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|[ Engrossed ]||[ Enrolled ]||[ House Amendment 001 ]|
92_HB5870 LRB9213311DJgcB 1 AN ACT in relation to public health. 2 Be it enacted by the People of the State of Illinois, 3 represented in the General Assembly: 4 Section 5. The Phenylketonuria Testing Act is amended by 5 adding Section 1.5 and changing Section 2 as follows: 6 (410 ILCS 240/1.5 new) 7 Sec. 1.5. Definitions. In this Act: 8 "Expanded screening" means screening for all genetic and 9 metabolic disorders, including but not limited to amino acid 10 disorders, organic acid disorders, fatty acid oxidation 11 disorders, and other abnormal profiles, in newborn infants 12 that can be detected through the use of a tandem mass 13 spectrometer. 14 "Tandem mass spectrometer" means an analytical instrument 15 used to detect numerous genetic and metabolic disorders at 16 one time. 17 (410 ILCS 240/2) (from Ch. 111 1/2, par. 4904) 18 Sec. 2. The Department of Public Health shall administer 19 the provisions of this Act and shall: 20 (a) Institute and carry on an intensive educational 21 program among physicians, hospitals, public health nurses and 22 the public concerning the diseases phenylketonuria, 23 hypothyroidism, galactosemia and other metabolic diseases. 24 This educational program shall include information about the 25 nature of the diseases and examinations for the detection of 26 the diseases in early infancy in order that measures may be 27 taken to prevent the mental retardation resulting from the 28 diseases. 29 (a-5) Beginning July 1, 2002, implement an expanded 30 screening program for metabolic and genetic disorders for all -2- LRB9213311DJgcB 1 newborn infants. 2 (b) Maintain a registry of cases including information 3 of importance for the purpose of follow-up services to 4 prevent mental retardation. 5 (c) Supply the necessary treatment product where 6 practicable for diagnosed cases for as long as medically 7 indicated, when the product is not available through other 8 State agencies. 9 (d) Arrange for or provide public health nursing, 10 nutrition and social services and clinical consultation as 11 indicated. 12 (e) Require that all specimens collected pursuant to 13 this Act or the rules and regulations promulgated hereunder 14 be submitted for testing to the nearest Department of Public 15 Health laboratory designated to perform such tests. The 16 Department may develop a reasonable fee structure and may 17 levy fees according to such structure to cover the cost of 18 providing this testing service. Fees collected from the 19 provision of this testing service shall be placed in a 20 special fund in the State Treasury, hereafter known as the 21 Metabolic Screening and Treatment Fund. Other State and 22 federal funds for expenses related to metabolic screening, 23 follow-up and treatment programs may also be placed in such 24 Fund. Moneys shall be appropriated from such Fund to the 25 Department of Public Health solely for the purposes of 26 providing metabolic screening, follow-up and treatment 27 programs. Nothing in this Act shall be construed to prohibit 28 any licensed medical facility from collecting additional 29 specimens for testing for metabolic or neonatal diseases or 30 any other diseases or conditions, as it deems fit. Any person 31 violating the provisions of this subsection (e) is guilty of 32 a petty offense. 33 (Source: P.A. 83-87.) -3- LRB9213311DJgcB 1 Section 99. Effective date. This Act takes effect upon 2 becoming law.
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