103RD GENERAL ASSEMBLY
State of Illinois
2023 and 2024
SB3277
 
Introduced 2/6/2024, by Sen. Tom Bennett
 
SYNOPSIS AS INTRODUCED:
 
New Act
20 ILCS 2310/2310-730 new
    Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Directs the Department of Public Health, in conjunction with others, to develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy. Provides that the protocols and best practices developed by the Department shall: (i) be published on a designated and publicly accessible Internet website; (ii) include up-to-date information about Duchenne muscular dystrophy; (iii) reference peer-reviewed scientific research articles; (iv) incorporate guidance and recommendations from the National Institutes of Health and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (v) be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. Provides that the Department shall prepare a report of all efforts undertaken by the Department under the Act. Provides that the report under this Act shall be posted on the Department's Internet website and distributed to local health departments and to any other facilities as determined by the Department.


LRB103 36743 CES 66853 b

 
 
A BILL FOR
 
SB3277LRB103 36743 CES 66853 b

1    AN ACT concerning health.
 
2    Be it enacted by the People of the State of Illinois, 
3represented in the General Assembly:
 
4    Section 1. References to Act. This Act may be referred to 
5as the Duchenne Muscular Dystrophy Act.
 
6    Section 5. The Department of Public Health Powers and 
7Duties Law of the Civil Administrative Code of Illinois is 
8amended by adding Section 2310-730 as follows:
 
9    (20 ILCS 2310/2310-730 new)
10    Sec. 2310-730. Duchenne Muscular Dystrophy Awareness 
11Program.
12    (a) The Department of Public Health, in conjunction with 
13experts in the field of Duchenne muscular dystrophy, shall 
14develop mandatory protocols and best practices for providing 
15the necessary medical guidance for Duchenne muscular dystrophy 
16in Illinois. 
17    (b) To raise awareness about Duchenne muscular dystrophy, 
18the protocols and best practices developed by the Department 
19under subsection (a): 
20        (1) shall be published on a designated and publicly 
21    accessible webpage; 
22        (2) shall include up-to-date information about 
 
 
SB3277- 2 -LRB103 36743 CES 66853 b

1    Duchenne muscular dystrophy; 
2        (3) shall reference peer-reviewed scientific research 
3    articles; 
4        (4) shall incorporate guidance and recommendations 
5    from the National Institutes of Health, and any other 
6    persons or entities determined by the Department to have 
7    particular expertise in Duchenne muscular dystrophy; and 
8        (5) shall be distributed to physicians, other health 
9    care professionals and providers, and persons subject to 
10    Duchenne muscular dystrophy. 
11    (c) The Department shall prepare a report of all efforts 
12undertaken by the Department under this Section. The report 
13shall be posted on the Department's website and distributed to 
14local health departments and to any other facilities as 
15determined by the Department.