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1
HOUSE RESOLUTION

 
2    WHEREAS, Hemophilia and related bleeding disorders are
3genetic conditions affecting thousands of people in the State
4of Illinois; they are characterized by the absence of one of
5several clotting factors necessary to control bleeding; the
6standard of care for the treatment of these disorders is to
7replace the absent clotting factors necessary to control
8bleeding; and
 
9    WHEREAS, Without treatment, people with hemophilia and
10other related bleeding disorders face frequent, spontaneous
11bleeding episodes in their joints, causing swelling in the
12joint, muscles, internal organs, and brain; repeated bleeding
13episodes in joints result in chronic degenerative arthritic
14conditions, which often lead to frequent hospitalizations,
15permanent disability, and chronic pain; bleeding episodes
16involving internal organs and the brain can cause permanent
17damage, disability and even death; and
 
18    WHEREAS, Severe bleeding episodes result in lost time at
19work and school, decreased quality of life, and the inability
20to perform basic living activities; and
 
21    WHEREAS, With proper care and access to comprehensive
22medical resources, persons with hemophilia and other related

 

 

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1bleeding disorders can control bleeding episodes and can lead
2productive lives; and
 
3    WHEREAS, Visits to federally recognized Hemophilia
4Treatment Centers of Excellence reduce morbidity and mortality
5significantly; and
 
6    WHEREAS, The State of Illinois is committed to proper care
7and treatment of children and adults with hemophilia and other
8related bleeding disorders through previously enacted
9legislation; and
 
10    WHEREAS, Hemophilia and other related bleeding disorders
11and their complications are not well understood by the general
12public; and
 
13    WHEREAS, The State of Illinois encourages efforts to
14promote the understanding of hemophilia and other related
15bleeding disorders so that they are treated properly;
16therefore, be it
 
17    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
18HUNDRED FIRST GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
19we recognize Illinoisans participating in Bleeding Disorders
20Awareness Month and advocacy events in March 2019 and
21throughout the year; and be it further
 

 

 

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1    RESOLVED, That suitable copies of this resolution be
2presented to the Medical Director of the Bleeding and Clotting
3Disorders Institute Michael Tarantino, M.D., the dedicated
4staff at the federally recognized centers of excellence in
5Illinois, and Bob Robinson and his team at the Bleeding
6Disorders Alliance of Illinois.