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1    AN ACT concerning health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4
Article 5. Health Care Affordability Act

 
5    Section 5-1. Short title. This Article may be cited as the
6Health Care Affordability Act. References in this Article to
7"this Act" mean this Article.
 
8    Section 5-5. Findings. The General Assembly finds that:
9        (1) The State is committed to improving the health and
10    well-being of Illinois residents and families.
11        (2) Illinois has over 835,000 uninsured residents,
12    with a total uninsured rate of 7.9%.
13        (3) 774,500 of Illinois' uninsured residents are below
14    400% of the federal poverty level, with higher uninsured
15    rates of more than 13% below 250% of the federal poverty
16    level and an uninsured rate of 8.3% below 400% of the
17    federal poverty level.
18        (4) The cost of health insurance premiums remains a
19    barrier to obtaining health insurance coverage for many
20    Illinois residents and families.
21        (5) Many Illinois residents and families who have
22    health insurance cannot afford to use it due to high

 

 

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1    deductibles and cost sharing.
2        (6) Improving health insurance affordability is key to
3    increasing health insurance coverage and access.
4        (7) Despite progress made under the Patient Protection
5    and Affordable Care Act, health insurance is still not
6    affordable enough for many Illinois residents and
7    families.
8        (8) Illinois has a lower uninsured rate than the
9    national average of 10.2%, but a higher uninsured rate
10    compared to states that have state-directed policies to
11    improve affordability, including Massachusetts with an
12    uninsured rate of 3.2%.
13        (9) Illinois has an opportunity to create a healthy
14    Illinois where health insurance coverage is more
15    affordable and accessible for all Illinois residents,
16    families, and small businesses.
 
17    Section 5-10. Feasibility study.
18    (a) The Department of Healthcare and Family Services, in
19consultation with the Department of Insurance, shall oversee a
20feasibility study to explore options to make health insurance
21more affordable for low-income and middle-income residents.
22The study shall include policies targeted at increasing health
23care affordability and access, including policies being
24discussed in other states and nationally. The study shall
25follow the best practices of other states and include an

 

 

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1Illinois-specific actuarial and economic analysis of
2demographic and market dynamics.
3    (b) The study shall produce cost estimates for the policies
4studied under subsection (a) along with the impact of the
5policies on health insurance affordability and access and the
6uninsured rates for low-income and middle-income residents,
7with break-out data by geography, race, ethnicity, and income
8level. The study shall evaluate how multiple policies
9implemented together affect costs and outcomes and how policies
10could be structured to leverage federal matching funds and
11federal pass-through awards.
12    (c) The Department of Healthcare and Family Services, in
13consultation with the Department of Insurance, shall develop
14and submit no later than February 28, 2021 a report to the
15General Assembly and the Governor concerning the design, costs,
16benefits, and implementation of State options to increase
17access to affordable health care coverage that leverage
18existing State infrastructure.
 
19
Article 10. Kidney Disease Prevention and Education Task Force
20
Act

 
21    Section 10-1. Short title. This Article may be cited as the
22Kidney Disease Prevention and Education Task Force Act.
23References in this Article to "this Act" mean this Article.
 

 

 

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1    Section 10-5. Findings. The General Assembly finds that:
2        (1) Chronic kidney disease is the 9th-leading cause of
3    death in the United States. An estimated 31 million people
4    in the United States have chronic kidney disease and over
5    1.12 million people in the State of Illinois are living
6    with the disease. Early chronic kidney disease has no signs
7    or symptoms and, without early detection, can progress to
8    kidney failure.
9        (2) If a person has high blood pressure, heart disease,
10    diabetes, or a family history of kidney failure, the risk
11    of kidney disease is greater. In Illinois, 13% of all
12    adults have diabetes, and 32% have high blood pressure. The
13    prevalence of diabetes, heart disease, and hypertension is
14    higher for African Americans, who develop kidney failure at
15    a rate of nearly 4 to 1 compared to Caucasians, while
16    Hispanics develop kidney failure at a rate of 2 to 1.
17    Almost half of the people waiting for a kidney in Illinois
18    identify as African American, but, in 2017, less than 10%
19    of them received a kidney.
20        (3) Although dialysis is a life-extending treatment,
21    the best and most cost-effective treatment for kidney
22    failure is a kidney transplant. Currently, the wait in
23    Illinois for a deceased donor kidney is 5-7 years, and 13
24    people die while waiting every day.
25        (4) If chronic kidney disease is detected early and
26    managed appropriately, the individual can receive

 

 

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1    treatment sooner to help protect the kidneys, the
2    deterioration in kidney function can be slowed or even
3    stopped, and the risk of associated cardiovascular
4    complications and other complications can be reduced.
5        (5) In light of the COVID-19 pandemic and the increased
6    risk of infection to patients with preexisting conditions,
7    it is imperative to provide those with kidney disease with
8    support.
 
9    Section 10-10. Kidney Disease Prevention and Education
10Task Force.
11    (a) There is hereby established the Kidney Disease
12Prevention and Education Task Force to work directly with
13educational institutions to create health education programs
14to increase awareness of and to examine chronic kidney disease,
15transplantations, living and deceased kidney donation, and the
16existing disparity in the rates of those afflicted between
17Caucasians and minorities.
18    (b) The Task Force shall develop a sustainable plan to
19raise awareness about early detection, promote health equity,
20and reduce the burden of kidney disease throughout the State,
21which shall include an ongoing campaign that includes health
22education workshops and seminars, relevant research, and
23preventive screenings and that promotes social media campaigns
24and TV and radio commercials.
25    (c) Membership of the Task Force shall be as follows:

 

 

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1        (1) one member of the Senate, appointed by the Senate
2    President, who shall serve as Co-Chair;
3        (2) one member of the House of Representatives,
4    appointed by the Speaker of the House, who shall serve as
5    Co-Chair;
6        (3) one member of the House of Representatives,
7    appointed by the Minority Leader of the House;
8        (4) one member of the Senate, appointed by the Senate
9    Minority Leader;
10        (5) one member representing the Department of Public
11    Health, appointed by the Governor;
12        (6) one member representing the Department of
13    Healthcare and Family Services, appointed by the Governor;
14        (7) one member representing a medical center in a
15    county with a population of more 3 million residents,
16    appointed by the Co-Chairs;
17        (8) one member representing a physician's association
18    in a county with a population of more than 3 million
19    residents, appointed by the Co-Chairs;
20        (9) one member representing a not-for-profit organ
21    procurement organization, appointed by the Co-Chairs;
22        (10) one member representing a national nonprofit
23    research kidney organization in the State of Illinois,
24    appointed by the Co-Chairs; and
25        (11) the Secretary of State or his or her designee.
26    (d) Members of the Task Force shall serve without

 

 

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1compensation.
2    (e) The Department of Public Health shall provide
3administrative support to the Task Force.
4    (f) The Task Force shall submit its final report to the
5General Assembly on or before December 31, 2021 and, upon the
6filing of its final report, is dissolved.
 
7    Section 10-15. Repeal. This Act is repealed on June 1,
82022.
 
9
Article 90. Amendatory Provisions

 
10    Section 90-5. The Freedom of Information Act is amended by
11changing Section 7.5 as follows:
 
12    (5 ILCS 140/7.5)
13    Sec. 7.5. Statutory exemptions. To the extent provided for
14by the statutes referenced below, the following shall be exempt
15from inspection and copying:
16        (a) All information determined to be confidential
17    under Section 4002 of the Technology Advancement and
18    Development Act.
19        (b) Library circulation and order records identifying
20    library users with specific materials under the Library
21    Records Confidentiality Act.
22        (c) Applications, related documents, and medical

 

 

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1    records received by the Experimental Organ Transplantation
2    Procedures Board and any and all documents or other records
3    prepared by the Experimental Organ Transplantation
4    Procedures Board or its staff relating to applications it
5    has received.
6        (d) Information and records held by the Department of
7    Public Health and its authorized representatives relating
8    to known or suspected cases of sexually transmissible
9    disease or any information the disclosure of which is
10    restricted under the Illinois Sexually Transmissible
11    Disease Control Act.
12        (e) Information the disclosure of which is exempted
13    under Section 30 of the Radon Industry Licensing Act.
14        (f) Firm performance evaluations under Section 55 of
15    the Architectural, Engineering, and Land Surveying
16    Qualifications Based Selection Act.
17        (g) Information the disclosure of which is restricted
18    and exempted under Section 50 of the Illinois Prepaid
19    Tuition Act.
20        (h) Information the disclosure of which is exempted
21    under the State Officials and Employees Ethics Act, and
22    records of any lawfully created State or local inspector
23    general's office that would be exempt if created or
24    obtained by an Executive Inspector General's office under
25    that Act.
26        (i) Information contained in a local emergency energy

 

 

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1    plan submitted to a municipality in accordance with a local
2    emergency energy plan ordinance that is adopted under
3    Section 11-21.5-5 of the Illinois Municipal Code.
4        (j) Information and data concerning the distribution
5    of surcharge moneys collected and remitted by carriers
6    under the Emergency Telephone System Act.
7        (k) Law enforcement officer identification information
8    or driver identification information compiled by a law
9    enforcement agency or the Department of Transportation
10    under Section 11-212 of the Illinois Vehicle Code.
11        (l) Records and information provided to a residential
12    health care facility resident sexual assault and death
13    review team or the Executive Council under the Abuse
14    Prevention Review Team Act.
15        (m) Information provided to the predatory lending
16    database created pursuant to Article 3 of the Residential
17    Real Property Disclosure Act, except to the extent
18    authorized under that Article.
19        (n) Defense budgets and petitions for certification of
20    compensation and expenses for court appointed trial
21    counsel as provided under Sections 10 and 15 of the Capital
22    Crimes Litigation Act. This subsection (n) shall apply
23    until the conclusion of the trial of the case, even if the
24    prosecution chooses not to pursue the death penalty prior
25    to trial or sentencing.
26        (o) Information that is prohibited from being

 

 

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1    disclosed under Section 4 of the Illinois Health and
2    Hazardous Substances Registry Act.
3        (p) Security portions of system safety program plans,
4    investigation reports, surveys, schedules, lists, data, or
5    information compiled, collected, or prepared by or for the
6    Regional Transportation Authority under Section 2.11 of
7    the Regional Transportation Authority Act or the St. Clair
8    County Transit District under the Bi-State Transit Safety
9    Act.
10        (q) Information prohibited from being disclosed by the
11    Personnel Record Review Act.
12        (r) Information prohibited from being disclosed by the
13    Illinois School Student Records Act.
14        (s) Information the disclosure of which is restricted
15    under Section 5-108 of the Public Utilities Act.
16        (t) All identified or deidentified health information
17    in the form of health data or medical records contained in,
18    stored in, submitted to, transferred by, or released from
19    the Illinois Health Information Exchange, and identified
20    or deidentified health information in the form of health
21    data and medical records of the Illinois Health Information
22    Exchange in the possession of the Illinois Health
23    Information Exchange Office Authority due to its
24    administration of the Illinois Health Information
25    Exchange. The terms "identified" and "deidentified" shall
26    be given the same meaning as in the Health Insurance

 

 

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1    Portability and Accountability Act of 1996, Public Law
2    104-191, or any subsequent amendments thereto, and any
3    regulations promulgated thereunder.
4        (u) Records and information provided to an independent
5    team of experts under the Developmental Disability and
6    Mental Health Safety Act (also known as Brian's Law).
7        (v) Names and information of people who have applied
8    for or received Firearm Owner's Identification Cards under
9    the Firearm Owners Identification Card Act or applied for
10    or received a concealed carry license under the Firearm
11    Concealed Carry Act, unless otherwise authorized by the
12    Firearm Concealed Carry Act; and databases under the
13    Firearm Concealed Carry Act, records of the Concealed Carry
14    Licensing Review Board under the Firearm Concealed Carry
15    Act, and law enforcement agency objections under the
16    Firearm Concealed Carry Act.
17        (w) Personally identifiable information which is
18    exempted from disclosure under subsection (g) of Section
19    19.1 of the Toll Highway Act.
20        (x) Information which is exempted from disclosure
21    under Section 5-1014.3 of the Counties Code or Section
22    8-11-21 of the Illinois Municipal Code.
23        (y) Confidential information under the Adult
24    Protective Services Act and its predecessor enabling
25    statute, the Elder Abuse and Neglect Act, including
26    information about the identity and administrative finding

 

 

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1    against any caregiver of a verified and substantiated
2    decision of abuse, neglect, or financial exploitation of an
3    eligible adult maintained in the Registry established
4    under Section 7.5 of the Adult Protective Services Act.
5        (z) Records and information provided to a fatality
6    review team or the Illinois Fatality Review Team Advisory
7    Council under Section 15 of the Adult Protective Services
8    Act.
9        (aa) Information which is exempted from disclosure
10    under Section 2.37 of the Wildlife Code.
11        (bb) Information which is or was prohibited from
12    disclosure by the Juvenile Court Act of 1987.
13        (cc) Recordings made under the Law Enforcement
14    Officer-Worn Body Camera Act, except to the extent
15    authorized under that Act.
16        (dd) Information that is prohibited from being
17    disclosed under Section 45 of the Condominium and Common
18    Interest Community Ombudsperson Act.
19        (ee) Information that is exempted from disclosure
20    under Section 30.1 of the Pharmacy Practice Act.
21        (ff) Information that is exempted from disclosure
22    under the Revised Uniform Unclaimed Property Act.
23        (gg) Information that is prohibited from being
24    disclosed under Section 7-603.5 of the Illinois Vehicle
25    Code.
26        (hh) Records that are exempt from disclosure under

 

 

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1    Section 1A-16.7 of the Election Code.
2        (ii) Information which is exempted from disclosure
3    under Section 2505-800 of the Department of Revenue Law of
4    the Civil Administrative Code of Illinois.
5        (jj) Information and reports that are required to be
6    submitted to the Department of Labor by registering day and
7    temporary labor service agencies but are exempt from
8    disclosure under subsection (a-1) of Section 45 of the Day
9    and Temporary Labor Services Act.
10        (kk) Information prohibited from disclosure under the
11    Seizure and Forfeiture Reporting Act.
12        (ll) Information the disclosure of which is restricted
13    and exempted under Section 5-30.8 of the Illinois Public
14    Aid Code.
15        (mm) Records that are exempt from disclosure under
16    Section 4.2 of the Crime Victims Compensation Act.
17        (nn) Information that is exempt from disclosure under
18    Section 70 of the Higher Education Student Assistance Act.
19        (oo) Communications, notes, records, and reports
20    arising out of a peer support counseling session prohibited
21    from disclosure under the First Responders Suicide
22    Prevention Act.
23        (pp) Names and all identifying information relating to
24    an employee of an emergency services provider or law
25    enforcement agency under the First Responders Suicide
26    Prevention Act.

