State of Illinois
92nd General Assembly
Legislation

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[ Senate Amendment 001 ]


92_SB1609

 
                                               LRB9213759ACcd

 1        AN ACT concerning health facilities.

 2        Be it enacted by the People of  the  State  of  Illinois,
 3    represented in the General Assembly:

 4        Section  5.  The Hospice Program Licensing Act is amended
 5    by changing Sections 3, 4, 5, 8, and 9 as follows:

 6        (210 ILCS 60/3) (from Ch. 111 1/2, par. 6103)
 7        Sec. 3.  Definitions.  As used in this  Act,  unless  the
 8    context otherwise requires:
 9        (a)  "Bereavement"  means the period of time during which
10    the hospice patient's family experiences and adjusts  to  the
11    death of the hospice patient.
12        (b)  "Department" means the Illinois Department of Public
13    Health.
14        (c)  "Director"   means  the  Director  of  the  Illinois
15    Department of Public Health.
16        (d)  "Full Hospice" means a coordinated program  of  home
17    and inpatient care  providing directly, or through agreement,
18    palliative  and supportive medical, health and other services
19    to terminally ill  patients  and  their  families.    A  full
20    hospice   utilizes  a  medically  directed  interdisciplinary
21    hospice care  team  of  professionals  and  volunteers.   The
22    program  provides  care  to meet the physical, psychological,
23    social,  spiritual  and  other  special   needs   which   are
24    experienced  during  the  final  stages of illness and during
25    dying and bereavement.  Home care is  to  be  provided  on  a
26    part-time, intermittent, regularly scheduled basis, and on an
27    on-call  around-the-clock  basis  according  to  patient  and
28    family  need.  To  the maximum extent possible, care shall be
29    furnished in the patient's home.  Should in-patient  care  be
30    required,  services  are  to  be  provided with the intent of
31    minimizing the length of such care and shall only be provided
 
                            -2-                LRB9213759ACcd
 1    in a hospital licensed under the Hospital Licensing Act, or a
 2    skilled nursing facility licensed under the Nursing Home Care
 3    Act.
 4        (e)  "Hospice  care  team"  means  an   interdisciplinary
 5    working  unit  composed  of  but  not  limited to a physician
 6    licensed to practice medicine in all of its branches, a nurse
 7    licensed  pursuant  to  the  Nursing  and  Advanced  Practice
 8    Nursing Act, a social worker, a pastoral or other  counselor,
 9    and trained volunteers.  The patient and the patient's family
10    are   considered  members  of  the  hospice  care  team  when
11    development or revision of the patient's plan of  care  takes
12    place.
13        (f)  "Hospice  patient"  means  a  terminally  ill person
14    receiving hospice services.
15        (g)  "Hospice patient's family" means a hospice patient's
16    immediate family consisting  of  a  spouse,  sibling,  child,
17    parent  and  those  individuals  designated  as  such  by the
18    patient for the purposes of this Act.
19        (g-1)  "Hospice  residence"  means  a   home,   apartment
20    building, or similar building providing living quarters:
21             (1)  that  is owned or operated by a person licensed
22        to operate as a full hospice; and
23             (2)  at  which  hospice  services  are  provided  to
24        facility residents.
25        A building that is licensed under the Hospital  Licensing
26    Act or the Nursing Home Care Act is not a hospice residence.
27        (h)  "Hospice  services"  means palliative and supportive
28    care provided to a hospice patient and his family to meet the
29    special  need  arising  out  of  the   physical,   emotional,
30    spiritual  and  social  stresses which are experienced during
31    the final stages of illness and during dying and bereavement.
32    Services provided to the  terminally  ill  patient  shall  be
33    furnished,  to  the maximum extent possible, in the patient's
34    home.  Should inpatient care be required, services are to  be
 
                            -3-                LRB9213759ACcd
 1    provided  with  the  intent  of minimizing the length of such
 2    care.
 3        (i)  "Palliative care" means treatment to provide for the
 4    reduction or abatement of pain and other troubling  symptoms,
 5    rather than treatment aimed at investigation and intervention
 6    for  the  purpose  of  cure  or inappropriate prolongation of
 7    life.
 8        (j)  "Hospice service plan" means a  plan  detailing  the
 9    specific  hospice  services  offered  by  a full or volunteer
10    hospice, and the administrative  and  direct  care  personnel
11    responsible  for  those services.  The plan shall include but
12    not be limited to:
13             (1)  Identification  of  the   person   or   persons
14        administratively  responsible  for  the  program, and the
15        affiliation of such person or  persons  with  a  licensed
16        home health agency, hospital or nursing home.
17             (2)  The estimated average monthly patient census.
18             (3)  The  proposed  geographic area the hospice will
19        serve.
20             (4)  A listing of those  hospice  services  provided
21        directly  by  the  hospice,  and  those  hospice services
22        provided indirectly through a contractual agreement.
23             (5)  The name and qualifications of those persons or
24        entities  under  contract  to  provide  indirect  hospice
25        services.
26             (6)  The name and qualifications  of  those  persons
27        providing  direct hospice services, with the exception of
28        volunteers.
29             (7)  A description  of  how  the  hospice  plans  to
30        utilize volunteers in the provision of hospice services.
31             (8)  A  description  of the program's record keeping
32        system.
33        (k)  "Terminally ill" means  a  medical  prognosis  by  a
34    physician  licensed  to  practice  medicine  in  all  of  its
 
