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| | 103RD GENERAL ASSEMBLY
State of Illinois
2023 and 2024 SB3499 Introduced 2/9/2024, by Sen. Linda Holmes SYNOPSIS AS INTRODUCED: | | | Creates the End-of-Life Options for Terminally Ill Patients Act. Authorizes a qualified patient with a terminal disease to request that a physician prescribe aid-in-dying medication that will allow the patient to end the patient's life in a peaceful manner. Contains provisions concerning: the procedures and forms to be used to request aid-in-dying medication; the responsibilities of attending and consulting physicians; the referral of patients for determinations of mental capacity; the residency of qualified patients; the safe disposal of unused medications; the obligations of health care entities; the immunities granted for actions taken in good faith reliance upon the Act; the reporting requirements of physicians; the effect of the Act on the construction of wills, contracts, and statutes; the effect of the Act on insurance policies and annuities; the procedures for the completion of death certificates; the liabilities and penalties provided by the Act; the construction of the Act; the definitions of terms used in the Act; and other matters. Effective 6 months after becoming law. |
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| | A BILL FOR |
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1 | | AN ACT concerning health. |
2 | | Be it enacted by the People of the State of Illinois, |
3 | | represented in the General Assembly: |
4 | | Section 1. Short title. This Act may be cited as the |
5 | | End-of-Life Options for Terminally Ill Patients Act. |
6 | | Section 5. Definitions. As used in this Act: |
7 | | "Adult" means an individual 18 years of age or older. |
8 | | "Advanced practice registered nurse" means an advanced |
9 | | practice registered nurse licensed under the Nurse Practice |
10 | | Act who is certified as a psychiatric mental health |
11 | | practitioner. |
12 | | "Aid in dying" means an end-of-life care option that |
13 | | allows a qualified patient to obtain a prescription for |
14 | | medication pursuant to this Act. |
15 | | "Attending physician" means the physician who has primary |
16 | | responsibility for the care of the patient and treatment of |
17 | | the patient's terminal disease. |
18 | | "Clinical psychologist" means a psychologist licensed |
19 | | under the Clinical Psychologist Licensing Act. |
20 | | "Clinical social worker" means a person licensed under the |
21 | | Clinical Social Work and Social Work Practice Act. |
22 | | "Coercion or undue influence" means the willful attempt, |
23 | | whether by deception, intimidation, or any other means to: |
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1 | | (1) cause a patient to request, obtain, or |
2 | | self-administer medication pursuant to this Act with |
3 | | intent to cause the death of the patient; or |
4 | | (2) prevent a qualified patient, in a manner that |
5 | | conflicts with the Health Care Right of Conscience Act, |
6 | | from obtaining or self-administering medication pursuant |
7 | | to this Act. |
8 | | "Consulting physician" means a physician who is qualified |
9 | | by specialty or experience to make a professional diagnosis |
10 | | and prognosis regarding the patient's disease. |
11 | | "Department" means the Department of Public Health. |
12 | | "Health care entity" means a hospital or hospital |
13 | | affiliate, nursing home, hospice or any other facility |
14 | | licensed under any of the following Acts: the Ambulatory |
15 | | Surgical Treatment Center Act; the Home Health, Home Services, |
16 | | and Home Nursing Agency Licensing Act; the Hospice Program |
17 | | Licensing Act; the Hospital Licensing Act; the Nursing Home |
18 | | Care Act; or the University of Illinois Hospital Act. "Health |
19 | | care entity" does not include a physician. |
20 | | "Health care professional" means a physician, pharmacist, |
21 | | or licensed mental health professional. |
22 | | "Informed decision" means a decision by a patient with |
23 | | mental capacity and a terminal disease to request and obtain a |
24 | | prescription for medication pursuant to this Act, that the |
25 | | qualified patient may self-administer to bring about a |
26 | | peaceful death, after being fully informed by the attending |
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1 | | physician and consulting physician of: |
2 | | (1) the patient's diagnosis and prognosis; |
3 | | (2) the potential risks and benefits associated with |
4 | | taking the medication to be prescribed; |
5 | | (3) the probable result of taking the medication to be |
6 | | prescribed; |
7 | | (4) the feasible end-of-life care and treatment |
8 | | options for the patient's terminal disease, including, but |
9 | | not limited to, comfort care, palliative care, hospice |
10 | | care, and pain control, and the risks and benefits of |
11 | | each; |
12 | | (5) the patient's right to withdraw a request pursuant |
13 | | this Act, or consent for any other treatment, at any time; |
14 | | and |
15 | | (6) the patient's right to choose not to obtain the |
16 | | drug or to choose to obtain the drug but not to ingest it. |
17 | | "Licensed mental health care professional" means a |
18 | | psychiatrist, clinical psychologist, clinical social worker, |
19 | | or advanced practice registered nurse. |
20 | | "Mental capacity" means that, in the opinion of the |
21 | | attending physician or the consulting physician or, if the |
