|
|
Sen. Donne E. Trotter
Filed: 4/11/2005
|
|
09400SB1461sam001 |
|
LRB094 10048 RXD 44754 a |
|
|
| 1 |
| AMENDMENT TO SENATE BILL 1461
|
| 2 |
| AMENDMENT NO. ______. Amend Senate Bill 1461 by replacing |
| 3 |
| everything after the enacting clause with the following:
|
| 4 |
| "Section 5. The Department of Public Health Powers and |
| 5 |
| Duties Law of the
Civil Administrative Code of Illinois is |
| 6 |
| amended by adding Section 2310-339 as follows:
|
| 7 |
| (20 ILCS 2310/2310-339 new) |
| 8 |
| Sec. 2310-339. Chronic Kidney Disease Program. |
| 9 |
| (a) The Department, subject to appropriation or other |
| 10 |
| available funding, shall establish a Chronic Kidney Disease |
| 11 |
| Awareness, Testing, Diagnosis and Treatment Program. The |
| 12 |
| program may include, but is not not limited to:
|
| 13 |
| (1) Dissemination of information regarding the |
| 14 |
| incidence of chronic kidney disease, the risk factors |
| 15 |
| associated with chronic kidney disease, and the benefits of |
| 16 |
| early testing, diagnosis and treatment of chronic kidney |
| 17 |
| disease.
|
| 18 |
| (2) Promotion information and counseling about |
| 19 |
| treatment options.
|
| 20 |
| (3) Establishment and promotion of referral services |
| 21 |
| and testing programs.
|
| 22 |
| (4) Development and dissemination, through print and |
| 23 |
| broadcast media, of public service announcements that |
| 24 |
| publicize the importance of awareness, testing, diagnosis |
|
|
|
09400SB1461sam001 |
- 2 - |
LRB094 10048 RXD 44754 a |
|
|
| 1 |
| and treatment of chronic kidney disease.
|
| 2 |
| (b) Any entity funded by the Program shall coordinate with |
| 3 |
| other local providers of chronic kidney disease testing, |
| 4 |
| diagnostic, follow-up, education, and advocacy services to |
| 5 |
| avoid duplication of effort. Any entity funded by the Program |
| 6 |
| shall comply with any applicable State and federal standards |
| 7 |
| regarding chronic kidney disease testing.
|
| 8 |
| (c) Administrative costs of the Department shall not exceed |
| 9 |
| 10% of the funds allocated to the Program. Indirect costs of |
| 10 |
| the entities funded by this Program shall not exceed 12%. The |
| 11 |
| Department shall define "indirect costs" in accordance with |
| 12 |
| applicable State and federal law.
|
| 13 |
| (d) Any entity funded by the Program shall collect data and |
| 14 |
| maintain records that are determined by the Department to be |
| 15 |
| necessary to facilitate the Department's ability to monitor and |
| 16 |
| evaluate the effectiveness of the entities and the Program. |
| 17 |
| Commencing with the Program's second year of operation, the |
| 18 |
| Department shall submit an annual report to the General |
| 19 |
| Assembly and the Governor. The report shall describe the |
| 20 |
| activities and effectiveness of the Program and shall include, |
| 21 |
| but is not limited to, the following types of information |
| 22 |
| regarding those persons served by the Program: (i) the number, |
| 23 |
| (ii) the ethnic, geographic, and age breakdown, (iii) the |
| 24 |
| stages of progression, and (iv) the diagnostic and treatment |
| 25 |
| status.
|
| 26 |
| (e) The Department or any entity funded by the Program |
| 27 |
| shall collect personal and medical information necessary to |
| 28 |
| administer the Program from any individual applying for |
| 29 |
| services under the Program. The information shall be |
| 30 |
| confidential and shall not be disclosed other than for purposes |
| 31 |
| directly connected with the administration of the Program or as |
| 32 |
| otherwise provided by law or pursuant to prior written consent |
| 33 |
| of the subject of the information.
|
| 34 |
| (f) The Department or any entity funded by the Program may |
|
|
|
09400SB1461sam001 |
- 3 - |
LRB094 10048 RXD 44754 a |
|
|
| 1 |
| disclose the confidential information to medical personnel and |
| 2 |
| fiscal intermediaries of the State to the extent necessary to |
| 3 |
| administer the Program, and to other State public health |
| 4 |
| agencies or medical researchers if the confidential |
| 5 |
| information is necessary to carry out the duties of those |
| 6 |
| agencies or researchers in the investigation, control, or |
| 7 |
| surveillance of chronic kidney disease.
|
| 8 |
| (g) The Department shall adopt rules to implement the |
| 9 |
| Program in accordance with the Illinois Administrative |
| 10 |
| Procedure Act.".
|