 

 

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1        (qq) Information and records held by the Department of
2    Public Health and its authorized representatives collected
3    under the Reproductive Health Act.
4        (rr) Information that is exempt from disclosure under
5    the Cannabis Regulation and Tax Act.
6        (ss) Data reported by an employer to the Department of
7    Human Rights pursuant to Section 2-108 of the Illinois
8    Human Rights Act.
9        (tt) Recordings made under the Children's Advocacy
10    Center Act, except to the extent authorized under that Act.
11        (uu) Information that is exempt from disclosure under
12    Section 50 of the Sexual Assault Evidence Submission Act.
13        (vv) Information that is exempt from disclosure under
14    subsections (f) and (j) of Section 5-36 of the Illinois
15    Public Aid Code.
16        (ww) Information that is exempt from disclosure under
17    Section 16.8 of the State Treasurer Act.
18        (xx) Information that is exempt from disclosure or
19    information that shall not be made public under the
20    Illinois Insurance Code.
21        (yy) (oo) Information prohibited from being disclosed
22    under the Illinois Educational Labor Relations Act.
23        (zz) (pp) Information prohibited from being disclosed
24    under the Illinois Public Labor Relations Act.
25        (aaa) (qq) Information prohibited from being disclosed
26    under Section 1-167 of the Illinois Pension Code.

 

 

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1(Source: P.A. 100-20, eff. 7-1-17; 100-22, eff. 1-1-18;
2100-201, eff. 8-18-17; 100-373, eff. 1-1-18; 100-464, eff.
38-28-17; 100-465, eff. 8-31-17; 100-512, eff. 7-1-18; 100-517,
4eff. 6-1-18; 100-646, eff. 7-27-18; 100-690, eff. 1-1-19;
5100-863, eff. 8-14-18; 100-887, eff. 8-14-18; 101-13, eff.
66-12-19; 101-27, eff. 6-25-19; 101-81, eff. 7-12-19; 101-221,
7eff. 1-1-20; 101-236, eff. 1-1-20; 101-375, eff. 8-16-19;
8101-377, eff. 8-16-19; 101-452, eff. 1-1-20; 101-466, eff.
91-1-20; 101-600, eff. 12-6-19; 101-620, eff 12-20-19; revised
101-6-20.)
 
11    Section 90-10. The Illinois Health Information Exchange
12and Technology Act is amended by changing Sections 10, 20, 25,
1330, 35, and 40, as follows:
 
14    (20 ILCS 3860/10)
15    (Section scheduled to be repealed on January 1, 2021)
16    Sec. 10. Creation of the Health Information Exchange Office
17Authority. There is hereby created the Illinois Health
18Information Exchange Office ("Office") Authority
19("Authority"), which is hereby constituted as an
20instrumentality and an administrative agency of the State of
21Illinois.
22    As part of its program to promote, develop, and sustain
23health information exchange at the State level, the Office
24Authority shall do the following:

 

 

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1        (1) Establish the Illinois Health Information Exchange
2    ("ILHIE"), to promote and facilitate the sharing of health
3    information among health care providers within Illinois
4    and in other states. ILHIE shall be an entity operated by
5    the Office Authority to serve as a State-level electronic
6    medical records exchange providing for the transfer of
7    health information, medical records, and other health data
8    in a secure environment for the benefit of patient care,
9    patient safety, reduction of duplicate medical tests,
10    reduction of administrative costs, and any other benefits
11    deemed appropriate by the Office Authority.
12        (2) Foster the widespread adoption of electronic
13    health records and participation in the ILHIE.
14(Source: P.A. 96-1331, eff. 7-27-10.)
 
15    (20 ILCS 3860/20)
16    (Section scheduled to be repealed on January 1, 2021)
17    Sec. 20. Powers and duties of the Illinois Health
18Information Exchange Office Authority. The Office Authority
19has the following powers, together with all powers incidental
20or necessary to accomplish the purposes of this Act:
21        (1) The Office Authority shall create and administer
22    the ILHIE using information systems and processes that are
23    secure, are cost effective, and meet all other relevant
24    privacy and security requirements under State and federal
25    law.

 

 

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1        (2) The Office Authority shall establish and adopt
2    standards and requirements for the use of health
3    information and the requirements for participation in the
4    ILHIE by persons or entities including, but not limited to,
5    health care providers, payors, and local health
6    information exchanges.
7        (3) The Office Authority shall establish minimum
8    standards for accessing the ILHIE to ensure that the
9    appropriate security and privacy protections apply to
10    health information, consistent with applicable federal and
11    State standards and laws. The Office Authority shall have
12    the power to suspend, limit, or terminate the right to
13    participate in the ILHIE for non-compliance or failure to
14    act, with respect to applicable standards and laws, in the
15    best interests of patients, users of the ILHIE, or the
16    public. The Office Authority may seek all remedies allowed
17    by law to address any violation of the terms of
18    participation in the ILHIE.
19        (4) The Office Authority shall identify barriers to the
20    adoption of electronic health records systems, including
21    researching the rates and patterns of dissemination and use
22    of electronic health record systems throughout the State.
23    The Office Authority shall make the results of the research
24    available on the Department of Healthcare and Family
25    Services' website its website.
26        (5) The Office Authority shall prepare educational

 

 

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1    materials and educate the general public on the benefits of
2    electronic health records, the ILHIE, and the safeguards
3    available to prevent unauthorized disclosure of health
4    information.
5        (6) The Office Authority may appoint or designate an
6    institutional review board in accordance with federal and
7    State law to review and approve requests for research in
8    order to ensure compliance with standards and patient
9    privacy and security protections as specified in paragraph
10    (3) of this Section.
11        (7) The Office Authority may enter into all contracts
12    and agreements necessary or incidental to the performance
13    of its powers under this Act. The Office's Authority's
14    expenditures of private funds are exempt from the Illinois
15    Procurement Code, pursuant to Section 1-10 of that Act.
16    Notwithstanding this exception, the Office Authority shall
17    comply with the Business Enterprise for Minorities, Women,
18    and Persons with Disabilities Act.
19        (8) The Office Authority may solicit and accept grants,
20    loans, contributions, or appropriations from any public or
21    private source and may expend those moneys, through
22    contracts, grants, loans, or agreements, on activities it
23    considers suitable to the performance of its duties under
24    this Act.
25        (9) The Office Authority may determine, charge, and
26    collect any fees, charges, costs, and expenses from any

 

 

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1    healthcare provider or entity in connection with its duties
2    under this Act. Moneys collected under this paragraph (9)
3    shall be deposited into the Health Information Exchange
4    Fund.
5        (10) The Office Authority may, under the direction of
6    the Executive Director, employ and discharge staff,
7    including administrative, technical, expert, professional,
8    and legal staff, as is necessary or convenient to carry out
9    the purposes of this Act and as authorized by the Personnel
10    Code. The Authority may establish and administer standards
11    of classification regarding compensation, benefits,
12    duties, performance, and tenure for that staff and may
13    enter into contracts of employment with members of that
14    staff for such periods and on such terms as the Authority
15    deems desirable. All employees of the Authority are exempt
16    from the Personnel Code as provided by Section 4 of the
17    Personnel Code.
18        (10.5) Staff employed by the Illinois Health
19    Information Exchange Authority on the effective date of
20    this amendatory Act of the 101st General Assembly shall
21    transfer to the Office within the Department of Healthcare
22    and Family Services.
23        (10.6) The status and rights of employees transferring
24    from the Illinois Health Information Exchange Authority
25    under paragraph (10.5) shall not be affected by such
26    transfer except that, notwithstanding any other State law

 

 

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1    to the contrary, those employees shall maintain their
2    seniority and their positions shall convert to titles of
3    comparable organizational level under the Personnel Code
4    and become subject to the Personnel Code. Other than the
5    changes described in this paragraph, the rights of
6    employees, the State of Illinois, and State agencies under
7    the Personnel Code or under any pension, retirement, or
8    annuity plan shall not be affected by this amendatory Act
9    of the 101st General Assembly. Transferring personnel
10    shall continue their service within the Office.
11        (11) The Office Authority shall consult and coordinate
12    with the Department of Public Health to further the
13    Office's Authority's collection of health information from
14    health care providers for public health purposes. The
15    collection of public health information shall include
16    identifiable information for use by the Office Authority or
17    other State agencies to comply with State and federal laws.
18    Any identifiable information so collected shall be
19    privileged and confidential in accordance with Sections
20    8-2101, 8-2102, 8-2103, 8-2104, and 8-2105 of the Code of
21    Civil Procedure.
22        (12) All identified or deidentified health information
23    in the form of health data or medical records contained in,
24    stored in, submitted to, transferred by, or released from
25    the Illinois Health Information Exchange, and identified
26    or deidentified health information in the form of health

 

 

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1    data and medical records of the Illinois Health Information
2    Exchange in the possession of the Illinois Health
3    Information Exchange Office Authority due to its
4    administration of the Illinois Health Information
5    Exchange, shall be exempt from inspection and copying under
6    the Freedom of Information Act. The terms "identified" and
7    "deidentified" shall be given the same meaning as in the
8    Health Insurance Portability and Accountability Act of
9    1996, Public Law 104-191, or any subsequent amendments
10    thereto, and any regulations promulgated thereunder.
11        (13) To address gaps in the adoption of, workforce
12    preparation for, and exchange of electronic health records
13    that result in regional and socioeconomic disparities in
14    the delivery of care, the Office Authority may evaluate
15    such gaps and provide resources as available, giving
16    priority to healthcare providers serving a significant
17    percentage of Medicaid or uninsured patients and in
18    medically underserved or rural areas.
19        (14) The Office shall perform its duties under this Act
20    in consultation with the Office of the Governor and with
21    the Departments of Public Health, Insurance, and Human
22    Services.
23(Source: P.A. 99-642, eff. 7-28-16; 100-391, eff. 8-25-17.)
 
24    (20 ILCS 3860/25)
25    (Section scheduled to be repealed on January 1, 2021)

 

 

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1    Sec. 25. Health Information Exchange Fund.
2    (a) The Health Information Exchange Fund (the "Fund") is
3created as a separate fund outside the State treasury. Moneys
4in the Fund are not subject to appropriation by the General
5Assembly. The State Treasurer shall be ex-officio custodian of
6the Fund. Revenues arising from the operation and
7administration of the Office Authority and the ILHIE shall be
8deposited into the Fund. Fees, charges, State and federal
9moneys, grants, donations, gifts, interest, or other moneys
10shall be deposited into the Fund. "Private funds" means gifts,
11donations, and private grants.
12    (b) The Office Authority is authorized to spend moneys in
13the Fund on activities suitable to the performance of its
14duties as provided in Section 20 of this Act and authorized by
15this Act. Disbursements may be made from the Fund for purposes
16related to the operations and functions of the Office Authority
17and the ILHIE.
18    (c) The Illinois General Assembly may appropriate moneys to
19the Office Authority and the ILHIE, and those moneys shall be
20deposited into the Fund.
21    (d) The Fund is not subject to administrative charges or
22charge-backs, including but not limited to those authorized
23under Section 8h of the State Finance Act.
24    (e) The Office's Authority's accounts and books shall be
25set up and maintained in accordance with the Office of the
26Comptroller's requirements, and the Authority's Executive

 

 

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1Director of the Department of Healthcare and Family Services
2shall be responsible for the approval of recording of receipts,
3approval of payments, and proper filing of required reports.
4The moneys held and made available by the Office Authority
5shall be subject to financial and compliance audits by the
6Auditor General in compliance with the Illinois State Auditing
7Act.
8(Source: P.A. 96-1331, eff. 7-27-10.)
 
9    (20 ILCS 3860/30)
10    (Section scheduled to be repealed on January 1, 2021)
11    Sec. 30. Participation in health information systems
12maintained by State agencies.
13    (a) By no later than January 1, 2015, each State agency
14that implements, acquires, or upgrades health information
15technology systems shall use health information technology
16systems and products that meet minimum standards adopted by the
17Office Authority for accessing the ILHIE. State agencies that
18have health information which supports and develops the ILHIE
19shall provide access to patient-specific data to complete the
20patient record at the ILHIE. Notwithstanding any other
21provision of State law, the State agencies shall provide
22patient-specific data to the ILHIE.
23    (b) Participation in the ILHIE shall have no impact on the
24content of or use or disclosure of health information of
25patient participants that is held in locations other than the

 

 

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1ILHIE. Nothing in this Act shall limit or change an entity's
2obligation to exchange health information in accordance with
3applicable federal and State laws and standards.
4(Source: P.A. 96-1331, eff. 7-27-10.)
 
5    (20 ILCS 3860/35)
6    (Section scheduled to be repealed on January 1, 2021)
7    Sec. 35. Illinois Administrative Procedure Act. The
8provisions of the Illinois Administrative Procedure Act are
9hereby expressly adopted and shall apply to all administrative
10rules and procedures of the Office Authority, except that
11Section 5-35 of the Illinois Administrative Procedure Act
12relating to procedures for rulemaking does not apply to the
13adoption of any rule required by federal law when the Office
14Authority is precluded by that law from exercising any
15discretion regarding that rule.
16(Source: P.A. 96-1331, eff. 7-27-10.)
 
17    (20 ILCS 3860/40)
18    (Section scheduled to be repealed on January 1, 2021)
19    Sec. 40. Reliance on data. Any health care provider who
20relies in good faith upon any information provided through the
21ILHIE in his, her, or its treatment of a patient shall be
22immune from criminal or civil liability or professional
23discipline arising from any damages caused by such good faith
24reliance. This immunity does not apply to acts or omissions

 

 

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1constituting gross negligence or reckless, wanton, or
2intentional misconduct. Notwithstanding this provision, the
3Office Authority does not waive any immunities provided under
4State or federal law.
5(Source: P.A. 98-1046, eff. 1-1-15.)
 
6    (20 ILCS 3860/15 rep.)
7    Section 90-15. The Illinois Health Information Exchange
8and Technology Act is amended by repealing Section 15.
 
9    Section 90-20. The Children's Health Insurance Program Act
10is amended by changing Section 7 and by adding Section 8 as
11follows:
 
12    (215 ILCS 106/7)
13    Sec. 7. Eligibility verification. Notwithstanding any
14other provision of this Act, with respect to applications for
15benefits provided under the Program, eligibility shall be
16determined in a manner that ensures program integrity and that
17complies with federal law and regulations while minimizing
18unnecessary barriers to enrollment. To this end, as soon as
19practicable, and unless the Department receives written denial
20from the federal government, this Section shall be implemented:
21    (a) The Department of Healthcare and Family Services or its
22designees shall:
23        (1) By no later than July 1, 2011, require verification

 

 

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1    of, at a minimum, one month's income from all sources
2    required for determining the eligibility of applicants to
3    the Program. Such verification shall take the form of pay
4    stubs, business or income and expense records for
5    self-employed persons, letters from employers, and any
6    other valid documentation of income including data
7    obtained electronically by the Department or its designees
8    from other sources as described in subsection (b) of this
9    Section. A month's income may be verified by a single pay
10    stub with the monthly income extrapolated from the time
11    period covered by the pay stub.
12        (2) By no later than October 1, 2011, require
13    verification of, at a minimum, one month's income from all
14    sources required for determining the continued eligibility
15    of recipients at their annual review of eligibility under
16    the Program. Such verification shall take the form of pay
17    stubs, business or income and expense records for
18    self-employed persons, letters from employers, and any
19    other valid documentation of income including data
20    obtained electronically by the Department or its designees
21    from other sources as described in subsection (b) of this
22    Section. A month's income may be verified by a single pay
23    stub with the monthly income extrapolated from the time
24    period covered by the pay stub. The Department shall send a
25    notice to the recipient at least 60 days prior to the end
26    of the period of eligibility that informs them of the

 

 

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1    requirements for continued eligibility. Information the
2    Department receives prior to the annual review, including
3    information available to the Department as a result of the
4    recipient's application for other non-health care
5    benefits, that is sufficient to make a determination of
6    continued eligibility for medical assistance or for
7    benefits provided under the Program may be reviewed and
8    verified, and subsequent action taken including client
9    notification of continued eligibility for medical
10    assistance or for benefits provided under the Program. The
11    date of client notification establishes the date for
12    subsequent annual eligibility reviews. If a recipient does
13    not fulfill the requirements for continued eligibility by
14    the deadline established in the notice, a notice of
15    cancellation shall be issued to the recipient and coverage
16    shall end no later than the last day of the month following
17    the last day of the eligibility period. A recipient's
18    eligibility may be reinstated without requiring a new
19    application if the recipient fulfills the requirements for
20    continued eligibility prior to the end of the third month
21    following the last date of coverage (or longer period if
22    required by federal regulations). Nothing in this Section
23    shall prevent an individual whose coverage has been
24    cancelled from reapplying for health benefits at any time.
25        (3) By no later than July 1, 2011, require verification
26    of Illinois residency.