22 | | opinion of a licensed mental health care professional is |
23 | | required under Section 40, the licensed mental health care |
24 | | professional, the patient requesting medication pursuant to |
25 | | this Act has the ability to make and communicate an informed |
26 | | decision. |
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1 | | "Oral request" means an affirmative statement that |
2 | | demonstrates a contemporaneous affirmatively stated desire by |
3 | | the patient seeking aid in dying. |
4 | | "Pharmacist" means an individual licensed to engage in the |
5 | | practice of pharmacy under the Pharmacy Practice Act. |
6 | | "Physician" means a person licensed to practice medicine |
7 | | in all of its branches under the Medical Practice Act of 1987. |
8 | | "Psychiatrist" means a physician who has successfully |
9 | | completed a residency program in psychiatry accredited by |
10 | | either the Accreditation Council for Graduate Medical |
11 | | Education or the American Osteopathic Association. |
12 | | "Qualified patient" means an adult Illinois resident with |
13 | | the mental capacity to make medical decisions who has |
14 | | satisfied the requirements of this Act in order to obtain a |
15 | | prescription for medication to bring about a peaceful death. |
16 | | No person will be considered a "qualified patient" under this |
17 | | Act solely because of advanced age, disability, or a mental |
18 | | health condition, including depression. |
19 | | "Self-administer" means an affirmative, conscious, |
20 | | voluntary action, performed by a qualified patient, to ingest |
21 | | medication prescribed pursuant to this Act to bring about the |
22 | | patient's peaceful death. Self-administration does not include |
23 | | administration by parenteral injection or infusion. |
24 | | "Terminal disease" means an incurable and irreversible |
25 | | disease that will, within reasonable medical judgment, result |
26 | | in death within 6 months. The existence of a terminal disease, |
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1 | | as determined after in-person examination by the patient's |
2 | | physician and concurrence by another physician, shall be |
3 | | documented in writing in the patient's medical record. A |
4 | | diagnosis of a major depressive disorder, as defined in the |
5 | | current edition of the Diagnostic and Statistical Manual of |
6 | | Mental Disorders, alone does not qualify as a terminal |
7 | | disease. |
8 | | Section 10. Informed consent. |
9 | | (a) Nothing in this Act may be construed to limit the |
10 | | amount of information provided to a patient to ensure the |
11 | | patient can make a fully informed health care decision. |
12 | | (b) An attending physician must provide sufficient |
13 | | information to a patient regarding all appropriate end-of-life |
14 | | care options, including comfort care, hospice care, palliative |
15 | | care, and pain control, as well as the foreseeable risks and |
16 | | benefits of each, so that the patient can make a voluntary and |
17 | | affirmative decision regarding the patient's end-of-life care. |
18 | | (c) If a patient requests for the patient's medical |
19 | | records to be transmitted to an alternative physician, the |
20 | | patient's medical records shall be transmitted without undue |
21 | | delay. |
22 | | Section 15. Standard of care. Nothing contained in this |
23 | | Act shall be interpreted to lower the applicable standard of |
24 | | care for the health care professionals participating under |
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1 | | this Act. |
2 | | Section 20. Qualification. |
3 | | (a) A qualified patient with a terminal disease may |
4 | | request a prescription for medication under this Act in the |
5 | | following manner: |
6 | | (1) The qualified patient may orally request a |
7 | | prescription for medication under this Act from the |
8 | | patient's attending physician. |
9 | | (2) The oral request from the qualified patient shall |
10 | | be documented by the attending physician. |
11 | | (3) The qualified patient shall provide a written |
12 | | request in accordance with this Act to the patient's |
13 | | attending physician after making the initial oral request. |
14 | | (4) The qualified patient shall repeat the oral |
15 | | request to the patient's attending physician no less than |
16 | | 5 days after making the initial oral request. |
17 | | (b) The attending and consulting physicians of a qualified |
18 | | patient shall have met all the requirements of Sections 30 and |
19 | | 35. |
20 | | (c) Notwithstanding subsection (a), if the individual's |
21 | | attending physician has medically determined that the |
22 | | individual will, within reasonable medical judgment, die |
23 | | within 5 days after making the initial oral request under this |
24 | | Section, the individual may satisfy the requirements of this |
25 | | Section by providing a written request and reiterating the |
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1 | | oral request to the attending physician at any time after |
2 | | making the initial oral request. |
3 | | (d) At the time the patient makes the second oral request, |
4 | | the attending physician shall offer the patient an opportunity |
5 | | to rescind the request. |
6 | | (e) Oral and written requests for aid in dying may be made |
7 | | only by the patient and shall not be made by the patient's |
8 | | surrogate decision-maker, health care proxy, health care |
