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1 | AN ACT concerning health.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||
5 | Commission on Mental Health Reform Act. | |||||||||||||||||||
6 | Section 5. Commission on Mental Health Reform. | |||||||||||||||||||
7 | (a) It is the intent of the General Assembly to create a | |||||||||||||||||||
8 | Commission on Mental Health Reform to: | |||||||||||||||||||
9 | (1) assess the current needs
and advise on the | |||||||||||||||||||
10 | necessary reform of mental health services in this State; | |||||||||||||||||||
11 | (2) build upon the existing reform efforts with which | |||||||||||||||||||
12 | State agencies, coalitions,
and advocates are currently | |||||||||||||||||||
13 | engaged in the field of mental health; | |||||||||||||||||||
14 | (3) have a
critical role in bringing agencies together | |||||||||||||||||||
15 | to coordinate initiatives, share information, and create
a | |||||||||||||||||||
16 | larger systemic impact. This coordination and the input of | |||||||||||||||||||
17 | stakeholders who had mental health issues shall
provide a | |||||||||||||||||||
18 | foundation to align systems and identify and bridge | |||||||||||||||||||
19 | systemic gaps around mental health
to best serve the needs | |||||||||||||||||||
20 | of the residents of this State; | |||||||||||||||||||
21 | (4) assess the landscape of mental health care in this | |||||||||||||||||||
22 | State and determine the
levels of service and investment | |||||||||||||||||||
23 | of resources in geographical areas across the State; and |
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1 | (5) make recommendations on the next steps for future | ||||||
2 | investments and
actions based upon apparent needs. | ||||||
3 | (b) There is created the Commission on Mental Health | ||||||
4 | Reform composed of at least 37 members. The Commission shall | ||||||
5 | be appointed by the Secretary of Human Services or the
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6 | Secretary's designee and shall be composed of at least the | ||||||
7 | following: | ||||||
8 | (1) the Director of Public Health or the Director's | ||||||
9 | designee; | ||||||
10 | (2) the Director of the Division of Mental Health of | ||||||
11 | the Department of Human Services, or the Director's | ||||||
12 | designee; | ||||||
13 | (3) the Secretary of Human Services or the Secretary's | ||||||
14 | designee; | ||||||
15 | (4) the Director of the Division of Developmental | ||||||
16 | Disabilities, or the
Director's designee;
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17 | (5) the Director of Children and Family Services or | ||||||
18 | the Director's designee; | ||||||
19 | (6) the Director of Healthcare and Family Services or | ||||||
20 | the Director's designee; | ||||||
21 | (7) the Director of Juvenile Justice or the Director's | ||||||
22 | designee; | ||||||
23 | (8) the Director of Corrections or the Director's | ||||||
24 | designee; | ||||||
25 | (9) the Director of Insurance or the Director's | ||||||
26 | designee; |
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1 | (10) a representative of the Governor's Office of | ||||||
2 | Management and Budget; | ||||||
3 | (11) the Director of the Illinois Housing Development | ||||||
4 | Authority or the Director's designee;
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5 | (12) the Director of Aging or the Director's designee; | ||||||
6 | (13) a mental health clinician with experience | ||||||
7 | managing or directing a program in another state
where | ||||||
8 | mental health services are successful; | ||||||
9 | (14) an expert mental health clinician who has | ||||||
10 | experience evaluating and providing services to
people in | ||||||
11 | psychiatric distress in emergency room settings; | ||||||
12 | (15) representatives from at least 3 geographically | ||||||
13 | diverse mental health provider agencies
in Illinois, with | ||||||
14 | experience in community-based services; | ||||||
15 | (16) at least 2 members of the House of | ||||||
16 | Representatives who serve on the Mental Health and
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17 | Addiction Committee or the Human Services Committee; | ||||||
18 | (17) at least 2 members of the Senate who serve on the | ||||||
19 | Health Committee; | ||||||
20 | (18) a representative from a public health | ||||||
21 | organization that does research on the treatment of
mental | ||||||
22 | health conditions and diseases; | ||||||
23 | (19) representatives from at least 2 non-profit | ||||||
24 | organizations that educate and advocate for
people with | ||||||