 

 

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1    (b) The Department shall establish or continue cooperative
2arrangements with the Social Security Administration, the
3Illinois Secretary of State, the Department of Human Services,
4the Department of Revenue, the Department of Employment
5Security, and any other appropriate entity to gain electronic
6access, to the extent allowed by law, to information available
7to those entities that may be appropriate for electronically
8verifying any factor of eligibility for benefits under the
9Program. Data relevant to eligibility shall be provided for no
10other purpose than to verify the eligibility of new applicants
11or current recipients of health benefits under the Program.
12Data will be requested or provided for any new applicant or
13current recipient only insofar as that individual's
14circumstances are relevant to that individual's or another
15individual's eligibility.
16    (c) Within 90 days of the effective date of this amendatory
17Act of the 96th General Assembly, the Department of Healthcare
18and Family Services shall send notice to current recipients
19informing them of the changes regarding their eligibility
20verification.
21(Source: P.A. 101-209, eff. 8-5-19.)
 
22    (215 ILCS 106/8 new)
23    Sec. 8. COVID-19 public health emergency. Notwithstanding
24any other provision of this Act, the Department may take
25necessary actions to address the COVID-19 public health

 

 

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1emergency to the extent such actions are required, approved, or
2authorized by the United States Department of Health and Human
3Services, Centers for Medicare and Medicaid Services. Such
4actions may continue throughout the public health emergency and
5for up to 12 months after the period ends, and may include, but
6are not limited to: accepting an applicant's or recipient's
7attestation of income, incurred medical expenses, residency,
8and insured status when electronic verification is not
9available; eliminating resource tests for some eligibility
10determinations; suspending redeterminations; suspending
11changes that would adversely affect an applicant's or
12recipient's eligibility; phone or verbal approval by an
13applicant to submit an application in lieu of applicant
14signature; allowing adult presumptive eligibility; allowing
15presumptive eligibility for children, pregnant women, and
16adults as often as twice per calendar year; paying for
17additional services delivered by telehealth; and suspending
18premium and co-payment requirements.
19    The Department's authority under this Section shall only
20extend to encompass, incorporate, or effectuate the terms,
21items, conditions, and other provisions approved, authorized,
22or required by the United States Department of Health and Human
23Services, Centers for Medicare and Medicaid Services, and shall
24not extend beyond the time of the COVID-19 public health
25emergency and up to 12 months after the period expires.
 

 

 

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1    Section 90-25. The Covering ALL KIDS Health Insurance Act
2is amended by changing Section 7 and by adding Section 8 as
3follows:
 
4    (215 ILCS 170/7)
5    (Section scheduled to be repealed on October 1, 2024)
6    Sec. 7. Eligibility verification. Notwithstanding any
7other provision of this Act, with respect to applications for
8benefits provided under the Program, eligibility shall be
9determined in a manner that ensures program integrity and that
10complies with federal law and regulations while minimizing
11unnecessary barriers to enrollment. To this end, as soon as
12practicable, and unless the Department receives written denial
13from the federal government, this Section shall be implemented:
14    (a) The Department of Healthcare and Family Services or its
15designees shall:
16        (1) By July 1, 2011, require verification of, at a
17    minimum, one month's income from all sources required for
18    determining the eligibility of applicants to the Program.
19    Such verification shall take the form of pay stubs,
20    business or income and expense records for self-employed
21    persons, letters from employers, and any other valid
22    documentation of income including data obtained
23    electronically by the Department or its designees from
24    other sources as described in subsection (b) of this
25    Section. A month's income may be verified by a single pay

 

 

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1    stub with the monthly income extrapolated from the time
2    period covered by the pay stub.
3        (2) By October 1, 2011, require verification of, at a
4    minimum, one month's income from all sources required for
5    determining the continued eligibility of recipients at
6    their annual review of eligibility under the Program. Such
7    verification shall take the form of pay stubs, business or
8    income and expense records for self-employed persons,
9    letters from employers, and any other valid documentation
10    of income including data obtained electronically by the
11    Department or its designees from other sources as described
12    in subsection (b) of this Section. A month's income may be
13    verified by a single pay stub with the monthly income
14    extrapolated from the time period covered by the pay stub.
15    The Department shall send a notice to recipients at least
16    60 days prior to the end of their period of eligibility
17    that informs them of the requirements for continued
18    eligibility. Information the Department receives prior to
19    the annual review, including information available to the
20    Department as a result of the recipient's application for
21    other non-health care benefits, that is sufficient to make
22    a determination of continued eligibility for benefits
23    provided under this Act, the Children's Health Insurance
24    Program Act, or Article V of the Illinois Public Aid Code
25    may be reviewed and verified, and subsequent action taken
26    including client notification of continued eligibility for

 

 

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1    benefits provided under this Act, the Children's Health
2    Insurance Program Act, or Article V of the Illinois Public
3    Aid Code. The date of client notification establishes the
4    date for subsequent annual eligibility reviews. If a
5    recipient does not fulfill the requirements for continued
6    eligibility by the deadline established in the notice, a
7    notice of cancellation shall be issued to the recipient and
8    coverage shall end no later than the last day of the month
9    following the last day of the eligibility period. A
10    recipient's eligibility may be reinstated without
11    requiring a new application if the recipient fulfills the
12    requirements for continued eligibility prior to the end of
13    the third month following the last date of coverage (or
14    longer period if required by federal regulations). Nothing
15    in this Section shall prevent an individual whose coverage
16    has been cancelled from reapplying for health benefits at
17    any time.
18        (3) By July 1, 2011, require verification of Illinois
19    residency.
20    (b) The Department shall establish or continue cooperative
21arrangements with the Social Security Administration, the
22Illinois Secretary of State, the Department of Human Services,
23the Department of Revenue, the Department of Employment
24Security, and any other appropriate entity to gain electronic
25access, to the extent allowed by law, to information available
26to those entities that may be appropriate for electronically

 

 

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1verifying any factor of eligibility for benefits under the
2Program. Data relevant to eligibility shall be provided for no
3other purpose than to verify the eligibility of new applicants
4or current recipients of health benefits under the Program.
5Data will be requested or provided for any new applicant or
6current recipient only insofar as that individual's
7circumstances are relevant to that individual's or another
8individual's eligibility.
9    (c) Within 90 days of the effective date of this amendatory
10Act of the 96th General Assembly, the Department of Healthcare
11and Family Services shall send notice to current recipients
12informing them of the changes regarding their eligibility
13verification.
14(Source: P.A. 101-209, eff. 8-5-19.)
 
15    (215 ILCS 170/8 new)
16    Sec. 8. COVID-19 public health emergency. Notwithstanding
17any other provision of this Act, the Department may take
18necessary actions to address the COVID-19 public health
19emergency to the extent such actions are required, approved, or
20authorized by the United States Department of Health and Human
21Services, Centers for Medicare and Medicaid Services. Such
22actions may continue throughout the public health emergency and
23for up to 12 months after the period ends, and may include, but
24are not limited to: accepting an applicant's or recipient's
25attestation of income, incurred medical expenses, residency,

 

 

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1and insured status when electronic verification is not
2available; eliminating resource tests for some eligibility
3determinations; suspending redeterminations; suspending
4changes that would adversely affect an applicant's or
5recipient's eligibility; phone or verbal approval by an
6applicant to submit an application in lieu of applicant
7signature; allowing adult presumptive eligibility; allowing
8presumptive eligibility for children, pregnant women, and
9adults as often as twice per calendar year; paying for
10additional services delivered by telehealth; and suspending
11premium and co-payment requirements.
12    The Department's authority under this Section shall only
13extend to encompass, incorporate, or effectuate the terms,
14items, conditions, and other provisions approved, authorized,
15or required by the United States Department of Health and Human
16Services, Centers for Medicare and Medicaid Services, and shall
17not extend beyond the time of the COVID-19 public health
18emergency and up to 12 months after the period expires.
 
19    Section 90-30. The Pharmacy Practice Act is amended by
20adding Section 39.5 as follows:
 
21    (225 ILCS 85/39.5 new)
22    Sec. 39.5. Emergency kits.
23    (a) As used in this Section:
24    "Emergency kit" means a kit containing drugs that may be

 

 

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1required to meet the immediate therapeutic needs of a patient
2and that are not available from any other source in sufficient
3time to prevent the risk of harm to a patient by delay
4resulting from obtaining the drugs from another source. An
5automated dispensing and storage system may be used as an
6emergency kit.
7    "Licensed facility" means an entity licensed under the
8Nursing Home Care Act, the Hospital Licensing Act, or the
9University of Illinois Hospital Act or a facility licensed
10under the Illinois Department of Human Services, Division of
11Substance Use Prevention and Recovery, for the prevention,
12intervention, treatment, and recovery support of substance use
13disorders or certified by the Illinois Department of Human
14Services, Division of Mental Health for the treatment of mental
15health.
16    "Offsite institutional pharmacy" means: (1) a pharmacy
17that is not located in facilities it serves and whose primary
18purpose is to provide services to patients or residents of
19facilities licensed under the Nursing Home Care Act, the
20Hospital Licensing Act, or the University of Illinois Hospital
21Act; and (2) a pharmacy that is not located in the facilities
22it serves and the facilities it serves are licensed under the
23Illinois Department of Human Services, Division of Substance
24Use Prevention and Recovery, for the prevention, intervention,
25treatment, and recovery support of substance use disorders or
26for the treatment of mental health.

 

 

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1    (b) An offsite institutional pharmacy may supply emergency
2kits to a licensed facility.
 
3    Section 90-35. The Illinois Public Aid Code is amended by
4changing Sections 5-2, 5-4.2, 5-5e, 5-16.8, 5B-4, and 11-5.1
5and by adding Sections 5-1.5, 5-5.27 and 12-21.21 as follows:
 
6    (305 ILCS 5/5-1.5 new)
7    Sec. 5-1.5. COVID-19 public health emergency.
8Notwithstanding any other provision of Articles V, XI, and XII
9of this Code, the Department may take necessary actions to
10address the COVID-19 public health emergency to the extent such
11actions are required, approved, or authorized by the United
12States Department of Health and Human Services, Centers for
13Medicare and Medicaid Services. Such actions may continue
14throughout the public health emergency and for up to 12 months
15after the period ends, and may include, but are not limited to:
16accepting an applicant's or recipient's attestation of income,
17incurred medical expenses, residency, and insured status when
18electronic verification is not available; eliminating resource
19tests for some eligibility determinations; suspending
20redeterminations; suspending changes that would adversely
21affect an applicant's or recipient's eligibility; phone or
22verbal approval by an applicant to submit an application in
23lieu of applicant signature; allowing adult presumptive
24eligibility; allowing presumptive eligibility for children,

 

 

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1pregnant women, and adults as often as twice per calendar year;
2paying for additional services delivered by telehealth; and
3suspending premium and co-payment requirements.
4    The Department's authority under this Section shall only
5extend to encompass, incorporate, or effectuate the terms,
6items, conditions, and other provisions approved, authorized,
7or required by the United States Department of Health and Human
8Services, Centers for Medicare and Medicaid Services, and shall
9not extend beyond the time of the COVID-19 public health
10emergency and up to 12 months after the period expires.
 
11    (305 ILCS 5/5-2)  (from Ch. 23, par. 5-2)
12    Sec. 5-2. Classes of Persons Eligible.
13    Medical assistance under this Article shall be available to
14any of the following classes of persons in respect to whom a
15plan for coverage has been submitted to the Governor by the
16Illinois Department and approved by him. If changes made in
17this Section 5-2 require federal approval, they shall not take
18effect until such approval has been received:
19        1. Recipients of basic maintenance grants under
20    Articles III and IV.
21        2. Beginning January 1, 2014, persons otherwise
22    eligible for basic maintenance under Article III,
23    excluding any eligibility requirements that are
24    inconsistent with any federal law or federal regulation, as
25    interpreted by the U.S. Department of Health and Human

 

 

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1    Services, but who fail to qualify thereunder on the basis
2    of need, and who have insufficient income and resources to
3    meet the costs of necessary medical care, including but not
4    limited to the following:
5            (a) All persons otherwise eligible for basic
6        maintenance under Article III but who fail to qualify
7        under that Article on the basis of need and who meet
8        either of the following requirements:
9                (i) their income, as determined by the
10            Illinois Department in accordance with any federal
11            requirements, is equal to or less than 100% of the
12            federal poverty level; or
13                (ii) their income, after the deduction of
14            costs incurred for medical care and for other types
15            of remedial care, is equal to or less than 100% of
16            the federal poverty level.
17            (b) (Blank).
18        3. (Blank).
19        4. Persons not eligible under any of the preceding
20    paragraphs who fall sick, are injured, or die, not having
21    sufficient money, property or other resources to meet the
22    costs of necessary medical care or funeral and burial
23    expenses.
24        5.(a) Beginning January 1, 2020, women during
25    pregnancy and during the 12-month period beginning on the
26    last day of the pregnancy, together with their infants,

 

 

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1    whose income is at or below 200% of the federal poverty
2    level. Until September 30, 2019, or sooner if the
3    maintenance of effort requirements under the Patient
4    Protection and Affordable Care Act are eliminated or may be
5    waived before then, women during pregnancy and during the
6    12-month period beginning on the last day of the pregnancy,
7    whose countable monthly income, after the deduction of
8    costs incurred for medical care and for other types of
9    remedial care as specified in administrative rule, is equal
10    to or less than the Medical Assistance-No Grant(C)
11    (MANG(C)) Income Standard in effect on April 1, 2013 as set
12    forth in administrative rule.
13        (b) The plan for coverage shall provide ambulatory
14    prenatal care to pregnant women during a presumptive
15    eligibility period and establish an income eligibility
16    standard that is equal to 200% of the federal poverty
17    level, provided that costs incurred for medical care are
18    not taken into account in determining such income
19    eligibility.
20        (c) The Illinois Department may conduct a
21    demonstration in at least one county that will provide
22    medical assistance to pregnant women, together with their
23    infants and children up to one year of age, where the
24    income eligibility standard is set up to 185% of the
25    nonfarm income official poverty line, as defined by the
26    federal Office of Management and Budget. The Illinois

