SB1726 101ST GENERAL ASSEMBLY

LRB101 06866 CPF 51898 b

101ST GENERAL ASSEMBLY
State of Illinois
2019 and 2020
SB1726

Introduced 2/15/2019, by Sen. Suzy Glowiak

SYNOPSIS AS INTRODUCED:

See Index

Amends the Alzheimer's Disease Research Act. Changes the short title of the Act to the Alzheimer's Disease Research, Care, and Support Fund Act. Creates the full-time position of Dementia Coordinator within the Department of Public Health, who is responsible only for activities associated with and relevant to the successful implementation of the State of Illinois Alzheimer's Disease State Plan. Changes the name of the Alzheimer's Disease Research Fund to the Alzheimer's Disease Research, Care, and Support Fund and makes corresponding changes in the State Finance Act. Provides that moneys from the Fund shall be used to cover costs, including the Dementia Coordinator's salary and expenses. Provides that the Department shall be responsible for providing the Dementia Coordinator with administrative support through its existing resources and not from the Fund. Repeals provisions concerning a grant program administered by the Department. Amends the Alzheimer's Disease Assistance Act. Makes changes concerning the membership of the Alzheimer's Disease Advisory Committee. Requires the Department of Public Health to make reasonable efforts to promote the Alzheimer's Disease Research, Care, and Support Fund during relevant times, including, but not limited to, periods of time when tax returns are typically received, such as issuing press releases and posting on social media.

FISCAL NOTE ACT MAY APPLY

A BILL FOR

AN ACT concerning health.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 5. The State Finance Act is amended by changing Section 5.180 as follows:

(30 ILCS 105/5.180) (from Ch. 127, par. 141.180)

Sec. 5.180. The Alzheimer's Disease Research, Care, and Support Fund.

(Source: P.A. 84-1308.)

Section 10. The Alzheimer's Disease Assistance Act is amended by changing Section 6 and by adding Section 8 as follows:

(410 ILCS 405/6) (from Ch. 111 1/2, par. 6956)

Sec. 6. Alzheimer's Disease ADA Advisory Committee.

(a) There is created the Alzheimer's Disease Advisory Committee consisting of 16 23 voting members appointed by the Director of the Department, as well as 5 nonvoting members as hereinafter provided in this Section. The Director or his designee shall serve as one of the 16 23 voting members and as the Chairman of the Committee. Those appointed as voting members shall include persons who are experienced in research and the delivery of services to individuals with Alzheimer's disease or a related disorder and their families. Such members shall include:

(1) one individual from a statewide association dedicated to Alzheimer's care, support, and research;

(2) one individual from a non-governmental statewide organization that advocates for seniors;

(3) the Dementia Coordinator of the Illinois Department of Public Health, or the Dementia Coordinator's designee;

(4) one individual representing the Community Care Program's Home and Community Services Division;

(5) one individual representing the Adult Protective Services Unit;

(6) 3 individuals from Alzheimer's Disease Assistance Centers;

(7) one individual from a statewide association representing an adult day service organization;

(8) one individual from a statewide association representing home care providers;

(9) one individual from a statewide trade organization representing the interests of physicians licensed to practice medicine in all of its branches in Illinois;

(10) one individual representing long-term care facilities licensed under the Nursing Home Care Act, an assisted living establishment licensed under the Assisted Living and Shared Housing Act, or supportive living facilities;

(11) one individual from a statewide association representing the interests of social workers;

(12) one individual representing Area Agencies on Aging;

(13) the Medicaid Director of the Department of Healthcare and Family Services, or the Medicaid Director's designee; and

(14) one individual from a statewide association representing health education and promotion and public health advocacy. 3 physicians licensed to practice medicine in all of its branches, one representative of a licensed hospital, one registered nurse with a specialty in geriatric or dementia care, one representative of a long term care facility under the Nursing Home Care Act, one representative of a long term care facility under the Assisted Living and Shared Housing Act, one representative from a supportive living facility specially serving individuals with dementia, one representative of a home care agency serving individuals with dementia, one representative of a hospice with a specialty in palliative care for dementia, one representative of an area agency on aging as defined by Section 3.07 of the Illinois Act on the Aging, one representative from a leading advocacy organization serving individuals with Alzheimer's disease, one licensed social worker, one representative of law enforcement, 2 individuals with early-stage Alzheimer's disease, 3 family members or representatives of individuals with Alzheimer's disease and related disorders, and 3 members of the general public. Among the physician appointments shall be persons with specialties in the fields of neurology, family medicine, psychiatry and pharmacology. Among the general public members, at least 2 appointments shall include persons 65 years of age or older.

(b) In addition to the 16 23 voting members, the Directors of the following State agencies or their designees who are qualified to represent each Department's programs and services for those with Alzheimer's disease or related disorders shall serve as nonvoting members: Department on Aging, Department of Healthcare and Family Services, Department of Public Health, Department of Human Services, and Guardianship and Advocacy Commission.

