Full Text of SB2044 103rd General Assembly
SB2044sam001 103RD GENERAL ASSEMBLY | Sen. Sally J. Turner Filed: 3/24/2023
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| 1 | | AMENDMENT TO SENATE BILL 2044
| 2 | | AMENDMENT NO. ______. Amend Senate Bill 2044 by replacing | 3 | | everything after the enacting clause with the following:
| 4 | | "Section 1. This Act may be referred to as the Gabby Galbo | 5 | | Tickborne Disease Prevention and Protection Law. | 6 | | Section 5. The Lyme Disease Prevention and Protection Act | 7 | | is amended by changing Sections 1, 5, 10, and 15 and by adding | 8 | | Section 7 as follows: | 9 | | (410 ILCS 450/1)
| 10 | | Sec. 1. Short title; references to Act. | 11 | | (a) Short title. This Act may be cited as the Tickborne | 12 | | Lyme Disease Prevention and Protection Act. | 13 | | (b) References to Act. This Act may be referred to as the | 14 | | Lauryn Russell Lyme Disease Prevention and Protection Law.
| 15 | | (Source: P.A. 100-1137, eff. 1-1-19.) |
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| 1 | | (410 ILCS 450/5)
| 2 | | Sec. 5. Findings.
The General Assembly finds and declares | 3 | | the following:
| 4 | | (1) Lyme disease, a bacterial disease transmitted by | 5 | | infected ticks, was first recognized in the United States | 6 | | in 1975 after a mysterious outbreak of arthritis near Old | 7 | | Lyme, Connecticut. Since then, reports of Lyme disease | 8 | | have increased dramatically, and the disease has become an | 9 | | important public health concern.
| 10 | | (2) The Centers for Disease Control and Prevention | 11 | | states that the reported Lyme disease cases are numbered | 12 | | at 30,000 a year in the United States, but the actual | 13 | | burden of Lyme disease may actually be as high as 300,000 | 14 | | cases a year throughout the United States.
| 15 | | (3) The signs and symptoms of Lyme disease can vary | 16 | | greatly from one person to another, and symptoms can also | 17 | | vary with the length of time a person has been infected. | 18 | | The initial symptoms of Lyme disease are similar to those | 19 | | of more common diseases, such as a flu-like illness | 20 | | without a cough or mononucleosis; it may or may not | 21 | | present Erythema Migrans, a "bulls eye" marking, which is | 22 | | the most common identifiable mark for Lyme disease, and | 23 | | many infected persons do not recall a tick bite; further | 24 | | symptoms can develop over time, including fever, severe | 25 | | headache, stiff neck, certain heart irregularities, |
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| 1 | | temporary paralysis of facial muscles, pain with numbness | 2 | | or weakness in arms or legs, loss of concentration or | 3 | | memory problems, and, most commonly, Lyme arthritis.
| 4 | | (4) Not all ticks carry the bacterium of Lyme disease, | 5 | | and a bite does not always result in the development of | 6 | | Lyme disease. However, since it is impossible to tell by | 7 | | sight which ticks are infected, it is important to avoid | 8 | | tick bites whenever possible and to perform regular tick | 9 | | checks when traversing in tick-infested areas of the | 10 | | United States, any wooded areas, or any areas with tall | 11 | | grass and weeds. A person should seek assistance for early | 12 | | identification and treatment when Lyme disease symptoms or | 13 | | other tick-borne illness is suspected.
| 14 | | (5) Because Lyme disease is a complex illness, there | 15 | | is a continuous need to increase funding for Lyme disease | 16 | | diagnosis, treatment, and prevention. In 2015, the first | 17 | | major research program devoted to the causes and cures of | 18 | | Lyme disease was established at Johns Hopkins School of | 19 | | Medicine as the Lyme Disease Clinical Research Center.
| 20 | | (6) Initial funding from federal grants has provided | 21 | | for research known as the Study of Lyme Disease Immunology | 22 | | and Clinical Events. The federal 21st Century Cures Act | 23 | | created a working group within the United States | 24 | | Department of Health and Human Services to improve | 25 | | outcomes of Lyme disease and to develop a plan for | 26 | | improving diagnosis, treatment, and prevention. However, |
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| 1 | | there is still a need for more research on Lyme disease and | 2 | | efforts to promote awareness of its signs and symptoms, | 3 | | such as work with entomologists and veterinary | 4 | | epidemiologist whose current focus is on tick-borne | 5 | | infections and their distribution in the State of | 6 | | Illinois.