 

 

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1    Department shall seek and obtain necessary authorization
2    provided under federal law to implement such a
3    demonstration. Such demonstration may establish resource
4    standards that are not more restrictive than those
5    established under Article IV of this Code.
6        6. (a) Children younger than age 19 when countable
7    income is at or below 133% of the federal poverty level.
8    Until September 30, 2019, or sooner if the maintenance of
9    effort requirements under the Patient Protection and
10    Affordable Care Act are eliminated or may be waived before
11    then, children younger than age 19 whose countable monthly
12    income, after the deduction of costs incurred for medical
13    care and for other types of remedial care as specified in
14    administrative rule, is equal to or less than the Medical
15    Assistance-No Grant(C) (MANG(C)) Income Standard in effect
16    on April 1, 2013 as set forth in administrative rule.
17        (b) Children and youth who are under temporary custody
18    or guardianship of the Department of Children and Family
19    Services or who receive financial assistance in support of
20    an adoption or guardianship placement from the Department
21    of Children and Family Services.
22        7. (Blank).
23        8. As required under federal law, persons who are
24    eligible for Transitional Medical Assistance as a result of
25    an increase in earnings or child or spousal support
26    received. The plan for coverage for this class of persons

 

 

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1    shall:
2            (a) extend the medical assistance coverage to the
3        extent required by federal law; and
4            (b) offer persons who have initially received 6
5        months of the coverage provided in paragraph (a) above,
6        the option of receiving an additional 6 months of
7        coverage, subject to the following:
8                (i) such coverage shall be pursuant to
9            provisions of the federal Social Security Act;
10                (ii) such coverage shall include all services
11            covered under Illinois' State Medicaid Plan;
12                (iii) no premium shall be charged for such
13            coverage; and
14                (iv) such coverage shall be suspended in the
15            event of a person's failure without good cause to
16            file in a timely fashion reports required for this
17            coverage under the Social Security Act and
18            coverage shall be reinstated upon the filing of
19            such reports if the person remains otherwise
20            eligible.
21        9. Persons with acquired immunodeficiency syndrome
22    (AIDS) or with AIDS-related conditions with respect to whom
23    there has been a determination that but for home or
24    community-based services such individuals would require
25    the level of care provided in an inpatient hospital,
26    skilled nursing facility or intermediate care facility the

 

 

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1    cost of which is reimbursed under this Article. Assistance
2    shall be provided to such persons to the maximum extent
3    permitted under Title XIX of the Federal Social Security
4    Act.
5        10. Participants in the long-term care insurance
6    partnership program established under the Illinois
7    Long-Term Care Partnership Program Act who meet the
8    qualifications for protection of resources described in
9    Section 15 of that Act.
10        11. Persons with disabilities who are employed and
11    eligible for Medicaid, pursuant to Section
12    1902(a)(10)(A)(ii)(xv) of the Social Security Act, and,
13    subject to federal approval, persons with a medically
14    improved disability who are employed and eligible for
15    Medicaid pursuant to Section 1902(a)(10)(A)(ii)(xvi) of
16    the Social Security Act, as provided by the Illinois
17    Department by rule. In establishing eligibility standards
18    under this paragraph 11, the Department shall, subject to
19    federal approval:
20            (a) set the income eligibility standard at not
21        lower than 350% of the federal poverty level;
22            (b) exempt retirement accounts that the person
23        cannot access without penalty before the age of 59 1/2,
24        and medical savings accounts established pursuant to
25        26 U.S.C. 220;
26            (c) allow non-exempt assets up to $25,000 as to

 

 

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1        those assets accumulated during periods of eligibility
2        under this paragraph 11; and
3            (d) continue to apply subparagraphs (b) and (c) in
4        determining the eligibility of the person under this
5        Article even if the person loses eligibility under this
6        paragraph 11.
7        12. Subject to federal approval, persons who are
8    eligible for medical assistance coverage under applicable
9    provisions of the federal Social Security Act and the
10    federal Breast and Cervical Cancer Prevention and
11    Treatment Act of 2000. Those eligible persons are defined
12    to include, but not be limited to, the following persons:
13            (1) persons who have been screened for breast or
14        cervical cancer under the U.S. Centers for Disease
15        Control and Prevention Breast and Cervical Cancer
16        Program established under Title XV of the federal
17        Public Health Services Act in accordance with the
18        requirements of Section 1504 of that Act as
19        administered by the Illinois Department of Public
20        Health; and
21            (2) persons whose screenings under the above
22        program were funded in whole or in part by funds
23        appropriated to the Illinois Department of Public
24        Health for breast or cervical cancer screening.
25        "Medical assistance" under this paragraph 12 shall be
26    identical to the benefits provided under the State's

 

 

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1    approved plan under Title XIX of the Social Security Act.
2    The Department must request federal approval of the
3    coverage under this paragraph 12 within 30 days after the
4    effective date of this amendatory Act of the 92nd General
5    Assembly.
6        In addition to the persons who are eligible for medical
7    assistance pursuant to subparagraphs (1) and (2) of this
8    paragraph 12, and to be paid from funds appropriated to the
9    Department for its medical programs, any uninsured person
10    as defined by the Department in rules residing in Illinois
11    who is younger than 65 years of age, who has been screened
12    for breast and cervical cancer in accordance with standards
13    and procedures adopted by the Department of Public Health
14    for screening, and who is referred to the Department by the
15    Department of Public Health as being in need of treatment
16    for breast or cervical cancer is eligible for medical
17    assistance benefits that are consistent with the benefits
18    provided to those persons described in subparagraphs (1)
19    and (2). Medical assistance coverage for the persons who
20    are eligible under the preceding sentence is not dependent
21    on federal approval, but federal moneys may be used to pay
22    for services provided under that coverage upon federal
23    approval.
24        13. Subject to appropriation and to federal approval,
25    persons living with HIV/AIDS who are not otherwise eligible
26    under this Article and who qualify for services covered

 

 

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1    under Section 5-5.04 as provided by the Illinois Department
2    by rule.
3        14. Subject to the availability of funds for this
4    purpose, the Department may provide coverage under this
5    Article to persons who reside in Illinois who are not
6    eligible under any of the preceding paragraphs and who meet
7    the income guidelines of paragraph 2(a) of this Section and
8    (i) have an application for asylum pending before the
9    federal Department of Homeland Security or on appeal before
10    a court of competent jurisdiction and are represented
11    either by counsel or by an advocate accredited by the
12    federal Department of Homeland Security and employed by a
13    not-for-profit organization in regard to that application
14    or appeal, or (ii) are receiving services through a
15    federally funded torture treatment center. Medical
16    coverage under this paragraph 14 may be provided for up to
17    24 continuous months from the initial eligibility date so
18    long as an individual continues to satisfy the criteria of
19    this paragraph 14. If an individual has an appeal pending
20    regarding an application for asylum before the Department
21    of Homeland Security, eligibility under this paragraph 14
22    may be extended until a final decision is rendered on the
23    appeal. The Department may adopt rules governing the
24    implementation of this paragraph 14.
25        15. Family Care Eligibility.
26            (a) On and after July 1, 2012, a parent or other

 

 

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1        caretaker relative who is 19 years of age or older when
2        countable income is at or below 133% of the federal
3        poverty level. A person may not spend down to become
4        eligible under this paragraph 15.
5            (b) Eligibility shall be reviewed annually.
6            (c) (Blank).
7            (d) (Blank).
8            (e) (Blank).
9            (f) (Blank).
10            (g) (Blank).
11            (h) (Blank).
12            (i) Following termination of an individual's
13        coverage under this paragraph 15, the individual must
14        be determined eligible before the person can be
15        re-enrolled.
16        16. Subject to appropriation, uninsured persons who
17    are not otherwise eligible under this Section who have been
18    certified and referred by the Department of Public Health
19    as having been screened and found to need diagnostic
20    evaluation or treatment, or both diagnostic evaluation and
21    treatment, for prostate or testicular cancer. For the
22    purposes of this paragraph 16, uninsured persons are those
23    who do not have creditable coverage, as defined under the
24    Health Insurance Portability and Accountability Act, or
25    have otherwise exhausted any insurance benefits they may
26    have had, for prostate or testicular cancer diagnostic

 

 

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1    evaluation or treatment, or both diagnostic evaluation and
2    treatment. To be eligible, a person must furnish a Social
3    Security number. A person's assets are exempt from
4    consideration in determining eligibility under this
5    paragraph 16. Such persons shall be eligible for medical
6    assistance under this paragraph 16 for so long as they need
7    treatment for the cancer. A person shall be considered to
8    need treatment if, in the opinion of the person's treating
9    physician, the person requires therapy directed toward
10    cure or palliation of prostate or testicular cancer,
11    including recurrent metastatic cancer that is a known or
12    presumed complication of prostate or testicular cancer and
13    complications resulting from the treatment modalities
14    themselves. Persons who require only routine monitoring
15    services are not considered to need treatment. "Medical
16    assistance" under this paragraph 16 shall be identical to
17    the benefits provided under the State's approved plan under
18    Title XIX of the Social Security Act. Notwithstanding any
19    other provision of law, the Department (i) does not have a
20    claim against the estate of a deceased recipient of
21    services under this paragraph 16 and (ii) does not have a
22    lien against any homestead property or other legal or
23    equitable real property interest owned by a recipient of
24    services under this paragraph 16.
25        17. Persons who, pursuant to a waiver approved by the
26    Secretary of the U.S. Department of Health and Human

 

 

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1    Services, are eligible for medical assistance under Title
2    XIX or XXI of the federal Social Security Act.
3    Notwithstanding any other provision of this Code and
4    consistent with the terms of the approved waiver, the
5    Illinois Department, may by rule:
6            (a) Limit the geographic areas in which the waiver
7        program operates.
8            (b) Determine the scope, quantity, duration, and
9        quality, and the rate and method of reimbursement, of
10        the medical services to be provided, which may differ
11        from those for other classes of persons eligible for
12        assistance under this Article.
13            (c) Restrict the persons' freedom in choice of
14        providers.
15        18. Beginning January 1, 2014, persons aged 19 or
16    older, but younger than 65, who are not otherwise eligible
17    for medical assistance under this Section 5-2, who qualify
18    for medical assistance pursuant to 42 U.S.C.
19    1396a(a)(10)(A)(i)(VIII) and applicable federal
20    regulations, and who have income at or below 133% of the
21    federal poverty level plus 5% for the applicable family
22    size as determined pursuant to 42 U.S.C. 1396a(e)(14) and
23    applicable federal regulations. Persons eligible for
24    medical assistance under this paragraph 18 shall receive
25    coverage for the Health Benefits Service Package as that
26    term is defined in subsection (m) of Section 5-1.1 of this

 

 

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1    Code. If Illinois' federal medical assistance percentage
2    (FMAP) is reduced below 90% for persons eligible for
3    medical assistance under this paragraph 18, eligibility
4    under this paragraph 18 shall cease no later than the end
5    of the third month following the month in which the
6    reduction in FMAP takes effect.
7        19. Beginning January 1, 2014, as required under 42
8    U.S.C. 1396a(a)(10)(A)(i)(IX), persons older than age 18
9    and younger than age 26 who are not otherwise eligible for
10    medical assistance under paragraphs (1) through (17) of
11    this Section who (i) were in foster care under the
12    responsibility of the State on the date of attaining age 18
13    or on the date of attaining age 21 when a court has
14    continued wardship for good cause as provided in Section
15    2-31 of the Juvenile Court Act of 1987 and (ii) received
16    medical assistance under the Illinois Title XIX State Plan
17    or waiver of such plan while in foster care.
18        20. Beginning January 1, 2018, persons who are
19    foreign-born victims of human trafficking, torture, or
20    other serious crimes as defined in Section 2-19 of this
21    Code and their derivative family members if such persons:
22    (i) reside in Illinois; (ii) are not eligible under any of
23    the preceding paragraphs; (iii) meet the income guidelines
24    of subparagraph (a) of paragraph 2; and (iv) meet the
25    nonfinancial eligibility requirements of Sections 16-2,
26    16-3, and 16-5 of this Code. The Department may extend

 

 

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1    medical assistance for persons who are foreign-born
2    victims of human trafficking, torture, or other serious
3    crimes whose medical assistance would be terminated
4    pursuant to subsection (b) of Section 16-5 if the
5    Department determines that the person, during the year of
6    initial eligibility (1) experienced a health crisis, (2)
7    has been unable, after reasonable attempts, to obtain
8    necessary information from a third party, or (3) has other
9    extenuating circumstances that prevented the person from
10    completing his or her application for status. The
11    Department may adopt any rules necessary to implement the
12    provisions of this paragraph.
13        21. Persons who are not otherwise eligible for medical
14    assistance under this Section who may qualify for medical
15    assistance pursuant to 42 U.S.C.
16    1396a(a)(10)(A)(ii)(XXIII) and 42 U.S.C. 1396(ss) for the
17    duration of any federal or State declared emergency due to
18    COVID-19. Medical assistance to persons eligible for
19    medical assistance solely pursuant to this paragraph 21
20    shall be limited to any in vitro diagnostic product (and
21    the administration of such product) described in 42 U.S.C.
22    1396d(a)(3)(B) on or after March 18, 2020, any visit
23    described in 42 U.S.C. 1396o(a)(2)(G), or any other medical
24    assistance that may be federally authorized for this class
25    of persons. The Department may also cover treatment of
26    COVID-19 for this class of persons, or any similar category

 

 

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1    of uninsured individuals, to the extent authorized under a
2    federally approved 1115 Waiver or other federal authority.
3    Notwithstanding the provisions of Section 1-11 of this
4    Code, due to the nature of the COVID-19 public health
5    emergency, the Department may cover and provide the medical
6    assistance described in this paragraph 21 to noncitizens
7    who would otherwise meet the eligibility requirements for
8    the class of persons described in this paragraph 21 for the
9    duration of the State emergency period.
10    In implementing the provisions of Public Act 96-20, the
11Department is authorized to adopt only those rules necessary,
12including emergency rules. Nothing in Public Act 96-20 permits
13the Department to adopt rules or issue a decision that expands
14eligibility for the FamilyCare Program to a person whose income
15exceeds 185% of the Federal Poverty Level as determined from
16time to time by the U.S. Department of Health and Human
17Services, unless the Department is provided with express
18statutory authority.
19    The eligibility of any such person for medical assistance
20under this Article is not affected by the payment of any grant
21under the Senior Citizens and Persons with Disabilities
22Property Tax Relief Act or any distributions or items of income
23described under subparagraph (X) of paragraph (2) of subsection
24(a) of Section 203 of the Illinois Income Tax Act.
25    The Department shall by rule establish the amounts of
26assets to be disregarded in determining eligibility for medical

 

 

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1assistance, which shall at a minimum equal the amounts to be
2disregarded under the Federal Supplemental Security Income
3Program. The amount of assets of a single person to be
4disregarded shall not be less than $2,000, and the amount of
5assets of a married couple to be disregarded shall not be less
6than $3,000.
7    To the extent permitted under federal law, any person found
8guilty of a second violation of Article VIIIA shall be
9ineligible for medical assistance under this Article, as
10provided in Section 8A-8.
11    The eligibility of any person for medical assistance under
12this Article shall not be affected by the receipt by the person
13of donations or benefits from fundraisers held for the person
14in cases of serious illness, as long as neither the person nor
15members of the person's family have actual control over the
16donations or benefits or the disbursement of the donations or
17benefits.
18    Notwithstanding any other provision of this Code, if the
19United States Supreme Court holds Title II, Subtitle A, Section
202001(a) of Public Law 111-148 to be unconstitutional, or if a
21holding of Public Law 111-148 makes Medicaid eligibility
22allowed under Section 2001(a) inoperable, the State or a unit
23of local government shall be prohibited from enrolling
24individuals in the Medical Assistance Program as the result of
25federal approval of a State Medicaid waiver on or after the
26effective date of this amendatory Act of the 97th General

 

 

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1Assembly, and any individuals enrolled in the Medical
2Assistance Program pursuant to eligibility permitted as a
3result of such a State Medicaid waiver shall become immediately
4ineligible.
5    Notwithstanding any other provision of this Code, if an Act
6of Congress that becomes a Public Law eliminates Section
72001(a) of Public Law 111-148, the State or a unit of local
8government shall be prohibited from enrolling individuals in
9the Medical Assistance Program as the result of federal
10approval of a State Medicaid waiver on or after the effective
11date of this amendatory Act of the 97th General Assembly, and
12any individuals enrolled in the Medical Assistance Program
13pursuant to eligibility permitted as a result of such a State
14Medicaid waiver shall become immediately ineligible.
15    Effective October 1, 2013, the determination of
16eligibility of persons who qualify under paragraphs 5, 6, 8,
1715, 17, and 18 of this Section shall comply with the
18requirements of 42 U.S.C. 1396a(e)(14) and applicable federal
19regulations.
20    The Department of Healthcare and Family Services, the
21Department of Human Services, and the Illinois health insurance
22marketplace shall work cooperatively to assist persons who
23would otherwise lose health benefits as a result of changes
24made under this amendatory Act of the 98th General Assembly to
25transition to other health insurance coverage.
26(Source: P.A. 101-10, eff. 6-5-19.)
 

