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AN ACT concerning health.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
This Act may be known as the
Syndrome Information and Awareness Act.
As used in this Act:
"Clearinghouse" means a central institution or agency for
the collection, maintenance, and distribution of materials
related to Down syndrome.
"Department" means the Department of Public Health.
"Down syndrome" means a chromosomal condition caused by an
error in cell division that results in the presence of an extra
whole or partial copy of chromosome 21.
"First call program" means a volunteer group of individuals
who make themselves available to parents of children newly
diagnosed with Down syndrome.
"Health care provider" means any physician, hospital
facility, or other person that is licensed or otherwise
authorized to deliver health care services.
Down syndrome information.
shall make available up-to-date, evidence-based written
information about Down syndrome that has been reviewed by
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medical experts and State and national Down syndrome
organizations, including physical, developmental, educational
and psychosocial outcomes, life expectancy, clinical course,
intellectual and functional development, and treatment
options. The written information shall include contact
information regarding first call programs and clearinghouses,
national, State and local Down syndrome organizations, and
other educational and support programs. The Department shall
make this information available to persons who render prenatal
care, postnatal care, or genetic counseling to parents who
receive a prenatal or postnatal diagnosis of Down syndrome. The
Department shall also make this information available to any
person who has received a positive test result from a test for
Down syndrome. The information provided under this Section
shall be culturally and linguistically appropriate for a woman
receiving a positive prenatal diagnosis of Down syndrome and
for the family of a child receiving a postnatal diagnosis of
Distribution of information to parents.
health care provider who renders prenatal or postnatal care or
genetic counselor who renders genetic counseling may, upon
receipt of a positive test result from a test for Down
syndrome, provide the expectant or new parent with the
information provided by the Department under Section 10 of this