093_HB0076sam001











                                     LRB093 02685 MKM 15905 a

 1                     AMENDMENT TO HOUSE BILL 76

 2        AMENDMENT NO.     .  Amend House  Bill  76  by  replacing
 3    everything after the enacting clause with the following:

 4        "Section  5.  The  Department  of  Human  Services Act is
 5    amended by adding Section 10-26 as follows:

 6        (20 ILCS 1305/10-26 new)
 7        Sec. 10-26.  Disability database.
 8        (a)  The Department of Human Services shall  compile  and
 9    maintain  a  cross-disability  database of Illinois residents
10    with a disability who are potentially in need  of  disability
11    services funded by the Department. The database shall consist
12    of  individuals  with  mental illness, physical disabilities,
13    and developmental disabilities, and shall include, but not be
14    limited to, individuals transitioning from special  education
15    to   adulthood,  individuals  in  State-operated  facilities,
16    individuals in private nursing  and  residential  facilities,
17    and  individuals in community integrated living arrangements.
18    Within 30 days after the effective date  of  this  amendatory
19    Act  of  the  93rd  General  Assembly, the Secretary of Human
20    Services  shall  seek  input  from  advisory  bodies  to  the
21    Department,  including  advisory  councils   and   committees
22    working  with  the Department in the areas of mental illness,
 
                            -2-      LRB093 02685 MKM 15905 a
 1    physical disabilities, and  developmental  disabilities.  The
 2    database   shall   be   operational  by  July  1,  2004.  The
 3    information  collected  and  maintained  for  the  disability
 4    database shall include, but is not limited to, the following:
 5    (i)  the  types  of  services  of  which  the  individual  is
 6    potentially  in  need;  (ii)  demographic   and   identifying
 7    information  about  the  individual; (iii) factors indicating
 8    need, including diagnoses,  assessment  information,  age  of
 9    primary  caregivers,  and  current  living situation; (iv) if
10    applicable, the date the individual applied for services  and
11    the  types  of services for which the individual applied; (v)
12    the representative districts in which the individuals reside.
13    In collecting and maintaining information under this Section,
14    the Department shall  give  consideration  to  cost-effective
15    appropriate services for individuals.
16        (b)  This  amendatory  Act  of  the 93rd General Assembly
17    does not create any new entitlement to a service, program, or
18    benefit, but shall not affect any entitlement to  a  service,
19    program,  or  benefit  created by any other law. Except for a
20    service, program,  or  benefit  that  is  an  entitlement,  a
21    service,  program,  or  benefit  provided  as a result of the
22    collection and maintenance of the disability  database  shall
23    be subject to appropriations made by the General Assembly.
24        (c)  The  Department  shall make general information from
25    the disability database available to the public such as:  (i)
26    the number of individuals potentially in need of each type of
27    service,   program,   or   benefit   and   (ii)  the  general
28    characteristics of those individuals.  The  Department  shall
29    protect   the  confidentiality  of  each  individual  in  the
30    database  when  releasing   database   information   by   not
31    disclosing any personally identifying information.

32        Section  99.  Effective  Date. This Act takes effect upon
33    becoming law.".