9 | | agent, attorney-in-fact for health care, nor via advance |
10 | | health care directive. |
11 | | (f) If a requesting patient decides to transfer care to an |
12 | | alternative physician, the records custodian shall, upon |
13 | | written request, transmit, without undue delay, the patient's |
14 | | medical records, including written documentation of the dates |
15 | | of the patient's requests concerning aid in dying. |
16 | | (g) A transfer of care or medical records does not toll or |
17 | | restart any waiting period. |
18 | | Section 25. Form of written request. |
19 | | (a) A written request for medication under this Act shall |
20 | | be in substantially the form below, signed and dated by the |
21 | | requesting patient, and witnessed in the presence of the |
22 | | patient by at least 2 witnesses who attest that to the best of |
23 | | their knowledge and belief the patient has mental capacity, is |
24 | | acting voluntarily, and is not being coerced or unduly |
25 | | influenced to sign the request. |
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1 | | (b) One of the witnesses required under this Section must |
2 | | be a person who is not: |
3 | | (1) a relative of the patient by blood, marriage, |
4 | | civil union, registered domestic partnership, or adoption; |
5 | | (2) a person who, at the time the request is signed, |
6 | | would be entitled to any portion of the estate of the |
7 | | qualified patient upon death, under any will or by |
8 | | operation of law; or |
9 | | (3) an owner, operator, or employee of a health care |
10 | | entity where the qualified patient is receiving medical |
11 | | treatment or is a resident. |
12 | | (c) The patient's attending physician at the time the |
13 | | request is signed shall not be a witness. |
14 | | (d) If a person uses an interpreter, the interpreter shall |
15 | | not be a witness. |
16 | | (e) The written request for medication under this Act |
17 | | shall be substantially as follows: |
18 | | "Request for Medication to End My Life in a Peaceful Manner |
19 | | I, ............... (insert name of patient), am an adult |
20 | | of sound mind, and a resident of Illinois. I have been |
21 | | diagnosed with ..............., (insert name of condition) and |
22 | | given a terminal disease prognosis of 6 months or less to live |
23 | | by my attending physician. |
24 | | I affirm that my terminal disease diagnosis was given or |
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1 | | confirmed during at least one in-person visit to a health care |
2 | | professional. |
3 | | I have been fully informed of the feasible alternatives |
4 | | and concurrent or additional treatment opportunities for my |
5 | | terminal disease, including, but not limited to, comfort care, |
6 | | palliative care, hospice care, or pain control, as well as the |
7 | | potential risks and benefits of each. I have been offered, |
8 | | have received, or have been offered and received resources or |
9 | | referrals to pursue these alternatives and concurrent or |
10 | | additional treatment opportunities for my terminal disease. |
11 | | I have been fully informed of the nature of the medication |
12 | | to be prescribed, including the risks and benefits, and I |
13 | | understand that the likely outcome of self-administering the |
14 | | medication is death. |
15 | | I understand that I can rescind this request at any time, |
16 | | that I am under no obligation to fill the prescription once |
17 | | written, and that I have no duty to self-administer the |
18 | | medication if I obtain it. |
19 | | I request that my attending physician furnish a |
20 | | prescription for medication that will end my life if I choose |
21 | | to self-administer it, and I authorize my attending physician |
22 | | to transmit the prescription to a pharmacist to dispense the |
23 | | medication at a time of my choosing. |
24 | | I make this request voluntarily, free from coercion or |
25 | | undue influence. |
26 | | Dated: ................ |
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1 | | Signed .................................. |
2 | | (patient)
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3 | | Dated: ................ |
4 | | Signed ............................... |
5 | | (witness #1)
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6 | | Dated: ................ |
7 | | Signed .............................. |
8 | | (witness #2)"
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9 | | (f) The interpreter attachment for a written request for |
10 | | medication under this Act shall be substantially as follows: |
11 | | "Request for Medication to End My Life in a Peaceful Manner |
12 | | Interpreter Attachment |
13 | | I, ...............(insert name of interpreter), am fluent |
14 | | in English and ...............(insert language of patient, |
15 | | including sign language). |
16 | | On .......(insert date) at approximately .......(insert |
17 | | time), I read the "Request for Medication to End My Life in a |
18 | | Peaceful Manner" form to ...............(insert name of |
19 | | patient) in ...............(insert language of patient). |
20 | | ...............(insert name of patient) affirmed to me |
21 | | that they understand the content of this form, that they |
22 | | desire to sign this form under their own power and volition, |
23 | | and that they requested to sign the form after consultations |
