Full Text of SB3499 103rd General Assembly
SB3499 103RD GENERAL ASSEMBLY | | | 103RD GENERAL ASSEMBLY
State of Illinois
2023 and 2024 SB3499 Introduced 2/9/2024, by Sen. Linda Holmes SYNOPSIS AS INTRODUCED: | | | Creates the End-of-Life Options for Terminally Ill Patients Act. Authorizes a qualified patient with a terminal disease to request that a physician prescribe aid-in-dying medication that will allow the patient to end the patient's life in a peaceful manner. Contains provisions concerning: the procedures and forms to be used to request aid-in-dying medication; the responsibilities of attending and consulting physicians; the referral of patients for determinations of mental capacity; the residency of qualified patients; the safe disposal of unused medications; the obligations of health care entities; the immunities granted for actions taken in good faith reliance upon the Act; the reporting requirements of physicians; the effect of the Act on the construction of wills, contracts, and statutes; the effect of the Act on insurance policies and annuities; the procedures for the completion of death certificates; the liabilities and penalties provided by the Act; the construction of the Act; the definitions of terms used in the Act; and other matters. Effective 6 months after becoming law. |
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| | A BILL FOR |
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| 1 | | AN ACT concerning health. | 2 | | Be it enacted by the People of the State of Illinois, | 3 | | represented in the General Assembly: | 4 | | Section 1. Short title. This Act may be cited as the | 5 | | End-of-Life Options for Terminally Ill Patients Act. | 6 | | Section 5. Definitions. As used in this Act: | 7 | | "Adult" means an individual 18 years of age or older. | 8 | | "Advanced practice registered nurse" means an advanced | 9 | | practice registered nurse licensed under the Nurse Practice | 10 | | Act who is certified as a psychiatric mental health | 11 | | practitioner. | 12 | | "Aid in dying" means an end-of-life care option that | 13 | | allows a qualified patient to obtain a prescription for | 14 | | medication pursuant to this Act. | 15 | | "Attending physician" means the physician who has primary | 16 | | responsibility for the care of the patient and treatment of | 17 | | the patient's terminal disease. | 18 | | "Clinical psychologist" means a psychologist licensed | 19 | | under the Clinical Psychologist Licensing Act. | 20 | | "Clinical social worker" means a person licensed under the | 21 | | Clinical Social Work and Social Work Practice Act. | 22 | | "Coercion or undue influence" means the willful attempt, | 23 | | whether by deception, intimidation, or any other means to: |
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| 1 | | (1) cause a patient to request, obtain, or | 2 | | self-administer medication pursuant to this Act with | 3 | | intent to cause the death of the patient; or | 4 | | (2) prevent a qualified patient, in a manner that | 5 | | conflicts with the Health Care Right of Conscience Act, | 6 | | from obtaining or self-administering medication pursuant | 7 | | to this Act. | 8 | | "Consulting physician" means a physician who is qualified | 9 | | by specialty or experience to make a professional diagnosis | 10 | | and prognosis regarding the patient's disease. | 11 | | "Department" means the Department of Public Health. | 12 | | "Health care entity" means a hospital or hospital | 13 | | affiliate, nursing home, hospice or any other facility | 14 | | licensed under any of the following Acts: the Ambulatory | 15 | | Surgical Treatment Center Act; the Home Health, Home Services, | 16 | | and Home Nursing Agency Licensing Act; the Hospice Program | 17 | | Licensing Act; the Hospital Licensing Act; the Nursing Home | 18 | | Care Act; or the University of Illinois Hospital Act. "Health | 19 | | care entity" does not include a physician. | 20 | | "Health care professional" means a physician, pharmacist, | 21 | | or licensed mental health professional. | 22 | | "Informed decision" means a decision by a patient with | 23 | | mental capacity and a terminal disease to request and obtain a | 24 | | prescription for medication pursuant to this Act, that the | 25 | | qualified patient may self-administer to bring about a | 26 | | peaceful death, after being fully informed by the attending |
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| 1 | | physician and consulting physician of: | 2 | | (1) the patient's diagnosis and prognosis; | 3 | | (2) the potential risks and benefits associated with | 4 | | taking the medication to be prescribed; | 5 | | (3) the probable result of taking the medication to be | 6 | | prescribed; | 7 | | (4) the feasible end-of-life care and treatment | 8 | | options for the patient's terminal disease, including, but | 9 | | not limited to, comfort care, palliative care, hospice | 10 | | care, and pain control, and the risks and benefits of | 11 | | each; | 12 | | (5) the patient's right to withdraw a request pursuant | 13 | | this Act, or consent for any other treatment, at any time; | 14 | | and | 15 | | (6) the patient's right to choose not to obtain the | 16 | | drug or to choose to obtain the drug but not to ingest it. | 17 | | "Licensed mental health care professional" means a | 18 | | psychiatrist, clinical psychologist, clinical social worker, | 19 | | or advanced practice registered nurse. | 20 | | "Mental capacity" means that, in the opinion of the | 21 | | attending physician or the consulting physician or, if the | 22 | | opinion of a licensed mental health care professional is | 23 | | required under Section 40, the licensed mental health care | 24 | | professional, the patient requesting medication pursuant to | 25 | | this Act has the ability to make and communicate an informed | 26 | | decision. |