 

 

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1    (305 ILCS 5/5-4.2)  (from Ch. 23, par. 5-4.2)
2    Sec. 5-4.2. Ambulance services payments.
3    (a) For ambulance services provided to a recipient of aid
4under this Article on or after January 1, 1993, the Illinois
5Department shall reimburse ambulance service providers at
6rates calculated in accordance with this Section. It is the
7intent of the General Assembly to provide adequate
8reimbursement for ambulance services so as to ensure adequate
9access to services for recipients of aid under this Article and
10to provide appropriate incentives to ambulance service
11providers to provide services in an efficient and
12cost-effective manner. Thus, it is the intent of the General
13Assembly that the Illinois Department implement a
14reimbursement system for ambulance services that, to the extent
15practicable and subject to the availability of funds
16appropriated by the General Assembly for this purpose, is
17consistent with the payment principles of Medicare. To ensure
18uniformity between the payment principles of Medicare and
19Medicaid, the Illinois Department shall follow, to the extent
20necessary and practicable and subject to the availability of
21funds appropriated by the General Assembly for this purpose,
22the statutes, laws, regulations, policies, procedures,
23principles, definitions, guidelines, and manuals used to
24determine the amounts paid to ambulance service providers under
25Title XVIII of the Social Security Act (Medicare).

 

 

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1    (b) For ambulance services provided to a recipient of aid
2under this Article on or after January 1, 1996, the Illinois
3Department shall reimburse ambulance service providers based
4upon the actual distance traveled if a natural disaster,
5weather conditions, road repairs, or traffic congestion
6necessitates the use of a route other than the most direct
7route.
8    (c) For purposes of this Section, "ambulance services"
9includes medical transportation services provided by means of
10an ambulance, medi-car, service car, or taxi.
11    (c-1) For purposes of this Section, "ground ambulance
12service" means medical transportation services that are
13described as ground ambulance services by the Centers for
14Medicare and Medicaid Services and provided in a vehicle that
15is licensed as an ambulance by the Illinois Department of
16Public Health pursuant to the Emergency Medical Services (EMS)
17Systems Act.
18    (c-2) For purposes of this Section, "ground ambulance
19service provider" means a vehicle service provider as described
20in the Emergency Medical Services (EMS) Systems Act that
21operates licensed ambulances for the purpose of providing
22emergency ambulance services, or non-emergency ambulance
23services, or both. For purposes of this Section, this includes
24both ambulance providers and ambulance suppliers as described
25by the Centers for Medicare and Medicaid Services.
26    (c-3) For purposes of this Section, "medi-car" means

 

 

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1transportation services provided to a patient who is confined
2to a wheelchair and requires the use of a hydraulic or electric
3lift or ramp and wheelchair lockdown when the patient's
4condition does not require medical observation, medical
5supervision, medical equipment, the administration of
6medications, or the administration of oxygen.
7    (c-4) For purposes of this Section, "service car" means
8transportation services provided to a patient by a passenger
9vehicle where that patient does not require the specialized
10modes described in subsection (c-1) or (c-3).
11    (d) This Section does not prohibit separate billing by
12ambulance service providers for oxygen furnished while
13providing advanced life support services.
14    (e) Beginning with services rendered on or after July 1,
152008, all providers of non-emergency medi-car and service car
16transportation must certify that the driver and employee
17attendant, as applicable, have completed a safety program
18approved by the Department to protect both the patient and the
19driver, prior to transporting a patient. The provider must
20maintain this certification in its records. The provider shall
21produce such documentation upon demand by the Department or its
22representative. Failure to produce documentation of such
23training shall result in recovery of any payments made by the
24Department for services rendered by a non-certified driver or
25employee attendant. Medi-car and service car providers must
26maintain legible documentation in their records of the driver

 

 

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1and, as applicable, employee attendant that actually
2transported the patient. Providers must recertify all drivers
3and employee attendants every 3 years.
4    Notwithstanding the requirements above, any public
5transportation provider of medi-car and service car
6transportation that receives federal funding under 49 U.S.C.
75307 and 5311 need not certify its drivers and employee
8attendants under this Section, since safety training is already
9federally mandated.
10    (f) With respect to any policy or program administered by
11the Department or its agent regarding approval of non-emergency
12medical transportation by ground ambulance service providers,
13including, but not limited to, the Non-Emergency
14Transportation Services Prior Approval Program (NETSPAP), the
15Department shall establish by rule a process by which ground
16ambulance service providers of non-emergency medical
17transportation may appeal any decision by the Department or its
18agent for which no denial was received prior to the time of
19transport that either (i) denies a request for approval for
20payment of non-emergency transportation by means of ground
21ambulance service or (ii) grants a request for approval of
22non-emergency transportation by means of ground ambulance
23service at a level of service that entitles the ground
24ambulance service provider to a lower level of compensation
25from the Department than the ground ambulance service provider
26would have received as compensation for the level of service

 

 

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1requested. The rule shall be filed by December 15, 2012 and
2shall provide that, for any decision rendered by the Department
3or its agent on or after the date the rule takes effect, the
4ground ambulance service provider shall have 60 days from the
5date the decision is received to file an appeal. The rule
6established by the Department shall be, insofar as is
7practical, consistent with the Illinois Administrative
8Procedure Act. The Director's decision on an appeal under this
9Section shall be a final administrative decision subject to
10review under the Administrative Review Law.
11    (f-5) Beginning 90 days after July 20, 2012 (the effective
12date of Public Act 97-842), (i) no denial of a request for
13approval for payment of non-emergency transportation by means
14of ground ambulance service, and (ii) no approval of
15non-emergency transportation by means of ground ambulance
16service at a level of service that entitles the ground
17ambulance service provider to a lower level of compensation
18from the Department than would have been received at the level
19of service submitted by the ground ambulance service provider,
20may be issued by the Department or its agent unless the
21Department has submitted the criteria for determining the
22appropriateness of the transport for first notice publication
23in the Illinois Register pursuant to Section 5-40 of the
24Illinois Administrative Procedure Act.
25    (g) Whenever a patient covered by a medical assistance
26program under this Code or by another medical program

 

 

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1administered by the Department, including a patient covered
2under the State's Medicaid managed care program, is being
3transported from a facility and requires non-emergency
4transportation including ground ambulance, medi-car, or
5service car transportation, a Physician Certification
6Statement as described in this Section shall be required for
7each patient. Facilities shall develop procedures for a
8licensed medical professional to provide a written and signed
9Physician Certification Statement. The Physician Certification
10Statement shall specify the level of transportation services
11needed and complete a medical certification establishing the
12criteria for approval of non-emergency ambulance
13transportation, as published by the Department of Healthcare
14and Family Services, that is met by the patient. This
15certification shall be completed prior to ordering the
16transportation service and prior to patient discharge. The
17Physician Certification Statement is not required prior to
18transport if a delay in transport can be expected to negatively
19affect the patient outcome. If the ground ambulance provider,
20medi-car provider, or service car provider is unable to obtain
21the required Physician Certification Statement within 10
22calendar days following the date of the service, the ground
23ambulance provider, medi-car provider, or service car provider
24must document its attempt to obtain the requested certification
25and may then submit the claim for payment. Acceptable
26documentation includes a signed return receipt from the U.S.

 

 

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1Postal Service, facsimile receipt, email receipt, or other
2similar service that evidences that the ground ambulance
3provider, medi-car provider, or service car provider attempted
4to obtain the required Physician Certification Statement.
5    The medical certification specifying the level and type of
6non-emergency transportation needed shall be in the form of the
7Physician Certification Statement on a standardized form
8prescribed by the Department of Healthcare and Family Services.
9Within 75 days after July 27, 2018 (the effective date of
10Public Act 100-646), the Department of Healthcare and Family
11Services shall develop a standardized form of the Physician
12Certification Statement specifying the level and type of
13transportation services needed in consultation with the
14Department of Public Health, Medicaid managed care
15organizations, a statewide association representing ambulance
16providers, a statewide association representing hospitals, 3
17statewide associations representing nursing homes, and other
18stakeholders. The Physician Certification Statement shall
19include, but is not limited to, the criteria necessary to
20demonstrate medical necessity for the level of transport needed
21as required by (i) the Department of Healthcare and Family
22Services and (ii) the federal Centers for Medicare and Medicaid
23Services as outlined in the Centers for Medicare and Medicaid
24Services' Medicare Benefit Policy Manual, Pub. 100-02, Chap.
2510, Sec. 10.2.1, et seq. The use of the Physician Certification
26Statement shall satisfy the obligations of hospitals under

 

 

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1Section 6.22 of the Hospital Licensing Act and nursing homes
2under Section 2-217 of the Nursing Home Care Act.
3Implementation and acceptance of the Physician Certification
4Statement shall take place no later than 90 days after the
5issuance of the Physician Certification Statement by the
6Department of Healthcare and Family Services.
7    Pursuant to subsection (E) of Section 12-4.25 of this Code,
8the Department is entitled to recover overpayments paid to a
9provider or vendor, including, but not limited to, from the
10discharging physician, the discharging facility, and the
11ground ambulance service provider, in instances where a
12non-emergency ground ambulance service is rendered as the
13result of improper or false certification.
14    Beginning October 1, 2018, the Department of Healthcare and
15Family Services shall collect data from Medicaid managed care
16organizations and transportation brokers, including the
17Department's NETSPAP broker, regarding denials and appeals
18related to the missing or incomplete Physician Certification
19Statement forms and overall compliance with this subsection.
20The Department of Healthcare and Family Services shall publish
21quarterly results on its website within 15 days following the
22end of each quarter.
23    (h) On and after July 1, 2012, the Department shall reduce
24any rate of reimbursement for services or other payments or
25alter any methodologies authorized by this Code to reduce any
26rate of reimbursement for services or other payments in

 

 

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1accordance with Section 5-5e.
2    (i) On and after July 1, 2018, the Department shall
3increase the base rate of reimbursement for both base charges
4and mileage charges for ground ambulance service providers for
5medical transportation services provided by means of a ground
6ambulance to a level not lower than 112% of the base rate in
7effect as of June 30, 2018.
8(Source: P.A. 100-587, eff. 6-4-18; 100-646, eff. 7-27-18;
9101-81, eff. 7-12-19.)
 
10    (305 ILCS 5/5-5.27 new)
11    Sec. 5-5.27. Coverage for clinical trials.
12    (a) The medical assistance program shall provide coverage
13for routine care costs that are incurred in the course of an
14approved clinical trial if the medical assistance program would
15provide coverage for the same routine care costs not incurred
16in a clinical trial. "Routine care cost" shall be defined by
17the Department by rule.
18    (b) The coverage that must be provided under this Section
19is subject to the terms, conditions, restrictions, exclusions,
20and limitations that apply generally under the medical
21assistance program, including terms, conditions, restrictions,
22exclusions, or limitations that apply to health care services
23rendered by participating providers and nonparticipating
24providers.
25    (c) Implementation of this Section shall be contingent upon

 

 

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1federal approval. Upon receipt of federal approval, if
2required, the Department shall adopt any rules necessary to
3implement this Section.
4    (d) As used in this Section:
5    "Approved clinical trial" means a phase I, II, III, or IV
6clinical trial involving the prevention, detection, or
7treatment of cancer or any other life-threatening disease or
8condition if one or more of the following conditions apply:
9        (1) the Department makes a determination that the study
10    or investigation is an approved clinical trial;
11        (2) the study or investigation is conducted under an
12    investigational new drug application or an investigational
13    device exemption reviewed by the federal Food and Drug
14    Administration;
15        (3) the study or investigation is a drug trial that is
16    exempt from having an investigational new drug application
17    or an investigational device exemption from the federal
18    Food and Drug Administration; or
19        (4) the study or investigation is approved or funded
20    (which may include funding through in-kind contributions)
21    by:
22            (A) the National Institutes of Health;
23            (B) the Centers for Disease Control and
24        Prevention;
25            (C) the Agency for Healthcare Research and
26        Quality;

 

 

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1            (D) the Patient-Centered Outcomes Research
2        Institute;
3            (E) the federal Centers for Medicare and Medicaid
4        Services;
5            (F) a cooperative group or center of any of the
6        entities described in subparagraphs (A) through (E) or
7        the United States Department of Defense or the United
8        States Department of Veterans Affairs;
9            (G) a qualified non-governmental research entity
10        identified in the guidelines issued by the National
11        Institutes of Health for center support grants; or
12            (H) the United States Department of Veterans
13        Affairs, the United States Department of Defense, or
14        the United States Department of Energy, provided that
15        review and approval of the study or investigation
16        occurs through a system of peer review that is
17        comparable to the peer review of studies performed by
18        the National Institutes of Health, including an
19        unbiased review of the highest scientific standards by
20        qualified individuals who have no interest in the
21        outcome of the review.
22    "Care method" means the use of a particular drug or device
23in a particular manner.
24    "Life-threatening disease or condition" means a disease or
25condition from which the likelihood of death is probable unless
26the course of the disease or condition is interrupted.
 