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1 | | with an attending physician and a consulting physician. |
2 | | Under penalty of perjury, I declare that I am fluent in |
3 | | English and ...............(language of patient, including |
4 | | sign language) and that the contents of this form, to the best |
5 | | of my knowledge, are true and correct. Executed at |
6 | | ..................................(insert name of city, |
7 | | county, and state) on .......(date). |
8 | | Interpreter's signature: .................................... |
9 | | Interpreter's printed name: ................................. |
10 | | Interpreter's address: ......................................". |
11 | | Section 30. Attending physician responsibilities. |
12 | | (a) Following the request of a patient for aid in dying, |
13 | | the attending physician shall conduct an evaluation of the |
14 | | patient and: |
15 | | (1) determine whether the patient has a terminal |
16 | | disease or has been diagnosed as having a terminal |
17 | | disease; |
18 | | (2) determine whether a patient has mental capacity; |
19 | | (3) confirm that the patient's request does not arise |
20 | | from coercion or undue influence; |
21 | | (4) inform the patient of: |
22 | | (A) the diagnosis; |
23 | | (B) the prognosis; |
24 | | (C) the potential risks, benefits, and probable |
25 | | result of self-administering the prescribed medication |
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1 | | to bring about a peaceful death; |
2 | | (D) the potential benefits and risks of feasible |
3 | | alternatives, including, but not limited to, |
4 | | concurrent or additional treatment options for the |
5 | | patient's terminal disease, comfort care, palliative |
6 | | care, hospice care, and pain control; and |
7 | | (E) the patient's right to rescind the request for |
8 | | medication pursuant to this Act at any time; |
9 | | (5) inform the patient that there is no obligation to |
10 | | fill the prescription nor an obligation to self-administer |
11 | | the medication, if it is obtained; |
12 | | (6) provide the patient with a referral for comfort |
13 | | care, palliative care, hospice care, pain control, or |
14 | | other end-of-life treatment options as requested by the |
15 | | patient and as clinically indicated; |
16 | | (7) refer the patient to a consulting physician for |
17 | | medical confirmation that the patient requesting |
18 | | medication pursuant to this Act: |
19 | | (A) has a terminal disease with a prognosis of 6 |
20 | | months or less to live; and |
21 | | (B) has mental capacity. |
22 | | (8) include the consulting physician's written |
23 | | determination in the patient's medical record; |
24 | | (9) refer the patient to a licensed mental health |
25 | | professional in accordance with Section 40 if the |
26 | | attending physician observes signs that the individual may |
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1 | | not be capable of making an informed decision; |
2 | | (10) include the licensed mental health professional's |
3 | | written determination in the patient's medical record, if |
4 | | such determination was requested; |
5 | | (11) inform the patient of the benefits of notifying |
6 | | the next of kin of the patient's decision to request |
7 | | medication pursuant to this Act; |
8 | | (12) fulfill the medical record documentation |
9 | | requirements; |
10 | | (13) ensure that all steps are carried out in |
11 | | accordance with this Act before providing a prescription |
12 | | to a qualified patient for medication pursuant to this Act |
13 | | including: |
14 | | (A) confirming that the patient has made an |
15 | | informed decision to obtain a prescription for |
16 | | medication; |
17 | | (B) offering the patient an opportunity to rescind |
18 | | the request for medication; and |
19 | | (C) providing information to the patient on: |
20 | | (I) the recommended procedure for |
21 | | self-administering the medication to be |
22 | | prescribed; |
23 | | (II) the safekeeping and proper disposal of |
24 | | unused medication in accordance with State and |
25 | | federal law; and |
26 | | (III) the importance of having another person |
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1 | | present when the patient self-administers the |
2 | | medication to be prescribed; |
3 | | (D) not taking the aid-in-dying medication in a |
4 | | public place; |
5 | | (14) deliver, in accordance with State and federal |
6 | | law, the prescription personally, by mail, or through an |
7 | | authorized electronic transmission to a licensed |
8 | | pharmacist who will dispense the medication, including any |
9 | | ancillary medications, to the qualified patient, or to a |
10 | | person expressly designated by the qualified patient in |
11 | | person or with a signature required on delivery, by mail |
12 | | service, or by messenger service; |
13 | | (15) if authorized by the Drug Enforcement |
14 | | Administration, dispense the prescribed medication, |
15 | | including any ancillary medications, to the qualified |
16 | | patient or a person designated by the qualified patient; |
17 | | and |
18 | | (16) include, in the qualified patient's medical |
19 | | record, the patient's diagnosis and prognosis, |
20 | | determination of mental capacity, the date of each oral |
21 | | request, a copy of the written request, a notation that |
22 | | the requirements under this Section have been completed, |
23 | | and an identification of the medication and ancillary |
24 | | medications prescribed to the qualified patient pursuant |