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| 1 | | "Oral request" means an affirmative statement that | 2 | | demonstrates a contemporaneous affirmatively stated desire by | 3 | | the patient seeking aid in dying. | 4 | | "Pharmacist" means an individual licensed to engage in the | 5 | | practice of pharmacy under the Pharmacy Practice Act. | 6 | | "Physician" means a person licensed to practice medicine | 7 | | in all of its branches under the Medical Practice Act of 1987. | 8 | | "Psychiatrist" means a physician who has successfully | 9 | | completed a residency program in psychiatry accredited by | 10 | | either the Accreditation Council for Graduate Medical | 11 | | Education or the American Osteopathic Association. | 12 | | "Qualified patient" means an adult Illinois resident with | 13 | | the mental capacity to make medical decisions who has | 14 | | satisfied the requirements of this Act in order to obtain a | 15 | | prescription for medication to bring about a peaceful death. | 16 | | No person will be considered a "qualified patient" under this | 17 | | Act solely because of advanced age, disability, or a mental | 18 | | health condition, including depression. | 19 | | "Self-administer" means an affirmative, conscious, | 20 | | voluntary action, performed by a qualified patient, to ingest | 21 | | medication prescribed pursuant to this Act to bring about the | 22 | | patient's peaceful death. Self-administration does not include | 23 | | administration by parenteral injection or infusion. | 24 | | "Terminal disease" means an incurable and irreversible | 25 | | disease that will, within reasonable medical judgment, result | 26 | | in death within 6 months. The existence of a terminal disease, |
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| 1 | | as determined after in-person examination by the patient's | 2 | | physician and concurrence by another physician, shall be | 3 | | documented in writing in the patient's medical record. A | 4 | | diagnosis of a major depressive disorder, as defined in the | 5 | | current edition of the Diagnostic and Statistical Manual of | 6 | | Mental Disorders, alone does not qualify as a terminal | 7 | | disease. | 8 | | Section 10. Informed consent. | 9 | | (a) Nothing in this Act may be construed to limit the | 10 | | amount of information provided to a patient to ensure the | 11 | | patient can make a fully informed health care decision. | 12 | | (b) An attending physician must provide sufficient | 13 | | information to a patient regarding all appropriate end-of-life | 14 | | care options, including comfort care, hospice care, palliative | 15 | | care, and pain control, as well as the foreseeable risks and | 16 | | benefits of each, so that the patient can make a voluntary and | 17 | | affirmative decision regarding the patient's end-of-life care. | 18 | | (c) If a patient requests for the patient's medical | 19 | | records to be transmitted to an alternative physician, the | 20 | | patient's medical records shall be transmitted without undue | 21 | | delay. | 22 | | Section 15. Standard of care. Nothing contained in this | 23 | | Act shall be interpreted to lower the applicable standard of | 24 | | care for the health care professionals participating under |
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| 1 | | this Act. | 2 | | Section 20. Qualification. | 3 | | (a) A qualified patient with a terminal disease may | 4 | | request a prescription for medication under this Act in the | 5 | | following manner: | 6 | | (1) The qualified patient may orally request a | 7 | | prescription for medication under this Act from the | 8 | | patient's attending physician. | 9 | | (2) The oral request from the qualified patient shall | 10 | | be documented by the attending physician. | 11 | | (3) The qualified patient shall provide a written | 12 | | request in accordance with this Act to the patient's | 13 | | attending physician after making the initial oral request. | 14 | | (4) The qualified patient shall repeat the oral | 15 | | request to the patient's attending physician no less than | 16 | | 5 days after making the initial oral request. | 17 | | (b) The attending and consulting physicians of a qualified | 18 | | patient shall have met all the requirements of Sections 30 and | 19 | | 35. | 20 | | (c) Notwithstanding subsection (a), if the individual's | 21 | | attending physician has medically determined that the | 22 | | individual will, within reasonable medical judgment, die | 23 | | within 5 days after making the initial oral request under this | 24 | | Section, the individual may satisfy the requirements of this | 25 | | Section by providing a written request and reiterating the |
