan | advocate for axel riordan | |
| Sara Cherny | Lurie Childrens | Self |
| Sarah Villafuerte | Advocate representing Axel Riordan, MLD child | |
| Sean Madison | Innovafeed | |
| Sean McDermott | SR McDermott Consulting Inc. | Northern Illinois Public Health Consortium |
| Shannon Maloney | Dental Professionals of Lincoln Park | Axel Strong |
| Sonya Evanosky | The Evanosky Foundation | |
| Soo Shim | Ann & Robert H. Lurie Children's Hospital | Please add Metachromatic Leukodystrophy diagnosis to the Illinois Newborn Screen |
| Stephanie Gallo | Representing self | |
| Stephanie Roberts | Advocate representing Axel Rioden, MLD Child | |
| Susan Groenwald | None | |
| Teri Lype | Advocate representing Axel Rhodan MLD | |
| Teryn Suhr | MLD Foundation | |
| Therese Madison | Advocate representing self | |
| Tiffany woodard | Representative for Axel Riordan- an MLD child | |
| Tobi Mcbride | None | |
| Todd Eicher | Self | |
| Vighnesh Iyer | MLD Advocate | Axel Riordan, MLD foundation |
| Virginia Campbell | Human Resources Committee | Human Resources Committee |
| Zach Darnall | MLD advocate Axel Riordan | |
| Hearing Date and Time: Health and Human Services (S) 2/21/2023 3:30 PM |
| Alejandra Balicki | Advocate representing myself | Advocate representing myself |
| Amy Johns | MLD Foundation | Cullen Johns child of Amy & Travis Johns |
| Anna Grantham | Hunter's Hope Foundation | Hunter's Hope Foundation |
| Anna Pappas | Self | Self |
| Barbara Burton MD | Ann & Robert H. Lurie Children's Hospital | Barbara K. Burton, MD |
| Bob Evanosky | The Evanosky Foundation | Bob Evanosky |
| Brooke Iyer | NA | Axel Riordan and family |
| David Schwartz | Self | Self |
| Dean Suhr | MLD Foundation | On behalf of MLD families living in Illinois |
| Debbe Harris | The MLD Foundation | Own behalf as a parent of an MLD child and also on behalf of the MLD Foundation |
| Dennis Brennan | DuPage County Health Department | DuPage County Health Department |
| Eileen Pappas | Self | Self |
| Holly Blastic | NA | Myself |
| Jean Riordan | Grandmother of a MLD child | Jean riordan |
| Jennifer Rubin | Lurie Children's Hospital | NBS |
| Keely Mata | United Leukodystrophy Foundation | From the United Leukodystrophy Foundation on behalf of all MLD affected families in Illinois. |
| Krystle MYERS | CureMLD | Amelia Myers, Krystle Myers |
| Kurt Schauer | None | Myself |
| Lesa Brackbill | Leukodystrophy Newborn Screening Action Network | Leukodystrophy Newborn Screening Action Network |
| Lynn Chandler | Self | Proponent of the bill |
| Maria Kefalas | The Calliope Joy Foundation | The Calliope Joy Foundation |
| Marly McGowan | Cure MLD | Cure MLD |
| mary keen | Marianjoy rehabilitation Hospital | my patients with MLD |
| Melanie Turenne | Self | Self |
| Natasha Spencer | Parent Advocate | Not Appllicable |
| Paul McDermott | Summit Hill School District 161 | Summit Hill School District 161 |
| Richard Harris | The MLD Foundation | Own behalf as a parent of an MLD child and also on behalf of the MLD Foundation |
| Robert Steele | self | self |
| Ruth brady | Axel Strong | Ruth brady |
| Sean McDermott | SR McDermott Consulting Inc | Northern Illinois Public Health Consortium |
| Sonya Evanosky | The Evanosky Foundation | Advocate |
| Steve Curatti | Kendall County Health Department | Public Health - Kendall County Health Department |
| Virginia Campbell | MLD | MLD |
| Hearing Date and Time: Health and Human Services (S) 2/14/2023 3:00 PM |
| David Schwartz | Self | Self |
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