Full Text of HR0897 103rd General Assembly
HR0897 103RD GENERAL ASSEMBLY | | | HR0897 | | LRB103 42451 MST 75681 r |
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| 1 | | HOUSE RESOLUTION | 2 | | WHEREAS, The National Institutes of Health reports that an | 3 | | estimated 50,000 to 100,000 people in the United States have | 4 | | primary biliary cholangitis (PBC), a chronic progressive liver | 5 | | disease in which the bile ducts become inflamed and damaged; | 6 | | and | 7 | | WHEREAS, PBC is a rare, chronic autoimmune liver condition | 8 | | in which the small ducts in the liver are inflamed and damaged, | 9 | | causing bile and toxins to build up and cause problems, | 10 | | including scarring, cirrhosis (scarring and poor liver | 11 | | function), and eventual liver failure; the disease has no | 12 | | cure; and | 13 | | WHEREAS, PBC is more common in women, and researchers | 14 | | estimate that in the U.S. approximately 65 out of every | 15 | | 100,000 women have PBC; and | 16 | | WHEREAS, Many people do not have symptoms when they are | 17 | | first diagnosed and may not develop symptoms for several | 18 | | years; early symptoms may include fatigue or lethargy, which | 19 | | is the most common symptom, itchy skin (pruitus), dry | 20 | | eyes/mouth, and abdominal pain; and | 21 | | WHEREAS, More people are being diagnosed with PBC, |
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| 1 | | impacting people of varied ages, gender, race and ethnicity; | 2 | | those living with PBC share common symptoms, including | 3 | | debilitating fatigue and incessant itching or skin-crawling | 4 | | sensations that is made worse at night; and | 5 | | WHEREAS, A GI specialist can screen a patient for primary | 6 | | biliary cholangitis by checking certain indicators in the | 7 | | blood that determine how well the liver is functioning; | 8 | | elevated quantities of the enzyme alkaline phosophatase (ALP) | 9 | | and AMA's (antimitochondrial antibodies) in the blood stream | 10 | | could point to PBC; diagnostic imaging tests could also be | 11 | | conducted to get a closer look at the bile ducts and the liver | 12 | | to screen for signs of scarring; and | 13 | | WHEREAS, There is no cure for PBC, but treatment can help | 14 | | delay the condition's progression and manage complications; a | 15 | | liver transplant may be required in severe cases; in addition | 16 | | to the most common symptoms of fatigue and itchy skin, other | 17 | | symptoms may include darkening of the skin, small yellow or | 18 | | white bumps under the skin or around the eyes, and bone, | 19 | | muscle, and joint pain; as the disease progresses, symptoms of | 20 | | cirrhosis can develop, including jaundice, swelling of the | 21 | | legs and feet (edema), enlarged abdomen from fluid | 22 | | accumulation (ascites), or internal bleeding in the upper | 23 | | stomach and esophagus from enlarged veins (varices); and |
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| 1 | | WHEREAS, People living with PBC have been waiting for | 2 | | treatment advancements for many years; the Orphan Drug Act has | 3 | | encouraged and promoted the discovery and development of | 4 | | biopharmaceuticals designed to treat and potentially cure rare | 5 | | diseases; and | 6 | | WHEREAS, Many of the world's leading academic | 7 | | institutions, academic medical centers, biotech companies, and | 8 | | pharmaceutical companies that are conducting research and | 9 | | seeking cures for rare diseases are doing so in this State; | 10 | | therefore, be it | 11 | | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | 12 | | HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | 13 | | we declare September 2024 as PBC Awareness Month and September | 14 | | 8, 2024 as PBC Day in the State of Illinois in order to raise | 15 | | awareness of primary biliary cholangitis (PBC) and provide an | 16 | | opportunity for patient organizations to help connect | 17 | | individuals and families who struggle with PBC, bring | 18 | | attention to the need for research and funding to support the | 19 | | discovery and development of therapies designed to treat and | 20 | | potentially cure PBC, and support the continued work of the | 21 | | Friends of the PBC Foundation; and be it further | 22 | | RESOLVED, That suitable copies of this resolution be | 23 | | presented to the Illinois Biotechnology Innovation |
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| 1 | | Organization (iBIO), the chairperson of the Illinois Rare | 2 | | Disease Commission, and the Illinois Department of Public | 3 | | Health. |
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