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1 | AN ACT concerning regulation.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 1. Short title. This Act may be cited as the | ||||||||||||||||||||||||||
5 | Continuum of Care Services for the Developmentally Disabled | ||||||||||||||||||||||||||
6 | Act. | ||||||||||||||||||||||||||
7 | Section 5. Purpose. The purpose of this Act is to authorize | ||||||||||||||||||||||||||
8 | a new type of license for organizations providing services to | ||||||||||||||||||||||||||
9 | individuals with developmental disabilities to be known as a | ||||||||||||||||||||||||||
10 | continuum of care license; to define the requirements for a | ||||||||||||||||||||||||||
11 | continuum of care facility to receive and maintain such a | ||||||||||||||||||||||||||
12 | license; to establish a process for the development of an | ||||||||||||||||||||||||||
13 | alternative budget-neutral reimbursement mechanism for such a | ||||||||||||||||||||||||||
14 | facility; and to authorize a request to the federal government | ||||||||||||||||||||||||||
15 | for a waiver pursuant to Section 1115 of the federal Social | ||||||||||||||||||||||||||
16 | Security Act.
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17 | Section 10. Definitions. As used in this Act, unless the | ||||||||||||||||||||||||||
18 | context requires otherwise:
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19 | "Applicable requirements of law" means State and federal | ||||||||||||||||||||||||||
20 | statutes, rules, regulations, and guidance, as such may from | ||||||||||||||||||||||||||
21 | time-to-time be amended or revised, governing the rights, | ||||||||||||||||||||||||||
22 | protections, and services, including reimbursement for such |
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1 | services, afforded to individuals with developmental | ||||||
2 | disabilities.
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3 | "Campus group home" means a residential facility meeting | ||||||
4 | the requirements of Section 30 of this Act and operated as part | ||||||
5 | of a continuum of care facility licensed under this Act.
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6 | "Continuum of care facility" means a legally incorporated | ||||||
7 | entity that provides a comprehensive range of programs, | ||||||
8 | services, and supports for adults with developmental | ||||||
9 | disabilities, positioned at a central geographic campus | ||||||
10 | facility, and including all of the following:
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11 | (1) community-integrated living arrangements provided | ||||||
12 | within reasonable geographic proximity of the campus and in | ||||||
13 | accordance with applicable requirements of law;
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14 | (2) employment opportunities, including both on-campus | ||||||
15 | sheltered employment and off-campus supported employment | ||||||
16 | opportunities provided in accordance with applicable | ||||||
17 | requirements of law;
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18 | (3) developmental training programs and services | ||||||
19 | provided in accordance with applicable requirements of | ||||||
20 | law;
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21 | (4) on-campus community living facility opportunities | ||||||
22 | provided on-campus and in accordance with applicable | ||||||
23 | requirements of law;
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24 | (5) campus group home opportunities as authorized and | ||||||
25 | defined in this Act and provided in accordance with | ||||||
26 | applicable requirements of law; and
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1 | (6) medically complex for the developmentally disabled | ||||||
2 | facility opportunities provided on-campus and in | ||||||
3 | accordance with applicable requirements of law.
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4 | "Continuum of care license" means a license issued to a | ||||||
5 | continuum of care facility in accordance with the terms of this | ||||||
6 | Act.
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7 | "Continuum of care plan" means a formal, written plan | ||||||
8 | meeting the requirements of Section 25 of this Act.
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9 | "Facility constituent elements" means the particular, | ||||||
10 | discrete programs, services, and supports delineated in the | ||||||
11 | definition of "continuum of care facility" and provided | ||||||
12 | collectively by the facility.
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13 | Section 15. Powers and duties. The Director of Human | ||||||
14 | Services, acting in consultation and coordination as necessary | ||||||
15 | with the Director of Public Health and the Director of | ||||||
16 | Healthcare and Family Services, shall establish a system of | ||||||
17 | licensure for continuum of care facilities, in accordance with | ||||||
18 | this Act, for the following purposes:
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19 | (1) protecting the welfare, safety, and rights of | ||||||
20 | individuals with developmental disabilities;
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21 | (2) providing additional options for care and services | ||||||
22 | for individuals with developmental disabilities; and
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23 | (3) providing a model of care that can transition | ||||||
24 | individuals with developmental disabilities in a seamless | ||||||
25 | and timely manner across the continuum of residential care |
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1 | settings and supportive services, training, education, and | ||||||
2 | employment opportunities in a manner that maximizes | ||||||
3 | beneficiary choice and satisfaction.
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4 | Section 20. Licensing standards. The Director of Human | ||||||
5 | Services shall adopt rules establishing standards for | ||||||
6 | licensing of continuum of care facilities under a single | ||||||
7 | license. These rules shall ensure that an applicant for | ||||||
8 | licensure:
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9 | (1) meets the definition of "continuum of care | ||||||
10 | facility" and provides all of the programs, services, and | ||||||
11 | supports required by that definition;
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12 | (2) develops, submits, and maintains adherence to a | ||||||
13 | continuum of care plan that meets the requirements of | ||||||
14 | Section 25 of this Act;
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15 | (3) meets the regulatory requirements set forth in | ||||||
16 | Section 30 of this Act;
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17 | (4) meets such requirements as the Director of Human | ||||||
18 | Services may determine appropriate for renewal of | ||||||
19 | licensure or for amendment of licensure to account for | ||||||
20 | changes in the composition of facility constituent | ||||||
21 | elements providing programs or services under the license; | ||||||
22 | and
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23 | (5) meets such other requirements as the Director of | ||||||
24 | Human Services may determine appropriate for the effective | ||||||
25 | implementation of this Act.