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| 1 | | oral request to the attending physician at any time after | 2 | | making the initial oral request. | 3 | | (d) At the time the patient makes the second oral request, | 4 | | the attending physician shall offer the patient an opportunity | 5 | | to rescind the request. | 6 | | (e) Oral and written requests for aid in dying may be made | 7 | | only by the patient and shall not be made by the patient's | 8 | | surrogate decision-maker, health care proxy, health care | 9 | | agent, attorney-in-fact for health care, nor via advance | 10 | | health care directive. | 11 | | (f) If a requesting patient decides to transfer care to an | 12 | | alternative physician, the records custodian shall, upon | 13 | | written request, transmit, without undue delay, the patient's | 14 | | medical records, including written documentation of the dates | 15 | | of the patient's requests concerning aid in dying. | 16 | | (g) A transfer of care or medical records does not toll or | 17 | | restart any waiting period. | 18 | | Section 25. Form of written request. | 19 | | (a) A written request for medication under this Act shall | 20 | | be in substantially the form below, signed and dated by the | 21 | | requesting patient, and witnessed in the presence of the | 22 | | patient by at least 2 witnesses who attest that to the best of | 23 | | their knowledge and belief the patient has mental capacity, is | 24 | | acting voluntarily, and is not being coerced or unduly | 25 | | influenced to sign the request. |
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| 1 | | (b) One of the witnesses required under this Section must | 2 | | be a person who is not: | 3 | | (1) a relative of the patient by blood, marriage, | 4 | | civil union, registered domestic partnership, or adoption; | 5 | | (2) a person who, at the time the request is signed, | 6 | | would be entitled to any portion of the estate of the | 7 | | qualified patient upon death, under any will or by | 8 | | operation of law; or | 9 | | (3) an owner, operator, or employee of a health care | 10 | | entity where the qualified patient is receiving medical | 11 | | treatment or is a resident. | 12 | | (c) The patient's attending physician at the time the | 13 | | request is signed shall not be a witness. | 14 | | (d) If a person uses an interpreter, the interpreter shall | 15 | | not be a witness. | 16 | | (e) The written request for medication under this Act | 17 | | shall be substantially as follows: | 18 | | "Request for Medication to End My Life in a Peaceful Manner | 19 | | I, ............... (insert name of patient), am an adult | 20 | | of sound mind, and a resident of Illinois. I have been | 21 | | diagnosed with ..............., (insert name of condition) and | 22 | | given a terminal disease prognosis of 6 months or less to live | 23 | | by my attending physician. | 24 | | I affirm that my terminal disease diagnosis was given or |
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| 1 | | confirmed during at least one in-person visit to a health care | 2 | | professional. | 3 | | I have been fully informed of the feasible alternatives | 4 | | and concurrent or additional treatment opportunities for my | 5 | | terminal disease, including, but not limited to, comfort care, | 6 | | palliative care, hospice care, or pain control, as well as the | 7 | | potential risks and benefits of each. I have been offered, | 8 | | have received, or have been offered and received resources or | 9 | | referrals to pursue these alternatives and concurrent or | 10 | | additional treatment opportunities for my terminal disease. | 11 | | I have been fully informed of the nature of the medication | 12 | | to be prescribed, including the risks and benefits, and I | 13 | | understand that the likely outcome of self-administering the | 14 | | medication is death. | 15 | | I understand that I can rescind this request at any time, | 16 | | that I am under no obligation to fill the prescription once | 17 | | written, and that I have no duty to self-administer the | 18 | | medication if I obtain it. | 19 | | I request that my attending physician furnish a | 20 | | prescription for medication that will end my life if I choose | 21 | | to self-administer it, and I authorize my attending physician | 22 | | to transmit the prescription to a pharmacist to dispense the | 23 | | medication at a time of my choosing. | 24 | | I make this request voluntarily, free from coercion or | 25 | | undue influence. | 26 | | Dated: ................ |
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| 1 | | Signed .................................. | 2 | | (patient)
| 3 | | Dated: ................ | 4 | | Signed ............................... | 5 | | (witness #1)
| 6 | | Dated: ................ | 7 | | Signed .............................. | 8 | | (witness #2)"
| 9 | | (f) The interpreter attachment for a written request for | 10 | | medication under this Act shall be substantially as follows: | 11 | | "Request for Medication to End My Life in a Peaceful Manner | 12 | | Interpreter Attachment | 13 | | I, ...............(insert name of interpreter), am fluent | 14 | | in English and ...............(insert language of patient, | 15 | | including sign language). | 16 | | On .......(insert date) at approximately .......(insert | 17 | | time), I read the "Request for Medication to End My Life in a | 18 | | Peaceful Manner" form to ...............(insert name of | 19 | | patient) in ...............(insert language of patient). | 20 | | ...............(insert name of patient) affirmed to me | 21 | | that they understand the content of this form, that they | 22 | | desire to sign this form under their own power and volition, | 23 | | and that they requested to sign the form after consultations |
