Sen. Laura M. Murphy
Filed: 3/24/2023
 
 

 

 

 
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1
AMENDMENT TO SENATE BILL 1803




2    AMENDMENT NO. ______. Amend Senate Bill 1803 by replacing 
3everything after the enacting clause with the following:


 
 
4    "Section 5. The Department of Natural Resources 
5(Conservation) Law of the
Civil Administrative Code of 
6Illinois is amended  by adding Section 805-72 as follows:
 
7    (20 ILCS 805/805-72 new)
8    Sec. 805-72. Lyme Disease Innovation Program.
9    (a) The Department shall consult with the Department of 
10Agriculture, the Department of Public Health, and members of 
11the University of Illinois' INHS Medical Entomology Program to 
12establish the Lyme Disease Innovation Program no later than 
13one year after the effective date of this amendatory Act of the 
14103rd General Assembly.  The Department shall contract with an 
15Illinois not-for-profit organization whose purpose is to raise 
16awareness of tick-borne diseases with the public and the 
 
 
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1medical community to operate the Program. The Program's 
2purpose is to raise awareness with the public and to assist 
3persons at risk of Lyme disease and other tick-borne diseases 
4with education and awareness materials and campaigns while 
5developing evidence-based approaches that are cost-effective.
6    (b) The Program shall implement a statewide interagency 
7and multipronged approach to combat Lyme disease and other 
8tick-borne diseases in Illinois, including adopting an 
9evidence-based model that recognizes the key roles that 
10patients, advocates, and not-for-profit organizations have in 
11fighting Lyme disease and tick-borne diseases.  The Program's 
12objectives include issuing grants, subject to the approval of 
13the Department, to State agencies and Illinois not-for profit 
14organizations from moneys in the Lyme Disease Awareness Fund 
15and other appropriations for the following purposes:
16        (1) Bringing awareness of Lyme disease and tick-borne 
17    diseases by any one or  more of the following methods:
18            (A) creating innovative ideas and collaborations 
19        for raising awareness about risks and prevention;
20            (B) amplifying and improving access to essential 
21        information supporting innovations in prevention, 
22        education, and care with open data and science;
23            (C) fostering the development of new, 
24        community-based education and prevention efforts; and
25            (D) using programs, website advertising, 
26        pamphlets, or other methods to increase the awareness 
 
 
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1        of Lyme disease and tick-borne diseases;
2        (2) Engaging stakeholders to facilitate 
3    patient-centered innovations by (i) building trust among 
4    stakeholders through listening sessions, roundtables, and 
5    other learning approaches that ground innovations in lived 
6    experience, (ii) engaging stakeholders in identifying 
7    current areas of need to promote targeted innovations that 
8    will make real-world improvements in quality of care, and 
9    (iii) gaining insight into patient needs and priorities 
10    through stakeholders' collective wisdom and applying that 
11    wisdom in shaping future innovation challenges and events.
12        (3) Advancing stakeholder driven interdisciplinary and 
13    interagency collaborations by providing resources to 
14    not-for-profit organizations whose purpose is to raise 
15    awareness of tick-borne diseases with the public and the 
16    medical community in order to (i) facilitate the 
17    stakeholder engagement and collaborations and 
18    patient-centered innovations and support groups, (ii) 
19    identify ways to better collect and share data while 
20    raising awareness of tick-borne illnesses, and (iii) 
21    assist with the development of outreach and education 
22    materials and approaches for State agencies.
23        (4) The University of Illinois' INHS Medical 
24    Entomology Program maintaining a passive tick and 
25    tick-borne pathogen surveillance program, based on ticks 
26    contributed by the Illinois public, and including tick 
 
 
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1    identifications and disease-agent testing of a subset of 
2    identified ticks; compiling evidence and conducting 
3    research on tick bite prevention and risk of tick and 
4    tick-borne pathogen exposure; and providing evidence, 
5    results, and analysis and insight from both the passive 
6    surveillance program, on tick species and tick-borne 
7    disease-agent distributions and diversity in the State, 
8    and its related research on tick bite exposure and 
9    prevention, to support the Lyme Disease Innovation Program 
10    objectives.
11    (c) The Program shall be funded through moneys deposited 
12into the Lyme Disease Awareness Fund and other appropriations.  
13The not-for-profit organization contracted with to operate the 
14Program shall be paid, subject to the approval of the 
15Department, for its operation of the Program from moneys 
16deposited into the Fund or from other appropriations.
17    The University of Illinois' Prairie Research Institute 
18shall be paid, subject to the approval of the Department, for 
19the INHS Medical Entomology Program's operation of a passive 
20tick surveillance and research program from moneys deposited 
21into the Fund or from other appropriations.
22    (d) The Department must adopt rules to implement this 
23Section. 
 
24    Section 90. The State Finance Act is amended by adding 
25Section 5.990 as follows:
 
 
 
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1    (30 ILCS 105/5.990 new)
2    Sec. 5.990. The Lyme Disease Awareness Fund.
 
3    Section 99. Effective date. This Act takes effect upon 
4becoming law.".