SB1803 EngrossedLRB103 27408 AWJ 57003 b

1    AN ACT concerning State government.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 5. The Department of Natural Resources
5(Conservation) Law of the Civil Administrative Code of
6Illinois is amended by adding Section 805-72 as follows:
 
7    (20 ILCS 805/805-72 new)
8    Sec. 805-72. Lyme Disease Innovation Program.
9    (a) The Department shall consult with the Department of
10Agriculture, the Department of Public Health, and members of
11the University of Illinois' INHS Medical Entomology Program to
12establish the Lyme Disease Innovation Program no later than
13one year after the effective date of this amendatory Act of the
14103rd General Assembly. The Department shall contract with an
15Illinois not-for-profit organization whose purpose is to raise
16awareness of tick-borne diseases with the public and the
17medical community to operate the Program. The Program's
18purpose is to raise awareness with the public and to assist
19persons at risk of Lyme disease and other tick-borne diseases
20with education and awareness materials and campaigns while
21developing evidence-based approaches that are cost-effective.
22    (b) The Program shall implement a statewide interagency
23and multipronged approach to combat Lyme disease and other

 

 

SB1803 Engrossed- 2 -LRB103 27408 AWJ 57003 b

1tick-borne diseases in Illinois, including adopting an
2evidence-based model that recognizes the key roles that
3patients, advocates, and not-for-profit organizations have in
4fighting Lyme disease and tick-borne diseases. The Program's
5objectives include issuing grants, subject to the approval of
6the Department, to State agencies and Illinois not-for profit
7organizations from moneys in the Lyme Disease Awareness Fund
8and other appropriations for the following purposes:
9        (1) Bringing awareness of Lyme disease and tick-borne
10    diseases by any one or more of the following methods:
11            (A) creating innovative ideas and collaborations
12        for raising awareness about risks and prevention;
13            (B) amplifying and improving access to essential
14        information supporting innovations in prevention,
15        education, and care with open data and science;
16            (C) fostering the development of new,
17        community-based education and prevention efforts; and
18            (D) using programs, website advertising,
19        pamphlets, or other methods to increase the awareness
20        of Lyme disease and tick-borne diseases;
21        (2) Engaging stakeholders to facilitate
22    patient-centered innovations by (i) building trust among
23    stakeholders through listening sessions, roundtables, and
24    other learning approaches that ground innovations in lived
25    experience, (ii) engaging stakeholders in identifying
26    current areas of need to promote targeted innovations that

 

 

SB1803 Engrossed- 3 -LRB103 27408 AWJ 57003 b

1    will make real-world improvements in quality of care, and
2    (iii) gaining insight into patient needs and priorities
3    through stakeholders' collective wisdom and applying that
4    wisdom in shaping future innovation challenges and events.
5        (3) Advancing stakeholder driven interdisciplinary and
6    interagency collaborations by providing resources to
7    not-for-profit organizations whose purpose is to raise
8    awareness of tick-borne diseases with the public and the
9    medical community in order to (i) facilitate the
10    stakeholder engagement and collaborations and
11    patient-centered innovations and support groups, (ii)
12    identify ways to better collect and share data while
13    raising awareness of tick-borne illnesses, and (iii)
14    assist with the development of outreach and education
15    materials and approaches for State agencies.
16        (4) The University of Illinois' INHS Medical
17    Entomology Program maintaining a passive tick and
18    tick-borne pathogen surveillance program, based on ticks
19    contributed by the Illinois public, and including tick
20    identifications and disease-agent testing of a subset of
21    identified ticks; compiling evidence and conducting
22    research on tick bite prevention and risk of tick and
23    tick-borne pathogen exposure; and providing evidence,
24    results, and analysis and insight from both the passive
25    surveillance program, on tick species and tick-borne
26    disease-agent distributions and diversity in the State,

 

 

SB1803 Engrossed- 4 -LRB103 27408 AWJ 57003 b

1    and its related research on tick bite exposure and
2    prevention, to support the Lyme Disease Innovation Program
3    objectives.
4    (c) The Program shall be funded through moneys deposited
5into the Lyme Disease Awareness Fund and other appropriations.
6The not-for-profit organization contracted with to operate the
7Program shall be paid, subject to the approval of the
8Department, for its operation of the Program from moneys
9deposited into the Fund or from other appropriations.
10    The University of Illinois' Prairie Research Institute
11shall be paid, subject to the approval of the Department, for
12the INHS Medical Entomology Program's operation of a passive
13tick surveillance and research program from moneys deposited
14into the Fund or from other appropriations.
15    (d) The Department must adopt rules to implement this
16Section.
 
17    Section 90. The State Finance Act is amended by adding
18Section 5.990 as follows:
 
19    (30 ILCS 105/5.990 new)
20    Sec. 5.990. The Lyme Disease Awareness Fund.
 
21    Section 99. Effective date. This Act takes effect upon
22becoming law.