25 | | to this Act. |
26 | | (b) Notwithstanding any other provision of law, the |
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1 | | attending physician may sign the patient's death certificate. |
2 | | Section 35. Consulting physician responsibilities. A |
3 | | consulting physician shall: |
4 | | (1) conduct an evaluation of the patient and review |
5 | | the patient's relevant medical records, including the |
6 | | evaluation pursuant to Section 40, if such evaluation was |
7 | | necessary; |
8 | | (2) confirm in writing to the attending physician that |
9 | | the patient: |
10 | | (A) has requested a prescription for aid-in-dying |
11 | | medication; |
12 | | (B) has a documented terminal disease; |
13 | | (C) has mental capacity or has provided |
14 | | documentation that the consulting health care |
15 | | professional has referred the individual for further |
16 | | evaluation in accordance with Section 40; and |
17 | | (D) is acting voluntarily, free from coercion or |
18 | | undue influence. |
19 | | Section 40. Referral for determination that the requesting |
20 | | patient has mental capacity. |
21 | | (a) If either the attending physician or the consulting |
22 | | physician has doubts whether the individual has mental |
23 | | capacity and if either one is unable to confirm that the |
24 | | individual is capable of making an informed decision, the |
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1 | | attending physician or consulting physician shall refer the |
2 | | patient to a licensed mental health professional for |
3 | | determination regarding mental capability. |
4 | | (b) The licensed mental health professional shall |
5 | | additionally determine whether the patient is suffering from a |
6 | | psychiatric or psychological disorder causing impaired |
7 | | judgment. |
8 | | (c) The licensed mental health professional who evaluates |
9 | | the patient under this Section shall submit to the requesting |
10 | | attending or consulting physician a written determination of |
11 | | whether the patient has mental capacity. |
12 | | (d) If the licensed mental health professional determines |
13 | | that the patient does not have mental capacity, or is |
14 | | suffering from a psychiatric or psychological disorder causing |
15 | | impaired judgment, the patient shall not be deemed a qualified |
16 | | patient and the attending physician shall not prescribe |
17 | | medication to the patient under this Act. |
18 | | Section 45. Residency requirement. |
19 | | (a) Only requests made by Illinois residents may be |
20 | | granted under this Act. |
21 | | (b) A patient is able to establish residency through any |
22 | | one or more of the following means: |
23 | | (1) possession of a driver's license or other |
24 | | identification issued by the Secretary of State or State |
25 | | of Illinois; |
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1 | | (2) registration to vote in Illinois; |
2 | | (3) evidence that the person owns, rents, or leases |
3 | | property in Illinois; |
4 | | (4) the location of any dwelling occupied by the |
5 | | person; |
6 | | (5) the place where any motor vehicle owned by the |
7 | | person is registered; |
8 | | (6) the residence address, not a post office box, |
9 | | shown on an income tax return filed for the year preceding |
10 | | the year in which the person initially makes an oral |
11 | | request under this Act; |
12 | | (7) the residence address, not a post office box, at |
13 | | which the person's mail is received; |
14 | | (8) the residence address, not a post office box, |
15 | | shown on any unexpired resident hunting or fishing or |
16 | | other licenses held by the person; |
17 | | (9) the residence address, not a post office box, |
18 | | shown on any driver's license held by the person; |
19 | | (10) the receipt of any public benefit conditioned |
20 | | upon residency; or |
21 | | (11) any other objective facts tending to indicate a |
22 | | person's place of residence is in Illinois. |
23 | | Section 50. Safe disposal of unused medications. A person |
24 | | who has custody or control of medication prescribed pursuant |
25 | | to this Act after the qualified patient's death shall dispose |
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1 | | of the medication by delivering it to the nearest qualified |
2 | | facility that properly disposes of controlled substances or, |
3 | | if none is available, by lawful means in accordance with |
4 | | applicable State and federal guidelines. |
5 | | Section 55. No duty to provide aid in dying. |
6 | | (a) A health care professional shall not be under any |
7 | | duty, by law or contract, to participate in the provision of |
8 | | aid-in-dying care to a patient as set forth in this Act. |
9 | | (b) A health care professional shall not be subject to |
10 | | civil or criminal liability for participating or refusing to |
11 | | participate in the provision of aid-in-dying care to a patient |
12 | | in good faith compliance with this Act. |
13 | | (c) A health care entity or licensing board shall not |
14 | | subject a health care professional to censure, discipline, |
15 | | suspension, loss of license, loss of privileges, loss of |
16 | | membership, or other penalty for participating or refusing to |
17 | | participate in accordance with this Act. |
18 | | (d) A health care professional may choose not to engage in |
19 | | aid-in-dying care. |
20 | | (e) Only willing health care professionals shall provide |