 

 

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1    (305 ILCS 5/5-5e)
2    Sec. 5-5e. Adjusted rates of reimbursement.
3    (a) Rates or payments for services in effect on June 30,
42012 shall be adjusted and services shall be affected as
5required by any other provision of Public Act 97-689. In
6addition, the Department shall do the following:
7        (1) Delink the per diem rate paid for supportive living
8    facility services from the per diem rate paid for nursing
9    facility services, effective for services provided on or
10    after May 1, 2011 and before July 1, 2019.
11        (2) Cease payment for bed reserves in nursing
12    facilities and specialized mental health rehabilitation
13    facilities; for purposes of therapeutic home visits for
14    individuals scoring as TBI on the MDS 3.0, beginning June
15    1, 2015, the Department shall approve payments for bed
16    reserves in nursing facilities and specialized mental
17    health rehabilitation facilities that have at least a 90%
18    occupancy level and at least 80% of their residents are
19    Medicaid eligible. Payment shall be at a daily rate of 75%
20    of an individual's current Medicaid per diem and shall not
21    exceed 10 days in a calendar month.
22        (2.5) Cease payment for bed reserves for purposes of
23    inpatient hospitalizations to intermediate care facilities
24    for persons with developmental development disabilities,
25    except in the instance of residents who are under 21 years

 

 

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1    of age.
2        (3) Cease payment of the $10 per day add-on payment to
3    nursing facilities for certain residents with
4    developmental disabilities.
5    (b) After the application of subsection (a),
6notwithstanding any other provision of this Code to the
7contrary and to the extent permitted by federal law, on and
8after July 1, 2012, the rates of reimbursement for services and
9other payments provided under this Code shall further be
10reduced as follows:
11        (1) Rates or payments for physician services, dental
12    services, or community health center services reimbursed
13    through an encounter rate, and services provided under the
14    Medicaid Rehabilitation Option of the Illinois Title XIX
15    State Plan shall not be further reduced, except as provided
16    in Section 5-5b.1.
17        (2) Rates or payments, or the portion thereof, paid to
18    a provider that is operated by a unit of local government
19    or State University that provides the non-federal share of
20    such services shall not be further reduced, except as
21    provided in Section 5-5b.1.
22        (3) Rates or payments for hospital services delivered
23    by a hospital defined as a Safety-Net Hospital under
24    Section 5-5e.1 of this Code shall not be further reduced,
25    except as provided in Section 5-5b.1.
26        (4) Rates or payments for hospital services delivered

 

 

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1    by a Critical Access Hospital, which is an Illinois
2    hospital designated as a critical care hospital by the
3    Department of Public Health in accordance with 42 CFR 485,
4    Subpart F, shall not be further reduced, except as provided
5    in Section 5-5b.1.
6        (5) Rates or payments for Nursing Facility Services
7    shall only be further adjusted pursuant to Section 5-5.2 of
8    this Code.
9        (6) Rates or payments for services delivered by long
10    term care facilities licensed under the ID/DD Community
11    Care Act or the MC/DD Act and developmental training
12    services shall not be further reduced.
13        (7) Rates or payments for services provided under
14    capitation rates shall be adjusted taking into
15    consideration the rates reduction and covered services
16    required by Public Act 97-689.
17        (8) For hospitals not previously described in this
18    subsection, the rates or payments for hospital services
19    shall be further reduced by 3.5%, except for payments
20    authorized under Section 5A-12.4 of this Code.
21        (9) For all other rates or payments for services
22    delivered by providers not specifically referenced in
23    paragraphs (1) through (8), rates or payments shall be
24    further reduced by 2.7%.
25    (c) Any assessment imposed by this Code shall continue and
26nothing in this Section shall be construed to cause it to

 

 

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1cease.
2    (d) Notwithstanding any other provision of this Code to the
3contrary, subject to federal approval under Title XIX of the
4Social Security Act, for dates of service on and after July 1,
52014, rates or payments for services provided for the purpose
6of transitioning children from a hospital to home placement or
7other appropriate setting by a children's community-based
8health care center authorized under the Alternative Health Care
9Delivery Act shall be $683 per day.
10    (e) (Blank) Notwithstanding any other provision of this
11Code to the contrary, subject to federal approval under Title
12XIX of the Social Security Act, for dates of service on and
13after July 1, 2014, rates or payments for home health visits
14shall be $72.
15    (f) (Blank) Notwithstanding any other provision of this
16Code to the contrary, subject to federal approval under Title
17XIX of the Social Security Act, for dates of service on and
18after July 1, 2014, rates or payments for the certified nursing
19assistant component of the home health agency rate shall be
20$20.
21(Source: P.A. 101-10, eff. 6-5-19; revised 9-12-19.)
 
22    (305 ILCS 5/5-16.8)
23    Sec. 5-16.8. Required health benefits. The medical
24assistance program shall (i) provide the post-mastectomy care
25benefits required to be covered by a policy of accident and

 

 

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1health insurance under Section 356t and the coverage required
2under Sections 356g.5, 356u, 356w, 356x, 356z.6, 356z.26,
3356z.29, and 356z.32, and 356z.33, 356z.34, and 356z.35 of the
4Illinois Insurance Code and (ii) be subject to the provisions
5of Sections 356z.19, 364.01, 370c, and 370c.1 of the Illinois
6Insurance Code.
7    The Department, by rule, shall adopt a model similar to the
8requirements of Section 356z.39 of the Illinois Insurance Code.
9    On and after July 1, 2012, the Department shall reduce any
10rate of reimbursement for services or other payments or alter
11any methodologies authorized by this Code to reduce any rate of
12reimbursement for services or other payments in accordance with
13Section 5-5e.
14    To ensure full access to the benefits set forth in this
15Section, on and after January 1, 2016, the Department shall
16ensure that provider and hospital reimbursement for
17post-mastectomy care benefits required under this Section are
18no lower than the Medicare reimbursement rate.
19(Source: P.A. 100-138, eff. 8-18-17; 100-863, eff. 8-14-18;
20100-1057, eff. 1-1-19; 100-1102, eff. 1-1-19; 101-81, eff.
217-12-19; 101-218, eff. 1-1-20; 101-281, eff. 1-1-20; 101-371,
22eff. 1-1-20; 101-574, eff. 1-1-20; revised 10-16-19.)
 
23    (305 ILCS 5/5B-4)  (from Ch. 23, par. 5B-4)
24    Sec. 5B-4. Payment of assessment; penalty.
25    (a) The assessment imposed by Section 5B-2 shall be due and

 

 

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1payable monthly, on the last State business day of the month
2for occupied bed days reported for the preceding third month
3prior to the month in which the tax is payable and due. A
4facility that has delayed payment due to the State's failure to
5reimburse for services rendered may request an extension on the
6due date for payment pursuant to subsection (b) and shall pay
7the assessment within 30 days of reimbursement by the
8Department. The Illinois Department may provide that county
9nursing homes directed and maintained pursuant to Section
105-1005 of the Counties Code may meet their assessment
11obligation by certifying to the Illinois Department that county
12expenditures have been obligated for the operation of the
13county nursing home in an amount at least equal to the amount
14of the assessment.
15    (a-5) The Illinois Department shall provide for an
16electronic submission process for each long-term care facility
17to report at a minimum the number of occupied bed days of the
18long-term care facility for the reporting period and other
19reasonable information the Illinois Department requires for
20the administration of its responsibilities under this Code.
21Beginning July 1, 2013, a separate electronic submission shall
22be completed for each long-term care facility in this State
23operated by a long-term care provider. The Illinois Department
24shall provide a self-reporting notice of the assessment form
25that the long-term care facility completes for the required
26period and submits with its assessment payment to the Illinois

 

 

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1Department. shall prepare an assessment bill stating the amount
2due and payable each month and submit it to each long-term care
3facility via an electronic process. Each assessment payment
4shall be accompanied by a copy of the assessment bill sent to
5the long-term care facility by the Illinois Department. To the
6extent practicable, the Department shall coordinate the
7assessment reporting requirements with other reporting
8required of long-term care facilities.
9    (b) The Illinois Department is authorized to establish
10delayed payment schedules for long-term care providers that are
11unable to make assessment payments when due under this Section
12due to financial difficulties, as determined by the Illinois
13Department. The Illinois Department may not deny a request for
14delay of payment of the assessment imposed under this Article
15if the long-term care provider has not been paid for services
16provided during the month on which the assessment is levied or
17the Medicaid managed care organization has not been paid by the
18State.
19    (c) If a long-term care provider fails to pay the full
20amount of an assessment payment when due (including any
21extensions granted under subsection (b)), there shall, unless
22waived by the Illinois Department for reasonable cause, be
23added to the assessment imposed by Section 5B-2 a penalty
24assessment equal to the lesser of (i) 5% of the amount of the
25assessment payment not paid on or before the due date plus 5%
26of the portion thereof remaining unpaid on the last day of each

 

 

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1month thereafter or (ii) 100% of the assessment payment amount
2not paid on or before the due date. For purposes of this
3subsection, payments will be credited first to unpaid
4assessment payment amounts (rather than to penalty or
5interest), beginning with the most delinquent assessment
6payments. Payment cycles of longer than 60 days shall be one
7factor the Director takes into account in granting a waiver
8under this Section.
9    (c-5) If a long-term care facility fails to file its
10assessment bill with payment, there shall, unless waived by the
11Illinois Department for reasonable cause, be added to the
12assessment due a penalty assessment equal to 25% of the
13assessment due. After July 1, 2013, no penalty shall be
14assessed under this Section if the Illinois Department does not
15provide a process for the electronic submission of the
16information required by subsection (a-5).
17    (d) Nothing in this amendatory Act of 1993 shall be
18construed to prevent the Illinois Department from collecting
19all amounts due under this Article pursuant to an assessment
20imposed before the effective date of this amendatory Act of
211993.
22    (e) Nothing in this amendatory Act of the 96th General
23Assembly shall be construed to prevent the Illinois Department
24from collecting all amounts due under this Code pursuant to an
25assessment, tax, fee, or penalty imposed before the effective
26date of this amendatory Act of the 96th General Assembly.

 

 

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1    (f) No installment of the assessment imposed by Section
25B-2 shall be due and payable until after the Department
3notifies the long-term care providers, in writing, that the
4payment methodologies to long-term care providers required
5under Section 5-5.4 of this Code have been approved by the
6Centers for Medicare and Medicaid Services of the U.S.
7Department of Health and Human Services and the waivers under
842 CFR 433.68 for the assessment imposed by this Section, if
9necessary, have been granted by the Centers for Medicare and
10Medicaid Services of the U.S. Department of Health and Human
11Services. Upon notification to the Department of approval of
12the payment methodologies required under Section 5-5.4 of this
13Code and the waivers granted under 42 CFR 433.68, all
14installments otherwise due under Section 5B-4 prior to the date
15of notification shall be due and payable to the Department upon
16written direction from the Department within 90 days after
17issuance by the Comptroller of the payments required under
18Section 5-5.4 of this Code.
19(Source: P.A. 100-501, eff. 6-1-18.)
 
20    (305 ILCS 5/11-5.1)
21    Sec. 11-5.1. Eligibility verification. Notwithstanding any
22other provision of this Code, with respect to applications for
23medical assistance provided under Article V of this Code,
24eligibility shall be determined in a manner that ensures
25program integrity and complies with federal laws and

 

 

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1regulations while minimizing unnecessary barriers to
2enrollment. To this end, as soon as practicable, and unless the
3Department receives written denial from the federal
4government, this Section shall be implemented:
5    (a) The Department of Healthcare and Family Services or its
6designees shall:
7        (1) By no later than July 1, 2011, require verification
8    of, at a minimum, one month's income from all sources
9    required for determining the eligibility of applicants for
10    medical assistance under this Code. Such verification
11    shall take the form of pay stubs, business or income and
12    expense records for self-employed persons, letters from
13    employers, and any other valid documentation of income
14    including data obtained electronically by the Department
15    or its designees from other sources as described in
16    subsection (b) of this Section. A month's income may be
17    verified by a single pay stub with the monthly income
18    extrapolated from the time period covered by the pay stub.
19        (2) By no later than October 1, 2011, require
20    verification of, at a minimum, one month's income from all
21    sources required for determining the continued eligibility
22    of recipients at their annual review of eligibility for
23    medical assistance under this Code. Information the
24    Department receives prior to the annual review, including
25    information available to the Department as a result of the
26    recipient's application for other non-Medicaid benefits,

 

 

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1    that is sufficient to make a determination of continued
2    Medicaid eligibility may be reviewed and verified, and
3    subsequent action taken including client notification of
4    continued Medicaid eligibility. The date of client
5    notification establishes the date for subsequent annual
6    Medicaid eligibility reviews. Such verification shall take
7    the form of pay stubs, business or income and expense
8    records for self-employed persons, letters from employers,
9    and any other valid documentation of income including data
10    obtained electronically by the Department or its designees
11    from other sources as described in subsection (b) of this
12    Section. A month's income may be verified by a single pay
13    stub with the monthly income extrapolated from the time
14    period covered by the pay stub. The Department shall send a
15    notice to recipients at least 60 days prior to the end of
16    their period of eligibility that informs them of the
17    requirements for continued eligibility. If a recipient
18    does not fulfill the requirements for continued
19    eligibility by the deadline established in the notice a
20    notice of cancellation shall be issued to the recipient and
21    coverage shall end no later than the last day of the month
22    following the last day of the eligibility period. A
23    recipient's eligibility may be reinstated without
24    requiring a new application if the recipient fulfills the
25    requirements for continued eligibility prior to the end of
26    the third month following the last date of coverage (or

 

 

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1    longer period if required by federal regulations). Nothing
2    in this Section shall prevent an individual whose coverage
3    has been cancelled from reapplying for health benefits at
4    any time.
5        (3) By no later than July 1, 2011, require verification
6    of Illinois residency.
7    The Department, with federal approval, may choose to adopt
8continuous financial eligibility for a full 12 months for
9adults on Medicaid.
10    (b) The Department shall establish or continue cooperative
11arrangements with the Social Security Administration, the
12Illinois Secretary of State, the Department of Human Services,
13the Department of Revenue, the Department of Employment
14Security, and any other appropriate entity to gain electronic
15access, to the extent allowed by law, to information available
16to those entities that may be appropriate for electronically
17verifying any factor of eligibility for benefits under the
18Program. Data relevant to eligibility shall be provided for no
19other purpose than to verify the eligibility of new applicants
20or current recipients of health benefits under the Program.
21Data shall be requested or provided for any new applicant or
22current recipient only insofar as that individual's
23circumstances are relevant to that individual's or another
24individual's eligibility.
25    (c) Within 90 days of the effective date of this amendatory
26Act of the 96th General Assembly, the Department of Healthcare

 

 

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1and Family Services shall send notice to current recipients
2informing them of the changes regarding their eligibility
3verification.
4    (d) As soon as practical if the data is reasonably
5available, but no later than January 1, 2017, the Department
6shall compile on a monthly basis data on eligibility
7redeterminations of beneficiaries of medical assistance
8provided under Article V of this Code. This data shall be
9posted on the Department's website, and data from prior months
10shall be retained and available on the Department's website.
11The data compiled and reported shall include the following:
12        (1) The total number of redetermination decisions made
13    in a month and, of that total number, the number of
14    decisions to continue or change benefits and the number of
15    decisions to cancel benefits.
16        (2) A breakdown of enrollee language preference for the
17    total number of redetermination decisions made in a month
18    and, of that total number, a breakdown of enrollee language
19    preference for the number of decisions to continue or
20    change benefits, and a breakdown of enrollee language
21    preference for the number of decisions to cancel benefits.
22    The language breakdown shall include, at a minimum,
23    English, Spanish, and the next 4 most commonly used
24    languages.
25        (3) The percentage of cancellation decisions made in a
26    month due to each of the following:

 

 

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1            (A) The beneficiary's ineligibility due to excess
2        income.
3            (B) The beneficiary's ineligibility due to not
4        being an Illinois resident.
5            (C) The beneficiary's ineligibility due to being
6        deceased.
7            (D) The beneficiary's request to cancel benefits.
8            (E) The beneficiary's lack of response after
9        notices mailed to the beneficiary are returned to the
10        Department as undeliverable by the United States
11        Postal Service.
12            (F) The beneficiary's lack of response to a request
13        for additional information when reliable information
14        in the beneficiary's account, or other more current
15        information, is unavailable to the Department to make a
16        decision on whether to continue benefits.
17            (G) Other reasons tracked by the Department for the
18        purpose of ensuring program integrity.
19        (4) If a vendor is utilized to provide services in
20    support of the Department's redetermination decision
21    process, the total number of redetermination decisions
22    made in a month and, of that total number, the number of
23    decisions to continue or change benefits, and the number of
24    decisions to cancel benefits (i) with the involvement of
25    the vendor and (ii) without the involvement of the vendor.
26        (5) Of the total number of benefit cancellations in a

 

 

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1    month, the number of beneficiaries who return from
2    cancellation within one month, the number of beneficiaries
3    who return from cancellation within 2 months, and the
4    number of beneficiaries who return from cancellation
5    within 3 months. Of the number of beneficiaries who return
6    from cancellation within 3 months, the percentage of those
7    cancellations due to each of the reasons listed under
8    paragraph (3) of this subsection.
9    (e) The Department shall conduct a complete review of the
10Medicaid redetermination process in order to identify changes
11that can increase the use of ex parte redetermination
12processing. This review shall be completed within 90 days after
13the effective date of this amendatory Act of the 101st General
14Assembly. Within 90 days of completion of the review, the
15Department shall seek written federal approval of policy
16changes the review recommended and implement once approved. The
17review shall specifically include, but not be limited to, use
18of ex parte redeterminations of the following populations:
19        (1) Recipients of developmental disabilities services.
20        (2) Recipients of benefits under the State's Aid to the
21    Aged, Blind, or Disabled program.
22        (3) Recipients of Medicaid long-term care services and
23    supports, including waiver services.
24        (4) All Modified Adjusted Gross Income (MAGI)
25    populations.
26        (5) Populations with no verifiable income.

 

 

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1        (6) Self-employed people.
2    The report shall also outline populations and
3circumstances in which an ex parte redetermination is not a
4recommended option.
5    (f) The Department shall explore and implement, as
6practical and technologically possible, roles that
7stakeholders outside State agencies can play to assist in
8expediting eligibility determinations and redeterminations
9within 24 months after the effective date of this amendatory
10Act of the 101st General Assembly. Such practical roles to be
11explored to expedite the eligibility determination processes
12shall include the implementation of hospital presumptive
13eligibility, as authorized by the Patient Protection and
14Affordable Care Act.
15    (g) The Department or its designee shall seek federal
16approval to enhance the reasonable compatibility standard from
175% to 10%.
18    (h) Reporting. The Department of Healthcare and Family
19Services and the Department of Human Services shall publish
20quarterly reports on their progress in implementing policies
21and practices pursuant to this Section as modified by this
22amendatory Act of the 101st General Assembly.
23        (1) The reports shall include, but not be limited to,
24    the following:
25            (A) Medical application processing, including a
26        breakdown of the number of MAGI, non-MAGI, long-term

 

 

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1        care, and other medical cases pending for various
2        incremental time frames between 0 to 181 or more days.
3            (B) Medical redeterminations completed, including:
4        (i) a breakdown of the number of households that were
5        redetermined ex parte and those that were not; (ii) the
6        reasons households were not redetermined ex parte; and
7        (iii) the relative percentages of these reasons.
8            (C) A narrative discussion on issues identified in
9        the functioning of the State's Integrated Eligibility
10        System and progress on addressing those issues, as well
11        as progress on implementing strategies to address
12        eligibility backlogs, including expanding ex parte
13        determinations to ensure timely eligibility
14        determinations and renewals.
15        (2) Initial reports shall be issued within 90 days
16    after the effective date of this amendatory Act of the
17    101st General Assembly.
18        (3) All reports shall be published on the Department's
19    website.
20(Source: P.A. 101-209, eff. 8-5-19.)
 
21    (305 ILCS 5/12-21.21 new)
22    Sec. 12-21.21. Federal waiver or State Plan amendment. The
23Department of Healthcare and Family Services and the Department
24of Human Services shall jointly submit the necessary
25application to the federal Centers for Medicare and Medicaid

 

 

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1Services for a waiver or State Plan amendment to allow remote
2monitoring and support services as a waiver-reimbursable
3service for persons with intellectual and developmental
4disabilities. The application shall be submitted no later than
5January 1, 2021.
6    No later than July 1, 2021, the Department of Human
7Services shall adopt rules to allow remote monitoring and
8support services at community-integrated living arrangements.
 
9    Section 90-40. The Medical Patient Rights Act is amended by
10changing Section 3 as follows:
 
11    (410 ILCS 50/3)  (from Ch. 111 1/2, par. 5403)
12    Sec. 3. The following rights are hereby established:
13    (a) The right of each patient to care consistent with sound
14nursing and medical practices, to be informed of the name of
15the physician responsible for coordinating his or her care, to
16receive information concerning his or her condition and
17proposed treatment, to refuse any treatment to the extent
18permitted by law, and to privacy and confidentiality of records
19except as otherwise provided by law.
20    (b) The right of each patient, regardless of source of
21payment, to examine and receive a reasonable explanation of his
22total bill for services rendered by his physician or health
23care provider, including the itemized charges for specific
24services received. Each physician or health care provider shall

 

 

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1be responsible only for a reasonable explanation of those
2specific services provided by such physician or health care
3provider.
4    (c) In the event an insurance company or health services
5corporation cancels or refuses to renew an individual policy or
6plan, the insured patient shall be entitled to timely, prior
7notice of the termination of such policy or plan.
8    An insurance company or health services corporation that
9requires any insured patient or applicant for new or continued
10insurance or coverage to be tested for infection with human
11immunodeficiency virus (HIV) or any other identified causative
12agent of acquired immunodeficiency syndrome (AIDS) shall (1)
13give the patient or applicant prior written notice of such
14requirement, (2) proceed with such testing only upon the
15written authorization of the applicant or patient, and (3) keep
16the results of such testing confidential. Notice of an adverse
17underwriting or coverage decision may be given to any
18appropriately interested party, but the insurer may only
19disclose the test result itself to a physician designated by
20the applicant or patient, and any such disclosure shall be in a
21manner that assures confidentiality.
22    The Department of Insurance shall enforce the provisions of
23this subsection.
24    (d) The right of each patient to privacy and
25confidentiality in health care. Each physician, health care
26provider, health services corporation and insurance company

 

 

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1shall refrain from disclosing the nature or details of services
2provided to patients, except that such information may be
3disclosed: (1) to the patient, (2) to the party making
4treatment decisions if the patient is incapable of making
5decisions regarding the health services provided, (3) for
6treatment in accordance with 45 CFR 164.501 and 164.506, (4)
7for payment in accordance with 45 CFR 164.501 and 164.506, (5)
8to those parties responsible for peer review, utilization
9review, and quality assurance, (6) for health care operations
10in accordance with 45 CFR 164.501 and 164.506, (7) to those
11parties required to be notified under the Abused and Neglected
12Child Reporting Act or the Illinois Sexually Transmissible
13Disease Control Act, or (8) as otherwise permitted, authorized,
14or required by State or federal law. This right may be waived
15in writing by the patient or the patient's guardian or legal
16representative, but a physician or other health care provider
17may not condition the provision of services on the patient's,
18guardian's, or legal representative's agreement to sign such a
19waiver. In the interest of public health, safety, and welfare,
20patient information, including, but not limited to, health
21information, demographic information, and information about
22the services provided to patients, may be transmitted to or
23through a health information exchange, as that term is defined
24in Section 2 of the Mental Health and Developmental
25Disabilities Confidentiality Act, in accordance with the
26disclosures permitted pursuant to this Section. Patients shall

 

 

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1be provided the opportunity to opt out of their health
2information being transmitted to or through a health
3information exchange in accordance with the regulations,
4standards, or contractual obligations adopted by the Illinois
5Health Information Exchange Office Authority in accordance
6with Section 9.6 of the Mental Health and Developmental
7Disabilities Confidentiality Act, Section 9.6 of the AIDS
8Confidentiality Act, or Section 31.8 of the Genetic Information
9Privacy Act, as applicable. In the case of a patient choosing
10to opt out of having his or her information available on an
11HIE, nothing in this Act shall cause the physician or health
12care provider to be liable for the release of a patient's
13health information by other entities that may possess such
14information, including, but not limited to, other health
15professionals, providers, laboratories, pharmacies, hospitals,
16ambulatory surgical centers, and nursing homes.
17(Source: P.A. 98-1046, eff. 1-1-15.)
 
18    Section 90-45. The Genetic Information Privacy Act is
19amended by changing Section 10 as follows:
 
20    (410 ILCS 513/10)
21    Sec. 10. Definitions. As used in this Act:
22    "Office Authority" means the Illinois Health Information
23Exchange Office Authority established pursuant to the Illinois
24Health Information Exchange and Technology Act.

 

 

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1    "Business associate" has the meaning ascribed to it under
2HIPAA, as specified in 45 CFR 160.103.
3    "Covered entity" has the meaning ascribed to it under
4HIPAA, as specified in 45 CFR 160.103.
5    "De-identified information" means health information that
6is not individually identifiable as described under HIPAA, as
7specified in 45 CFR 164.514(b).
8    "Disclosure" has the meaning ascribed to it under HIPAA, as
9specified in 45 CFR 160.103.
10    "Employer" means the State of Illinois, any unit of local
11government, and any board, commission, department,
12institution, or school district, any party to a public
13contract, any joint apprenticeship or training committee
14within the State, and every other person employing employees
15within the State.
16    "Employment agency" means both public and private
17employment agencies and any person, labor organization, or
18labor union having a hiring hall or hiring office regularly
19undertaking, with or without compensation, to procure
20opportunities to work, or to procure, recruit, refer, or place
21employees.
22    "Family member" means, with respect to an individual, (i)
23the spouse of the individual; (ii) a dependent child of the
24individual, including a child who is born to or placed for
25adoption with the individual; (iii) any other person qualifying
26as a covered dependent under a managed care plan; and (iv) all

 

 

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1other individuals related by blood or law to the individual or
2the spouse or child described in subsections (i) through (iii)
3of this definition.
4    "Genetic information" has the meaning ascribed to it under
5HIPAA, as specified in 45 CFR 160.103.
6    "Genetic monitoring" means the periodic examination of
7employees to evaluate acquired modifications to their genetic
8material, such as chromosomal damage or evidence of increased
9occurrence of mutations that may have developed in the course
10of employment due to exposure to toxic substances in the
11workplace in order to identify, evaluate, and respond to
12effects of or control adverse environmental exposures in the
13workplace.
14    "Genetic services" has the meaning ascribed to it under
15HIPAA, as specified in 45 CFR 160.103.
16    "Genetic testing" and "genetic test" have the meaning
17ascribed to "genetic test" under HIPAA, as specified in 45 CFR
18160.103. "Genetic testing" includes direct-to-consumer
19commercial genetic testing.
20    "Health care operations" has the meaning ascribed to it
21under HIPAA, as specified in 45 CFR 164.501.
22    "Health care professional" means (i) a licensed physician,
23(ii) a licensed physician assistant, (iii) a licensed advanced
24practice registered nurse, (iv) a licensed dentist, (v) a
25licensed podiatrist, (vi) a licensed genetic counselor, or
26(vii) an individual certified to provide genetic testing by a

 

 

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1state or local public health department.
2    "Health care provider" has the meaning ascribed to it under
3HIPAA, as specified in 45 CFR 160.103.
4    "Health facility" means a hospital, blood bank, blood
5center, sperm bank, or other health care institution, including
6any "health facility" as that term is defined in the Illinois
7Finance Authority Act.
8    "Health information exchange" or "HIE" means a health
9information exchange or health information organization that
10exchanges health information electronically that (i) is
11established pursuant to the Illinois Health Information
12Exchange and Technology Act, or any subsequent amendments
13thereto, and any administrative rules promulgated thereunder;
14(ii) has established a data sharing arrangement with the Office
15Authority; or (iii) as of August 16, 2013, was designated by
16the Illinois Health Information Exchange Authority (now
17Office) Board as a member of, or was represented on, the
18Authority Board's Regional Health Information Exchange
19Workgroup; provided that such designation shall not require the
20establishment of a data sharing arrangement or other
21participation with the Illinois Health Information Exchange or
22the payment of any fee. In certain circumstances, in accordance
23with HIPAA, an HIE will be a business associate.
24    "Health oversight agency" has the meaning ascribed to it
25under HIPAA, as specified in 45 CFR 164.501.
26    "HIPAA" means the Health Insurance Portability and

 

 

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1Accountability Act of 1996, Public Law 104-191, as amended by
2the Health Information Technology for Economic and Clinical
3Health Act of 2009, Public Law 111-05, and any subsequent
4amendments thereto and any regulations promulgated thereunder.
5    "Insurer" means (i) an entity that is subject to the
6jurisdiction of the Director of Insurance and (ii) a managed
7care plan.
8    "Labor organization" includes any organization, labor
9union, craft union, or any voluntary unincorporated
10association designed to further the cause of the rights of
11union labor that is constituted for the purpose, in whole or in
12part, of collective bargaining or of dealing with employers
13concerning grievances, terms or conditions of employment, or
14apprenticeships or applications for apprenticeships, or of
15other mutual aid or protection in connection with employment,
16including apprenticeships or applications for apprenticeships.
17    "Licensing agency" means a board, commission, committee,
18council, department, or officers, except a judicial officer, in
19this State or any political subdivision authorized to grant,
20deny, renew, revoke, suspend, annul, withdraw, or amend a
21license or certificate of registration.
22    "Limited data set" has the meaning ascribed to it under
23HIPAA, as described in 45 CFR 164.514(e)(2).
24    "Managed care plan" means a plan that establishes,
25operates, or maintains a network of health care providers that
26have entered into agreements with the plan to provide health

 

 

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1care services to enrollees where the plan has the ultimate and
2direct contractual obligation to the enrollee to arrange for
3the provision of or pay for services through:
4        (1) organizational arrangements for ongoing quality
5    assurance, utilization review programs, or dispute
6    resolution; or
7        (2) financial incentives for persons enrolled in the
8    plan to use the participating providers and procedures
9    covered by the plan.
10    A managed care plan may be established or operated by any
11entity including a licensed insurance company, hospital or
12medical service plan, health maintenance organization, limited
13health service organization, preferred provider organization,
14third party administrator, or an employer or employee
15organization.
16    "Minimum necessary" means HIPAA's standard for using,
17disclosing, and requesting protected health information found
18in 45 CFR 164.502(b) and 164.514(d).
19    "Nontherapeutic purpose" means a purpose that is not
20intended to improve or preserve the life or health of the
21individual whom the information concerns.
22    "Organized health care arrangement" has the meaning
23ascribed to it under HIPAA, as specified in 45 CFR 160.103.
24    "Patient safety activities" has the meaning ascribed to it
25under 42 CFR 3.20.
26    "Payment" has the meaning ascribed to it under HIPAA, as

 

 

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1specified in 45 CFR 164.501.
2    "Person" includes any natural person, partnership,
3association, joint venture, trust, governmental entity, public
4or private corporation, health facility, or other legal entity.
5    "Protected health information" has the meaning ascribed to
6it under HIPAA, as specified in 45 CFR 164.103.
7    "Research" has the meaning ascribed to it under HIPAA, as
8specified in 45 CFR 164.501.
9    "State agency" means an instrumentality of the State of
10Illinois and any instrumentality of another state which
11pursuant to applicable law or a written undertaking with an
12instrumentality of the State of Illinois is bound to protect
13the privacy of genetic information of Illinois persons.
14    "Treatment" has the meaning ascribed to it under HIPAA, as
15specified in 45 CFR 164.501.
16    "Use" has the meaning ascribed to it under HIPAA, as
17specified in 45 CFR 160.103, where context dictates.
18(Source: P.A. 100-513, eff. 1-1-18; 101-132, eff. 1-1-20.)
 
