102ND GENERAL ASSEMBLY
State of Illinois
2021 and 2022
HB4564

 

Introduced 1/21/2022, by Rep. Barbara Hernandez

 

SYNOPSIS AS INTRODUCED:
 
410 ILCS 201/32 new

    Amends the Autism Spectrum Disorders Reporting Act. Provides that, no later than December 31st of each year, the Department of Human Services shall submit a report to the General Assembly regarding access to applied behavior analysis therapy for people diagnosed with autism spectrum disorders. Requires the Department of Healthcare and Family Services and the Department of Insurance to provide all necessary data upon request to the Department of Human Services to facilitate the timely and accurate completion of the report. Sets forth information that the report shall include.


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A BILL FOR

 

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1    AN ACT concerning health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 5. The Autism Spectrum Disorders Reporting Act is
5amended by adding Section 32 as follows:
 
6    (410 ILCS 201/32 new)
7    Sec. 32. Reporting; access to applied behavior analysis.
8No later than December 31st of each year, the Department of
9Human Services shall submit a report to the General Assembly
10regarding access to applied behavior analysis therapy for
11people diagnosed with autism spectrum disorders. The
12Department of Healthcare and Family Services and the
13Department of Insurance shall provide all necessary data upon
14request to the Department of Human Services to facilitate the
15timely and accurate completion of this report. The report
16shall include, but is not limited to, the following
17information:
18        (1) The best data available regarding the number of
19    individuals in the State of Illinois trained and qualified
20    to provide applied behavior analysis therapy services,
21    and, in doing so, to supervise behavior technicians in the
22    implementation of applied behavior analysis treatment
23    plans.

 

 

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1        (2) The number of individuals in the State of Illinois
2    meeting the description in paragraph (1) who are enrolled
3    with the Department of Healthcare and Family Services as
4    providers of such covered services under the Medicaid
5    Early and Periodic Screening, Diagnosis, and Treatment
6    (EPSDT) category.
7        (3) The best data available regarding the number of
8    Medicaid-enrolled children in the State of Illinois with
9    an autism spectrum disorder diagnosis, both in total and
10    as calculated by available demographic data, which may
11    include geographic region, race, age, and gender.
12        (4) The number of Medicaid-enrolled children in
13    Illinois, in total and within each demographic subgroup
14    described in paragraph (3), receiving applied behavior
15    analysis therapy services.
16        (5) The number of appeals for denial or lack of access
17    to applied behavior analysis therapy for Medicaid-enrolled
18    children with an autism spectrum disorder diagnosis.
19        (6) The number of children under age 21 in the State of
20    Illinois with an autism spectrum disorder diagnosis
21    receiving the benefit of applied behavior analysis therapy
22    from their commercial insurance provider, both in total
23    and as calculated by available demographic data, which may
24    include different geographic region, race, age, and
25    gender.
26        (7) An analysis identifying areas of inequitable

 

 

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1    access to applied behavior analysis therapy for children
2    with autism spectrum disorder in Medicaid and commercial
3    insurance, in total and based upon available demographic
4    data, which may include geographic region, race, age, and
5    gender.
6        (8) Recommendations for an action plan to be
7    implemented in the following year, which shall include,
8    but not be limited to:
9            (A) requirements for targeted growth in provider
10        network adequacy that will create meaningful access to
11        applied behavior analysis therapy for children
12        enrolled in Medicaid; and
13            (B) requirements to create and make easily
14        accessible low-literacy materials that will inform and
15        educate parents of children with autism spectrum
16        disorder who are enrolled in Medicaid and eligible to
17        receive applied behavior analysis therapy treatment
18        about this benefit and how to access it.