25 | mental health conditions; | ||||||
26 | (20) a Medicaid recipient who has received mental |
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1 | health services in this State; | ||||||
2 | (21) a family member of a Medicaid recipient who has | ||||||
3 | received mental health
services in this State; | ||||||
4 | (22) a member of law enforcement who has been trained | ||||||
5 | in Crisis Intervention Training; | ||||||
6 | (23) a representative from a non-profit organization | ||||||
7 | that educates and advocates for the
prevention of suicide; | ||||||
8 | (22) the Director of the Office of Firearm Violence | ||||||
9 | Prevention or the Director's designee;
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10 | (23) a psychiatrist and a therapist or psychologist | ||||||
11 | specializing in the treatment of adults;
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12 | (24) a psychiatrist and a therapist or psychologist | ||||||
13 | specializing in the treatment of children and
youth; | ||||||
14 | (25) a mental health specialist who serves clients who | ||||||
15 | have been recently incarcerated; | ||||||
16 | (26) a representative of the Community and Residential | ||||||
17 | Services Authority; | ||||||
18 | (27) a representative of the State Board of Education; | ||||||
19 | and | ||||||
20 | (28) a representative of the Office of State Guardian. | ||||||
21 | Additional members
may be included on the Commission at | ||||||
22 | the discretion of the Secretary of Human Services to achieve | ||||||
23 | geographic diversity, balance, or representation of necessary
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24 | perspectives. | ||||||
25 | Other than ex officio members, members of the Commission | ||||||
26 | shall serve 3-year terms. With the exception of persons |
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1 | impacted by mental health issues serving on the Commission, | ||||||
2 | the members of the Commission shall serve without | ||||||
3 | compensation. The members of the Commission impacted by mental | ||||||
4 | health issues shall receive a stipend from appropriations made | ||||||
5 | to them by the General Assembly. | ||||||
6 | (c) The Commission shall be chaired by the Secretary of | ||||||
7 | Human Services or the Secretary's designee. The first meeting | ||||||
8 | of the Commission shall be convened no later than 3 months | ||||||
9 | after the effective date of this Act. Meeting of the | ||||||
10 | Commission are subject to the Open Meetings Act. The | ||||||
11 | Commission may meet in person or virtually to carry out its | ||||||
12 | duties. The Department of Human Services shall provide | ||||||
13 | necessary administrative and other support for the Commission. | ||||||
14 | All State agencies represented on the Commission, including | ||||||
15 | the Department of Public Health, Department of Corrections, | ||||||
16 | Department of Juvenile Justice, Department of Children and | ||||||
17 | Family Services, Healthcare and Family Services, Department on | ||||||
18 | Aging,
Department of Human Services, Illinois Housing | ||||||
19 | Development Authority, Governor's Office of Management and | ||||||
20 | Budget, Department of Insurance, State Board of Education, and | ||||||
21 | Office of State Guardian, shall facilitate the prompt and | ||||||
22 | timely collection
and provision of data as requested by or on | ||||||
23 | behalf of the Commission. The facilitation
shall include, | ||||||
24 | without limitation, authorizing the provision of reports and | ||||||
25 | underlying State
agency data that the State agency currently | ||||||
26 | or previously has provided or made available
to university |
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1 | partners and consultants. Any data provided by State agencies | ||||||
2 | shall redact any
personally identifiable information of any | ||||||
3 | clients or families before release to the
Commission. | ||||||
4 | (d) The Commission may organize into sub-committees or | ||||||
5 | subgroups if it deems necessary.
The sub-committees or | ||||||
6 | subgroups shall be working groups focused on the following
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7 | areas: | ||||||
8 | (1) budgetary needs and insurance; | ||||||
9 | (2) clinician assessment and recommendations for | ||||||
10 | mental health care for adults; | ||||||
11 | (3) clinician assessment and recommendations for | ||||||
12 | mental health care for children
and youth; and
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13 | (4) mental health needs of persons who are or have | ||||||
14 | been incarcerated.
