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1 | AN ACT concerning education.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 1. Short title. This Act may be cited as the Care | ||||||||||||||||||||||||||
5 | of Students with Diabetes Act. | ||||||||||||||||||||||||||
6 | Section 5. Legislative findings. The General Assembly | ||||||||||||||||||||||||||
7 | finds the following: | ||||||||||||||||||||||||||
8 | (1) Diabetes is a serious chronic disease that impairs | ||||||||||||||||||||||||||
9 | the body's ability to use food for energy. In people with | ||||||||||||||||||||||||||
10 | diabetes, either the pancreas does not make insulin (Type | ||||||||||||||||||||||||||
11 | 1) or their body cannot use insulin properly (Type 2). | ||||||||||||||||||||||||||
12 | Without insulin, the body's main energy source, glucose, | ||||||||||||||||||||||||||
13 | cannot be used to fuel the body, so glucose builds up in | ||||||||||||||||||||||||||
14 | the blood, which can, over many years, cause damage to the | ||||||||||||||||||||||||||
15 | eyes, kidneys, nerves, heart, and small blood vessels. | ||||||||||||||||||||||||||
16 | (2) Diabetes must be managed 24 hours a day in order to | ||||||||||||||||||||||||||
17 | (i) avoid the potentially life-threatening, short-term | ||||||||||||||||||||||||||
18 | consequences of blood sugar levels that are too low and | ||||||||||||||||||||||||||
19 | (ii) prevent or delay the serious complications of blood | ||||||||||||||||||||||||||
20 | sugar levels that are too high for too long, which include | ||||||||||||||||||||||||||
21 | blindness, amputation, heart disease, and kidney failure. | ||||||||||||||||||||||||||
22 | (3) Despite the rights and protections afforded by the | ||||||||||||||||||||||||||
23 | Rehabilitation Act of 1973, the Individuals with |
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1 | Disabilities Education Improvement Act of 2004, and the | ||||||
2 | Americans with Disabilities Act of 1990, children with | ||||||
3 | diabetes still face discrimination in school and | ||||||
4 | elsewhere. | ||||||
5 | (4) The rights and protections afforded by these | ||||||
6 | federal laws are not implemented or enforced consistently | ||||||
7 | in schools and school districts throughout Illinois. | ||||||
8 | (5) A school nurse is the most appropriate person in a | ||||||
9 | school setting to provide care for a student with diabetes; | ||||||
10 | however, a school nurse may not always be available when | ||||||
11 | needed and many schools do not have a full-time nurse. | ||||||
12 | (6) Additional school employees must be trained to | ||||||
13 | assist students with diabetes care. By collaborating with | ||||||
14 | parents, schools and school districts can employ a team | ||||||
15 | approach to the care of students with diabetes. | ||||||
16 | (7) Because consistent diabetes care can significantly | ||||||
17 | reduce the risks of serious short-term and long-term | ||||||
18 | consequences and can increase a student's learning | ||||||
19 | opportunities, the General Assembly deems it in the public | ||||||
20 | interest to enact this Act. | ||||||
21 | Section 10. Definitions. In this Act: | ||||||
22 | "Designated diabetes care aide" means a school employee | ||||||
23 | designated by the principal, including without limitation a | ||||||
24 | teacher's aide, a personal aide, a case manager, or another | ||||||
25 | volunteer school employee, who is trained in diabetes care and |
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1 | assists students with diabetes care.
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2 | "Diabetes medical management plan" means a document that | ||||||
3 | sets out the services needed by the student at school and at | ||||||
4 | school-sponsored activities. | ||||||
5 | "School" means any primary or secondary public, charter, or | ||||||
6 | private school located in this State. | ||||||
7 | "Principal" means the senior administrative executive of a | ||||||
8 | school and includes the principal's designee or designees. | ||||||
9 | "School employee" means a person who is employed by a | ||||||
10 | public school district or private school, a person who is | ||||||
11 | employed by a local health department and assigned to a school, | ||||||
12 | or a person who contracts with a school or school district to | ||||||
13 | perform services in connection with the care of students with | ||||||
14 | diabetes. | ||||||
15 | "School nurse" means a school employee who is a registered | ||||||
16 | nurse and who holds a valid Illinois nursing license. | ||||||
17 | Section 15. Diabetes medical management plan.