| 7 | | (7) People treated with appropriate antibiotics in the | 8 | | early stages of Lyme disease usually recover rapidly and | 9 | | completely. The National Institutes of Health has funded | 10 | | several studies on the treatment of Lyme disease that show | 11 | | most people recover when treated with antibiotics taken by | 12 | | mouth within a few weeks. In a small percentage of cases, | 13 | | symptoms such as fatigue and muscle aches can last for | 14 | | more than 6 months. Physicians sometimes describe patients | 15 | | who have non-specific symptoms, such as fatigue, pain, and | 16 | | joint and muscle aches, after the treatment of Lyme | 17 | | disease as having post-treatment Lyme disease syndrome or | 18 | | post Lyme disease syndrome. The cause of post-treatment | 19 | | Lyme disease syndrome is not known.
| 20 | | (8) Co-infections by other tick-borne illnesses may | 21 | | complicate and lengthen the course of treatment.
| 22 | | (9) Tickborne diseases, including, but not limited to, | 23 | | Lyme disease, Spotted Fever Group Rickettsiosis, | 24 | | ehrlichiosis, and anaplasmosis afflict humans and other | 25 | | animals and are caused by infectious agents transmitted by | 26 | | tick bites. |
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| 1 | | (10) Since 2013, tickborne diseases have been reported | 2 | | more frequently in Illinois. | 3 | | (11) Anyone participating in an outdoor activity, | 4 | | especially in an area with tall grasses, shrubs, | 5 | | low-hanging branches, or leaf mold, has a higher chance of | 6 | | getting tick bites, but it is possible to get a tick bite | 7 | | anywhere. | 8 | | (12) Tick bites can occur throughout the year, | 9 | | including during winter months. | 10 | | (13) In 2018, the American Academy of Pediatrics' | 11 | | Committee on Infectious Diseases determined that a course | 12 | | of treatment with doxycycline is safe to prescribe to | 13 | | young children with any infection responsive to it, | 14 | | specifically including early tickborne diseases. | 15 | | (Source: P.A. 100-1137, eff. 1-1-19.) | 16 | | (410 ILCS 450/7 new) | 17 | | Sec. 7. Definition. As used in this Act, "tickborne | 18 | | disease" means any disease carried or caused by a tick. | 19 | | (410 ILCS 450/10)
| 20 | | Sec. 10. Tickborne Lyme Disease Prevention, Detection, and | 21 | | Outreach Program.
| 22 | | (a) The Department of Public Health shall establish a | 23 | | Tickborne Lyme Disease Prevention, Detection, and Outreach | 24 | | Program. The Department shall study the diseases carried by |
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| 1 | | ticks in Illinois and the number of people infected by ticks in | 2 | | Illinois to provide data to the public on the incidence of | 3 | | tickborne disease and locations of exposure by county in | 4 | | Illinois. The Department shall require local health | 5 | | departments, health care professionals, and laboratories to | 6 | | report to each other and to the Department, within the period | 7 | | specified in the Control of Communicable Diseases Code (77 | 8 | | Ill. Adm. Code Part 690) for reporting a communicable disease | 9 | | case to local health departments, each case of a tickborne | 10 | | disease in the local health department in whose jurisdiction | 11 | | the case is reported. The Department shall continue to study | 12 | | the population of ticks carrying Lyme disease and the number | 13 | | of people infected in Illinois to provide data to the public on | 14 | | the incidence of acute Lyme disease and locations of exposure | 15 | | in Illinois by county. The Department shall partner with the | 16 | | University of Illinois to publish tick identification and | 17 | | testing data on the Department's website and work to expand | 18 | | testing to areas where new human cases are identified. The | 19 | | Department shall require health care professionals and | 20 | | laboratories to report acute tickborne Lyme disease cases | 21 | | within the time frame required under the Control of | 22 | | Communicable Diseases Code to the local health department. To | 23 | | coordinate this program, the Department shall continue to | 24 | | support a vector-borne disease epidemiologist coordinator who | 25 | | is responsible for overseeing the program. The Department | 26 | | shall train local health departments to respond to inquiries |
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| 1 | | from the public.
| 2 | | (b) To raise awareness about and promote the prevention of | 3 | | tickborne disease, the protocols and best practices developed | 4 | | by the Department under subsection (a) In addition to its | 5 | | overall effort to prevent acute disease in Illinois, in order | 6 | | to raise awareness about and promote prevention of Lyme | 7 | | disease, the program shall include :
| 8 | | (1) shall be published on a designated and publicly | 9 | | accessible webpage, shall include up-to-date information | 10 | | about the prevention, detection, and treatment of all | 11 | | tickborne disease, and shall illustrate the prevalence of | 12 | | tickborne disease using historical mapping a designated | 13 | | webpage with publicly accessible and up-to-date | 14 | | information about the prevention, detection, and treatment | 15 | | of Lyme disease ;
| 16 | | (2) shall be developed using peer-reviewed scientific | 17 | | research articles;
| 18 | | (3) shall be developed using government guidance and | 19 | | recommendations of the federal Centers for Disease Control | 20 | | and Prevention, National Guideline Clearinghouse under the | 21 | | Department of Health and Human Services, and any other | 22 | | persons or entities determined by the Tickborne Lyme | 23 | | Disease Task Force to have particular expertise on | 24 | | tickborne Lyme disease;
| 25 | | (4) shall include information for physicians, other | 26 | | health care professionals and providers, and other persons |
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| 1 | | subject to an increased risk of contracting a tickborne | 2 | | Lyme disease; and
| 3 | | (5) shall include educational materials on the | 4 | | diagnosis, treatment, and prevention of tickborne Lyme | 5 | | disease and other tick-borne illnesses for physicians and | 6 | | other health care professionals and providers in multiple | 7 | | formats.
