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1 | AN ACT concerning aging. | |||||||||||||||||||
2 | Be it enacted by the People of the State of Illinois, | |||||||||||||||||||
3 | represented in the General Assembly: | |||||||||||||||||||
4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||
5 | Illinois Caregiver Assistance and Resource Portal Act. | |||||||||||||||||||
6 | Section 5. Purpose and intent. The purpose of this Act is | |||||||||||||||||||
7 | to establish a State-created virtual portal that features a | |||||||||||||||||||
8 | virtual comprehensive directory of State, federal, non-profit, | |||||||||||||||||||
9 | and paid resources dedicated to caregiving and Illinois' | |||||||||||||||||||
10 | 1,300,000 unpaid caregivers. The mission of this portal is to | |||||||||||||||||||
11 | provide caregivers with simplified and trusted access to an | |||||||||||||||||||
12 | information, support, and resource website to help caregivers | |||||||||||||||||||
13 | develop and implement caregiving plans for their loved ones or | |||||||||||||||||||
14 | friends. | |||||||||||||||||||
15 | Section 10. Establishment of the Illinois Caregiver | |||||||||||||||||||
16 | Assistance and Resources Portal. | |||||||||||||||||||
17 | (a) The Department on Aging, in consultation with the | |||||||||||||||||||
18 | Department of Healthcare and Family Services, the Department | |||||||||||||||||||
19 | of Public Health, and the Department of Veterans' Affairs, | |||||||||||||||||||
20 | shall be responsible for the creation and maintenance of the | |||||||||||||||||||
21 | Illinois Caregiver Assistance and Resource Portal (hereinafter | |||||||||||||||||||
22 | referred to as the "Portal"). |
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1 | (b) The Portal shall serve as a centralized and trusted | ||||||
2 | online platform offering a wide range of resources related to | ||||||
3 | caregiving, including, but not limited to: | ||||||
4 | (1) Information on State and federal programs, | ||||||
5 | benefits, and resources on caregiving, long-term care, and | ||||||
6 | at-home care for Illinois residents who are 50 years of | ||||||
7 | age or older. | ||||||
8 | (2) Information from non-profit organizations | ||||||
9 | providing free-of-charge caregiving support and resources. | ||||||
10 | (3) Tools and guides for developing and implementing | ||||||
11 | caregiving plans. | ||||||
12 | (4) Direct contact information for relevant Illinois | ||||||
13 | agencies, organizations, and other State-licensed | ||||||
14 | long-term care, aging, senior support services, and | ||||||
15 | at-home care providers. | ||||||
16 | (5) Educational materials, articles, and videos on | ||||||
17 | caregiving best practices. | ||||||
18 | (6) Accommodations for users with different language | ||||||
19 | preferences, ensuring the information is accessible to | ||||||
20 | diverse audiences. | ||||||
21 | (c) By incorporating these resources, the Portal aims to | ||||||
22 | serve as a comprehensive and user-friendly hub for caregivers, | ||||||
23 | providing them with the tools, information, and support they | ||||||
24 | need to navigate the complex landscape of caregiving, nursing | ||||||
25 | home care, and at-home care and other essential resources that | ||||||
26 | are readily accessible. Additional information and resources |
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1 | to be featured may include the following: | ||||||
2 | (1) Caregiving resources: A comprehensive section | ||||||
3 | dedicated to caregiving, including guides, articles, and | ||||||
4 | videos on caregiving techniques, managing caregiver | ||||||
5 | stress, and enhancing the quality of care provided. | ||||||
6 | (2) Home and community-based services: Resources, | ||||||
7 | descriptions, and opportunities on how the State supports | ||||||
8 | family caregivers, to include, but not be limited to, the | ||||||
9 | Senior HelpLine, Illinois Care Connections, the Community | ||||||
10 | Care Program, Adult Protective Services, the Illinois | ||||||
11 | Long-Term Care Ombudsman, Adult Day Services, the Home | ||||||
12 | Delivered Meals program, and all other programming and | ||||||
13 | services offered by the Department on Aging. | ||||||
14 | (3) Nursing home care: State and federal information | ||||||
15 | and online resources on nursing homes, including facility | ||||||
16 | ratings, reviews, and resources for choosing the right | ||||||
17 | nursing home based on specific needs and preferences. | ||||||
18 | (4) Area Agency on Aging: A dedicated section | ||||||
19 | highlighting the services and programs offered by Area | ||||||
20 | Agencies on Aging, including, but not limited to, | ||||||
21 | assistance with long-term care planning, nutrition, | ||||||
22 | transportation, caregiver support and need assessment, and | ||||||
