HB4475 93RD GENERAL ASSEMBLY

LRB093 19565 RXD 45305 b

93RD GENERAL ASSEMBLY
State of Illinois
2003 and 2004
HB4475

Introduced 02/03/04, by Jack McGuire

SYNOPSIS AS INTRODUCED:

30 ILCS 105/5.625 new
30 ILCS 775/20
30 ILCS 775/36 new
410 ILCS 405/2	from Ch. 111 1/2, par. 6952
410 ILCS 405/6	from Ch. 111 1/2, par. 6956
410 ILCS 405/7	from Ch. 111 1/2, par. 6957

Amends the Alzheimer's Disease Assistance Act and the Excellence in Academic Medicine Act. Provides that Alzheimer's disease and related disorders affect an estimated 4,500,000 (rather than 1,500,000) Americans and approximately 200,000 (rather than 111,000) Illinois citizens. Provides that the Alzheimer's Disease Advisory Committee shall review and evaluate State programs and services provided by State agencies that are directed toward persons with Alzheimer's disease and related dementias, and recommend changes to improve the State's response to this health problem. Provides that payments to hospitals affiliated with each Regional Alzheimer's Disease Assistance Center shall be effected through the Illinois Department of Public Aid under the Excellence in Academic Medicine Act. Creates the Alzheimer's Disease Center Fund (and amends the State Finance Act to include the fund as a special fund in the State treasury). Creates an Alzheimer's Disease Center Program to provide financial incentives to the Regional Alzheimer's Disease Assistance Centers established under the Alzheimer's Disease Assistance Act.

A BILL FOR

AN ACT concerning public health.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 5. The State Finance Act is amended by adding Section 5.625 as follows:

(30 ILCS 105/5.625 new)

Sec. 5.625. The Alzheimer's Disease Center Fund.

Section 10. The Excellence in Academic Medicine Act is amended by changing Section 20 and by adding Section 36 as follows:

(30 ILCS 775/20)

Sec. 20. Establishment of Funds.

(a) The Medical Research and Development Fund is created in the State Treasury to which the General Assembly may from time to time appropriate funds and from which the Comptroller shall pay amounts as authorized by law.

(i) The following accounts are created in the Medical Research and Development Fund: The National Institutes of Health Account; the Philanthropic Medical Research Account; and the Market Medical Research Account.

(ii) Funds appropriated to the Medical Research and Development Fund shall be assigned in equal amounts to each account within the Fund, subject to transferability of funds under subsection (c) of Section 25.

(b) The Post-Tertiary Clinical Services Fund is created in the State Treasury to which the General Assembly may from time to time appropriate funds and from which the Comptroller shall pay amounts as authorized by law.

(c) The Independent Academic Medical Center Fund is created as a special fund in the State Treasury, to which the General Assembly shall from time to time appropriate funds for the purposes of the Independent Academic Medical Center Program. The amount appropriated for any fiscal year after 2002 shall not be less than the amount appropriated for fiscal year 2002. The State Comptroller shall pay amounts from the Fund as authorized by law.

(d) The Alzheimer's Disease Center Fund is created as a special fund in the State Treasury, to which the General Assembly shall from time to time appropriate funds for the operation of the Alzheimer's Disease Center Program. The State Comptroller shall pay amounts from the Fund as authorized by law.

(Source: P.A. 92-10, eff. 6-11-01.)

(30 ILCS 775/36 new)

Sec. 36. Alzheimer's Disease Center Program. There is created an Alzheimer's Disease Center Program to provide financial incentives to the Regional Alzheimer's Disease Assistance Centers established under the Alzheimer's Disease Assistance Act. In each state fiscal year, beginning July 1, 2004, each center shall receive funding under the program from the funds appropriated for that purpose for that fiscal year. The methodology to be used by the Illinois Department of Public Aid shall be reviewed by the Advisory Committee established under the Alzheimer's Disease Assistance Act and prescribed by rule.