| 8 | | (c) The Department shall prepare a report of all efforts | 9 | | under this Act, and the report shall be posted on the | 10 | | Department's website and distributed to the Tickborne Lyme | 11 | | Disease Task Force and the General Assembly annually. The | 12 | | report to the General Assembly shall be filed with the Clerk of | 13 | | the House of Representatives and the Secretary of the Senate | 14 | | in electronic form only, in the manner that the Clerk and the | 15 | | Secretary shall direct.
| 16 | | (Source: P.A. 100-1137, eff. 1-1-19.) | 17 | | (410 ILCS 450/15)
| 18 | | Sec. 15. Tickborne Lyme Disease Task Force; duties; | 19 | | members. | 20 | | (a) The Department shall establish the Tickborne Lyme | 21 | | Disease Task Force to advise the Department on disease | 22 | | prevention and surveillance and provider and public education | 23 | | relating to the disease.
| 24 | | (b) The Task Force shall consist of the Director of Public | 25 | | Health or a designee, who shall serve as chairman, and the |
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| 1 | | following members:
| 2 | | (1) one representative from the Department of | 3 | | Financial and Professional Regulation, appointed by the | 4 | | Director of Public Health;
| 5 | | (2) 3 physicians licensed to practice medicine in all | 6 | | its branches who are members of a statewide organization | 7 | | representing physicians, one of whom represents a medical | 8 | | school faculty and one of whom has the experience of | 9 | | treating tickborne Lyme disease, appointed by the Director | 10 | | of Public Health;
| 11 | | (3) one advanced practice registered nurse selected | 12 | | from the recommendations of professional nursing | 13 | | associations, appointed by the Director of Public Health;
| 14 | | (4) one local public health administrator, appointed | 15 | | by the Director of Public Health;
| 16 | | (5) one veterinarian, appointed by the Director of | 17 | | Public Health;
| 18 | | (6) 4 members of the public interested in tickborne | 19 | | Lyme disease, appointed by the Director of Public Health;
| 20 | | (7) 2 members appointed by the Speaker of the House of | 21 | | Representatives; | 22 | | (8) 2 members appointed by the Minority Leader of the | 23 | | House of Representatives; | 24 | | (9) 2 members appointed by the President of the | 25 | | Senate; and | 26 | | (10) 2 members appointed by the Minority Leader of the |
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| 1 | | Senate. | 2 | | (c) The terms of the members of the Task Force shall be 3 | 3 | | years. Members may continue to serve after the expiration of a | 4 | | term until a new member is appointed. Each member appointed to | 5 | | fill a vacancy occurring prior to the expiration of the term | 6 | | for which his predecessor was appointed shall be appointed for | 7 | | the remainder of such term. The council shall meet as | 8 | | frequently as the chairman deems necessary, but not less than | 9 | | 2 times each year. Members shall receive no compensation for | 10 | | their services.
| 11 | | (d) The Tickborne Lyme Disease Task Force has the | 12 | | following duties and responsibilities:
| 13 | | (1) monitoring the implementation of this Act and | 14 | | providing feedback and input for necessary additions or | 15 | | modifications;
| 16 | | (2) reviewing relevant literature and guidelines that | 17 | | define accurate diagnosis of tickborne Lyme disease with | 18 | | the purpose of creating cohesive and consistent guidelines | 19 | | for the determination of a tickborne disease Lyme | 20 | | diagnosis across all counties in Illinois and with the | 21 | | intent of providing accurate and relevant numbers to the | 22 | | Centers for Disease Control and Prevention;
| 23 | | (3) providing recommendations on professional | 24 | | continuing educational materials and opportunities that | 25 | | specifically focus on tickborne Lyme disease prevention, | 26 | | protection, and treatment; and
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| 1 | | (4) assisting the Department in establishing policies, | 2 | | procedures, techniques, and criteria for the collection, | 3 | | maintenance, exchange, and sharing of medical information | 4 | | on tickborne Lyme disease, and identifying persons or | 5 | | entities with tickborne Lyme disease expertise to | 6 | | collaborate with Department in tickborne Lyme disease | 7 | | diagnosis, prevention, and treatment.
| 8 | | (Source: P.A. 100-1137, eff. 1-1-19; 101-606, eff. | 9 | | 12-13-19.)".
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