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15 | (e)
The Commission shall: | ||||||
16 | (1) assess needs for mental health care in this State; | ||||||
17 | (2) identify gaps around mental health in geographical | ||||||
18 | areas across this State; | ||||||
19 | (3) establish rules around data collection and | ||||||
20 | publishing; | ||||||
21 | (4) meet benchmarks stipulated in this Act and | ||||||
22 | establish a more specific timeframe for
recommended | ||||||
23 | reform; | ||||||
24 | (5) in order to align systems, identify when | ||||||
25 | coordination of initiatives, sharing of information,
and | ||||||
26 | transparency is needed between agencies on
data of |
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1 | availability of mental health and related services, and | ||||||
2 | funding streams for mental health services; | ||||||
3 | (6) issue recommendations, goals, and benchmarks for: | ||||||
4 | (A) improvements to and expansion of | ||||||
5 | community-based mental health and
substance abuse | ||||||
6 | treatment services including through Assertive | ||||||
7 | Community
Treatment (ACT) and Intensive Case | ||||||
8 | Management (ICM) Teams;
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9 | (B) increasing early diagnosis and treatment | ||||||
10 | rather than late-stage treatment of
mental health | ||||||
11 | conditions; | ||||||
12 | (C) increasing availability of psychiatric | ||||||
13 | residential placements based on data
analysis and in | ||||||
14 | accordance with least-restrictive standard of care; | ||||||
15 | (D) in accordance with least-restrictive care | ||||||
16 | principles building service capacity, improving access | ||||||
17 | to services by reforming Medicaid rates to cover the | ||||||
18 | cost,
enable capacity growth, and institute | ||||||
19 | value-based payment; | ||||||
20 | (E) building a system of care for children and | ||||||
21 | young adults; | ||||||
22 | (F) increasing mental health
care for children; | ||||||
23 | (G) improving insurance practices and coverage of | ||||||
24 | proven treatments, including
implementing and | ||||||
25 | enforcing parity laws, and ensuring coverage of proven
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26 | treatments not covered by insurance; |
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1 | (H) developing the mental health workforce through | ||||||
2 | incentives to grow this workforce; | ||||||
3 | (I) enabling affordable housing through rental | ||||||
4 | subsidies, through investment in
rental subsidies, | ||||||
5 | combined with treatment, supportive housing, diversion | ||||||
6 | strategies to stop the cycle of hospitalizations, and | ||||||
7 | criminal legal system
involvement for those persons | ||||||
8 | with disabilities and left homeless by their
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9 | disability; | ||||||
10 | (J) treating currently incarcerated people who | ||||||
11 | suffer from mental health conditions; | ||||||
12 | (K) improving coordination of mental health | ||||||
13 | related services between government
agencies, service | ||||||
14 | providers, and patients; and | ||||||
15 | (L) easing the administrative burdens that are a | ||||||
16 | barrier to access to mental health
services; | ||||||
17 | (7) take action and implement its findings and
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18 | recommendations. An explanation must be provided in the | ||||||
19 | annual report for any
recommendation an agency does not | ||||||
20 | choose to implement; | ||||||
21 | (8) review the relevant consent decrees and focus | ||||||
22 | recommendations to comply with the following
consent | ||||||
23 | decrees: | ||||||
24 | (A) Lippert v. Jeffreys (Department of | ||||||
25 | Corrections-healthcare); | ||||||
26 | (B) Monroe v. Jeffreys (Department of |
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1 | Corrections-gender dysphoria treatment); | ||||||
2 | (C) Rasho v. Jeffreys (Department of | ||||||
3 | Corrections-mental health care); | ||||||
4 | (D) RJ v. Mueller (Department of Juvenile | ||||||
5 | Justice-conditions and services available to persons | ||||||
6 | confined at State-operated juvenile justice facilities | ||||||
7 | including issues re: mental health
and confinement | ||||||
8 | conditions); | ||||||
9 | (E) Williams v. Pritzker (Department on Aging, | ||||||
10 | Healthcare and Family Services, Department of Human | ||||||
11 | Services-individuals in nursing homes for persons
with | ||||||
12 | mental illnesses-Olmstead); | ||||||
13 | (F) Ligas v. Eagleson (Healthcare and Family | ||||||
14 | Services-unnecessary segregation and | ||||||
15 | institutionalization of
persons with developmental | ||||||
16 | disabilities in large intermediate care facilities | ||||||
17 | when
they could be better served in smaller, community | ||||||
18 | settings-Olmstead); | ||||||
19 | (G) BH v. Smith (Department of Children and Family | ||||||
20 | Services-care and conditions including severe | ||||||
21 | shortages of mental
health services and substandard | ||||||
22 | conditions at various residential treatment
centers | ||||||
23 | treating youth in care); | ||||||
24 | (H) NB v. Eagleson (Healthcare and Family | ||||||
25 | Services-Medicaid eligible children under 21 with a | ||||||
26 | mental or
