Full Text of HB4842 101st General Assembly
HB4842 101ST GENERAL ASSEMBLY |
| | 101ST GENERAL ASSEMBLY
State of Illinois
2019 and 2020 HB4842 Introduced 2/18/2020___________, by SYNOPSIS AS INTRODUCED: |
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Creates the Supported Decision-Making Agreement Act. Authorizes the creation of supported decision-making agreements and allows a supporter to assist a principal in accessing, collecting, or obtaining information that is relevant to a decision authorized under the supported decision-making agreement. Provides that all adults are presumed to be capable of managing their affairs and to have capacity unless otherwise determined by a court. Provides that certain persons are disqualified from acting as a supporter. Provides that a supporter may exercise the authority granted to the supporter in the supported decision-making agreement. Provides for the duties of a supporter in a supported decision-making agreement. Prohibits a supporter from doing certain actions in relation to the principal. Requires a notary public or 2 or more witnesses to be present and sign and date a supported decision-making agreement. Provides a form for a supported decision-making agreement. Provides that a person is not subject to criminal or civil liability and has not engaged in professional misconduct for an act or omission under certain circumstances. Provides that a decision or request made or communicated with the assistance of a supporter shall be recognized as the decision or request of the principal and may be enforced by the principal or supporter on the same basis as a decision or request of the principal. Provides that if a person who receives a copy or is aware of the existence of a supported decision-making agreement and has cause to believe that the principal is being abused, neglected, or exploited by the supporter, the person shall report the alleged abuse, neglect, or exploitation to the Adult Protective Services Hotline. Provides for the termination of a supported decision-making agreement. Provides that a principal may revoke the supported decision-making agreement and invalidate the supported decision-making agreement at any time. Provides that a supporter may resign by giving notice to the principal. Effective immediately.
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| | A BILL FOR |
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| 1 | | AN ACT concerning civil law.
| 2 | | Be it enacted by the People of the State of Illinois,
| 3 | | represented in the General Assembly:
| 4 | | Section 1. Short title. This Act may be cited as the | 5 | | Supported Decision-Making Agreement Act. | 6 | | Section 5. Purpose; interpretation. The purpose of this Act | 7 | | is to recognize a less-restrictive alternative to guardianship | 8 | | for adults with disabilities who need assistance with decisions | 9 | | regarding daily living. | 10 | | This Act shall be administered and interpreted in | 11 | | accordance with the following principles: | 12 | | (1) All adults should be able to live in the manner | 13 | | they choose and to accept or refuse support, assistance, or | 14 | | protection as long as they do not harm others and are | 15 | | capable of making decisions about those matters. | 16 | | (2) All adults should be able to be informed about and, | 17 | | to the best of their ability, participate in the management | 18 | | of their affairs. | 19 | | (3) All adults should receive the most effective yet | 20 | | least restrictive and intrusive forms of support, | 21 | | assistance, and protection when they are unable to care for | 22 | | themselves or manage their affairs alone. | 23 | | (4) The values, beliefs, wishes, cultural norms, and |
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| 1 | | traditions that an adult holds should be respected in | 2 | | managing the affairs of an adult. | 3 | | Section 10. Definitions. As used in this Act: | 4 | | "Adult" means a person who is at least 18 years of age. | 5 | | "Principal" means an adult who seeks to enter, or has | 6 | | entered, into a supported decision-making agreement with a | 7 | | supporter under this Act. | 8 | | "Supported decision-making agreement" means an agreement | 9 | | between a principal and a supporter under this Act. | 10 | | "Supporter" means an adult who has entered into a supported | 11 | | decision-making agreement with a principal under this Act. | 12 | | Section 15. Presumption of capability. | 13 | | (a) All