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Sen. William Delgado
Filed: 5/7/2007
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LRB095 08129 CMK 35915 a |
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| AMENDMENT TO HOUSE BILL 981
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| AMENDMENT NO. ______. Amend House Bill 981 by replacing |
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| everything after the enacting clause with the following:
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| "Section 5. The Department of Public Health Powers and |
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| Duties Law of the
Civil Administrative Code of Illinois is |
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| amended by adding Section 2310-367 as follows:
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| (20 ILCS 2310/2310-367 new) |
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| Sec. 2310-367. Health Data Task Force; purpose; |
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| implementation plan. |
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| (a) In accordance with the recommendations of the 2007 |
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| State Health Improvement Plan, it is the policy of the State |
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| that, to the extent possible and consistent with privacy and |
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| other laws, State public health data and health-related |
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| administrative data are to be used to understand and report on |
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| the scope of health problems, plan prevention programs, and |
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| evaluate program effectiveness at the State and community |
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LRB095 08129 CMK 35915 a |
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| level. It is a priority to use data to address racial, ethnic, |
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| and other health disparities. This system is intended to |
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| support State and community level public health planning, and |
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| is not intended to supplant or replace data-use agreements |
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| between State agencies and academic researchers for more |
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| specific research needs. |
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| (b) Within 30 days after the effective date of this |
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| amendatory Act of the 95th General Assembly, a Health Data Task |
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| Force shall be convened to create a system for public access to |
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| integrated health data. The Task Force shall consist of the |
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| following: the Director of Public Health or his or her |
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| designee; the Director of Healthcare and Family Services or his |
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| or her designee; the Secretary of Human Services or his or her |
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| designee; the Director of the Department on Aging or his or her |
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| designee; the Director of Children and Family Services or his |
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| or her designee; the State Superintendent of Education or his |
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| or her designee; and other State officials as deemed |
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| appropriate by the Governor. |
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| The Task Force shall be advised by a public advisory group |
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| consisting of community health data users, minority health |
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| advocates, local public health departments, and private data |
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| suppliers such as hospitals and other health care providers. |
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| Each member of the Task Force shall appoint 3 members of the |
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| public advisory group. The public advisory group shall assist |
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| the Task Force in setting goals, articulating user needs, and |
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| setting priorities for action. |
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LRB095 08129 CMK 35915 a |
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| The Department of Public Health is primarily responsible |
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| for providing staff and administrative support to the Task |
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| Force. The other State agencies represented on the Task Force |
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| shall work cooperatively with the Department of Public Health |
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| to provide administrative support to the Task Force. The |
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| Department of Public Health shall have ongoing responsibility |
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| for monitoring the implementation of the plan and shall have |
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| ongoing responsibility to identify new or emerging data or |
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| technology needs. |
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| The State agencies represented on the Task Force shall |
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| review their health data, data collection, and dissemination |
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| policies for opportunities to coordinate and integrate data and |
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| make data available within and outside State government in |
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| support of this State policy. To the extent possible, existing |
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| data infrastructure shall be used to create this system of |
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| public access to data. The Illinois Department of Health Care |
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| and Family Services data warehouse and the Illinois Department |
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| of Public Health IPLAN Data System may be the foundation of |
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| this system. |
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| (c) The Task Force shall produce a plan with a phased and |
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| prioritized implementation timetable focusing on assuring |
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| access to improving the quality of data necessary to understand |
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| health disparities. The Task Force shall submit an initial |
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| report to the General Assembly no later that July 1, 2008, and |
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| shall make annual reports to the General Assembly on or before |
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| July 1 of each year through 2011 of the progress toward |