behavioral health diagnosis in need of |
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1 | community-based services); | ||||||
2 | (I) Colbert v. Pritzker (Department of Human | ||||||
3 | Services, Healthcare and Family | ||||||
4 | Services-institutionalizing people with disabilities | ||||||
5 | when
they could live in their own homes or other small, | ||||||
6 | community-based settings-Olmstead); and | ||||||
7 | (J)
Memisovski v. Maram (Healthcare and Family | ||||||
8 | Services, Department of Human Services-access and | ||||||
9 | availability of Medicaid services to
children). | ||||||
10 | (e) The Commission, with administrative support provided | ||||||
11 | by the Department of Human Services, shall produce and
submit | ||||||
12 | policy recommendations, both administrative and legislative, | ||||||
13 | to the General
Assembly and the Governor in the form of an | ||||||
14 | annual report. The first annual report shall
be submitted | ||||||
15 | within one year after the first meeting of the Commission. | ||||||
16 | The annual report shall include summary information about | ||||||
17 | mental health services in
this State, including challenges, | ||||||
18 | deficiency in services, and recommendations for increasing
and | ||||||
19 | improving mental health services and bringing about reform. | ||||||
20 | The report must
address all of the concerns and issues listed. | ||||||
21 | The Commission shall submit the annual report
in the month of | ||||||
22 | March, and during this month its representatives shall testify | ||||||
23 | before the
Mental Health and Addiction Committee of the House | ||||||
24 | of Representatives and the Health Committee of the Senate to | ||||||
25 | present its findings,
make recommendations, and answer | ||||||
26 | questions. The Directors of Public Health, Children and Family |
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1 | Services,
Juvenile Justice, Department of Corrections, | ||||||
2 | Healthcare and Family Services, Aging, Insurance, Governor's | ||||||
3 | Office of Management and Budget, Illinois Housing Development | ||||||
4 | Authority, State Board of Education, the Secretary of Human | ||||||
5 | Services, and a representative of the Office of the
Governor | ||||||
6 | shall testify before these committees as to their respective | ||||||
7 | actions taken in
response to the findings and recommendations | ||||||
8 | of the Commission. Any State agency that
has not adopted or | ||||||
9 | implemented a Commission recommendation made for that agency,
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10 | shall provide written and oral testimony explaining their | ||||||
11 | rationale for this decision. The
annual reports shall include | ||||||
12 | the following items: | ||||||
13 | (1) Year 1: Identification of gaps in mental health | ||||||
14 | care. Assessment of budgetary
needs for State agencies to | ||||||
15 | build necessary service capacity to meet the needs of
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16 | mental health in this State. Assessment of each State | ||||||
17 | agency's compliance with
requirements of consent decrees | ||||||
18 | and the State agency's responses to its level
of | ||||||
19 | compliance. | ||||||
20 | (2) Year 2: Report on the progression of | ||||||
21 | implementation of recommended actions
from Year 1, | ||||||
22 | including barriers to progress and recommended actions to | ||||||
23 | address
these barriers. Roles of State agencies, | ||||||
24 | coalitions, advocates, and other
stakeholders currently | ||||||
25 | engaged in the field of mental health in this State.
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26 | Recommendations of needed coordination between them to |
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1 | bridge the systemic
gaps. | ||||||
2 | (3) Year 3: Report on the progression of | ||||||
3 | implementation of recommended actions
from Years 1 and 2, | ||||||
4 | including barriers to progress and recommended actions to
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5 | address these barriers. Recommendations for expansion of | ||||||
6 | community-based
mental health and substance abuse | ||||||
7 | treatment services. | ||||||
8 | (4) Year 4: Report on the progression of | ||||||
9 | implementation of recommended actions
from Years 1, 2, and | ||||||
10 | 3, including barriers to progress and recommended actions
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11 | to address such barriers. Phasing in of recommendations | ||||||
12 | for gaps in mental
health care. | ||||||
13 | (5) Year 5: Report on the progression of | ||||||
14 | implementation of recommended actions
from previous Years. | ||||||
15 | Phasing in of recommendations for gaps in mental health
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16 | care. | ||||||
17 | (f)
The Commission chair shall convene a final meeting | ||||||
18 | before the repeal date of this Act to
discuss an | ||||||
19 | implementation plan based on the produced policy | ||||||
20 | recommendations. | ||||||
21 | (g) The Commission shall be dissolved 5 years after the | ||||||
22 | effective date of this Act. | ||||||
23 | Section 10. Repeal. This Act is repealed 6 years after the | ||||||
24 | effective date of this Act.
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