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18 | (a) A diabetes medical management plan must be signed and | ||||||
19 | submitted by a parent or guardian for any student with diabetes | ||||||
20 | who seeks assistance with diabetes care in the school setting. | ||||||
21 | The diabetes medical management plan must be accompanied by | ||||||
22 | proof of diagnosis of diabetes and a prescription or | ||||||
23 | prescriptions, including the name of the medication and the | ||||||
24 | method of administration. Proof shall consist of a statement | ||||||
25 | from a physician licensed to practice medicine in all its |
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1 | branches. | ||||||
2 | (b) The services and accommodations specified in a diabetes | ||||||
3 | medical management plan shall be reasonable, reflect the | ||||||
4 | current standards of diabetes care, and include appropriate | ||||||
5 | safeguards to ensure that syringes and lancets are disposed of | ||||||
6 | properly. | ||||||
7 | (c) A diabetes medical management plan must be submitted to | ||||||
8 | the school at the following time: | ||||||
9 | (1) before or at the beginning of the school year; | ||||||
10 | (2) upon enrollment of a student with diabetes, if the | ||||||
11 | student enrolls in the school after the beginning of the | ||||||
12 | school year; | ||||||
13 | (3) as soon as practicable following a student's | ||||||
14 | diagnosis; or | ||||||
15 | (4) when a student's care needs change during the | ||||||
16 | school year. | ||||||
17 | (d) A school nurse or a designated diabetes care aide shall | ||||||
18 | provide diabetes care for a student only after a student's | ||||||
19 | parent or guardian (i) requests assistance and (ii) signs and | ||||||
20 | submits a diabetes medical management plan to the school. | ||||||
21 | Section 20. Designated diabetes care aides.
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22 | (a) Upon receipt of a student's completed and signed | ||||||
23 | diabetes medical management plan and in the absence of a | ||||||
24 | full-time school nurse, a school principal shall appoint a | ||||||
25 | designated diabetes care aide to perform the tasks necessary to |
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1 | assist a student with diabetes in accordance with his or her | ||||||
2 | diabetes medical management plan and in compliance with any | ||||||
3 | guidelines provided during training under Section 25 of this | ||||||
4 | Act. | ||||||
5 | (b) The principal shall ensure the school has at least one | ||||||
6 | designated diabetes care aide or one full-time nurse assigned | ||||||
7 | to the school and available during school hours. | ||||||
8 | (c) Designated diabetes care aides shall serve under the | ||||||
9 | supervision of the principal. | ||||||
10 | (d) A school employee must not be subject to any penalty, | ||||||
11 | sanction, or other disciplinary action for refusing to serve as | ||||||
12 | a designated diabetes care aide. | ||||||
13 | Section 25. Training for designated diabetes care aides.
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14 | (a) If a school nurse is assigned to a school, the school | ||||||
15 | nurse shall coordinate the training of designated diabetes care | ||||||
16 | aides. If a school nurse is not assigned to a school, the | ||||||
17 | principal shall coordinate the training of designated diabetes | ||||||
18 | care aides. | ||||||
19 | (b) Training under this Section may be provided by the | ||||||
20 | following: | ||||||
21 | (1) a licensed health care provider with expertise in | ||||||
22 | diabetes; | ||||||
23 | (2) a school nurse, if he or she has recent and | ||||||
24 | verifiable training in current standards of diabetes care; | ||||||
25 | or |
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1 | (3) the parent or guardian of a student with diabetes. | ||||||
2 | (c) Training must be provided before the beginning of the | ||||||
3 | school year or as soon as practicable following (i) the | ||||||
4 | enrollment of a student with diabetes, if no other student | ||||||
5 | previously enrolled at the school has been diagnosed with | ||||||
6 | diabetes, or (ii) a diagnosis of diabetes for a student | ||||||
7 | enrolled at the school, if no other student enrolled at the | ||||||
8 | school has been diagnosed with diabetes. | ||||||
9 | (d) Training must include all of the following: | ||||||
10 | (1) The details of a student's diabetes medical | ||||||
11 | management plan. | ||||||
12 | (2) How to test blood glucose and record results. | ||||||
13 | (3) How to recognize and respond to the symptoms of | ||||||
14 | hypoglycemia. | ||||||
15 | (4) How to recognize and respond to the symptoms of | ||||||
16 | hyperglycemia. | ||||||
17 | (5) What to do in an emergency, including how to | ||||||