21 | | aid-in-dying care in accordance with this Act. If a health |
22 | | care professional is unable or unwilling to carry out a |
23 | | patient's request under this Act, and the patient transfers |
24 | | the patient's care to a new health care professional, the |
25 | | prior health care professional shall transmit, upon request, a |
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1 | | copy of the patient's relevant medical records to the new |
2 | | health care professional without undue delay. |
3 | | (f) A health care professional shall not engage in false, |
4 | | misleading, or deceptive practices relating to a willingness |
5 | | to qualify a patient or provide aid-in-dying care. |
6 | | Intentionally misleading a patient constitutes coercion. |
7 | | (g) The provisions of the Health Care Right of Conscience |
8 | | Act apply to this Act and are incorporated by reference. |
9 | | Section 60. Health care entity permissible prohibitions |
10 | | and duties. |
11 | | (a) A health care entity may prohibit health care |
12 | | professionals from practicing aid-in-dying care while |
13 | | performing duties for the entity. A prohibiting entity must |
14 | | provide advance notice in writing to health care professionals |
15 | | and staff at the time of hiring, contracting with, or |
16 | | privileging and on a yearly basis thereafter. |
17 | | (b) If a patient wishes to transfer care to another health |
18 | | care entity, the prohibiting entity shall coordinate a timely |
19 | | transfer of care, including transmitting, without undue delay, |
20 | | the patient's medical records that include notation of the |
21 | | date the patient first made a request concerning aid-in-dying |
22 | | care. |
23 | | (c) No health care entity shall prohibit a health care |
24 | | professional from: |
25 | | (1) providing information to a patient regarding the |
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1 | | patient's health status, including, but not limited to, |
2 | | diagnosis, prognosis, recommended treatment and treatment |
3 | | alternatives, and the risks and benefits of each; |
4 | | (2) providing information regarding health care |
5 | | services available pursuant to this Act, information about |
6 | | relevant community resources, and how to access those |
7 | | resources for obtaining care of the patient's choice; |
8 | | (3) practicing aid-in-dying care outside the scope of |
9 | | the health care professional's employment or contract with |
10 | | the prohibiting entity and off the premises of the |
11 | | prohibiting entity; or |
12 | | (4) being present, if outside the scope of the health |
13 | | care professional's employment or contractual duties, when |
14 | | a qualified patient self-administers medication prescribed |
15 | | pursuant to this Act or at the time of death, if requested |
16 | | by the qualified patient or their representative. |
17 | | (d) A health care entity shall not engage in false, |
18 | | misleading, or deceptive practices relating to its policy |
19 | | around end-of-life care services, including whether it has a |
20 | | policy that prohibits affiliated health care professionals |
21 | | from practicing aid-in-dying care; or intentionally denying a |
22 | | patient access to medication pursuant to this Act by |
23 | | intentionally failing to transfer a patient and the patient's |
24 | | medical records to another health care professional in a |
25 | | timely manner. Intentionally misleading a patient or deploying |
26 | | misinformation to obstruct access to services pursuant to this |
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1 | | Act constitutes coercion or undue influence. |
2 | | (e) The provisions of the Health Care Right of Conscience |
3 | | Act apply to this Act and are incorporated by reference. |
4 | | (f) If any part of this Section is found to be in conflict |
5 | | with federal requirements which are a prescribed condition to |
6 | | receipt of federal funds, the conflicting part of this Section |
7 | | is inoperative solely to the extent of the conflict with |
8 | | respect to the entity directly affected, and such finding or |
9 | | determination shall not affect the operation of the remainder |
10 | | of the Section or this Act. |
11 | | Section 65. Immunities for actions in good faith; |
12 | | prohibition against reprisals. |
13 | | (a) A health care professional or health care entity shall |
14 | | not be subject to civil or criminal liability, licensing |
15 | | sanctions, or other professional disciplinary action for |
16 | | actions taken in good faith compliance with this Act. |
17 | | (b) If a health care professional or health care entity is |
18 | | unable or unwilling to carry out an individual's request for |
19 | | aid in dying, the professional or entity shall, at a minimum: |
20 | | (1) inform the individual of the professional's or |
21 | | entity's inability or unwillingness; |
22 | | (2) refer the individual either to a health care |
23 | | professional who is able and willing to evaluate and |
24 | | qualify the individual or to another individual or entity |
25 | | to assist the requesting individual in seeking aid in |
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1 | | dying, in accordance with the Health Care Right of |
2 | | Conscience Act; and |
3 | | (3) note, in the medical record, the individual's date |
4 | | of request and health care professional's notice to the |
5 | | individual of the health care professional's unwillingness |
