Public Act 103-0964
 
SB3277 EnrolledLRB103 36743 CES 66853 b

    AN ACT concerning health.
 
    Be it enacted by the People of the State of Illinois, 
represented in the General Assembly:
 
    Section 1. References to Act. This Act may be referred to 
as the Duchenne Muscular Dystrophy Act.
 
    Section 5. The Department of Public Health Powers and 
Duties Law of the Civil Administrative Code of Illinois is 
amended by adding Section 2310-730 as follows:
 
    (20 ILCS 2310/2310-730 new)
    Sec. 2310-730. Duchenne Muscular Dystrophy Awareness 
Program.
    (a) Subject to appropriation, the Department of Public 
Health, in conjunction with experts in the field of Duchenne 
muscular dystrophy, shall develop mandatory protocols and best 
practices for providing the necessary medical guidance for 
Duchenne muscular dystrophy in Illinois. 
    (b) To raise awareness about Duchenne muscular dystrophy, 
the protocols and best practices developed by the Department 
under subsection (a): 
        (1) shall be published on a designated and publicly 
    accessible webpage; 
        (2) shall include up-to-date information about 
    Duchenne muscular dystrophy; 
        (3) shall reference peer-reviewed scientific research 
    articles; 
        (4) shall incorporate guidance and recommendations 
    from the National Institutes of Health, and any other 
    persons or entities determined by the Department to have 
    particular expertise in Duchenne muscular dystrophy; and 
        (5) shall be distributed to physicians, other health 
    care professionals and providers, and persons subject to 
    Duchenne muscular dystrophy. 
    (c) The Department shall prepare a report of all efforts 
undertaken by the Department under this Section. The report 
shall be posted on the Department's website and distributed to 
local health departments and to any other facilities as 
determined by the Department.