Full Text of SB2043 96th General Assembly
SB2043ham001 96TH GENERAL ASSEMBLY
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Rep. Harry Osterman
Filed: 5/11/2009
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LRB096 11169 DRJ 26456 a |
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| AMENDMENT TO SENATE BILL 2043
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| AMENDMENT NO. ______. Amend Senate Bill 2043 by replacing | 3 |
| lines 10 through 26 on page 4 and lines 1 through 18 on page 5 | 4 |
| with the following: | 5 |
| " (c) The Department of Healthcare and Family Services | 6 |
| (HFS), the Illinois Department of Public Health, the Illinois | 7 |
| Department of Human Services, and the Division of Specialized | 8 |
| Care for Children, University of Illinois at Chicago, with | 9 |
| necessary support from the Department of Central Management | 10 |
| Services, shall integrate into the medical data warehouse | 11 |
| individual record level data owned by one of these agencies | 12 |
| that pertains to maternal and child health, including the | 13 |
| following data sets: | 14 |
| (1) Vital Records as they relate to births, birth | 15 |
| outcomes, and deaths. | 16 |
| (2) Adverse Pregnancy Outcomes Reporting System | 17 |
| (APORS). | 18 |
| (3) Genetics/Newborn Screenings/SIDS. |
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| (4) Cornerstone (WIC, FCM, Teen Parents, | 2 |
| Immunization). | 3 |
| (5) HFS medical claims data. | 4 |
| (6) I-CARE. | 5 |
| (7) Children with Special Healthcare Needs Data. | 6 |
| By September 1, 2009, the departments of Healthcare and | 7 |
| Family Services, Public Health, and Human Services and the | 8 |
| Division of Specialized Care for Children shall jointly prepare | 9 |
| a work plan for fully integrating these data sets into the | 10 |
| medical data warehouse. The work plan shall provide an overall | 11 |
| project design, including defining a mutually acceptable | 12 |
| transfer format for each discrete data set, the data update | 13 |
| frequency, and a single method of data transfer for each data | 14 |
| set. By March 1, 2010, the data sets shall be loaded into the | 15 |
| medical data warehouse. By October 1, 2010, data from the | 16 |
| various sources shall be processed so as to be compatible with | 17 |
| other data in the medical data warehouse and available for | 18 |
| analysis in an integrated manner. | 19 |
| With the cooperation of the other agencies, HFS shall | 20 |
| submit status reports on the progress of these efforts to the | 21 |
| Governor and the General Assembly no later than October 1, 2009 | 22 |
| and April 1, 2010, with a final report due no later than | 23 |
| November 1, 2010. | 24 |
| On an ongoing basis, the 4 agencies shall review the | 25 |
| feasibility of adding data from additional sources to the | 26 |
| warehouse. The review may take into account the cost |
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| effectiveness of adding the data, the utility of adding data | 2 |
| that is not available as identifiable individual record level | 3 |
| data, the requirements related to adding data owned by another | 4 |
| entity or not available in electronic form, whether sharing of | 5 |
| the data is otherwise prohibited by law, and the resources | 6 |
| required and available for effecting the addition. | 7 |
| The departments shall use analysis of the data in the | 8 |
| medical data warehouse to improve maternal and child health | 9 |
| outcomes, and in particular improve birth outcomes, and to | 10 |
| reduce racial health disparities in this area. | 11 |
| All access and use of the data shall be in compliance with | 12 |
| all applicable federal and State laws, regulations, and | 13 |
| mandates. | 14 |
| Notwithstanding anything in this Section, data | 15 |
| incorporated into the data warehouse shall remain subject to | 16 |
| the same provisions of law regarding confidentiality and use | 17 |
| restrictions as they are subject to in the control of the | 18 |
| contributing agency. The Department of Healthcare and Family | 19 |
| Services shall develop measures to ensure that the interplay of | 20 |
| the several data sets contributed to the data warehouse does | 21 |
| not lead to the use or release of data from the data warehouse | 22 |
| that would not otherwise be subject to use or release under | 23 |
| State or federal law. ".
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