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| 1 | | with an attending physician and a consulting physician. | 2 | | Under penalty of perjury, I declare that I am fluent in | 3 | | English and ...............(language of patient, including | 4 | | sign language) and that the contents of this form, to the best | 5 | | of my knowledge, are true and correct. Executed at | 6 | | ..................................(insert name of city, | 7 | | county, and state) on .......(date). | 8 | | Interpreter's signature: .................................... | 9 | | Interpreter's printed name: ................................. | 10 | | Interpreter's address: ......................................". | 11 | | Section 30. Attending physician responsibilities. | 12 | | (a) Following the request of a patient for aid in dying, | 13 | | the attending physician shall conduct an evaluation of the | 14 | | patient and: | 15 | | (1) determine whether the patient has a terminal | 16 | | disease or has been diagnosed as having a terminal | 17 | | disease; | 18 | | (2) determine whether a patient has mental capacity; | 19 | | (3) confirm that the patient's request does not arise | 20 | | from coercion or undue influence; | 21 | | (4) inform the patient of: | 22 | | (A) the diagnosis; | 23 | | (B) the prognosis; | 24 | | (C) the potential risks, benefits, and probable | 25 | | result of self-administering the prescribed medication |
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| 1 | | to bring about a peaceful death; | 2 | | (D) the potential benefits and risks of feasible | 3 | | alternatives, including, but not limited to, | 4 | | concurrent or additional treatment options for the | 5 | | patient's terminal disease, comfort care, palliative | 6 | | care, hospice care, and pain control; and | 7 | | (E) the patient's right to rescind the request for | 8 | | medication pursuant to this Act at any time; | 9 | | (5) inform the patient that there is no obligation to | 10 | | fill the prescription nor an obligation to self-administer | 11 | | the medication, if it is obtained; | 12 | | (6) provide the patient with a referral for comfort | 13 | | care, palliative care, hospice care, pain control, or | 14 | | other end-of-life treatment options as requested by the | 15 | | patient and as clinically indicated; | 16 | | (7) refer the patient to a consulting physician for | 17 | | medical confirmation that the patient requesting | 18 | | medication pursuant to this Act: | 19 | | (A) has a terminal disease with a prognosis of 6 | 20 | | months or less to live; and | 21 | | (B) has mental capacity. | 22 | | (8) include the consulting physician's written | 23 | | determination in the patient's medical record; | 24 | | (9) refer the patient to a licensed mental health | 25 | | professional in accordance with Section 40 if the | 26 | | attending physician observes signs that the individual may |
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| 1 | | not be capable of making an informed decision; | 2 | | (10) include the licensed mental health professional's | 3 | | written determination in the patient's medical record, if | 4 | | such determination was requested; | 5 | | (11) inform the patient of the benefits of notifying | 6 | | the next of kin of the patient's decision to request | 7 | | medication pursuant to this Act; | 8 | | (12) fulfill the medical record documentation | 9 | | requirements; | 10 | | (13) ensure that all steps are carried out in | 11 | | accordance with this Act before providing a prescription | 12 | | to a qualified patient for medication pursuant to this Act | 13 | | including: | 14 | | (A) confirming that the patient has made an | 15 | | informed decision to obtain a prescription for | 16 | | medication; | 17 | | (B) offering the patient an opportunity to rescind | 18 | | the request for medication; and | 19 | | (C) providing information to the patient on: | 20 | | (I) the recommended procedure for | 21 | | self-administering the medication to be | 22 | | prescribed; | 23 | | (II) the safekeeping and proper disposal of | 24 | | unused medication in accordance with State and | 25 | | federal law; and | 26 | | (III) the importance of having another person |
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| 1 | | present when the patient self-administers the | 2 | | medication to be prescribed; | 3 | | (D) not taking the aid-in-dying medication in a | 4 | | public place; | 5 | | (14) deliver, in accordance with State and federal | 6 | | law, the prescription personally, by mail, or through an | 7 | | authorized electronic transmission to a licensed | 8 | | pharmacist who will dispense the medication, including any | 9 | | ancillary medications, to the qualified patient, or to a | 10 | | person expressly designated by the qualified patient in | 11 | | person or with a signature required on delivery, by mail | 12 | | service, or by messenger service; | 13 | | (15) if authorized by the Drug Enforcement | 14 | | Administration, dispense the prescribed medication, | 15 | | including any ancillary medications, to the qualified | 16 | | patient or a person designated by the qualified patient; | 17 | | and | 18 | | (16) include, in the qualified patient's medical | 19 | | record, the patient's diagnosis and prognosis, | 20 | | determination of mental capacity, the date of each oral | 21 | | request, a copy of the written request, a notation that | 22 | | the requirements under this Section have been completed, | 23 | | and an identification of the medication and ancillary | 24 | | medications prescribed to the qualified patient pursuant | 25 | | to this Act. | 26 | | (b) Notwithstanding any other provision of law, the |
