103RD GENERAL ASSEMBLY
State of Illinois
2023 and 2024
HB4172

 

Introduced , by Rep. Jehan Gordon-Booth

 

SYNOPSIS AS INTRODUCED:
 
New Act

    Creates the Deveraux Hubbard II Blood Clot Prevention and Treatment Act. Requires the Department of Public Health to carry out projects to increase education, awareness, or diagnosis of deep venous thrombosis or pulmonary embolism and to reduce the incidence of morbidity and mortality caused by blood clots. Requires the Director of Public Health to establish the Advisory Committee for Deep Venous Thrombosis or Pulmonary Embolism Prevention. Sets forth the Advisory Committee's duties, membership, reporting requirements, and termination of the Advisory Committee. Requires the Department to conduct or support a study on model systems of deep venous thrombosis or pulmonary embolism surveillance and submit a report to the General Assembly detailing the results of the study.


LRB103 34770 LNS 64620 b

 

 

A BILL FOR

 

HB4172LRB103 34770 LNS 64620 b

1    AN ACT concerning health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 1. Short title. This Act may be cited as the
5Deveraux Hubbard II Blood Clot Prevention and Treatment Act.
 
6    Section 5. Prevention of morbidity and mortality as a
7result of deep venous thromboembolism.
8    (a) The Department of Public Health shall carry out
9projects to increase education, awareness, or diagnosis of
10deep venous thrombosis or pulmonary embolism and to reduce the
11incidence of morbidity and mortality caused by blood clots.
12The projects may be carried out by the Department directly or
13through awards of grants or contracts to public or nonprofit
14private entities. The Department may directly, or through
15awards or grants, provide technical assistance with respect to
16the planning, development, and operation of the projects.
17    (b) A project under this Section may include:
18        (1) the implementation of public information and
19    education programs for:
20            (A) the prevention of death from deep venous
21        thrombosis or pulmonary embolism;
22            (B) broadening the awards of the public
23        concerning:

 

 

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1                (i) the risk factors for and the symptoms of
2            deep venous thrombosis or pulmonary embolism;
3                (ii) target populations with greater risk for
4            deep venous thrombosis or pulmonary embolism,
5            including women, seniors, cancer patients,
6            hospitalized patients, pregnant and postpartum
7            women, Black Americans, and those in rural areas;
8            and
9                (iv) the public health consequences of deep
10            venous thrombosis or pulmonary embolism; and
11            (C) increasing screening, detection, and diagnosis
12        of deep venous thrombosis or pulmonary embolism; and
13        (2) surveillance of the prevalence and incidence of
14    deep venous thrombosis or pulmonary embolism to improve
15    patient outcomes.
16    (c) The Department may, in awarding grants or entering
17into contracts under this Section, give priority to entities
18seeking to carry out projects that target the populations
19referred to in item (ii) of subparagraph (B) of paragraph (1)
20of subsection (b).
21    (d) The Department shall ensure that projects carried out
22under this Section are coordinated, as appropriate, with other
23agencies that carry out activities regarding deep venous
24thrombosis or pulmonary embolism.
25    (e) The Department shall:
26        (1) collect and analyze the findings of research

 

 

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1    conducted with respect to deep venous thrombosis or
2    pulmonary embolism; and
3        (2) taking into account such findings, publish on the
4    Department's website the best practices for physicians and
5    other health care providers who provide car to individuals
6    with deep venous thrombosis or pulmonary embolism.
 
7    Section 10. Advisory Committee for Deep Venous Thrombosis
8or Pulmonary Embolism Prevention.
9    (a) Not later than 180 days after the effective date of
10this Act, the Director of Public Health shall establish an
11advisory committee to be known as the Advisory Committee for
12Deep Venous Thrombosis or Pulmonary Embolism Prevention.
13    (b) The Advisory Committee shall:
14        (1) identify the aggregate number of individuals in
15    the State who experience deep venous thrombosis or
16    pulmonary embolism annually;
17        (2) identify how data are collected regarding deep
18    venous thrombosis or pulmonary embolism and the adverse
19    outcomes associated with such conditions;
20        (3) identify how deep venous thrombosis or pulmonary
21    embolism impacts the lives of individuals in the State;
22        (4) identify the standard of care for deep venous
23    thrombosis or pulmonary embolism surveillance, detection,
24    and treatment;
25        (5) identify emerging treatments, therapies, and

 

 

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1    research relating to deep venous thrombosis or pulmonary
2    embolism;
3        (6) develop recommendations to help health care
4    providers identify patients who may be at a higher risk of
5    forming deep venous thrombosis or pulmonary embolism in
6    health care facilities;
7        (7) develop recommendations to help improve patient
8    awareness of deep venous thrombosis or pulmonary embolism;
9        (8) develop recommendations with respect to the
10    standard of care for patients at risk of forming deep
11    venous thrombosis or pulmonary embolism;
12        (9) develop recommendations relating to providing
13    patients and their families with written notice of
14    increased risks of forming deep venous thrombosis or
15    pulmonary embolism; and
16        (10) identify the estimated level of State funding
17    needed for deep venous thrombosis or pulmonary embolism
18    services to met the needs of high-risk populations.
19    (c) The Advisory Committee shall be composed of members
20appointed by the Director as follows:
21        (1) at least one individual who has experienced blood
22    clots;
23        (2) at least one family member of an individual who
24    died from deep venous thrombosis or pulmonary embolism;
25        (3) at least one health services researcher;
26        (4) at least one health care provider;

 

 

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1        (5) at least one representative of a health plan;
2        (6) at least one representative of a hospital or
3    health system;
4        (7) at least one epidemiologist;
5        (8) at least one public health expert;
6        (9) at least one patient representative or
7    representative of a patient group;
8        (10) at least one physician licensed to practice
9    medicine in all its branches and who represents a
10    statewide organization of physicians; and
11        (11) such individuals representing other interested
12    parties or associations, as the Director determines
13    appropriate.
14    (d) Not later than 18 months after the first meeting of the
15Advisory Committee, the Director shall submit to the General
16Assembly, and make publicly available, a report:
17        (1) summarizing the meetings and findings of the
18    Advisory Committee; and
19        (2) describing the recommendations of the Advisory
20    Committee for legislative and administrative action to
21    improve deep venous thrombosis or pulmonary embolism
22    prevention, treatment, and diagnosis, including the
23    recommendations described in paragraphs (6) through (9) of
24    subsection (b).
25    (e) The Advisory Committee shall terminate on the earlier
26of:

 

 

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1        (1) the date on which the Director submits the report
2    under subsection (d); or
3        (2) the date that is 18 months after the first meeting
4    of the Advisory Committee.
 
5    Section 15. Deep venous thrombosis or pulmonary embolism
6surveillance study and report.
7    (a) The Department of Public Health shall conduct or
8support a study on model systems of deep venous thrombosis or
9pulmonary embolism surveillance, including the use of
10electronic medical record-based methods of detecting deep
11venous thrombosis and pulmonary embolism International
12Classification of Diseases codes or other population-based
13surveillance.
14    (b) Not later than one year after the effective date of
15this Act, the Department shall submit to the General Assembly
16and the Advisory Committee for Deep Venous Thrombosis or
17Pulmonary Embolism a report detailing the results of the study
18under subsection (a).