23 | the address and contact information of statewide Area | ||||||
24 | Agencies on Aging and Aging and Disability Resource | ||||||
25 | Centers. | ||||||
26 | (5) At-home care: Resources and guides for at-home |
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1 | care, including information on hiring caregivers, managing | ||||||
2 | in-home medical and non-medical care, and ensuring a safe | ||||||
3 | and comfortable home environment. | ||||||
4 | (6) Hospital-to-home transition: A specialized section | ||||||
5 | focusing on the transition from hospital care to | ||||||
6 | home-based care, offering tips, checklists, and resources | ||||||
7 | to ensure a smooth transition and continued recovery at | ||||||
8 | home. | ||||||
9 | (7) Contact Information: Direct contact details for | ||||||
10 | relevant agencies, organizations, and State-licensed | ||||||
11 | professionals involved in caregiving, nursing home care, | ||||||
12 | and at-home care, making it easy for users to connect with | ||||||
13 | the right resources. | ||||||
14 | (8) Medicaid coverage and resources: Information on | ||||||
15 | Medicaid coverage for long-term care services, eligibility | ||||||
16 | criteria, application procedures, and available | ||||||
17 | Medicaid-funded programs and services to support | ||||||
18 | caregivers and care recipients. | ||||||
19 | (9) Financial assistance: Details on financial | ||||||
20 | assistance programs and benefits available at the State | ||||||
21 | and federal levels, including grants, subsidies, and tax | ||||||
22 | incentives that can ease the financial burden of | ||||||
23 | caregiving. | ||||||
24 | (10) Veterans' assistance: Details on veterans' | ||||||
25 | assistance programs and benefits available at the State | ||||||
26 | and federal levels. |
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1 | (11) Legal and planning Tools: Resources for legal | ||||||
2 | matters related to caregiving, such as power of attorney, | ||||||
3 | advance directives, and estate planning, and tools to help | ||||||
4 | users create and manage caregiving plans. Services offered | ||||||
5 | under this paragraph do not include the practice of law. | ||||||
6 | (12) Support groups: A directory of local caregiver | ||||||
7 | support groups and online communities where caregivers can | ||||||
8 | connect, share experiences, and receive emotional support. | ||||||
9 | Section 15. Accessibility and user-friendliness. | ||||||
10 | (a) The Portal shall be designed to be user-friendly and | ||||||
11 | accessible to individuals of all ages and abilities. | ||||||
12 | (b) The Portal shall include features such as search | ||||||
13 | functionality, language accessibility, and compatibility with | ||||||
14 | assistive technologies to ensure that a diverse range of | ||||||
15 | caregivers can use it. | ||||||
16 | Section 20. Outreach and promotion. | ||||||
17 | (a) The Department on Aging, in consultation with the | ||||||
18 | Department of Healthcare and Family Services, the Department | ||||||
19 | of Public Health, the Department of Human Services, and the | ||||||
20 | Department of Veterans' Affairs, shall undertake an outreach | ||||||
21 | and promotional campaign to raise awareness about the Portal | ||||||
22 | and its resources upon completion. | ||||||
23 | (b) The campaign shall include a digital-first strategy to | ||||||
24 | inform health care providers, social service agencies, and |
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1 | community organizations about the Portal's availability. | ||||||
2 | (c) The campaign shall coordinate with the State-wide | ||||||
3 | 2-1-1 Service system administered under the 2-1-1 Service Act | ||||||
4 | in order to insure persons calling 2-1-1 telephone lines are | ||||||
5 | directed, when appropriate, to the Portal and reciprocally to | ||||||
6 | 2-1-1. | ||||||
7 | Section 25. Reporting and evaluation. The Department on | ||||||
8 | Aging, in consultation with the Department of Healthcare and | ||||||
9 | Family Services, the Department of Public Health, and the | ||||||
10 | Department of Veterans' Affairs, shall provide an annual | ||||||
11 | report to the General Assembly and State executive officers | ||||||
12 | outlining the usage statistics, user feedback, and any | ||||||
13 | necessary improvements to the Portal. | ||||||
14 | Section 30. Funding. Funding for the creation, | ||||||
15 | maintenance, and promotion of the Portal shall be appropriated | ||||||
16 | from State funding and can be matched with possible federal | ||||||
17 | resources. | ||||||
18 | Section 35. Implementation date. The Portal shall be | ||||||
19 | implemented one year after the effective date of this Act. | ||||||
20 | Section 99. Effective date. This Act takes effect upon | ||||||
21 | becoming law. |