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| 1 | | attending physician may sign the patient's death certificate. | 2 | | Section 35. Consulting physician responsibilities. A | 3 | | consulting physician shall: | 4 | | (1) conduct an evaluation of the patient and review | 5 | | the patient's relevant medical records, including the | 6 | | evaluation pursuant to Section 40, if such evaluation was | 7 | | necessary; | 8 | | (2) confirm in writing to the attending physician that | 9 | | the patient: | 10 | | (A) has requested a prescription for aid-in-dying | 11 | | medication; | 12 | | (B) has a documented terminal disease; | 13 | | (C) has mental capacity or has provided | 14 | | documentation that the consulting health care | 15 | | professional has referred the individual for further | 16 | | evaluation in accordance with Section 40; and | 17 | | (D) is acting voluntarily, free from coercion or | 18 | | undue influence. | 19 | | Section 40. Referral for determination that the requesting | 20 | | patient has mental capacity. | 21 | | (a) If either the attending physician or the consulting | 22 | | physician has doubts whether the individual has mental | 23 | | capacity and if either one is unable to confirm that the | 24 | | individual is capable of making an informed decision, the |
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| 1 | | attending physician or consulting physician shall refer the | 2 | | patient to a licensed mental health professional for | 3 | | determination regarding mental capability. | 4 | | (b) The licensed mental health professional shall | 5 | | additionally determine whether the patient is suffering from a | 6 | | psychiatric or psychological disorder causing impaired | 7 | | judgment. | 8 | | (c) The licensed mental health professional who evaluates | 9 | | the patient under this Section shall submit to the requesting | 10 | | attending or consulting physician a written determination of | 11 | | whether the patient has mental capacity. | 12 | | (d) If the licensed mental health professional determines | 13 | | that the patient does not have mental capacity, or is | 14 | | suffering from a psychiatric or psychological disorder causing | 15 | | impaired judgment, the patient shall not be deemed a qualified | 16 | | patient and the attending physician shall not prescribe | 17 | | medication to the patient under this Act. | 18 | | Section 45. Residency requirement. | 19 | | (a) Only requests made by Illinois residents may be | 20 | | granted under this Act. | 21 | | (b) A patient is able to establish residency through any | 22 | | one or more of the following means: | 23 | | (1) possession of a driver's license or other | 24 | | identification issued by the Secretary of State or State | 25 | | of Illinois; |
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| 1 | | (2) registration to vote in Illinois; | 2 | | (3) evidence that the person owns, rents, or leases | 3 | | property in Illinois; | 4 | | (4) the location of any dwelling occupied by the | 5 | | person; | 6 | | (5) the place where any motor vehicle owned by the | 7 | | person is registered; | 8 | | (6) the residence address, not a post office box, | 9 | | shown on an income tax return filed for the year preceding | 10 | | the year in which the person initially makes an oral | 11 | | request under this Act; | 12 | | (7) the residence address, not a post office box, at | 13 | | which the person's mail is received; | 14 | | (8) the residence address, not a post office box, | 15 | | shown on any unexpired resident hunting or fishing or | 16 | | other licenses held by the person; | 17 | | (9) the residence address, not a post office box, | 18 | | shown on any driver's license held by the person; | 19 | | (10) the receipt of any public benefit conditioned | 20 | | upon residency; or | 21 | | (11) any other objective facts tending to indicate a | 22 | | person's place of residence is in Illinois. | 23 | | Section 50. Safe disposal of unused medications. A person | 24 | | who has custody or control of medication prescribed pursuant | 25 | | to this Act after the qualified patient's death shall dispose |
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| 1 | | of the medication by delivering it to the nearest qualified | 2 | | facility that properly disposes of controlled substances or, | 3 | | if none is available, by lawful means in accordance with | 4 | | applicable State and federal guidelines. | 5 | | Section 55. No duty to provide aid in dying. | 6 | | (a) A health care professional shall not be under any | 7 | | duty, by law or contract, to participate in the provision of | 8 | | aid-in-dying care to a patient as set forth in this Act. | 9 | | (b) A health care professional shall not be subject to | 10 | | civil or criminal liability for participating or refusing to | 11 | | participate in the provision of aid-in-dying care to a patient | 12 | | in good faith compliance with this Act. | 13 | | (c) A health care entity or licensing board shall not | 14 | | subject a health care professional to censure, discipline, | 15 | | suspension, loss of license, loss of privileges, loss of | 16 | | membership, or other penalty for participating or refusing to | 17 | | participate in accordance with this Act. | 18 | | (d) A health care professional may choose not to engage in | 19 | | aid-in-dying care. | 20 | | (e) Only willing health care professionals shall provide | 21 | | aid-in-dying care in accordance with this Act. If a health | 22 | | care professional is unable or unwilling to carry out a | 23 | | patient's request under this Act, and the patient transfers | 24 | | the patient's care to a new health care professional, the | 25 | | prior health care professional shall transmit, upon request, a |