Each voting member appointed by the Director of Public Health shall serve for a term of 2 years, and until his successor is appointed and qualified. Members of the Committee shall not be compensated but shall be reimbursed for expenses actually incurred in the performance of their duties. No more than 12 voting members may be of the same political party. Vacancies shall be filled in the same manner as original appointments.

The Committee shall review all State programs and services provided by State agencies that are directed toward persons with Alzheimer's disease and related dementias, and by consensus recommend changes to improve the State's response to this serious health problem. Such recommendations shall be included in the State plan described in this Act.

(Source: P.A. 97-768, eff. 1-1-13.)

(410 ILCS 405/8 new)

Sec. 8. Alzheimer's Disease Research, Care, and Support Fund; support. The Department, in coordination with the members of the Alzheimer's Disease Advisory Committee, shall make reasonable efforts to promote the Alzheimer's Disease Research, Care, and Support Fund during relevant times, including, but not limited to, periods of time when tax returns are typically received. Ways to promote the Fund include, but are not limited to, issuing press releases and posting on social media.

Section 15. The Alzheimer's Disease Research Act is amended by changing Sections 1, 2, 3, and by adding Sections 3.1, 3.2 and 3.3 as follows:

(410 ILCS 410/1) (from Ch. 111 1/2, par. 6901)

Sec. 1. Short title. This Act shall be known and may be cited as the Alzheimer's Disease Research, Care, and Support Fund Act.

(Source: P.A. 84-324.)

(410 ILCS 410/2) (from Ch. 111 1/2, par. 6902)

Sec. 2. Contributions on tax returns. Each individual taxpayer required to file a return pursuant to the Illinois Income Tax Act desiring to contribute to the Alzheimer's Disease Research, Care, and Support Fund may do so by stating the amount of such contribution (not less than $1) on such return. This Section shall not apply to an amended return.

(Source: P.A. 86-678.)

(410 ILCS 410/3) (from Ch. 111 1/2, par. 6903)

Sec. 3. Alzheimer's Disease Research, Care, and Support Fund.

(a) There is created the Alzheimer's Disease Research, Care, and Support Fund, a special fund in the State Treasury.

(b) The Department of Public Health shall deposit any donations received for the grant program created pursuant to this Act in the Alzheimer's Disease Research, Care, and Support Fund.

(c) The General Assembly may appropriate moneys monies in the Alzheimer's Disease Research, Care, and Support Fund to the Department of Public Health for the purpose of complying with the requirements under Section 4 of awarding grants pursuant to this Act.

(Source: P.A. 84-1265.)

(410 ILCS 410/3.1 new)

Sec. 3.1. Dementia Coordinator.

(a) The full-time position of Dementia Coordinator is created within the Department of Public Health. The Dementia Coordinator is responsible only for activities associated with and relevant to the successful implementation of the State of Illinois Alzheimer's Disease State Plan, including, but not limited to:

(1) coordinating quality dementia services in the State to ensure dementia capability;

(2) using dementia-related data to coordinate with the Department to improve public health outcomes;

(3) increasing awareness and creating dementia-specific training;

(4) providing access to quality coordinated care for individuals with dementia in the most integrated setting available;

(5) establishing and maintaining relationships with other agencies and organizations within the State in order to meet the needs of the affected population and prevent duplication of services;

(6) identifying and managing grants to assist in the funding of the position of Dementia Coordinator and other programs and services to assist Illinois in becoming dementia-capable;

(7) working with the Department's Behavioral Risk Factor Surveillance System Coordinator and the Alzheimer's Disease Advisory Committee in identifying available funds to execute appropriate modules for critical data collection and research, if and when necessary; moneys appropriated to the Alzheimer's Disease Research, Care, and Support Fund may be considered;

(8) building and maintaining effective working relationships with other departments and organizations to ensure coordination between and the support of dementia services;

(9) maintaining and applying knowledge of current developments and trends in the assigned area of expertise by reading appropriate journals, books, and other professional literature, and attending related conferences, seminars, and trainings;

(10) providing support for the Alzheimer's Disease Advisory Committee's activities, including co-drafting the State plan; and

(11) compiling and publishing an annual report on the state of dementia care in Illinois, including, but not limited to, the status of Illinois in becoming a dementia-capable state.

(410 ILCS 410/3.2 new)

Sec. 3.2. Use of moneys in the Fund. Moneys in the Alzheimer's Disease Research, Care, and Support Fund shall be used by the Department of Public Health to cover costs associated with this Act, including, but not limited to, the following:

(1) salary and benefits for the full-time position of Dementia Coordinator within the Department; and

(2) other expenses contingent with the responsibilities of the Dementia Coordinator, including, but not limited to, travel and professional development opportunities.

(410 ILCS 410/3.3 new)

Sec. 3.3. Administrative support. The Department of Public Health shall be responsible for providing the Dementia Coordinator with work space, supplies, and other administrative office materials, as needed, through existing resources and not with moneys from the Alzheimer's Disease Research, Care, and Support Fund.

(410 ILCS 410/4 rep.)

Section 20. The Alzheimer's Disease Research Act is amended by repealing Section 4.