6 | | or inability to carry out the individual's request. |
7 | | (c) A health care entity or licensing board shall not |
8 | | subject a health care professional to censure, discipline, |
9 | | suspension, loss of license, loss of privileges, loss of |
10 | | membership, or other penalty for engaging in good faith |
11 | | compliance with this Act. |
12 | | (d) A health care professional, health care entity, or |
13 | | licensing board shall not subject a health care professional |
14 | | to discharge, demotion, censure, discipline, suspension, loss |
15 | | of license, loss of privileges, loss of membership, |
16 | | discrimination, or any other penalty for providing |
17 | | aid-in-dying care in accordance with the standard of care and |
18 | | in good faith under this Act when: |
19 | | (1) engaged in the outside practice of medicine and |
20 | | off of the objecting health care entity's premises; or |
21 | | (2) providing scientific and accurate information |
22 | | about aid-in-dying care to a patient when discussing |
23 | | end-of-life care options. |
24 | | (e) A physician is not subject to civil or criminal |
25 | | liability or professional discipline if, at the request of the |
26 | | qualified patient, the physician is present outside the scope |
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1 | | of the physician's employment contract and off the entity's |
2 | | premises, when the qualified patient self-administers |
3 | | medication pursuant to this Act, or at the time of death. |
4 | | (f) A physician who is present at self-administration may, |
5 | | without civil or criminal liability, assist the qualified |
6 | | patient by preparing the medication prescribed pursuant to |
7 | | this Act. |
8 | | (g) A request by a patient for aid in dying does not alone |
9 | | constitute grounds for neglect or elder abuse for any purpose |
10 | | of law, nor shall it be the sole basis for appointment of a |
11 | | guardian. |
12 | | (h) This Section does not limit civil liability for |
13 | | intentional misconduct. |
14 | | Section 70. Reporting requirements. |
15 | | (a) Within 45 days after the effective date of this Act, |
16 | | the Department shall create and post to its website an |
17 | | Attending Physician Checklist Form and Attending Physician |
18 | | Follow-Up Form to facilitate collection of the information |
19 | | described in this Section. Failure to create or post the |
20 | | Attending Physician Checklist Form, the Attending Physician |
21 | | Follow-Up Form, or both shall not suspend the effective date |
22 | | of this Act. |
23 | | (b) Within 30 calendar days of providing a prescription |
24 | | for medication pursuant to this Act, the attending physician |
25 | | shall submit to the Department an Attending Physician |
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1 | | Checklist Form with the following information: |
2 | | (1) the qualifying patient's name and date of birth; |
3 | | (2) the qualifying patient's terminal diagnosis and |
4 | | prognosis; |
5 | | (3) notice that the requirements under this Act were |
6 | | completed; and |
7 | | (4) notice that medication has been prescribed |
8 | | pursuant to this Act. |
9 | | (c) Within 60 calendar days of notification of a qualified |
10 | | patient's death from self-administration of medication |
11 | | prescribed pursuant to this Act, the attending physician shall |
12 | | submit to the Department, an Attending Physician Follow-Up |
13 | | Form with the following information: |
14 | | (1) the qualified patient's name and date of birth; |
15 | | (2) the date of the qualified patient's death; and |
16 | | (3) a notation of whether the qualified patient was |
17 | | enrolled in hospice services at the time of the qualified |
18 | | patient's death. |
19 | | (d) The Department shall collect and annually review the |
20 | | forms filed pursuant to Section to ensure compliance. If a |
21 | | physician required to report information to the Department |
22 | | under this Act provides an inadequate or incomplete report, |
23 | | the Department shall contact the physician to request an |
24 | | adequate or complete report. The information collected shall |
25 | | be confidential and shall be collected in a manner that |
26 | | protects the privacy of the patient, the patient's family, and |
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1 | | any health care professional involved with the patient under |
2 | | the provisions of this Act. The information shall be |
3 | | privileged and strictly confidential, and shall not be |
4 | | disclosed, discoverable, or compelled to be produced in any |
5 | | civil, criminal, administrative, or other proceeding. |
6 | | (e) One year after the effective date of this Act, and each |
7 | | year thereafter, the Department shall create and post on its |
8 | | website a public statistical report of nonidentifying |
9 | | information. The report shall be limited to: |
10 | | (1) the number of prescriptions for medication written |
11 | | pursuant to this Act; |
12 | | (2) the number of physicians who wrote prescriptions |
13 | | for medication pursuant to this Act; |
14 | | (3) the number of qualified patients who died |
15 | | following self-administration of medication prescribed and |
16 | | dispensed pursuant to this Act; and |
17 | | (4) the number of people who died due to using an |
18 | | aid-in-dying drug, with demographic percentages organized |
19 | | by the following characteristics: |
