Bill Status of HB 4093   103rd General Assembly

Short Description:  HEALTH DATA PRIVACY ACT

House Sponsors
Rep. Ann M. Williams, Katie Stuart, Jennifer Gong-Gershowitz, Theresa Mah, Dagmara Avelar, Rita Mayfield, Anne Stava-Murray, Lindsey LaPointe, Eva-Dina Delgado, Maura Hirschauer, Kelly M. Cassidy, Janet Yang Rohr, Abdelnasser Rashid, Norma Hernandez, Lilian Jiménez, Diane Blair-Sherlock, Nabeela Syed, Robert "Bob" Rita and Kevin John Olickal

Last Action  View All Actions

DateChamber Action
  4/19/2024HouseRule 19(a) / Re-referred to Rules Committee

Statutes Amended In Order of Appearance
New Act
815 ILCS 505/2BBBB new

Synopsis As Introduced
Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning a consumer without first obtaining valid authorization from the consumer. Provides that a valid authorization to sell consumer health data must contain specified information; a copy of the signed valid authorization must be provided to the consumer; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that a consumer has the right to withdraw consent from the collection, sharing, sale, or storage of the consumer's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against consumers solely because they have not provided consent to the collection, sharing, sale, or storage of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning a consumer's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the consumer's health data; a consumer's right to have the consumer's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and consumer health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.

Actions 
DateChamber Action
  5/16/2023HouseFiled with the Clerk by Rep. Ann M. Williams
  5/16/2023HouseFirst Reading
  5/16/2023HouseReferred to Rules Committee
  2/14/2024HouseAdded Co-Sponsor Rep. Katie Stuart
  2/14/2024HouseAdded Co-Sponsor Rep. Jennifer Gong-Gershowitz
  2/14/2024HouseAdded Co-Sponsor Rep. Theresa Mah
  2/14/2024HouseAdded Co-Sponsor Rep. Dagmara Avelar
  2/14/2024HouseAdded Co-Sponsor Rep. Rita Mayfield
  2/14/2024HouseAdded Co-Sponsor Rep. Anne Stava-Murray
  2/14/2024HouseAdded Co-Sponsor Rep. Lindsey LaPointe
  2/15/2024HouseAdded Co-Sponsor Rep. Eva-Dina Delgado
  2/15/2024HouseAdded Co-Sponsor Rep. Maura Hirschauer
  2/22/2024HouseAdded Co-Sponsor Rep. Kelly M. Cassidy
  2/23/2024HouseAdded Co-Sponsor Rep. Janet Yang Rohr
  2/26/2024HouseAdded Co-Sponsor Rep. Abdelnasser Rashid
  3/12/2024HouseAssigned to Judiciary - Civil Committee
  3/22/2024HouseAdded Co-Sponsor Rep. Norma Hernandez
  3/22/2024HouseAdded Co-Sponsor Rep. Lilian Jiménez
  4/3/2024HouseDo Pass / Short Debate Judiciary - Civil Committee; 010-003-000
  4/3/2024HousePlaced on Calendar 2nd Reading - Short Debate
  4/10/2024HouseAdded Co-Sponsor Rep. Diane Blair-Sherlock
  4/11/2024HouseAdded Co-Sponsor Rep. Nabeela Syed
  4/15/2024HouseAdded Co-Sponsor Rep. Robert "Bob" Rita
  4/17/2024HouseSecond Reading - Short Debate
  4/17/2024HouseHeld on Calendar Order of Second Reading - Short Debate
  4/18/2024HouseAdded Co-Sponsor Rep. Kevin John Olickal
  4/19/2024HouseRule 19(a) / Re-referred to Rules Committee

Back To Top