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90_SB0327enr
410 ILCS 405/4 from Ch. 111 1/2, par. 6954
Amends the Alzheimer's Disease Assistance Act. In
provisions regarding development of standards for a service
network and designation of regional centers and primary
providers, changes from one to 2 the number of Regional
Alzheimer's Disease Assistance Centers which shall be
conveniently located to serve the Chicago metropolitan area.
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1 AN ACT to amend the Alzheimer's Disease Assistance Act by
2 changing Sections 3, 4, and 7.
3 Be it enacted by the People of the State of Illinois,
4 represented in the General Assembly:
5 Section 5. The Alzheimer's Disease Assistance Act is
6 amended by changing Sections 3, 4, and 7 as follows:
7 (410 ILCS 405/3) (from Ch. 111 1/2, par. 6953)
8 Sec. 3. Definitions. As used in this Act:
9 (a) "Alzheimer's disease and related disorders" means a
10 health condition resulting from significant destruction of
11 brain tissue with resultant loss of brain function,
12 including, but not limited to, progressive, degenerative and
13 dementing illnesses including presenile and senile dementias,
14 including Alzheimer's disease and other related disorders.
15 (b) "Regional Alzheimer's Disease Assistance Center" or
16 "Regional ADA Center" means any a postsecondary higher
17 educational institution having a medical school in
18 affiliation with a medical center and having a National
19 Institutes of Health and National Institutes on Aging
20 sponsored Alzheimer's Disease Core Center, and designated as
21 such by the Illinois Department of Public Health under
22 Section 4 of this Act. Any Regional ADA Center which was
23 designated as having a National Alzheimer's Disease Core
24 Center but no longer carries such designation shall continue
25 to serve as a Regional ADA Center.
26 (c) "Primary Alzheimer's provider" means a licensed
27 hospital, a medical center under the supervision of a
28 physician licensed to practice medicine in all of its
29 branches, or a medical center that provides medical
30 consultation, evaluation, referral and treatment to persons
31 who may be or who have been diagnosed as victims of
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1 Alzheimer's disease or related disorders pursuant to
2 policies, standards, criteria and procedures adopted under an
3 affiliation agreement with a Regional ADA Center under this
4 Act.
5 (d) "Alzheimer's disease assistance network" or "ADA
6 network" means the various health, mental health and social
7 services agencies that provide referral, treatment and
8 support services under standards and plans adopted and
9 implemented in conjunction with a Regional ADA Center.
10 (e) "ADA Advisory Committee" or "Advisory Committee" or
11 "Committee" means the Alzheimer's Disease Advisory Committee
12 created under Section 6 of this Act.
13 (f) "Department" means the Illinois Department of Public
14 Health.
15 (Source: P.A. 84-378; 84-513.)
16 (410 ILCS 405/4) (from Ch. 111 1/2, par. 6954)
17 Sec. 4. Development of standards for a service network
18 and designation of regional centers and primary providers.