19    Section 90-50. The Mental Health and Developmental
20Disabilities Confidentiality Act is amended by changing
21Sections 2, 9.5, 9.6, 9.8, 9.9, and 9.11 as follows:
 
22    (740 ILCS 110/2)  (from Ch. 91 1/2, par. 802)
23    Sec. 2. The terms used in this Act, unless the context
24requires otherwise, have the meanings ascribed to them in this

 

 

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1Section.
2    "Agent" means a person who has been legally appointed as an
3individual's agent under a power of attorney for health care or
4for property.
5    "Business associate" has the meaning ascribed to it under
6HIPAA, as specified in 45 CFR 160.103.
7    "Confidential communication" or "communication" means any
8communication made by a recipient or other person to a
9therapist or to or in the presence of other persons during or
10in connection with providing mental health or developmental
11disability services to a recipient. Communication includes
12information which indicates that a person is a recipient.
13"Communication" does not include information that has been
14de-identified in accordance with HIPAA, as specified in 45 CFR
15164.514.
16    "Covered entity" has the meaning ascribed to it under
17HIPAA, as specified in 45 CFR 160.103.
18    "Guardian" means a legally appointed guardian or
19conservator of the person.
20    "Health information exchange" or "HIE" means a health
21information exchange or health information organization that
22oversees and governs the electronic exchange of health
23information that (i) is established pursuant to the Illinois
24Health Information Exchange and Technology Act, or any
25subsequent amendments thereto, and any administrative rules
26promulgated thereunder; or (ii) has established a data sharing

 

 

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1arrangement with the Illinois Health Information Exchange; or
2(iii) as of the effective date of this amendatory Act of the
398th General Assembly, was designated by the Illinois Health
4Information Exchange Office Authority Board as a member of, or
5was represented on, the Office Authority Board's Regional
6Health Information Exchange Workgroup; provided that such
7designation shall not require the establishment of a data
8sharing arrangement or other participation with the Illinois
9Health Information Exchange or the payment of any fee.
10    "HIE purposes" means those uses and disclosures (as those
11terms are defined under HIPAA, as specified in 45 CFR 160.103)
12for activities of an HIE: (i) set forth in the Illinois Health
13Information Exchange and Technology Act or any subsequent
14amendments thereto and any administrative rules promulgated
15thereunder; or (ii) which are permitted under federal law.
16    "HIPAA" means the Health Insurance Portability and
17Accountability Act of 1996, Public Law 104-191, and any
18subsequent amendments thereto and any regulations promulgated
19thereunder, including the Security Rule, as specified in 45 CFR
20164.302-18, and the Privacy Rule, as specified in 45 CFR
21164.500-34.
22    "Integrated health system" means an organization with a
23system of care which incorporates physical and behavioral
24healthcare and includes care delivered in an inpatient and
25outpatient setting.
26    "Interdisciplinary team" means a group of persons

 

 

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1representing different clinical disciplines, such as medicine,
2nursing, social work, and psychology, providing and
3coordinating the care and treatment for a recipient of mental
4health or developmental disability services. The group may be
5composed of individuals employed by one provider or multiple
6providers.
7    "Mental health or developmental disabilities services" or
8"services" includes but is not limited to examination,
9diagnosis, evaluation, treatment, training, pharmaceuticals,
10aftercare, habilitation or rehabilitation.
11    "Personal notes" means:
12        (i) information disclosed to the therapist in
13    confidence by other persons on condition that such
14    information would never be disclosed to the recipient or
15    other persons;
16        (ii) information disclosed to the therapist by the
17    recipient which would be injurious to the recipient's
18    relationships to other persons, and
19        (iii) the therapist's speculations, impressions,
20    hunches, and reminders.
21    "Parent" means a parent or, in the absence of a parent or
22guardian, a person in loco parentis.
23    "Recipient" means a person who is receiving or has received
24mental health or developmental disabilities services.
25    "Record" means any record kept by a therapist or by an
26agency in the course of providing mental health or

 

 

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1developmental disabilities service to a recipient concerning
2the recipient and the services provided. "Records" includes all
3records maintained by a court that have been created in
4connection with, in preparation for, or as a result of the
5filing of any petition or certificate under Chapter II, Chapter
6III, or Chapter IV of the Mental Health and Developmental
7Disabilities Code and includes the petitions, certificates,
8dispositional reports, treatment plans, and reports of
9diagnostic evaluations and of hearings under Article VIII of
10Chapter III or under Article V of Chapter IV of that Code.
11Record does not include the therapist's personal notes, if such
12notes are kept in the therapist's sole possession for his own
13personal use and are not disclosed to any other person, except
14the therapist's supervisor, consulting therapist or attorney.
15If at any time such notes are disclosed, they shall be
16considered part of the recipient's record for purposes of this
17Act. "Record" does not include information that has been
18de-identified in accordance with HIPAA, as specified in 45 CFR
19164.514. "Record" does not include a reference to the receipt
20of mental health or developmental disabilities services noted
21during a patient history and physical or other summary of care.
22    "Record custodian" means a person responsible for
23maintaining a recipient's record.
24    "Therapist" means a psychiatrist, physician, psychologist,
25social worker, or nurse providing mental health or
26developmental disabilities services or any other person not

 

 

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1prohibited by law from providing such services or from holding
2himself out as a therapist if the recipient reasonably believes
3that such person is permitted to do so. Therapist includes any
4successor of the therapist.
5    "Therapeutic relationship" means the receipt by a
6recipient of mental health or developmental disabilities
7services from a therapist. "Therapeutic relationship" does not
8include independent evaluations for a purpose other than the
9provision of mental health or developmental disabilities
10services.
11(Source: P.A. 98-378, eff. 8-16-13; 99-28, eff. 1-1-16.)
 
12    (740 ILCS 110/9.5)
13    Sec. 9.5. Use and disclosure of information to an HIE.
14    (a) An HIE, person, therapist, facility, agency,
15interdisciplinary team, integrated health system, business
16associate, or covered entity may, without a recipient's
17consent, use or disclose information from a recipient's record
18in connection with an HIE, including disclosure to the Illinois
19Health Information Exchange Office Authority, an HIE, or the
20business associate of either. An HIE and its business associate
21may, without a recipient's consent, use or disclose and
22re-disclose such information for HIE purposes or for such other
23purposes as are specifically allowed under this Act.
24    (b) As used in this Section:
25        (1) "facility" means a developmental disability

 

 

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1    facility as defined in Section 1-107 of the Mental Health
2    and Developmental Disabilities Code or a mental health
3    facility as defined in Section 1-114 of the Mental Health
4    and Developmental Disabilities Code; and
5        (2) the terms "disclosure" and "use" have the meanings
6    ascribed to them under HIPAA, as specified in 45 CFR
7    160.103.
8(Source: P.A. 98-378, eff. 8-16-13.)
 
9    (740 ILCS 110/9.6)
10    Sec. 9.6. HIE opt-out. The Illinois Health Information
11Exchange Office Authority shall, through appropriate rules,
12standards, or contractual obligations, which shall be binding
13upon any HIE, as defined under Section 2, require that
14participants of such HIE provide each recipient whose record is
15accessible through the health information exchange the
16reasonable opportunity to expressly decline the further
17disclosure of the record by the health information exchange to
18third parties, except to the extent permitted by law such as
19for purposes of public health reporting. These rules,
20standards, or contractual obligations shall permit a recipient
21to revoke a prior decision to opt-out or a decision not to
22opt-out. These rules, standards, or contractual obligations
23shall provide for written notice of a recipient's right to
24opt-out which directs the recipient to a health information
25exchange website containing (i) an explanation of the purposes

 

 

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1of the health information exchange; and (ii) audio, visual, and
2written instructions on how to opt-out of participation in
3whole or in part to the extent possible. These rules,
4standards, or contractual obligations shall be reviewed
5annually and updated as the technical options develop. The
6recipient shall be provided meaningful disclosure regarding
7the health information exchange, and the recipient's decision
8whether to opt-out should be obtained without undue inducement
9or any element of force, fraud, deceit, duress, or other form
10of constraint or coercion. To the extent that HIPAA, as
11specified in 45 CFR 164.508(b)(4), prohibits a covered entity
12from conditioning the provision of its services upon an
13individual's provision of an authorization, an HIE participant
14shall not condition the provision of its services upon a
15recipient's decision to opt-out of further disclosure of the
16record by an HIE to third parties. The Illinois Health
17Information Exchange Office Authority shall, through
18appropriate rules, standards, or contractual obligations,
19which shall be binding upon any HIE, as defined under Section
202, give consideration to the format and content of the
21meaningful disclosure and the availability to recipients of
22information regarding an HIE and the rights of recipients under
23this Section to expressly decline the further disclosure of the
24record by an HIE to third parties. The Illinois Health
25Information Exchange Office Authority shall also give annual
26consideration to enable a recipient to expressly decline the

 

 

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1further disclosure by an HIE to third parties of selected
2portions of the recipient's record while permitting disclosure
3of the recipient's remaining patient health information. In
4establishing rules, standards, or contractual obligations
5binding upon HIEs under this Section to give effect to
6recipient disclosure preferences, the Illinois Health
7Information Exchange Office Authority in its discretion may
8consider the extent to which relevant health information
9technologies reasonably available to therapists and HIEs in
10this State reasonably enable the effective segmentation of
11specific information within a recipient's electronic medical
12record and reasonably enable the effective exclusion of
13specific information from disclosure by an HIE to third
14parties, as well as the availability of sufficient
15authoritative clinical guidance to enable the practical
16application of such technologies to effect recipient
17disclosure preferences. The provisions of this Section 9.6
18shall not apply to the secure electronic transmission of data
19which is point-to-point communication directed by the data
20custodian. Any rules or standards promulgated under this
21Section which apply to HIEs shall be limited to that subject
22matter required by this Section and shall not include any
23requirement that an HIE enter a data sharing arrangement or
24otherwise participate with the Illinois Health Information
25Exchange. In connection with its annual consideration
26regarding the issue of segmentation of information within a

 

 

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1medical record and prior to the adoption of any rules or
2standards regarding that issue, the Office Authority Board
3shall consider information provided by affected persons or
4organizations regarding the feasibility, availability, cost,
5reliability, and interoperability of any technology or process
6under consideration by the Board. Nothing in this Act shall be
7construed to limit the authority of the Illinois Health
8Information Exchange Office Authority to impose limits or
9conditions on consent for disclosures to or through any HIE, as
10defined under Section 2, which are more restrictive than the
11requirements under this Act or under HIPAA.
12(Source: P.A. 98-378, eff. 8-16-13.)
 
13    (740 ILCS 110/9.8)
14    Sec. 9.8. Business associates. An HIE, person, therapist,
15facility, agency, interdisciplinary team, integrated health
16system, business associate, covered entity, the Illinois
17Health Information Exchange Office Authority, or entity
18facilitating the establishment or operation of an HIE may,
19without a recipient's consent, utilize the services of and
20disclose information from a recipient's record to a business
21associate, as defined by and in accordance with the
22requirements set forth under HIPAA. As used in this Section,
23the term "disclosure" has the meaning ascribed to it by HIPAA,
24as specified in 45 CFR 160.103.
25(Source: P.A. 98-378, eff. 8-16-13.)
 

 

 

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1    (740 ILCS 110/9.9)
2    Sec. 9.9. Record locator service.
3    (a) An HIE, person, therapist, facility, agency,
4interdisciplinary team, integrated health system, business
5associate, covered entity, the Illinois Health Information
6Exchange Office Authority, or entity facilitating the
7establishment or operation of an HIE may, without a recipient's
8consent, disclose the existence of a recipient's record to a
9record locator service, master patient index, or other
10directory or services necessary to support and enable the
11establishment and operation of an HIE.
12    (b) As used in this Section:
13        (1) the term "disclosure" has the meaning ascribed to
14    it under HIPAA, as specified in 45 CFR 160.103; and
15        (2) "facility" means a developmental disability
16    facility as defined in Section 1-107 of the Mental Health
17    and Developmental Disabilities Code or a mental health
18    facility as defined in Section 1-114 of the Mental Health
19    and Developmental Disabilities Code.
20(Source: P.A. 98-378, eff. 8-16-13.)
 
21    (740 ILCS 110/9.11)
22    Sec. 9.11. Establishment and disclosure of limited data
23sets and de-identified information.
24    (a) An HIE, person, therapist, facility, agency,

 

 

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1interdisciplinary team, integrated health system, business
2associate, covered entity, the Illinois Health Information
3Exchange Office Authority, or entity facilitating the
4establishment or operation of an HIE may, without a recipient's
5consent, use information from a recipient's record to
6establish, or disclose such information to a business associate
7to establish, and further disclose information from a
8recipient's record as part of a limited data set as defined by
9and in accordance with the requirements set forth under HIPAA,
10as specified in 45 CFR 164.514(e). An HIE, person, therapist,
11facility, agency, interdisciplinary team, integrated health
12system, business associate, covered entity, the Illinois
13Health Information Exchange Office Authority, or entity
14facilitating the establishment or operation of an HIE may,
15without a recipient's consent, use information from a
16recipient's record or disclose information from a recipient's
17record to a business associate to de-identity the information
18in accordance with HIPAA, as specified in 45 CFR 164.514.
19    (b) As used in this Section:
20        (1) the terms "disclosure" and "use" shall have the
21    meanings ascribed to them by HIPAA, as specified in 45 CFR
22    160.103; and
23        (2) "facility" means a developmental disability
24    facility as defined in Section 1-107 of the Mental Health
25    and Developmental Disabilities Code or a mental health
26    facility as defined in Section 1-114 of the Mental Health

 

 

SB1864 Enrolled- 103 -LRB101 10924 CPF 56080 b

1    and Developmental Disabilities Code.
2(Source: P.A. 98-378, eff. 8-16-13.)
 
3
Article 99. Effective Date

 
4    Section 99-99. Effective date. This Act takes effect upon
5becoming law.