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1 | AN ACT concerning regulation.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||
5 | Caregiver Advise, Record, and Enable Act. | |||||||||||||||||||
6 | Section 5. Definitions.
As used in this Act: | |||||||||||||||||||
7 | "After-care" means clinical assistance to a patient | |||||||||||||||||||
8 | provided by a caregiver in the patient's residence following | |||||||||||||||||||
9 | the patient's discharge from an inpatient hospital stay that is | |||||||||||||||||||
10 | related to the patient's condition at the time of discharge, as | |||||||||||||||||||
11 | determined appropriate by the discharging physician or other | |||||||||||||||||||
12 | health care professional. Clinical assistance may include | |||||||||||||||||||
13 | activities of daily living or medication management.
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14 | "Caregiver" means any individual designated by a patient to | |||||||||||||||||||
15 | provide after-care to a patient. A designated caregiver may | |||||||||||||||||||
16 | include, but is not limited to, a relative, spouse, partner, | |||||||||||||||||||
17 | friend, or neighbor. | |||||||||||||||||||
18 | "Discharge" means a patient's release from a hospital to | |||||||||||||||||||
19 | the patient's residence following an inpatient admission.
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20 | "Hospital" means a general acute care hospital licensed | |||||||||||||||||||
21 | under the Hospital Licensing Act or the University of Illinois | |||||||||||||||||||
22 | Hospital Act.
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23 | "Legal representative" means a personal representative |
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1 | having designated legal status, including an agent designated | ||||||
2 | through a power of attorney.
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3 | "Patient" means an individual admitted to a hospital as an | ||||||
4 | inpatient. "Patient" does not include a pediatric patient or a | ||||||
5 | patient who is not capable of designating a caregiver due to a | ||||||
6 | health care condition or other circumstances, as determined by | ||||||
7 | the health care provider. | ||||||
8 | "Residence" means a dwelling that the patient considers to | ||||||
9 | be the patient's home. "Residence" does not include a | ||||||
10 | rehabilitation facility, hospital, nursing home, assisted | ||||||
11 | living establishment, group home licensed by the Department of | ||||||
12 | Public Health or the Department of Human Services, or a | ||||||
13 | State-operated facility.
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14 | Section 10. Opportunity to designate a caregiver.
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15 | (a) A hospital shall provide each patient or, if | ||||||
16 | applicable, the patient's legal representative with an | ||||||
17 | opportunity to designate a caregiver following the patient's | ||||||
18 | admission into the hospital as an inpatient and prior to the | ||||||
19 | patient's discharge to the patient's residence or transfer to | ||||||
20 | another facility.
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21 | (b) In the event that a patient is unconscious or otherwise | ||||||
22 | incapacitated, the hospital shall provide the patient or the | ||||||
23 | patient's legal representative with an opportunity to | ||||||
24 | designate a caregiver within a timeframe deemed appropriate by | ||||||
25 | the attending physician or other licensed health care provider.
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1 | (c) If a patient or legal representative declines to | ||||||
2 | designate a caregiver pursuant to this Act, the hospital shall | ||||||
3 | document this declination in the patient's medical record and | ||||||
4 | has no further responsibilities under this Act.
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5 | (d) If a patient or the patient's legal representative | ||||||
6 | designates an individual as a caregiver under this Act, the | ||||||
7 | hospital shall record the patient's designation of caregiver, | ||||||
8 | the relationship of the designated caregiver to the patient, | ||||||
9 | and the name, telephone number, and address of the patient's | ||||||
10 | designated caregiver in the patient's medical record.
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11 | (e) A patient may elect to change his or her designated | ||||||
12 | caregiver at any time, and the hospital must record this change | ||||||
13 | in the patient's medical record and thereafter treat the newly | ||||||
14 | named person as the designated caregiver.
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15 | (f) A designation of a caregiver by a patient or the | ||||||
16 | patient's legal representative does not obligate any | ||||||
17 | individual to provide any after-care for the patient.
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18 | (g) This Section shall not be construed to require a | ||||||
19 | patient or a patient's legal representative to designate an | ||||||
20 | individual as a caregiver under this Act.
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21 | Section 15. Notice to designated caregiver.