Section 15. The Alzheimer's Disease Assistance Act is amended by changing Sections 2, 6, and 7 as follows:

(410 ILCS 405/2) (from Ch. 111 1/2, par. 6952)

Sec. 2. Policy declaration. The General Assembly finds that Alzheimer's disease and related disorders are devastating health conditions which destroy certain vital cells of the brain and which affect an estimated 4,500,000 1,500,000 Americans. This means that approximately 200,000 111,000 Illinois citizens are victims. The General Assembly also finds that 50% of all nursing home admissions in the State may be attributable to the Alzheimer's disease and related disorders and that these conditions are the fourth leading cause of death among the elderly. It is the opinion of the General Assembly that Alzheimer's disease and related disorders cause serious financial, social and emotional hardships on the victims and their families of such a major consequence that it is essential for the State to develop and implement policies, plans, programs and services to alleviate such hardships.

The General Assembly recognizes that there is no known cause or cure of Alzheimer's disease at this time, and that it can progress over an extended period of time and to such a degree that the victim's deteriorated condition makes him or her susceptible to other medical disorders that generally prove fatal. It is the intent of the General Assembly, through implementation of this Act, to establish a program for the conduct of research regarding the cause, cure and treatment of Alzheimer's disease and related disorders; and, through the establishment of Regional Alzheimer's Disease Assistance Centers and a comprehensive, Statewide system of regional and community-based services, to provide for the identification, evaluation, diagnosis, referral and treatment of victims of such health problems.

(Source: P.A. 85-1209.)

(410 ILCS 405/6) (from Ch. 111 1/2, par. 6956)

Sec. 6. ADA Advisory Committee. There is created the Alzheimer's Disease Advisory Committee consisting of 21 voting members appointed by the Director of the Department, as well as 5 nonvoting members as hereinafter provided in this Section. The Director or his designee shall serve as one of the 21 voting members and as the Chairman of the Committee. Those appointed as voting members shall include persons who are experienced in research and the delivery of services to victims and their families. Such members shall include 4 physicians licensed to practice medicine in all of its branches, one representative of a postsecondary educational institution which administers or is affiliated with a medical center in the State, one representative of a licensed hospital, one registered nurse, one representative of a long term care facility under the Nursing Home Care Act, one representative of an area agency on aging as defined by Section 3.07 of the Illinois Act on the Aging, one social worker, one representative of an organization established under the Illinois Insurance Code for the purpose of providing health insurance, 5 family members or representatives of victims of Alzheimer's disease and related disorders, and 4 members of the general public. Among the physician appointments shall be persons with specialties in the fields of neurology, family medicine, psychiatry and pharmacology. Among the general public members, at least 2 appointments shall include persons 65 years of age or older.

In addition to the 21 voting members, the Secretary of Human Services (or his or her designee) and one additional representative of the Department of Human Services designated by the Secretary plus the Directors of the following State agencies or their designees shall serve as nonvoting members: Department on Aging, Department of Public Aid, and Guardianship and Advocacy Commission.

Each voting member appointed by the Director of Public Health shall serve for a term of 2 years, and until his successor is appointed and qualified. Members of the Committee shall not be compensated but shall be reimbursed for expenses actually incurred in the performance of their duties. No more than 11 voting members may be of the same political party. Vacancies shall be filled in the same manner as original appointments.

The Committee shall review and evaluate State programs and services provided by State agencies that are directed toward persons with Alzheimer's disease and related dementias, and recommend changes to improve the State's response to this serious health problem.

(Source: P.A. 89-507, eff. 7-1-97.)

(410 ILCS 405/7) (from Ch. 111 1/2, par. 6957)

Sec. 7. Regional ADA center funding. Pursuant to appropriations enacted by the General Assembly, the Department shall provide funds to hospitals affiliated with each Regional ADA Center for necessary research and for the development and maintenance of services for victims of Alzheimer's disease and related disorders and their families. For the fiscal year beginning July 1, 2003, and each year thereafter, the Department shall effect payments under this Section to hospitals affiliated with each Regional ADA Center through the Illinois Department of Public Aid under the Excellence in Academic Medicine Act. The Department of Public Aid shall consult with the Advisory Committee established under this Act prior to implementing the payment methodology, and each year thereafter to ensure that the purpose of this Act and the goals and objectives of the State are being realized. The Department shall include the annual expenditures for this purpose in the plan required by Section 5 of this Act.

(Source: P.A. 93-20, eff. 6-20-03.)