HR1088 100TH GENERAL ASSEMBLY

HR1088 LRB100 22053 MST 40231 r

HOUSE RESOLUTION

WHEREAS, Peroxisome Biogenesis Disorder - Zellweger Spectrum Disorder (PBD-ZSD or simply PBD) is a rare genetic disorder that affects 1 in 50,000 births within the United States of America; and

WHEREAS, PBD causes life threatening symptoms for most infants and children who have the disease; and

WHEREAS, PBD results in poor muscle tone, hearing loss, vision loss, low bone density, seizures, liver and kidney dysfunction, and developmental delays; and

WHEREAS, PBD causes a mutation in any of the 13 genes termed PEX genes; and

WHEREAS, Max Chapman, born October 17, 2013, a resident of Bloomington, was diagnosed with PBD at the age of 14 months; with his loving heart, his cheerful disposition, and boundless personality, Max has inspired countless family and friends in Central Illinois to spread awareness of this devastating disorder; and

WHEREAS, Max's parents, Corin and Todd Chapman, and his grandparents, Alan and Cathie Chapman and Greg and Patty Garbe, create awareness for PBD by sharing Max and his story unselfishly through blogging, social media, video, and fundraising events; and

WHEREAS, May 18 and 19, 2018 is the third annual Tee it Up! For the GFPD golf outing at Illinois State University's Weibring Golf Club to honor Max and raise funds for The Global Foundation for Peroxisomal Disorders (GFPD) in support of their mission to advocate for awareness of PBD and support new avenues for medical research in the development of treatments and cures; therefore, be it

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE HUNDREDTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we urge awareness of peroxisomal disorders and encourage support for medical research in the development of new treatments and cures; and be it further

RESOLVED, That suitable copies of this resolution be presented to The Global Foundation for Peroxisomal Disorders, Max Chapman, Max's parents, and Max's grandparents.