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| 1 | | copy of the patient's relevant medical records to the new | 2 | | health care professional without undue delay. | 3 | | (f) A health care professional shall not engage in false, | 4 | | misleading, or deceptive practices relating to a willingness | 5 | | to qualify a patient or provide aid-in-dying care. | 6 | | Intentionally misleading a patient constitutes coercion. | 7 | | (g) The provisions of the Health Care Right of Conscience | 8 | | Act apply to this Act and are incorporated by reference. | 9 | | Section 60. Health care entity permissible prohibitions | 10 | | and duties. | 11 | | (a) A health care entity may prohibit health care | 12 | | professionals from practicing aid-in-dying care while | 13 | | performing duties for the entity. A prohibiting entity must | 14 | | provide advance notice in writing to health care professionals | 15 | | and staff at the time of hiring, contracting with, or | 16 | | privileging and on a yearly basis thereafter. | 17 | | (b) If a patient wishes to transfer care to another health | 18 | | care entity, the prohibiting entity shall coordinate a timely | 19 | | transfer of care, including transmitting, without undue delay, | 20 | | the patient's medical records that include notation of the | 21 | | date the patient first made a request concerning aid-in-dying | 22 | | care. | 23 | | (c) No health care entity shall prohibit a health care | 24 | | professional from: | 25 | | (1) providing information to a patient regarding the |
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| 1 | | patient's health status, including, but not limited to, | 2 | | diagnosis, prognosis, recommended treatment and treatment | 3 | | alternatives, and the risks and benefits of each; | 4 | | (2) providing information regarding health care | 5 | | services available pursuant to this Act, information about | 6 | | relevant community resources, and how to access those | 7 | | resources for obtaining care of the patient's choice; | 8 | | (3) practicing aid-in-dying care outside the scope of | 9 | | the health care professional's employment or contract with | 10 | | the prohibiting entity and off the premises of the | 11 | | prohibiting entity; or | 12 | | (4) being present, if outside the scope of the health | 13 | | care professional's employment or contractual duties, when | 14 | | a qualified patient self-administers medication prescribed | 15 | | pursuant to this Act or at the time of death, if requested | 16 | | by the qualified patient or their representative. | 17 | | (d) A health care entity shall not engage in false, | 18 | | misleading, or deceptive practices relating to its policy | 19 | | around end-of-life care services, including whether it has a | 20 | | policy that prohibits affiliated health care professionals | 21 | | from practicing aid-in-dying care; or intentionally denying a | 22 | | patient access to medication pursuant to this Act by | 23 | | intentionally failing to transfer a patient and the patient's | 24 | | medical records to another health care professional in a | 25 | | timely manner. Intentionally misleading a patient or deploying | 26 | | misinformation to obstruct access to services pursuant to this |
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| 1 | | Act constitutes coercion or undue influence. | 2 | | (e) The provisions of the Health Care Right of Conscience | 3 | | Act apply to this Act and are incorporated by reference. | 4 | | (f) If any part of this Section is found to be in conflict | 5 | | with federal requirements which are a prescribed condition to | 6 | | receipt of federal funds, the conflicting part of this Section | 7 | | is inoperative solely to the extent of the conflict with | 8 | | respect to the entity directly affected, and such finding or | 9 | | determination shall not affect the operation of the remainder | 10 | | of the Section or this Act. | 11 | | Section 65. Immunities for actions in good faith; | 12 | | prohibition against reprisals. | 13 | | (a) A health care professional or health care entity shall | 14 | | not be subject to civil or criminal liability, licensing | 15 | | sanctions, or other professional disciplinary action for | 16 | | actions taken in good faith compliance with this Act. | 17 | | (b) If a health care professional or health care entity is | 18 | | unable or unwilling to carry out an individual's request for | 19 | | aid in dying, the professional or entity shall, at a minimum: | 20 | | (1) inform the individual of the professional's or | 21 | | entity's inability or unwillingness; | 22 | | (2) refer the individual either to a health care | 23 | | professional who is able and willing to evaluate and | 24 | | qualify the individual or to another individual or entity | 25 | | to assist the requesting individual in seeking aid in |
