102ND GENERAL ASSEMBLY
State of Illinois
2021 and 2022
HB4564
 
Introduced 1/21/2022, by Rep. Barbara Hernandez
 
SYNOPSIS AS INTRODUCED:
 

 
410 ILCS 201/32 new

     Amends the Autism Spectrum Disorders Reporting Act. Provides that, no later than December 31st of each year, the Department of Human Services shall submit a report to the General Assembly regarding access to applied behavior analysis therapy for people diagnosed with autism spectrum disorders. Requires the Department of Healthcare and Family Services and the Department of Insurance to provide all necessary data upon request to the Department of Human Services to facilitate the timely and accurate completion of the report. Sets forth information that the report shall include.
  


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A BILL FOR
 

  
HB4564LRB102 24214 CPF 33443 b


  
1    AN ACT concerning health.
  
 
2    Be it enacted by the People of the State of Illinois,
 
3represented in the General Assembly:
  
 
 
4    Section 5. The Autism Spectrum Disorders Reporting Act is 
5amended  by adding Section 32 as follows:
 
6    (410 ILCS 201/32 new)
7    Sec. 32. Reporting; access to applied behavior analysis. 
8No later than December 31st of each year, the Department of 
9Human Services shall submit a report to the General Assembly 
10regarding access to applied behavior analysis therapy for 
11people diagnosed with autism spectrum disorders. The 
12Department of Healthcare and Family Services and the 
13Department of Insurance shall provide all necessary data upon 
14request to the Department of Human Services to facilitate the 
15timely and accurate completion of this report. The report 
16shall include, but is not limited to, the following 
17information:
18        (1) The best data available regarding the number of 
19    individuals in the State of Illinois trained and qualified 
20    to provide applied behavior analysis therapy services, 
21    and, in doing so, to supervise behavior technicians in the 
22    implementation of applied behavior analysis treatment 
23    plans.
 
 
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1        (2) The number of individuals in the State of Illinois 
2    meeting the description in paragraph (1) who are enrolled 
3    with the Department of Healthcare and Family Services as 
4    providers of such covered services under the Medicaid 
5    Early and Periodic Screening, Diagnosis, and Treatment 
6    (EPSDT) category. 
7        (3) The best data available regarding the number of 
8    Medicaid-enrolled children in the State of Illinois with 
9    an autism spectrum disorder diagnosis, both in total and 
10    as calculated by available demographic data, which may 
11    include geographic region, race, age, and gender.
12        (4) The number of Medicaid-enrolled children in 
13    Illinois, in total and within each demographic subgroup 
14    described in paragraph (3), receiving applied behavior 
15    analysis therapy services.
16        (5) The number of appeals for denial or lack of access 
17    to applied behavior analysis therapy for Medicaid-enrolled 
18    children with an autism spectrum disorder diagnosis.
19        (6) The number of children under age 21 in the State of 
20    Illinois with an autism spectrum disorder diagnosis 
21    receiving the benefit of applied behavior analysis therapy 
22    from their commercial insurance provider, both in total 
23    and as calculated by available demographic data, which may 
24    include different geographic region, race, age, and 
25    gender.
26        (7) An analysis identifying areas of inequitable 
 
 
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1    access to applied behavior analysis therapy for children 
2    with autism spectrum disorder in Medicaid and commercial 
3    insurance, in total and based upon available demographic 
4    data, which may include geographic region, race, age, and 
5    gender.
6        (8) Recommendations for an action plan to be 
7    implemented in the following year, which shall  include, 
8    but not be limited to:
9            (A) requirements for targeted growth in provider 
10        network adequacy that will create meaningful access to 
11        applied behavior analysis therapy for children 
12        enrolled in Medicaid; and
13            (B) requirements to create and make easily 
14        accessible low-literacy materials that will inform and 
15        educate parents of children with autism spectrum 
16        disorder who are enrolled in Medicaid and eligible to 
17        receive applied behavior analysis therapy treatment 
18        about this benefit and how to access it.