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Sen. James A. DeLeo
Filed: 5/17/2004
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09300HB4502sam003 |
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LRB093 15398 DRJ 51149 a |
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| AMENDMENT TO HOUSE BILL 4502
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| AMENDMENT NO. ______. Amend House Bill 4502 by replacing |
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| everything after the enacting clause with the following:
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| "Section 5. The Mental Health and Developmental |
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| Disabilities Administrative
Act is amended by changing Section |
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| 57 as follows:
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| (20 ILCS 1705/57) (from Ch. 91 1/2, par. 100-57)
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| Sec. 57. In order to identify the service needs of persons
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| with autism, the Department shall study the needs of the |
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| population.
The Department of Human Services shall |
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| periodically convene a special task force of representatives of |
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| the various State agencies with related programs and services |
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| together with other interested parties and stakeholders to |
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| study and assess
submit service needs of persons with autism
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| reports to the General Assembly
annually which shall supplement |
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| the report submitted in accordance with
Public Act 84-1291. The |
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| Secretary of Human Services shall submit a report of the task |
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| force's findings and recommendations and the Secretary's |
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| priorities to the Governor and the General Assembly by |
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| September 1, 2005. The Secretary shall provide annual progress |
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| reports to the Governor and the General Assembly by January 1 |
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| of each year, beginning on January 1, 2006. The reports shall |
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| include an analysis of progress made
in
since the submission of |
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| that report in the areas outlined in that report,
with emphasis |
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09300HB4502sam003 |
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LRB093 15398 DRJ 51149 a |
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| on the following areas:
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| a. Early intervention services for children with autism and |
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| their parents;
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| b. Enhancement of family support mechanisms to enable |
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| persons with
autism to remain in a home-based or community
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| family home environment in the least-restrictive setting |
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| possible, including progress on the implementation of plans to |
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| provide assistance to individuals and families; the plan shall |
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| include, but not be limited to, (i) identification of the |
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| services required, (ii) the availability of services, |
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| especially those within the home community of the person with |
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| autism, (iii) the number of persons requiring the services, |
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| (iv) the cost of the services, (v) the capacity of the person |
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| with autism and his or her family to independently provide the |
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| services and the extent to which the State may support the |
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| individual and family effort, (vi) the extent of existing and |
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| planned State support, (vii) the availability and utilization |
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| of federal financial participation in the cost of services, and |
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| (viii) the outcomes and impact of services being provided;
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| c. Services for adequate transition for people with autism |
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| from public
school programs to adult work and day programs; and
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| d. Plans, programs, and services under the Disabilities |
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| Services Act of 2003
Facilitation of placement of persons with |
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| autism in the least
restrictive community setting.
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| The Department of Human Services and the Department of |
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| Public Aid shall determine the availability of federal |
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| financial participation in the cost of developing a family |
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| support program, which would include medical assistance |
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| coverage for children diagnosed with autism who would otherwise |
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| qualify for medical assistance under the Illinois Public Aid |
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| Code except for family income. The program would include |
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| services to support persons with autism in their homes and |
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| communities that are not provided through local school systems, |
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| early intervention programs, or the medical assistance program |
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09300HB4502sam003 |
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LRB093 15398 DRJ 51149 a |
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| under the Illinois Public Aid Code. The departments shall |
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| determine the feasibility of obtaining federal financial |
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| participation and may apply for any applicable waiver under |
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| Section 1915(c) of the federal Social Security Act.
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| For the purpose of this service needs review, autism means |
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| a severely
incapacitating life-long developmental disability |
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| which:
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| a. may be manifested before a person is 30 months of age,
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| b. may be caused by physical disorders of the brain, and
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| c. is characterized by uneven intellectual development and |
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| a combination
of disturbances in the rates and sequences of |
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| cognitive, affective,
psychomotor, language and speech |
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| development. This syndrome is further
evidenced by abnormal |
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| responses to sensory stimuli, problems in developing
social |
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| relationships, and ritualistic and compulsive behavior.
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| (Source: P.A. 85-971.)
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| Section 99. Effective date. This Act takes effect upon |
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| becoming law.".
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