                            -4-                LRB9213759ACcd
 1    branches that a patient has an anticipated life expectancy of
 2    a year 6 months or less.
 3        (l)  "Volunteer"  means  a  person  who offers his or her
 4    services to a hospice  without  compensation.   Reimbursement
 5    for a volunteer's expenses in providing hospice service shall
 6    not be considered compensation.
 7        (m)  "Volunteer  hospice"  means a program which provides
 8    hospice services to patients regardless of their  ability  to
 9    pay,  with  emphasis  on  the  utilization  of  volunteers to
10    provide   services,   under   the   administration    of    a
11    not-for-profit agency.  This definition does not prohibit the
12    employment of staff.
13    (Source: P.A. 89-278, eff. 8-10-95; 90-742, eff. 8-13-98.)

14        (210 ILCS 60/4) (from Ch. 111 1/2, par. 6104)
15        Sec. 4.  License.
16        (a)  No  person  shall  establish, conduct, or maintain a
17    full or volunteer hospice without first obtaining  a  license
18    from  the  Department.   A  hospice residence may be operated
19    only at the locations listed on the license.  A full  hospice
20    owning or operating a hospice residence is not subject to the
21    provisions  of  the  Nursing  Home  Care  Act  in  owning  or
22    operating a hospice residence.
23        (b)  No  public  or  private  agency  shall  advertise or
24    present itself to the public as a full or  volunteer  hospice
25    which   provides   hospice   services   without  meeting  the
26    provisions of subsection (a).
27        (c)  The license shall be valid only in the possession of
28    the hospice home health agency,  hospital,  nursing  home  or
29    not-for-profit agency to which it was originally issued.
30        (d)  The license shall be renewed annually.
31        (e)  The  license  shall  be  displayed  in a conspicuous
32    place inside the hospice program office.
33    (Source: P.A. 89-278, eff. 8-10-95.)
 
                            -5-                LRB9213759ACcd
 1        (210 ILCS 60/5) (from Ch. 111 1/2, par. 6105)
 2        Sec. 5.  Application for  License.   An  application  for
 3    license  or renewal thereof to operate as a full or volunteer
 4    hospice shall be made to the Department upon  forms  provided
 5    by  it,  and shall contain information reasonably required by
 6    the  Department,  taking  into  consideration  the  different
 7    categories of hospice  programs.  The  application  shall  be
 8    accompanied by:
 9        (1)  The hospice service plan;
10        (2)  A  financial statement containing information deemed
11    appropriate  by  the  Department  for  the  category  of  the
12    applicant; and
13        (3)  A uniform license fee determined by  the  Department
14    based on the hospice program's category.
15    (Source: P.A. 84-427.)

16        (210 ILCS 60/8) (from Ch. 111 1/2, par. 6108)
17        Sec.  8.   General  Requirements for Full Hospices.  Full
18    Hospices shall comply with the following requirements:.
19        (a)  The  hospice  program's   services   shall   include
20    physician   services,   nursing   services,   medical  social
21    services, counseling, and volunteer services.  These services
22    shall be coordinated with  those  of  the  hospice  patient's
23    primary or attending physician.
24        (b)  The  hospice  program  shall coordinate its services
25    with professional and nonprofessional services already in the
26    community.  The program may contract out for elements of  its
27    services;   however,   direct  patient  contact  and  overall
28    coordination of hospice services shall be maintained  by  the
29    hospice  care  team.   Any  contract  entered  into between a
30    hospice and a health care facility or service provider  shall
31    specify  that  the  hospice  retain  the  responsibility  for
32    planning and coordinating hospice services and care on behalf
33    of  a hospice patient and his family.  All contracts shall be
 