A hospital | ||||||
22 | shall notify a patient's designated caregiver of the patient's | ||||||
23 | discharge or transfer to another hospital or facility licensed | ||||||
24 | by the Department of Public Health as soon as possible prior to | ||||||
25 | the patient's actual discharge or transfer and, in any event, |
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1 | upon issuance of a discharge order by the patient's attending | ||||||
2 | physician, unless the patient indicates he or she does not wish | ||||||
3 | the designated caregiver to be so notified. In the event the | ||||||
4 | hospital is unable to contact the designated caregiver, the | ||||||
5 | lack of contact shall not interfere with, delay, or otherwise | ||||||
6 | affect the medical care provided to the patient or an | ||||||
7 | appropriate discharge or transfer of the patient.
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8 | Section 20. Instruction to designated caregiver.
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9 | (a) As soon as possible prior to a patient's discharge from | ||||||
10 | a hospital to the patient's residence, the hospital shall | ||||||
11 | consult with the designated caregiver and issue a discharge | ||||||
12 | plan that describes a patient's clinical after-care assistance | ||||||
13 | needs, if any, at the patient's residence. The consultation and | ||||||
14 | issuance of a discharge plan shall occur on a schedule that | ||||||
15 | takes into consideration the severity of the patient's | ||||||
16 | condition and the urgency of the need for caregiver services. | ||||||
17 | In the event the hospital is unable to contact the designated | ||||||
18 | caregiver, the lack of contact shall not interfere with, delay, | ||||||
19 | or otherwise affect the medical care provided to the patient or | ||||||
20 | an appropriate discharge of the patient. At a minimum, the | ||||||
21 | discharge plan shall include:
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22 | (1) A description of the after-care assistance tasks | ||||||
23 | deemed appropriate by the discharging physician or other | ||||||
24 | health care professional.
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25 | (2) Contact information for any health care, clinical |
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1 | community resources, and long-term services and supports | ||||||
2 | that may be helpful in carrying out the patient's discharge | ||||||
3 | plan, and contact information for an individual designated | ||||||
4 | by the hospital who can respond to questions about the | ||||||
5 | discharge plan.
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6 | (b) The hospital issuing the discharge plan must make an | ||||||
7 | effort to provide or arrange for the designated caregiver to | ||||||
8 | receive instructions in after-care assistance tasks described | ||||||
9 | in the discharge plan. Training and instructions for caregivers | ||||||
10 | may be conducted in person or through video technology. Any | ||||||
11 | training or instructions to a caregiver shall be provided in | ||||||
12 | non-technical language, to the extent possible. At a minimum, | ||||||
13 | this instruction shall include:
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14 | (1) A live or recorded demonstration of the tasks | ||||||
15 | performed by an individual designated by the hospital who | ||||||
16 | is authorized to perform the after-care assistance task and | ||||||
17 | is able to perform the demonstration in a | ||||||
18 | culturally-competent manner, in accordance with the | ||||||
19 | hospital's requirements to provide language access | ||||||
20 | services under State and federal law and in accordance with | ||||||
21 | the hospital's procedures for providing education to | ||||||
22 | patients and family caregivers.
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23 | (2) An opportunity for the caregiver to ask questions | ||||||
24 | about the after-care assistance tasks. | ||||||
25 | (3) Answers provided in a culturally competent manner | ||||||
26 | and in accordance with State and federal law. |
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1 | (c) In the event the designated caregiver cannot be | ||||||
2 | reached, is not available, or is not willing to receive the | ||||||
3 | instruction, the lack of contact or instruction shall not | ||||||
4 | interfere with, delay, or otherwise affect an appropriate | ||||||
5 | discharge of the patient.
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6 | Section 25. Non-interference with health care directives.
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7 | Nothing in this Act shall be construed to interfere with the | ||||||
8 | rights of an agent operating under a valid health care | ||||||
9 | directive.
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10 | Section 30. No private right of action.
Nothing in this Act | ||||||
11 | shall be construed to create a private right of action against | ||||||
12 | a hospital, a hospital affiliate, a hospital employee, or a | ||||||
13 | consultant or contractor with whom a hospital has a contractual | ||||||
14 | relationship. | ||||||
15 | A hospital, a hospital affiliate, a hospital employee, or a | ||||||
16 | consultant or contractor with whom a hospital has a contractual | ||||||
17 | relationship shall not be held liable, in any way, for services | ||||||
18 | rendered or not rendered by the caregiver to the patient. | ||||||
19 | Nothing in this Act shall delay the discharge of a patient | ||||||
20 | or the transfer of a patient from a hospital to another | ||||||
21 | facility.
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22 | Section 99. Effective date. This Act takes effect 180 days | ||||||
23 | after becoming law.
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