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| 1 | | dying, in accordance with the Health Care Right of | 2 | | Conscience Act; and | 3 | | (3) note, in the medical record, the individual's date | 4 | | of request and health care professional's notice to the | 5 | | individual of the health care professional's unwillingness | 6 | | or inability to carry out the individual's request. | 7 | | (c) A health care entity or licensing board shall not | 8 | | subject a health care professional to censure, discipline, | 9 | | suspension, loss of license, loss of privileges, loss of | 10 | | membership, or other penalty for engaging in good faith | 11 | | compliance with this Act. | 12 | | (d) A health care professional, health care entity, or | 13 | | licensing board shall not subject a health care professional | 14 | | to discharge, demotion, censure, discipline, suspension, loss | 15 | | of license, loss of privileges, loss of membership, | 16 | | discrimination, or any other penalty for providing | 17 | | aid-in-dying care in accordance with the standard of care and | 18 | | in good faith under this Act when: | 19 | | (1) engaged in the outside practice of medicine and | 20 | | off of the objecting health care entity's premises; or | 21 | | (2) providing scientific and accurate information | 22 | | about aid-in-dying care to a patient when discussing | 23 | | end-of-life care options. | 24 | | (e) A physician is not subject to civil or criminal | 25 | | liability or professional discipline if, at the request of the | 26 | | qualified patient, the physician is present outside the scope |
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| 1 | | of the physician's employment contract and off the entity's | 2 | | premises, when the qualified patient self-administers | 3 | | medication pursuant to this Act, or at the time of death. | 4 | | (f) A physician who is present at self-administration may, | 5 | | without civil or criminal liability, assist the qualified | 6 | | patient by preparing the medication prescribed pursuant to | 7 | | this Act. | 8 | | (g) A request by a patient for aid in dying does not alone | 9 | | constitute grounds for neglect or elder abuse for any purpose | 10 | | of law, nor shall it be the sole basis for appointment of a | 11 | | guardian. | 12 | | (h) This Section does not limit civil liability for | 13 | | intentional misconduct. | 14 | | Section 70. Reporting requirements. | 15 | | (a) Within 45 days after the effective date of this Act, | 16 | | the Department shall create and post to its website an | 17 | | Attending Physician Checklist Form and Attending Physician | 18 | | Follow-Up Form to facilitate collection of the information | 19 | | described in this Section. Failure to create or post the | 20 | | Attending Physician Checklist Form, the Attending Physician | 21 | | Follow-Up Form, or both shall not suspend the effective date | 22 | | of this Act. | 23 | | (b) Within 30 calendar days of providing a prescription | 24 | | for medication pursuant to this Act, the attending physician | 25 | | shall submit to the Department an Attending Physician |
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| 1 | | Checklist Form with the following information: | 2 | | (1) the qualifying patient's name and date of birth; | 3 | | (2) the qualifying patient's terminal diagnosis and | 4 | | prognosis; | 5 | | (3) notice that the requirements under this Act were | 6 | | completed; and | 7 | | (4) notice that medication has been prescribed | 8 | | pursuant to this Act. | 9 | | (c) Within 60 calendar days of notification of a qualified | 10 | | patient's death from self-administration of medication | 11 | | prescribed pursuant to this Act, the attending physician shall | 12 | | submit to the Department, an Attending Physician Follow-Up | 13 | | Form with the following information: | 14 | | (1) the qualified patient's name and date of birth; | 15 | | (2) the date of the qualified patient's death; and | 16 | | (3) a notation of whether the qualified patient was | 17 | | enrolled in hospice services at the time of the qualified | 18 | | patient's death. | 19 | | (d) The Department shall collect and annually review the | 20 | | forms filed pursuant to Section to ensure compliance. If a | 21 | | physician required to report information to the Department | 22 | | under this Act provides an inadequate or incomplete report, | 23 | | the Department shall contact the physician to request an | 24 | | adequate or complete report. The information collected shall | 25 | | be confidential and shall be collected in a manner that | 26 | | protects the privacy of the patient, the patient's family, and |
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| 1 | | any health care professional involved with the patient under | 2 | | the provisions of this Act. The information shall be | 3 | | privileged and strictly confidential, and shall not be | 4 | | disclosed, discoverable, or compelled to be produced in any | 5 | | civil, criminal, administrative, or other proceeding. | 6 | | (e) One year after the effective date of this Act, and each | 7 | | year thereafter, the Department shall create and post on its | 8 | | website a public statistical report of nonidentifying | 9 | | information. The report shall be limited to: | 10 | | (1) the number of prescriptions for medication written | 11 | | pursuant to this Act; | 12 | | (2) the number of physicians who wrote prescriptions | 13 | | for medication pursuant to this Act; | 14 | | (3) the number of qualified patients who died | 15 | | following self-administration of medication prescribed and | 16 | | dispensed pursuant to this Act; and | 17 | | (4) the number of people who died due to using an | 18 | | aid-in-dying drug, with demographic percentages organized | 19 | | by the following characteristics: | 20 | | (A) age at death; | 21 | | (B) education level; | 22 | | (C) race; | 23 | | (D) gender; | 24 | | (E) type of insurance, including whether the | 25 | | patient had insurance; | 26 | | (F) underlying illness; and |
