Sen. James A. DeLeo
Filed: 5/17/2004
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1 | AMENDMENT TO HOUSE BILL 4502
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2 | AMENDMENT NO. ______. Amend House Bill 4502 by replacing | ||||||
3 | everything after the enacting clause with the following:
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4 | "Section 5. The Mental Health and Developmental | ||||||
5 | Disabilities Administrative
Act is amended by changing Section | ||||||
6 | 57 as follows:
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7 | (20 ILCS 1705/57) (from Ch. 91 1/2, par. 100-57)
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8 | Sec. 57. In order to identify the service needs of persons
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9 | with autism, the Department shall study the needs of the | ||||||
10 | population.
The Department of Human Services shall | ||||||
11 | periodically convene a special task force of representatives of | ||||||
12 | the various State agencies with related programs and services | ||||||
13 | together with other interested parties and stakeholders to | ||||||
14 | study and assess
submit service needs of persons with autism
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15 | reports to the General Assembly
annually which shall supplement | ||||||
16 | the report submitted in accordance with
Public Act 84-1291 . The | ||||||
17 | Secretary of Human Services shall submit a report of the task | ||||||
18 | force's findings and recommendations and the Secretary's | ||||||
19 | priorities to the Governor and the General Assembly by | ||||||
20 | September 1, 2005. The Secretary shall provide annual progress | ||||||
21 | reports to the Governor and the General Assembly by January 1 | ||||||
22 | of each year, beginning on January 1, 2006. The reports shall | ||||||
23 | include an analysis of progress made
in
since the submission of | ||||||
24 | that report in the areas outlined in that report,
with emphasis |
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1 | on the following areas:
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2 | a. Early intervention services for children with autism and | ||||||
3 | their parents;
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4 | b. Enhancement of family support mechanisms to enable | ||||||
5 | persons with
autism to remain in a home-based or community
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6 | family home environment in the least-restrictive setting | ||||||
7 | possible, including progress on the implementation of plans to | ||||||
8 | provide assistance to individuals and families; the plan shall | ||||||
9 | include, but not be limited to, (i) identification of the | ||||||
10 | services required, (ii) the availability of services, | ||||||
11 | especially those within the home community of the person with | ||||||
12 | autism, (iii) the number of persons requiring the services, | ||||||
13 | (iv) the cost of the services, (v) the capacity of the person | ||||||
14 | with autism and his or her family to independently provide the | ||||||
15 | services and the extent to which the State may support the | ||||||
16 | individual and family effort, (vi) the extent of existing and | ||||||
17 | planned State support, (vii) the availability and utilization | ||||||
18 | of federal financial participation in the cost of services, and | ||||||
19 | (viii) the outcomes and impact of services being provided ;
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20 | c. Services for adequate transition for people with autism | ||||||
21 | from public
school programs to adult work and day programs; and
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22 | d. Plans, programs, and services under the Disabilities | ||||||
23 | Services Act of 2003
Facilitation of placement of persons with | ||||||
24 | autism in the least
restrictive community setting .
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25 | The Department of Human Services and the Department of | ||||||
26 | Public Aid shall determine the availability of federal | ||||||
27 | financial participation in the cost of developing a family | ||||||
28 | support program, which would include medical assistance | ||||||
29 | coverage for children diagnosed with autism who would otherwise | ||||||
30 | qualify for medical assistance under the Illinois Public Aid | ||||||
31 | Code except for family income. The program would include | ||||||
32 | services to support persons with autism in their homes and | ||||||
33 | communities that are not provided through local school systems, | ||||||
34 | early intervention programs, or the medical assistance program |
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1 | under the Illinois Public Aid Code. The departments shall | ||||||
2 | determine the feasibility of obtaining federal financial | ||||||
3 | participation and may apply for any applicable waiver under | ||||||
4 | Section 1915(c) of the federal Social Security Act.
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5 | For the purpose of this service needs review, autism means | ||||||
6 | a severely
incapacitating life-long developmental disability | ||||||
7 | which:
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8 | a. may be manifested before a person is 30 months of age,
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9 | b. may be caused by physical disorders of the brain, and
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10 | c. is characterized by uneven intellectual development and | ||||||
11 | a combination
of disturbances in the rates and sequences of | ||||||
12 | cognitive, affective,
psychomotor, language and speech | ||||||
13 | development. This syndrome is further
evidenced by abnormal | ||||||
14 | responses to sensory stimuli, problems in developing
social | ||||||
15 | relationships, and ritualistic and compulsive behavior.
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16 | (Source: P.A. 85-971.)
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17 | Section 99. Effective date. This Act takes effect upon | ||||||
18 | becoming law.".
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