                            -6-                LRB9213759ACcd
 1    in compliance with this Act.  No hospice which contracts  for
 2    any  hospice  service shall charge fees for services provided
 3    directly by the hospice care team which duplicate contractual
 4    services provided to the individual patient or his family.
 5        (c)  The hospice care team shall be responsible  for  the
 6    coordination of home and inpatient care.
 7        (d)  The  hospice  program  shall have a medical director
 8    who shall be a physician licensed to practice medicine in all
 9    of its branches.  The medical  director  shall  have  overall
10    responsibility   for   medical  direction  of  the  care  and
11    treatment of patients and  their  families  rendered  by  the
12    hospice  care  team, and shall consult and cooperate with the
13    patient's attending physician.
14        (e)  The hospice program shall have a bereavement program
15    which shall provide a continuum of  supportive  services  for
16    the family.
17        (f)  The hospice program shall foster independence of the
18    patient  and  his family by providing training, encouragement
19    and support so that the  patient  and  family  can  care  for
20    themselves as much as possible.
21        (g)  The hospice program shall not impose the dictates of
22    any  value  or  belief  system  on  its  patients  and  their
23    families.
24        (h)  The   hospice   program  shall  clearly  define  its
25    admission criteria.  Decisions on admissions shall be made by
26    a hospice care team and shall be dependent upon the expressed
27    request and informed consent of the patient or the  patient's
28    legal guardian.
29        (i)  The hospice program shall keep accurate, current and
30    confidential  records  on  all  hospice  patients  and  their
31    families.
32        (j)  The  hospice  program  shall utilize the services of
33    trained volunteers.
34        (k)  The hospice program shall consist of both home  care
 
                            -7-                LRB9213759ACcd
 1    and   inpatient   care   which   incorporates  the  following
 2    characteristics:
 3        (1)  The home care component shall be the primary form of
 4    care, and shall be available on  a  part-time,  intermittent,
 5    regularly  scheduled basis and on an on-call around-the-clock
 6    basis, according to patient and family need.
 7        (2)  The inpatient component shall primarily be used only
 8    for short-term stays.
 9    If possible, inpatient  care  should  closely  approximate  a
10    home-like   environment,   and   provide   overnight   family
11    visitation within the facility.
12    (Source: P.A. 83-457.)

13        (210 ILCS 60/9) (from Ch. 111 1/2, par. 6109)
14        Sec.  9.   Standards.  The Department shall prescribe, by
15    regulation, minimum standards for licensed hospice programs.
16        (a)  The standards for full hospices  shall  include  but
17    not be limited to:
18             (1)  Compliance with the requirements in Section 8.
19             (2)  The   number   and  qualifications  of  persons
20        providing direct hospice services.
21             (3)  The qualifications of those persons  contracted
22        with to provide indirect hospice services.
23             (4)  The   palliative   and   supportive   care  and
24        bereavement counseling provided to a hospice patient  and
25        his family.
26             (5)  Hospice   services  provided  on  an  inpatient
27        basis.
28             (6)  Utilization review of patient care.
29             (7)  The quality of care provided to patients.
30             (8)  Procedures for  the  accurate  and  centralized
31        maintenance  of  records  on hospice services provided to
32        patients and their families.
33             (9)  The use of volunteers in the  hospice  program,
 
                            -8-                LRB9213759ACcd
 1        and the training of those volunteers.
 2             (10)  The  rights  of  the patient and the patient's
 3        family.
 4        (b)  (Blank) The standards for volunteer hospice programs
 5    shall include but not be limited to:
 6             (1)  The direct and indirect  services  provided  by
 7        the  hospice,  including  the qualifications of personnel
 8        providing medical care.
 9             (2)  Quality review of the services provided by  the
10        hospice program.
11             (3)  Procedures  for  the  accurate  and centralized
12        maintenance of records on hospice  services  provided  to
13        patients and their families.
14             (4)  The  rights  of  the  patient and the patient's
15        family.
16             (5)  The use of volunteers in the hospice program.
17             (6)  The disclosure to the patients of the range  of
18        hospice services provided and not provided by the hospice
19        program.
20        (c)  The  standards  for  hospices  owning  or  operating
21    hospice residences shall address the following:
22             (1)  The  safety,  cleanliness, and general adequacy
23        of the premises, including provision for  maintenance  of
24        fire  and health standards that conform to State laws and
25        municipal codes, to provide  for  the  physical  comfort,
26        well-being, care, and protection of the residents.
27             (2)  Provisions    and   criteria   for   admission,
28        discharge, and transfer of residents.
29             (3)  Fee  and  other  contractual  agreements   with
30        residents.
31             (4)  Medical and supportive services for residents.
32             (5)  Maintenance  of records and residents' right of
33        access of those records.
34             (6)  Procedures for reporting abuse  or  neglect  of
 
                            -9-                LRB9213759ACcd
 1        residents.
 2             (7)  The  number  of  persons who may be served in a
 3        residence,  which  shall  not  exceed  16   persons   per
 4        location.
 5             (8)  The  ownership,  operation,  and maintenance of
 6        buildings containing a hospice residence.
 7             (9)  The number of licensed hospice residences shall
 8        not exceed 6 before  December  31,  1996  and  shall  not
 9        exceed 12 before December 31, 1997.  The Department shall
10        conduct a study of the benefits of hospice residences and
11        make  a  recommendation to the General Assembly as to the
12        need to limit the number of hospice residences after June
13        30, 1997.
14        (d)  (Blank) In developing the  standards  for  hospices,
15    the  Department shall take into consideration the category of
16    the hospice programs.
17    (Source: P.A. 89-278, eff. 8-10-95.)

18        Section 99.  Effective date.  This Act takes effect  upon
19    becoming law.

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