18 | administer glucagon. | ||||||
19 | (6) How to prepare and administer insulin according to | ||||||
20 | the device identified in the student's diabetes medical | ||||||
21 | management plan and keep a record of the amount | ||||||
22 | administered. | ||||||
23 | (7) How carbohydrates, physical activity, and other | ||||||
24 | factors affect blood glucose levels and how to respond when | ||||||
25 | blood glucose levels are outside the target ranges | ||||||
26 | specified in a student's diabetes medical management plan. |
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1 | (e) Training must be provided annually and may be provided | ||||||
2 | as part of in-service training. | ||||||
3 | (f) Training may be provided for other school employees who | ||||||
4 | are not currently serving as designated diabetes care aides, at | ||||||
5 | the discretion of the principal. | ||||||
6 | (g) The principal or school nurse, should one be assigned | ||||||
7 | full-time to a school, shall maintain a copy of the training | ||||||
8 | records. | ||||||
9 | Section 30. Independent monitoring and treatment. In | ||||||
10 | accordance with a student's diabetes medical management plan, a | ||||||
11 | student with diabetes must be permitted to do the following: | ||||||
12 | (1) perform blood glucose tests as needed; | ||||||
13 | (2) administer insulin with the insulin delivery | ||||||
14 | system used by the student; | ||||||
15 | (3) treat hypoglycemia and hyperglycemia and otherwise | ||||||
16 | attend to the care and management of his or her diabetes in | ||||||
17 | the classroom, in any area of the school or school grounds, | ||||||
18 | and at any school-related activity or event; and | ||||||
19 | (4) possess on his or her person, at all times, the | ||||||
20 | supplies and equipment necessary to monitor and treat | ||||||
21 | diabetes, including, but not limited to, glucometers, | ||||||
22 | lancets, test strips, insulin, syringes, insulin pens and | ||||||
23 | needle tips, insulin pumps, infusion sets, alcohol swabs, a | ||||||
24 | glucagon injection kit, glucose tablets, and food. |
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1 | Section 35. Required information for certain school | ||||||
2 | employees. A school shall provide a one-page information sheet | ||||||
3 | to each employee providing transportation for a student with | ||||||
4 | diabetes or supervising a student with diabetes during a | ||||||
5 | school-sponsored activity. The information sheet shall do the | ||||||
6 | following: | ||||||
7 | (1) identify the student with diabetes; | ||||||
8 | (2) identify potential emergencies that may occur as a | ||||||
9 | result of the student's diabetes and the appropriate | ||||||
10 | responses to such emergencies; and | ||||||
11 | (3) provide emergency contact information for the | ||||||
12 | student's parent or guardian. | ||||||
13 | Section 40. Restricting access to school prohibited. A | ||||||
14 | school district may not restrict the assignment of a student | ||||||
15 | with diabetes to a particular school on the basis that the | ||||||
16 | school does not have a full-time school nurse or the required | ||||||
17 | designated diabetes care aides, nor may a school deny access to | ||||||
18 | a student on the basis that a student has been diagnosed with | ||||||
19 | diabetes. | ||||||
20 | Section 45. Civil immunity; prohibition against | ||||||
21 | discipline.
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22 | (a) A school or a school employee is not liable for civil | ||||||
23 | or other damages as a result of conduct, other than willful or | ||||||
24 | wanton misconduct, related to the care of a student with |
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1 | diabetes. | ||||||
2 | (b) A school employee must not be subject to any | ||||||
3 | disciplinary proceeding resulting from an action taken in | ||||||
4 | compliance with this Act, unless the action constitutes willful | ||||||
5 | or wanton misconduct, as long as the provisions of this Act are | ||||||
6 | met. | ||||||
7 | Section 50. Federal law. Nothing in this Act shall limit | ||||||
8 | any rights available under federal law. | ||||||
9 | Section 90. The State Mandates Act is amended by adding | ||||||
10 | Section 8.32 as follows: | ||||||
11 | (30 ILCS 805/8.32 new) | ||||||
12 | Sec. 8.32. Exempt mandate. Notwithstanding Sections 6 and 8 | ||||||
13 | of this Act, no reimbursement by the State is required for the | ||||||
14 | implementation of any mandate created by this amendatory Act of | ||||||
15 | the 95th General Assembly.
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16 | Section 99. Effective date. This Act takes effect upon | ||||||
17 | becoming law.
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