Illinois General Assembly - Full Text of HR1088
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Full Text of HR1088  100th General Assembly

HR1088 100TH GENERAL ASSEMBLY


  

 


 
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1
HOUSE RESOLUTION

 
2    WHEREAS, Peroxisome Biogenesis Disorder - Zellweger
3Spectrum Disorder (PBD-ZSD or simply PBD) is a rare genetic
4disorder that affects 1 in 50,000 births within the United
5States of America; and
 
6    WHEREAS, PBD causes life threatening symptoms for most
7infants and children who have the disease; and
 
8    WHEREAS, PBD results in poor muscle tone, hearing loss,
9vision loss, low bone density, seizures, liver and kidney
10dysfunction, and developmental delays; and
 
11    WHEREAS, PBD causes a mutation in any of the 13 genes
12termed PEX genes; and
 
13    WHEREAS, Max Chapman, born October 17, 2013, a resident of
14Bloomington, was diagnosed with PBD at the age of 14 months;
15with his loving heart, his cheerful disposition, and boundless
16personality, Max has inspired countless family and friends in
17Central Illinois to spread awareness of this devastating
18disorder; and
 
19    WHEREAS, Max's parents, Corin and Todd Chapman, and his
20grandparents, Alan and Cathie Chapman and Greg and Patty Garbe,

 

 

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1create awareness for PBD by sharing Max and his story
2unselfishly through blogging, social media, video, and
3fundraising events; and
 
4    WHEREAS, May 18 and 19, 2018 is the third annual Tee it Up!
5For the GFPD golf outing at Illinois State University's
6Weibring Golf Club to honor Max and raise funds for The Global
7Foundation for Peroxisomal Disorders (GFPD) in support of their
8mission to advocate for awareness of PBD and support new
9avenues for medical research in the development of treatments
10and cures; therefore, be it
 
11    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
12HUNDREDTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we
13urge awareness of peroxisomal disorders and encourage support
14for medical research in the development of new treatments and
15cures; and be it further
 
16    RESOLVED, That suitable copies of this resolution be
17presented to The Global Foundation for Peroxisomal Disorders,
18Max Chapman, Max's parents, and Max's grandparents.