HR0274 LRB096 10901 GRL 21144 r

1
HOUSE RESOLUTION

 
2     WHEREAS, Children's interstitial lung disease includes a
3 group of rare life-threatening lung diseases in children that
4 may lead to progressive, incurable lung scarring or life-long
5 lung problems; and
 
6     WHEREAS, Certain children's interstitial lung diseases can
7 progress quickly, often causing disability or death within
8 first two years of life; and
 
9     WHEREAS, Children's interstitial lung diseases are one of
10 the leading causes of lung transplantation in children, due to
11 scarring and an irreversible loss of the lung tissue's ability
12 to transport oxygen; and
 
13     WHEREAS, Children's interstitial lung disease is not the
14 same as adult interstitial lung disease; and
 
15     WHEREAS, Children's interstitial lung diseases are caused
16 by poorly understood genetic abnormalities that affect
17 families, infection, bleeding in the lungs, autoimmune
18 diseases, or abnormal lung development; and
 
19     WHEREAS, Children's interstitial lung diseases are often
20 mis-diagnosed or under-diagnosed; and
 

 

 

HR0274 - 2 - LRB096 10901 GRL 21144 r

1     WHEREAS, There is no proven cure or treatment for
2 children's interstitial lung diseases; and
 
3     WHEREAS, Limited funding is available for these rare lung
4 problems in children; and
 
5     WHEREAS, A need has been identified to increase research
6 funding, awareness, and detection of these mis-diagnosed and
7 under-diagnosed disorders, as well as all incarnations of
8 children's interstitial lung disease; therefore, be it
 
9     RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE
10 NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we
11 recognize the need to pursue research into the causes, a
12 treatment, and an eventual cure for children's interstitial
13 lung disease; and be it further
 
14     RESOLVED, That we support the work of advocates and
15 organizations in educating, supporting, and providing hope for
16 individuals who suffer from children's interstitial lung
17 disease; and be it further
 
18     RESOLVED, That we congratulate advocates and organizations
19 for their efforts to educate the public about children's
20 interstitial lung disease, while funding research to help find

 

 

HR0274 - 3 - LRB096 10901 GRL 21144 r

1 a cure for this disorder; and be it further
 
2     RESOLVED, That we designate the first week of May as
3 Children's Interstitial Lung Disease Awareness Week in the
4 State of Illinois.