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1 | Section 25. Continuum of care plan. An applicant for a | ||||||
2 | continuum of care license shall submit to the Director of Human | ||||||
3 | Services, in such form and manner as the Director of Human | ||||||
4 | Services shall require, a continuum of care plan that | ||||||
5 | demonstrates how the applicant will:
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6 | (1) undertake a comprehensive approach to facilitating | ||||||
7 | the movement of individuals to the most appropriate site | ||||||
8 | and level of care and services provided based on that | ||||||
9 | individual's preference and needs;
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10 | (2) provide for the seamless integrated transition of | ||||||
11 | individuals between and among the required care settings | ||||||
12 | and services in a manner that addresses the individual's | ||||||
13 | location on the spectrum of disability and progression | ||||||
14 | along the age spectrum;
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15 | (3) maximize employment and training opportunities | ||||||
16 | consistent with the individual's preferences and | ||||||
17 | capabilities; | ||||||
18 | (4) provide programs, services, and supports geared to | ||||||
19 | addressing the demand for services for a growing population | ||||||
20 | of aging and medically complex individuals with | ||||||
21 | developmental disabilities;
and | ||||||
22 | (5) demonstrate a commitment to providing informed, | ||||||
23 | free, and meaningful choice regarding the type of community | ||||||
24 | in which the individual prefers to live and the type of | ||||||
25 | employment opportunities or developmental training the |
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1 | individual prefers to receive; beneficiary engagement; | ||||||
2 | annual care planning and ongoing treatment focused on the | ||||||
3 | needs and preferences of the individual and adherence to | ||||||
4 | other applicable requirements of law relevant to | ||||||
5 | protecting the rights and welfare of individuals with | ||||||
6 | developmental disabilities.
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7 | Section 30. Applicable requirements. The Director of Human | ||||||
8 | Services, acting as appropriate through or in coordination with | ||||||
9 | the Director of Public Health, shall in licensing a continuum | ||||||
10 | of care facility ensure the following:
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11 | (1) community-integrated living arrangements provided | ||||||
12 | by such licensee meet all otherwise applicable | ||||||
13 | requirements of law pertaining to such arrangements, | ||||||
14 | including those set forth in the Community-Integrated | ||||||
15 | Living Arrangements Licensure and Certification Act, | ||||||
16 | except that a continuum of care facility may prioritize the | ||||||
17 | movement of individuals into or out of | ||||||
18 | community-integrated living arrangements from or into | ||||||
19 | other residential facility constituent elements;
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20 | (2) on-campus and off-campus employment opportunities | ||||||
21 | provided by the licensee meet all otherwise applicable | ||||||
22 | requirements of law pertaining to such opportunities;
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23 | (3) developmental training programs and services | ||||||
24 | provided by the licensee meet all otherwise applicable | ||||||
25 | requirements of law pertaining to such programs and |
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1 | services;
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2 | (4) community living facility opportunities provided | ||||||
3 | by the licensee meet all otherwise applicable requirements | ||||||
4 | of law pertaining to such opportunities;
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5 | (4) campus group homes provided by the licensee meet | ||||||
6 | all otherwise applicable requirements of law pertaining to | ||||||
7 | an ID/DD facility under the ID/DD Community Care Act;
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8 | (5) medically complex for the developmentally disabled | ||||||
9 | facility opportunities provided by the licensee meet all | ||||||
10 | otherwise applicable requirements of law pertaining to | ||||||
11 | such opportunities;
and | ||||||
12 | (6) the applicant complies with such other | ||||||
13 | requirements as the Director of Human Services may consider | ||||||
14 | necessary and appropriate to carry out the purposes of this | ||||||
15 | Act and other applicable requirements of law.
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16 | Section 35. Existing and future programs and services.
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17 | (a) To the extent necessary to carry out the purposes of | ||||||
18 | this Act and to maintain eligibility for reimbursement for | ||||||
19 | services under applicable State and federal programs, | ||||||
20 | including Title XIX of the federal Social Security Act, | ||||||
21 | facility constituent elements of an entity licensed as a | ||||||
22 | continuum of care facility may be considered to be licensed | ||||||
23 | pursuant to the otherwise applicable requirements of law as set | ||||||
24 | forth in Section 30 of this Act.
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25 | (b) In the event that a continuum of care facility ceases |
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1 | to retain licensure as a continuum of care facility, facility | ||||||
2 | constituent elements that meet all otherwise applicable | ||||||
3 | requirements of law with respect to such element as set forth | ||||||
4 | in Section 30 of this Act shall be deemed to be licensed.