19 By January 1, 1987, the Department, in consultation with the
20 Advisory Committee, shall develop standards for the conduct
21 of research and for the identification, evaluation,
22 diagnosis, referral and treatment of victims of Alzheimer's
23 disease and related disorders and their families through the
24 ADA network of designated regional centers and other
25 providers of service under this Act. Such standards shall
26 include:
27 (a) A description of the specific populations and
28 geographic areas to be served through ADA networks that may
29 be established under this Act;
30 (b) Standards, criteria and procedures for designation
31 of Regional ADA Centers, which ensure the provision of
32 quality care to a broad segment of the population through
33 on-site facilities and services and through a network of
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1 primary Alzheimer's providers and other providers of service
2 that may be available within the service area defined by the
3 Department. At least 2 one Regional ADA Centers Center shall
4 be conveniently located to serve the Chicago metropolitan
5 area and at least one Regional ADA Center shall be
6 conveniently located to serve the balance of the State. The
7 Regional ADA Centers shall provide at least the following:
8 (1) Comprehensive diagnosis and treatment facilities and
9 services which have (i) professional medical staff
10 specially-trained in geriatric medicine, neurology,
11 psychiatry and pharmacology, and the detection, diagnosis and
12 treatment of Alzheimer's disease and related disorders, (ii)
13 sufficient support staff who are trained as caregivers to
14 victims of Alzheimer's disease and related disorders, (iii)
15 appropriate and adequate equipment necessary for diagnosis
16 and treatment, (iv) transportation services necessary for
17 outreach to the service area defined by the Department and
18 for assuring access of patients to available services, (v)
19 and such other support services, staff and equipment as may
20 be required;
21 (2) Consultation and referral services for victims and
22 their families to ensure informed consent to treatment and to
23 assist them in obtaining necessary assistance and support
24 services through primary Alzheimer's providers and various
25 private and public agencies that may otherwise be available
26 to provide services under this Act;
27 (3) Research programs and facilities to assist faculty
28 and students in discovering the cause of and the diagnosis,
29 cure and treatment for Alzheimer's disease and related
30 disorders;
31 (4) Training, consultation and continuing education for
32 caregivers, including families of those who are affected by
33 Alzheimer's disease and related disorders;
34 (5) Centralized data collection, processing and storage
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1 that will serve as a clearinghouse of information to assist
2 victims, families and ADA Resources, and to facilitate
3 research; and
4 (6) Programs of scientific and medical research in
5 relation to Alzheimer's disease and related disorders that
6 are designed and conducted in a manner that may enable such
7 center to qualify for Federal financial participation in the
8 cost of such programs.
9 (c) Procedures for recording and reporting research and
10 treatment results by primary Alzheimer's providers and other
11 affiliated providers of service that are within the ADA
12 network to the Regional ADA Center and to the Department;
13 (d) Policies, procedures and minimum standards and
14 criteria to be included in affiliation agreements between
15 primary Alzheimer's providers and the Regional ADA Center in
16 the conduct of any research and in the diagnosis, referral
17 and treatment of victims of Alzheimer's disease and related
18 disorders and their families; and
19 (e) Policies, procedures, standards and criteria,
20 including medical and financial eligibility factors,
21 governing admission to and utilization of the programs,
22 facilities and services available through the ADA network by
23 persons who may be or who have been diagnosed as victims of
24 Alzheimer's disease and related disorders, including forms
25 and procedures for obtaining necessary patient consents to
26 participation in research, and in the reporting and
27 processing of appropriate information in a patient's medical
28 records in relation to consultations, referrals and
29 treatments by the various providers of service within the ADA
30 network.
31 (Source: P.A. 84-378; 84-513.)
32 (410 ILCS 405/7) (from Ch. 111 1/2, par. 6957)
33 Sec. 7. Regional ADA center grants-in-aid. Pursuant to
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1 appropriations enacted by the General Assembly, the
2 Department shall provide grants-in-aid to each Regional ADA
3 Center Centers for necessary research and for the development
4 and maintenance of services for victims of Alzheimer's
5 disease and related disorders and families in accordance with
6 the State Alzheimer's Assistance Plan. The first $2,000,000
7 of any grants-in-aid appropriated by the General Assembly for
8 Regional ADA Centers in any State fiscal year shall be
9 distributed in equal portions to those Regional ADA Centers
10 receiving the appropriated grants-in-aid for the State fiscal
11 year beginning July 1, 1996. The first $400,000 appropriated
12 by the General Assembly in excess of $2,000,000 in any State
13 fiscal year beginning on or after July 1, 1997 shall be
14 distributed in equal portions to those Regional ADA Centers
15 receiving the appropriated grants-in-aid for the State fiscal
16 year beginning July 1, 1996. Any monies appropriated by the
17 General Assembly in excess of $2,400,000 for any State fiscal
18 year beginning on or after July 1, 1997 shall be distributed
19 in equal portions to each Regional ADA Center. The Department
20 shall promulgate rules and procedures governing the
21 distribution and specific purposes for such grants, including
22 any contributions of recipients of services toward the cost
23 of care.
24 (Source: P.A. 84-378; 84-513.)
25 Section 99. Effective date. This Act takes effect upon
26 becoming law.