adults are presumed to be capable of managing their | 14 | | affairs and to have capacity unless otherwise determined by a | 15 | | court. A diagnosis of mental illness, intellectual disability, | 16 | | or developmental disability, of itself, does not void the | 17 | | presumption of capacity. | 18 | | (b) The manner in which an adult communicates with others | 19 | | is not grounds for deciding that the adult is incapable of | 20 | | managing the affairs of the adult. | 21 | | (c) The execution of a supported decision-making agreement | 22 | | may not be used as evidence of incapacity and does not preclude | 23 | | the ability of the adult who has entered into a supported | 24 | | decision-making agreement to act independently of the |
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| 1 | | agreement. | 2 | | Section 20. Supporter disqualifications. The following | 3 | | persons are disqualified from acting as a supporter: | 4 | | (1) a person who is an employer or employee of the | 5 | | principal, unless the person is an immediate family member | 6 | | of the principal; | 7 | | (2) a person directly providing paid support services | 8 | | to the principal, with the exception of supported | 9 | | decision-making services, unless the person is an | 10 | | immediate family member of the principal; | 11 | | (3) a person who works for an agency that is | 12 | | financially responsible for the care of the principal; | 13 | | (4) a person who has had a court find that he or she | 14 | | has committed abuse, neglect, or exploitation of the | 15 | | principal, a child, an elderly individual, or a person with | 16 | | a disability; | 17 | | (5) a person against whom the principal has obtained an | 18 | | order of protection or an individual who is the subject of | 19 | | a civil or criminal order prohibiting contact with the | 20 | | principal; and | 21 | | (6) a person who has been convicted of: | 22 | | (i) a sex offense; | 23 | | (ii) aggravated assault; | 24 | | (iii) fraud; | 25 | | (iv) theft; |
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| 1 | | (v) forgery; or | 2 | | (vi) extortion. | 3 | | Section 25. Authority of the supporter. A supporter may | 4 | | exercise the authority granted to the supporter in the | 5 | | supported decision-making agreement. | 6 | | Section 30. Supporter duties. | 7 | | (a) Except as otherwise provided by a supported | 8 | | decision-making agreement, a supporter may: | 9 | | (1) Assist the principal in understanding information, | 10 | | options, responsibilities, and consequences of the life | 11 | | decisions of the principal, including those decisions | 12 | | related to the affairs or support services of the | 13 | | principal. | 14 | | (2) Help the principal access, obtain, and understand | 15 | | any information that is relevant to any given life | 16 | | decision, including a medical, psychological, financial, | 17 | | or educational decision, or any treatment records or | 18 | | records necessary to manage the affairs or support services | 19 | | of the principal. | 20 | | (3) Assist the principal in finding, obtaining, making | 21 | | appointments for, and implementing the support services or | 22 | | plans for support services of the principal. | 23 | | (4) Help the principal monitor information about the | 24 | | affairs or support services of the principal, including |
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| 1 | | keeping track of future necessary or recommended services. | 2 | | (5) Ascertain the wishes and decisions of the | 3 | | principal, assist in communicating those wishes and | 4 | | decisions to other persons, and advocate to ensure that the | 5 | | wishes and decisions of the principal are implemented. | 6 | | (b) A supporter shall act with the care, competence, and | 7 | | diligence ordinarily exercised by an individual in a similar | 8 | | circumstance, with due regard to the possession of, or lack of, | 9 | | special skills or expertise. | 10 | | Section 35. Supporter prohibitions. A supporter is | 11 | | prohibited from: | 12 | | (1) Exerting undue influence upon, or making decisions | 13 | | on behalf of, the principal. | 14 | | (2) Obtaining, without the consent of the principal, | 15 | | information that is not reasonably related to matters with | 16 | | which the supporter is authorized to assist under the | 17 | | supported decision-making agreement. | 18 | | (3) Using, without the consent of the principal, | 19 | | information acquired for a purpose other than assisting the | 20 | | principal to make a decision under the supported | 21 | | decision-making agreement. | 22 | | Section 40. Access to personal information. | 23 | | (a) A supporter is only authorized to assist the principal | 24 | | in accessing, collecting, or obtaining information that is |