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5 | (c) Residents of campus group homes and | ||||||
6 | community-integrated living arrangements that are facility | ||||||
7 | constituent elements shall continue to be beneficiaries of and | ||||||
8 | have the rights and protections provided to residents of ID/DD | ||||||
9 | facilities and community-integrated living arrangements, | ||||||
10 | respectively, under the consent decree entered by the United | ||||||
11 | States District Court for the Northern District of Illinois in | ||||||
12 | the matter of Ligas v. Hamos, No. 1:05-CV-4331 on June 15, | ||||||
13 | 2011.
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14 | (d) A continuum of care licensee shall be permitted to add | ||||||
15 | new facility constituent elements under its license provided | ||||||
16 | that it demonstrates a need for the new facility constituent | ||||||
17 | elements and that the facility constituent elements meet all | ||||||
18 | applicable requirements of law.
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19 | Section 40. Reimbursement rules. The Director of Human | ||||||
20 | Services and the Director of Healthcare and Family Services | ||||||
21 | shall:
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22 | (1) ensure that reimbursement utilizing federal and | ||||||
23 | State resources for services provided to eligible | ||||||
24 | beneficiaries through a continuum of care facility | ||||||
25 | comports with the following requirements:
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1 | (A) such services shall be reimbursed in a | ||||||
2 | budget-neutral manner such that reimbursement for | ||||||
3 | services provided by the facility constituent elements | ||||||
4 | of a continuum of care licensee shall be neither | ||||||
5 | greater nor lesser than the reimbursement received for | ||||||
6 | such services provided by that facility constituent | ||||||
7 | element prior to the licensing of the continuum of care | ||||||
8 | facility, adjusted to take into account any subsequent | ||||||
9 | changes in reimbursement for such similar services, | ||||||
10 | or, if the facility constituent element is a new | ||||||
11 | facility reimbursement for the services provided by | ||||||
12 | the new facility shall be no less than the | ||||||
13 | reimbursement received for such services by a | ||||||
14 | comparable facility constituent element of that | ||||||
15 | continuum of care facility; and
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16 | (B) for purposes of reimbursement under Title XIX | ||||||
17 | of the federal Social Security Act, a continuum of care | ||||||
18 | licensee shall enter into a single provider agreement | ||||||
19 | with the Director of Healthcare and Family Services; | ||||||
20 | changes that may occur from time to time in the | ||||||
21 | facility constituent elements under the continuum of | ||||||
22 | care license shall be addressed as may be required by | ||||||
23 | applicable requirements of law through amendments to | ||||||
24 | the provider agreement; the Director of Healthcare and | ||||||
25 | Family Services shall make all reasonable efforts to | ||||||
26 | ensure that all facility constituent elements that are |
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1 | approved parts of a continuum of care license remain | ||||||
2 | qualified for reimbursement under relevant State and | ||||||
3 | federal programs including Title XIX of the federal | ||||||
4 | Social Security Act; and
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5 | (2) in cooperation with interested stakeholders, | ||||||
6 | develop an alternative payment methodology for a continuum | ||||||
7 | of care facility involving the utilization of an annualized | ||||||
8 | global payment amount or other mechanism.
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9 | Section 45. The Department of Healthcare and Family | ||||||
10 | Services Law of the
Civil Administrative Code of Illinois is | ||||||
11 | amended by adding Section 2205-13 as follows: | ||||||
12 | (20 ILCS 2205/2205-13 new) | ||||||
13 | Sec. 2205-13. Authorization to secure a federal waiver | ||||||
14 | pursuant to Section 1115 of the federal Social Security Act. | ||||||
15 | (a) The Director of Healthcare and Family Services, in | ||||||
16 | collaboration and coordination with the Director of Human | ||||||
17 | Services, shall develop and submit to the United States | ||||||
18 | Department of Health and Human Services, Centers for Medicare | ||||||
19 | and Medicaid Services, Center for Medicaid and State | ||||||
20 | Operations, a request for a waiver pursuant to Section 1115 of | ||||||
21 | the federal Social Security Act consistent with the purpose of | ||||||
22 | subsection (b) of this Section and requirements of subsection | ||||||
23 | (c) of this Section. | ||||||
24 | (b) The purpose of the waiver authorized by subsection (a) |
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1 | of this Section is to obtain approval for the use of funds | ||||||
2 | under Title XIX of the federal Social Security Act to provide | ||||||
3 | for an alternative model of licensure, reimbursement, and | ||||||
4 | quality assurance for services to individuals with | ||||||
5 | developmental disabilities consistent with the Continuum of | ||||||
6 | Care Services for the Developmentally Disabled Act. | ||||||
7 | (c) A waiver requested pursuant to this authorization must | ||||||
8 | involve the licensure of a continuum of care facility pursuant | ||||||
9 | to and consistent with all requirements of the Continuum of | ||||||
10 | Care Services for the Developmentally Disabled Act and a | ||||||
11 | proposal for a reimbursement methodology developed under | ||||||
12 | paragraph (2) of Section 40 of the Continuum of Care Services | ||||||
13 | for the Developmentally Disabled Act.
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