20 | | (A) age at death; |
21 | | (B) education level; |
22 | | (C) race; |
23 | | (D) gender; |
24 | | (E) type of insurance, including whether the |
25 | | patient had insurance; |
26 | | (F) underlying illness; and |
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1 | | (G) enrollment in hospice. |
2 | | (f) Except as otherwise required by law, the information |
3 | | collected by the Department is not a public record and is not |
4 | | available for public inspection. |
5 | | (g) Willful failure or refusal to timely submit records |
6 | | required under this Act may result in disciplinary action. |
7 | | Section 75. Effect on construction of wills, contracts, |
8 | | and statutes. |
9 | | (a) No provision in a contract, will, or other agreement, |
10 | | whether written or oral, that would determine whether a |
11 | | patient may make or rescind a request pursuant to this Act is |
12 | | valid. |
13 | | (b) No obligation owing under any contract that is in |
14 | | effect on the effective date of this Act shall be conditioned |
15 | | or affected by a patient's act of making or rescinding a |
16 | | request pursuant to this Act. |
17 | | (c) It is unlawful for an insurer to deny or alter health |
18 | | care benefits otherwise available to a patient with a terminal |
19 | | disease based on the availability of aid-in-dying care or |
20 | | otherwise attempt to coerce a patient with a terminal disease |
21 | | to make a request for aid-in-dying medication. |
22 | | Section 80. Insurance or annuity policies. |
23 | | (a) The sale, procurement, or issuance of a life, health, |
24 | | or accident insurance policy, annuity policy, or the rate |
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1 | | charged for a policy shall not be conditioned upon or affected |
2 | | by a patient's act of making or rescinding a request for |
3 | | medication pursuant to this Act. |
4 | | (b) A qualified patient's act of self-administering |
5 | | medication pursuant to this Act does not invalidate any part |
6 | | of a life, health, or accident insurance, or annuity policy. |
7 | | (c) An insurance plan, including medical assistance under |
8 | | Article V of the Illinois Public Aid Code, shall not deny or |
9 | | alter benefits to a patient with a terminal disease who is a |
10 | | covered beneficiary of a health insurance plan, based on the |
11 | | availability of aid-in-dying care, their request for |
12 | | medication pursuant to this Act, or the absence of a request |
13 | | for medication pursuant to this Act. Failure to meet this |
14 | | requirement shall constitute a violation of the Illinois |
15 | | Insurance Code. |
16 | | Section 85. Death certificate. |
17 | | (a) Unless otherwise prohibited by law, the attending |
18 | | physician may sign the death certificate of a qualified |
19 | | patient who obtained and self-administered a prescription for |
20 | | medication pursuant to this Act. |
21 | | (b) When a death has occurred in accordance with this Act, |
22 | | the death shall be attributed to the underlying terminal |
23 | | disease. |
24 | | (1) Death following self-administering medication |
25 | | under this Act does not alone constitute grounds for |
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1 | | postmortem inquiry. |
2 | | (2) Death in accordance with this Act shall not be |
3 | | designated a suicide or homicide. |
4 | | (c) A qualified patient's act of self-administering |
5 | | medication prescribed pursuant to this Act shall not be |
6 | | indicated on the death certificate. |
7 | | Section 90. Liabilities and penalties. |
8 | | (a) Nothing in this Act limits civil or criminal liability |
9 | | arising from: |
10 | | (1) Intentionally or knowingly altering or forging a |
11 | | patient's request for medication pursuant to this Act or |
12 | | concealing or destroying a rescission of a request for |
13 | | medication pursuant to this Act. |
14 | | (2) Intentionally or knowingly coercing or exerting |
15 | | undue influence on a patient with a terminal disease to |
16 | | request medication pursuant to this Act or to request or |
17 | | use or not use medication pursuant to this Act. |
18 | | (3) Intentional misconduct by a health care |
19 | | professional or health care entity. |
20 | | (b) The penalties specified in this Act do not preclude |
21 | | criminal penalties applicable under other laws for conduct |
22 | | inconsistent with this Act. |
23 | | (c) As used in this Section, "intentionally" and |
24 | | "knowingly" have the meanings provided in Sections 4-4 and 4-5 |
25 | | of the Criminal Code of 2012. |
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1 | | Section 95. Construction. |
2 | | (a) Nothing in this Act authorizes a physician or any |
3 | | other person, including the qualified patient, to end the |
4 | | qualified patient's life by lethal injection, lethal infusion, |
5 | | mercy killing, homicide, murder, manslaughter, euthanasia, or |
6 | | any other criminal act. |
7 | | (b) Actions taken in accordance with this Act do not, for |
8 | | any purposes, constitute suicide, assisted suicide, |
9 | | euthanasia, mercy killing, homicide, murder, manslaughter, |
10 | | elder abuse or neglect, or any other civil or criminal |
11 | | violation under the law. |
12 | | Section 100. Severability. The provisions of this Act are |
13 | | severable under Section 1.31 of the Statute on Statutes. |
14 | | Section 999. Effective date. This Act takes effect 6 |
15 | | months after this Act becomes law. |