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| 1 | | relevant to a decision authorized under the supported | 2 | | decision-making agreement. | 3 | | (b) If a supporter assists a principal in accessing, | 4 | | collecting, or obtaining personal information, including | 5 | | protected health information under the Health Insurance | 6 | | Portability and Accountability Act of 1996 or educational | 7 | | records under the Family Educational Rights and Privacy Act of | 8 | | 1974, the supporter shall ensure that the information is kept | 9 | | privileged and confidential, as applicable, and is not subject | 10 | | to unauthorized access, use, or disclosure. | 11 | | (c) The existence of a supported decision-making agreement | 12 | | does not preclude a principal from seeking personal information | 13 | | without the assistance of the supporter. | 14 | | Section 45. Authorization and witnesses. A principal and | 15 | | his or her supporter entering into a supported decision-making | 16 | | agreement shall sign and date the agreement in the presence of | 17 | | a notary public or in the presence of 2 or more subscribing | 18 | | witnesses who are at least 18 years of age. | 19 | | Section 50. Agreement instrument. A supported | 20 | | decision-making agreement is valid if it substantially follows | 21 | | the following form: | 22 | | "SUPPORTED DECISION-MAKING AGREEMENT | 23 | | Important Information for the Supporter: Duties |
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| 1 | | If you agree to provide support to the principal, you have | 2 | | a duty to: | 3 | | (1) act in good faith; | 4 | | (2) act within the authority granted in this agreement; | 5 | | (3) act loyally and without self-interest; and | 6 | | (4) avoid conflicts of interest. | 7 | | Appointment of Supporter | 8 | | I, (insert principal's name), make this agreement of my own | 9 | | free will. | 10 | | I agree and designate that the following individual is my | 11 | | supporter: | 12 | | Name: ............................................... | 13 | | Address: ............................................ | 14 | | Phone Number: ....................................... | 15 | | Email Address: .......................................... | 16 | | My supporter is to help me make decisions for myself and | 17 | | may help me with making everyday life decisions relating to the | 18 | | following: | 19 | | (Yes/No) obtaining food, clothing, and shelter. | 20 | | (Yes/No) taking care of my physical and emotional health. | 21 | | (Yes/No) managing my financial affairs. |
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| 1 | | (Yes/No) applying for public benefits. | 2 | | (Yes/No) helping me find work. | 3 | | (Yes/No) assisting with residential services. | 4 | | (Yes/No) helping me with school. | 5 | | (Yes/No) helping me advocate for myself. | 6 | | My supporter is not allowed to make decisions for me. To | 7 | | help me with my decisions, my supporter may: | 8 | | (1) help me access, collect, or obtain information that | 9 | | is relevant to a decision, including medical, | 10 | | psychological, financial, educational, housing, and | 11 | | treatment records; | 12 | | (2) help me understand my options so that I can make an | 13 | | informed decision; and | 14 | | (3) help me communicate my decision to appropriate | 15 | | persons. | 16 | | I want my supporter to have: | 17 | | (Yes/No) A release allowing my supporter to see | 18 | | protected health information under the Health Insurance | 19 | | Portability and Accountability Act of 1996 is attached. | 20 | | (Yes/No) A release allowing my supporter to see | 21 | | confidential information under the Mental Health and | 22 | | Developmental Disabilities Confidentiality Act is | 23 | | attached. | 24 | | (Yes/No) A release allowing my supporter to see |
