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Public Act 098-0891 | ||||
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AN ACT concerning health.
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Be it enacted by the People of the State of Illinois, | ||||
represented in the General Assembly:
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Section 5. The Illinois Health Statistics Act is amended by | ||||
changing Section 4 as follows:
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(410 ILCS 520/4) (from Ch. 111 1/2, par. 5604)
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Sec. 4. (a) In carrying out the purposes of this Act, the | ||||
Department may:
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(1) Collect and maintain health data on:
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(i) The extent, nature, and impact of illness, | ||||
including factors relating to obesity and disability | ||||
on the population
of the State;
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(ii) The determinants of health and health hazards | ||||
including obesity;
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(iii) Health resources, including the extent of | ||||
available manpower and resources;
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(iv) Utilization of health care;
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(v) Health care costs and financing; and
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(vi) Other health or health-related matters ; and .
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(vii) The connection between the long-term effects | ||||
of childhood cancer and the original cancer diagnosis | ||||
and treatment. | ||||
(2) Undertake and support research, demonstrations, |
and evaluations respecting
new or improved methods for | ||
obtaining current data on the matters referred
to in | ||
subparagraph (1).
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(b) The Department may collect health data under authority | ||
granted by
any unit of local government and on behalf of other | ||
governmental or not-for-profit
organizations, including data | ||
collected by local schools and the State Board of Education | ||
relating to obesity on the health examination form required | ||
pursuant to Section 27-8.1 of the School Code. The data shall | ||
be de-identified and aggregated pursuant to rules promulgated | ||
by the Department to prevent disclosure of personal identifying | ||
information.
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(c) The Department shall collect data only on a voluntary | ||
basis from individuals
and organizations, except when there is | ||
specific legal authority to compel
the mandatory reporting of | ||
the health data so requested. In making any collection
of | ||
health data from an individual or organization the Department | ||
must give
to such individual or organization a written | ||
statement which states:
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(1) Whether the individual or organization is required | ||
to respond, and
any sanctions for noncompliance;
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(2) The purposes for which the health data are being | ||
collected; and
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(3) In the case of any disclosure of identifiable | ||
health data for other
than research and statistical | ||
purposes, the items to be disclosed, to whom
the data are |
to be disclosed and the purposes for which the data are to | ||
be disclosed.
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(d) Except as provided in Section 5, no health data | ||
obtained in the course
of activities undertaken or supported | ||
under this Act may be used for any purpose
other than the | ||
purpose for which they were supplied or for which the | ||
individual
or organization described in the data has otherwise | ||
consented.
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(e) The Department shall take such actions as may be | ||
necessary to assure
that statistics developed under this Act | ||
are of high quality, timely, comprehensive,
as well as | ||
specific, standardized and adequately analyzed and indexed.
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(f) The Department shall take such action as is appropriate | ||
to effect
the coordination of health data activities, including | ||
health data specifically relating to obesity collected | ||
pursuant to Section 27-8.1 of the School Code, within the State | ||
to eliminate
unnecessary duplication of data collection and | ||
maximize the usefulness of
data collected.
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(g) The Department shall (1) participate with state, local | ||
and federal
agencies in the design and implementation of a | ||
cooperative system for producing
comparable and uniform health | ||
information and statistics at the federal,
state, and local | ||
levels; and (2) undertake and support research, development,
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demonstrations, and evaluations respecting such cooperative | ||
system.
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(Source: P.A. 93-966, eff. 1-1-05.)
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