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92_HB5870
LRB9213311DJgcB
1 AN ACT in relation to public health.
2 Be it enacted by the People of the State of Illinois,
3 represented in the General Assembly:
4 Section 5. The Phenylketonuria Testing Act is amended by
5 adding Section 1.5 and changing Section 2 as follows:
6 (410 ILCS 240/1.5 new)
7 Sec. 1.5. Definitions. In this Act:
8 "Expanded screening" means screening for all genetic and
9 metabolic disorders, including but not limited to amino acid
10 disorders, organic acid disorders, fatty acid oxidation
11 disorders, and other abnormal profiles, in newborn infants
12 that can be detected through the use of a tandem mass
13 spectrometer.
14 "Tandem mass spectrometer" means an analytical instrument
15 used to detect numerous genetic and metabolic disorders at
16 one time.
17 (410 ILCS 240/2) (from Ch. 111 1/2, par. 4904)
18 Sec. 2. The Department of Public Health shall administer
19 the provisions of this Act and shall:
20 (a) Institute and carry on an intensive educational
21 program among physicians, hospitals, public health nurses and
22 the public concerning the diseases phenylketonuria,
23 hypothyroidism, galactosemia and other metabolic diseases.
24 This educational program shall include information about the
25 nature of the diseases and examinations for the detection of
26 the diseases in early infancy in order that measures may be
27 taken to prevent the mental retardation resulting from the
28 diseases.
29 (a-5) Beginning July 1, 2002, implement an expanded
30 screening program for metabolic and genetic disorders for all
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1 newborn infants.
2 (b) Maintain a registry of cases including information
3 of importance for the purpose of follow-up services to
4 prevent mental retardation.
5 (c) Supply the necessary treatment product where
6 practicable for diagnosed cases for as long as medically
7 indicated, when the product is not available through other
8 State agencies.
9 (d) Arrange for or provide public health nursing,
10 nutrition and social services and clinical consultation as
11 indicated.
12 (e) Require that all specimens collected pursuant to
13 this Act or the rules and regulations promulgated hereunder
14 be submitted for testing to the nearest Department of Public
15 Health laboratory designated to perform such tests. The
16 Department may develop a reasonable fee structure and may
17 levy fees according to such structure to cover the cost of
18 providing this testing service. Fees collected from the
19 provision of this testing service shall be placed in a
20 special fund in the State Treasury, hereafter known as the
21 Metabolic Screening and Treatment Fund. Other State and
22 federal funds for expenses related to metabolic screening,
23 follow-up and treatment programs may also be placed in such
24 Fund. Moneys shall be appropriated from such Fund to the
25 Department of Public Health solely for the purposes of
26 providing metabolic screening, follow-up and treatment
27 programs. Nothing in this Act shall be construed to prohibit
28 any licensed medical facility from collecting additional
29 specimens for testing for metabolic or neonatal diseases or
30 any other diseases or conditions, as it deems fit. Any person
31 violating the provisions of this subsection (e) is guilty of
32 a petty offense.
33 (Source: P.A. 83-87.)
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1 Section 99. Effective date. This Act takes effect upon
2 becoming law.