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| 1 | | educational records under the Family Educational Rights | 2 | | and Privacy Act of 1974 and the Illinois School Records Act | 3 | | is attached. | 4 | | (Yes/No) A release allowing my supporter to see | 5 | | substance abuse records under Confidentiality of Alcohol | 6 | | and Drug Abuse Patient Records regulations is attached. | 7 | | This supported decision-making agreement is effective | 8 | | immediately and will continue until (insert date) or until the | 9 | | agreement is terminated by my supporter or me or by operation | 10 | | of law. | 11 | | Signed this .... day of ........, 20.... | 12 | | (Signature of Principal) (Printed name of principal) | 13 | | Consent of Supporter | 14 | | I, (name of supporter), consent to act as a supporter under | 15 | | this agreement. | 16 | | (Signature of supporter) (Printed name of supporter) | 17 | | (Witness 1 signature) (Printed name of witness 1) | 18 | | (Witness 2 signature) (Printed name of witness 2) | 19 | | WARNING: PROTECTION FOR THE ADULT WITH A DISABILITY |
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| 1 | | IF A PERSON WHO RECEIVES A COPY OF THIS AGREEMENT OR IS AWARE | 2 | | OF THE EXISTENCE OF THIS AGREEMENT HAS CAUSE TO BELIEVE THAT | 3 | | THE ADULT WITH A DISABILITY IS BEING ABUSED, NEGLECTED, OR | 4 | | EXPLOITED BY THE SUPPORTER, THE PERSON SHALL REPORT THE ALLEGED | 5 | | ABUSE, NEGLECT, OR EXPLOITATION TO THE ADULT PROTECTIVE | 6 | | SERVICES HOTLINE: 1-866-800-1409, 1-888-206-1327 (TTY)." | 7 | | This form is not intended to exclude other forms or | 8 | | agreements that identify the principal, supporter, and types of | 9 | | supports. | 10 | | Section 55. Reliance on agreement; limitation of | 11 | | liability. | 12 | | (a) A person who receives the original or a copy of a | 13 | | supported decision-making agreement shall rely on the | 14 | | agreement. | 15 | | (b) A person is not subject to criminal or civil liability | 16 | | and has not engaged in professional misconduct for an act or | 17 | | omission if the act or omission is done in good faith and in | 18 | | reliance on a supported decision-making agreement. | 19 | | Section 60. Recognition of supporters. A decision or | 20 | | request made or communicated with the assistance of a supporter | 21 | | in conformity with this Act shall be recognized for the | 22 | | purposes of any provision of law as the decision or request of | 23 | | the principal and may be enforced by the principal or supporter |
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| 1 | | in law or equity on the same basis as a decision or request of | 2 | | the principal. | 3 | | Section 65. Reporting of suspected abuse, neglect, or | 4 | | exploitation. If a person who receives a copy of a supported | 5 | | decision-making agreement or is aware of the existence of a | 6 | | supported decision-making agreement and has cause to believe | 7 | | that the adult with a disability is being abused, neglected, or | 8 | | exploited by the supporter, the person shall report the alleged | 9 | | abuse, neglect, or exploitation to the Adult Protective | 10 | | Services Hotline: 1-866-800-1409, 1-888-206-1327 (TTY). | 11 | | Section 70. Term of agreement; revocation. | 12 | | (a) A supported decision-making agreement extends until | 13 | | terminated by either party or by the terms of the agreement. | 14 | | (b) A supported decision-making agreement is terminated | 15 | | if: | 16 | | (1) the Office of Inspector General or Adult Protective | 17 | | Services substantiated an allegation of abuse or neglect by | 18 | | the supporter; or | 19 | | (2) there is a restraining order against the supporter | 20 | | by the principal. | 21 | | (c) A principal may revoke his or her supported | 22 | | decision-making agreement and invalidate the supported | 23 | | decision-making agreement at any time by: | 24 | | (1) canceling or destroying the supported |
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| 1 | | decision-making agreement or directing another in the | 2 | | presence of the principal to destroy the decision-making | 3 | | agreement; | 4 | | (2) executing a statement, in writing, that is signed | 5 | | and dated by the principal, expressing his or her intent to | 6 | | revoke the supported decision-making agreement; or | 7 | | (3) verbally expressing the intent of the principal to | 8 | | revoke the supported decision-making agreement in the | 9 | | presence of 2 witnesses. | 10 | | (d) Unless the supported decision-making agreement | 11 | | provides a different method for the resignation of the support, | 12 | | a supporter may resign by giving notice to the principal.
| 13 | | Section 99. Effective date. This Act takes effect upon | 14 | | becoming law.
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