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| 1 | | (G) enrollment in hospice. | 2 | | (f) Except as otherwise required by law, the information | 3 | | collected by the Department is not a public record and is not | 4 | | available for public inspection. | 5 | | (g) Willful failure or refusal to timely submit records | 6 | | required under this Act may result in disciplinary action. | 7 | | Section 75. Effect on construction of wills, contracts, | 8 | | and statutes. | 9 | | (a) No provision in a contract, will, or other agreement, | 10 | | whether written or oral, that would determine whether a | 11 | | patient may make or rescind a request pursuant to this Act is | 12 | | valid. | 13 | | (b) No obligation owing under any contract that is in | 14 | | effect on the effective date of this Act shall be conditioned | 15 | | or affected by a patient's act of making or rescinding a | 16 | | request pursuant to this Act. | 17 | | (c) It is unlawful for an insurer to deny or alter health | 18 | | care benefits otherwise available to a patient with a terminal | 19 | | disease based on the availability of aid-in-dying care or | 20 | | otherwise attempt to coerce a patient with a terminal disease | 21 | | to make a request for aid-in-dying medication. | 22 | | Section 80. Insurance or annuity policies. | 23 | | (a) The sale, procurement, or issuance of a life, health, | 24 | | or accident insurance policy, annuity policy, or the rate |
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| 1 | | charged for a policy shall not be conditioned upon or affected | 2 | | by a patient's act of making or rescinding a request for | 3 | | medication pursuant to this Act. | 4 | | (b) A qualified patient's act of self-administering | 5 | | medication pursuant to this Act does not invalidate any part | 6 | | of a life, health, or accident insurance, or annuity policy. | 7 | | (c) An insurance plan, including medical assistance under | 8 | | Article V of the Illinois Public Aid Code, shall not deny or | 9 | | alter benefits to a patient with a terminal disease who is a | 10 | | covered beneficiary of a health insurance plan, based on the | 11 | | availability of aid-in-dying care, their request for | 12 | | medication pursuant to this Act, or the absence of a request | 13 | | for medication pursuant to this Act. Failure to meet this | 14 | | requirement shall constitute a violation of the Illinois | 15 | | Insurance Code. | 16 | | Section 85. Death certificate. | 17 | | (a) Unless otherwise prohibited by law, the attending | 18 | | physician may sign the death certificate of a qualified | 19 | | patient who obtained and self-administered a prescription for | 20 | | medication pursuant to this Act. | 21 | | (b) When a death has occurred in accordance with this Act, | 22 | | the death shall be attributed to the underlying terminal | 23 | | disease. | 24 | | (1) Death following self-administering medication | 25 | | under this Act does not alone constitute grounds for |
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| 1 | | postmortem inquiry. | 2 | | (2) Death in accordance with this Act shall not be | 3 | | designated a suicide or homicide. | 4 | | (c) A qualified patient's act of self-administering | 5 | | medication prescribed pursuant to this Act shall not be | 6 | | indicated on the death certificate. | 7 | | Section 90. Liabilities and penalties. | 8 | | (a) Nothing in this Act limits civil or criminal liability | 9 | | arising from: | 10 | | (1) Intentionally or knowingly altering or forging a | 11 | | patient's request for medication pursuant to this Act or | 12 | | concealing or destroying a rescission of a request for | 13 | | medication pursuant to this Act. | 14 | | (2) Intentionally or knowingly coercing or exerting | 15 | | undue influence on a patient with a terminal disease to | 16 | | request medication pursuant to this Act or to request or | 17 | | use or not use medication pursuant to this Act. | 18 | | (3) Intentional misconduct by a health care | 19 | | professional or health care entity. | 20 | | (b) The penalties specified in this Act do not preclude | 21 | | criminal penalties applicable under other laws for conduct | 22 | | inconsistent with this Act. | 23 | | (c) As used in this Section, "intentionally" and | 24 | | "knowingly" have the meanings provided in Sections 4-4 and 4-5 | 25 | | of the Criminal Code of 2012. |
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| 1 | | Section 95. Construction. | 2 | | (a) Nothing in this Act authorizes a physician or any | 3 | | other person, including the qualified patient, to end the | 4 | | qualified patient's life by lethal injection, lethal infusion, | 5 | | mercy killing, homicide, murder, manslaughter, euthanasia, or | 6 | | any other criminal act. | 7 | | (b) Actions taken in accordance with this Act do not, for | 8 | | any purposes, constitute suicide, assisted suicide, | 9 | | euthanasia, mercy killing, homicide, murder, manslaughter, | 10 | | elder abuse or neglect, or any other civil or criminal | 11 | | violation under the law. | 12 | | Section 100. Severability. The provisions of this Act are | 13 | | severable under Section 1.31 of the Statute on Statutes. | 14 | | Section 999. Effective date. This Act takes effect 6 | 15 | | months after this Act becomes law. |
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