Rep. Deborah Conroy

Filed: 5/12/2015

 

 


 

 


 
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1
AMENDMENT TO SENATE BILL 1684

2    AMENDMENT NO. ______. Amend Senate Bill 1684 by replacing
3everything after the enacting clause with the following:
 
4    "Section 5. The Department of Public Health Powers and
5Duties Law of the Civil Administrative Code of Illinois is
6amended by adding Section 2310-676 as follows:
 
7    (20 ILCS 2310/2310-676 new)
8    Sec. 2310-676. Advisory council on pediatric autoimmune
9neuropsychiatric disorder associated with streptococcal
10infections and pediatric acute neuropsychiatric syndrome.
11    (a) There is established an advisory council on pediatric
12autoimmune neuropsychiatric disorder associated with
13streptococcal infections and pediatric acute neuropsychiatric
14syndrome to advise the Director of Public Health on research,
15diagnosis, treatment, and education relating to the disorder
16and syndrome.

 

 

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1    (b) The advisory council shall consist of the following
2members, who shall be appointed by the Director of Public
3Health within 60 days after the effective date of this
4amendatory Act of the 99th General Assembly:
5        (1) An immunologist licensed and practicing in this
6    State who has experience treating persons with pediatric
7    autoimmune neuropsychiatric disorder associated with
8    streptococcal infections and pediatric acute
9    neuropsychiatric syndrome and the use of intravenous
10    immunoglobulin.
11        (2) A health care provider licensed and practicing in
12    this State who has expertise in treating persons with
13    pediatric autoimmune neuropsychiatric disorder associated
14    with streptococcal infections and pediatric acute
15    neuropsychiatric syndrome and autism.
16        (3) A representative of PANDAS/PANS Advocacy &
17    Support.
18        (4) An osteopathic physician licensed and practicing
19    in this State who has experience treating persons with
20    pediatric autoimmune neuropsychiatric disorder associated
21    with streptococcal infections and pediatric acute
22    neuropsychiatric syndrome.
23        (5) A medical researcher with experience conducting
24    research concerning pediatric autoimmune neuropsychiatric
25    disorder associated with streptococcal infections,
26    pediatric acute neuropsychiatric syndrome,

 

 

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1    obsessive-compulsive disorder, tic disorder, and other
2    neurological disorders.
3        (6) A certified dietitian-nutritionist practicing in
4    this State who provides services to children with autism
5    spectrum disorder, attention-deficit hyperactivity
6    disorder, and other neuro-developmental conditions.
7        (7) A representative of a professional organization in
8    this State for school psychologists.
9        (8) A child psychiatrist who has experience treating
10    persons with pediatric autoimmune neuropsychiatric
11    disorder associated with streptococcal infections and
12    pediatric acute neuropsychiatric syndrome.
13        (9) A representative of a professional organization in
14    this State for school nurses.
15        (10) A pediatrician who has experience treating
16    persons with pediatric autoimmune neuropsychiatric
17    disorder associated with streptococcal infections and
18    pediatric acute neuropsychiatric syndrome.
19        (11) A representative of an organization focused on
20    autism.
21        (12) A parent with a child who has been diagnosed with
22    pediatric autoimmune neuropsychiatric disorder associated
23    with streptococcal infections or pediatric acute
24    neuropsychiatric syndrome and autism.
25        (13) A social worker licensed and practicing in this
26    State.

 

 

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1        (14) A representative of the Special Education
2    Services division of the State Board of Education.
3        (15) One member of the General Assembly appointed by
4    the Speaker of the House of Representatives.
5        (16) One member of the General Assembly appointed by
6    the President of the Senate.
7        (17) One member of the General Assembly appointed by
8    the Minority Leader of the House of Representatives.
9        (18) One member of the General Assembly appointed by
10    the Minority Leader of the Senate.
11    (c) The Director of Public Health, or his or her designee,
12shall be an ex-officio, nonvoting member and shall attend all
13meetings of the advisory council. Any member of the advisory
14council appointed under this Section may be a member General
15Assembly. Members shall receive no compensation for their
16services.
17    (d) The Director of Public Health shall schedule the first
18meeting of the advisory council, which shall be held not later
19than 90 days after the effective date of this amendatory Act of
20the 99th General Assembly. A majority of the council members
21shall constitute a quorum. A majority vote of a quorum shall be
22required for any official action of the advisory council. The
23advisory council shall meet upon the call of the chairperson or
24upon the request of a majority of council members.
25    (e) Not later than January 1, 2017, and annually
26thereafter, the advisory council shall issue a report to the

 

 

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1General Assembly with recommendations concerning:
2        (1) practice guidelines for the diagnosis and
3    treatment of the disorder and syndrome;
4        (2) mechanisms to increase clinical awareness and
5    education regarding the disorder and syndrome among
6    physicians, including pediatricians, school-based health
7    centers, and providers of mental health services;
8        (3) outreach to educators and parents to increase
9    awareness of the disorder and syndrome; and
10        (4) development of a network of volunteer experts on
11    the diagnosis and treatment of the disorder and syndrome to
12    assist in education and outreach.".