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1 | AN ACT concerning health.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 5. The Children's Mental Health Act of 2003 is | ||||||||||||||||||||||||
5 | amended by adding Sections 20.1, 20.5, 20.10, 20.15, 20.20, | ||||||||||||||||||||||||
6 | 20.25, and 20.30 as follows: | ||||||||||||||||||||||||
7 | (405 ILCS 49/20.1 new) | ||||||||||||||||||||||||
8 | Sec. 20.1. Short title. Sections 20.1 through 20.30 of this | ||||||||||||||||||||||||
9 | Act may be cited as the Children's Mental Health Local | ||||||||||||||||||||||||
10 | Integrated Fund Law. | ||||||||||||||||||||||||
11 | (405 ILCS 49/20.5 new) | ||||||||||||||||||||||||
12 | Sec. 20.5. Purpose. The General Assembly finds that | ||||||||||||||||||||||||
13 | children with emotional or behavioral disturbances or who are | ||||||||||||||||||||||||
14 | at risk of suffering those disturbances often require services | ||||||||||||||||||||||||
15 | from multiple service systems including mental health, social | ||||||||||||||||||||||||
16 | services, education, corrections, juvenile court, health, and | ||||||||||||||||||||||||
17 | employment and economic development. In order to better meet | ||||||||||||||||||||||||
18 | the needs of these children, it is the intent of the General | ||||||||||||||||||||||||
19 | Assembly to establish an integrated children's mental health | ||||||||||||||||||||||||
20 | service system that: | ||||||||||||||||||||||||
21 | (1) allows local service decision makers to draw funding | ||||||||||||||||||||||||
22 | from a single local source so that funds follow clients and |
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1 | eliminates the need to match clients, funds, services, and | ||||||
2 | provider eligibilities; | ||||||
3 | (2) creates a local pool of State, local, and private funds | ||||||
4 | to procure a greater medical assistance federal financial | ||||||
5 | participation; | ||||||
6 | (3) improves the efficiency of use of existing resources; | ||||||
7 | (4) minimizes or eliminates the incentives for cost and | ||||||
8 | risk shifting; and | ||||||
9 | (5) increases the incentives for earlier identification | ||||||
10 | and intervention.
The children's mental health integrated fund | ||||||
11 | established under this Law must be used to develop and support | ||||||
12 | this integrated mental health service system. In developing | ||||||
13 | this integrated service system, it is not the intent of the | ||||||
14 | General Assembly to limit any rights available to children and | ||||||
15 | their families through existing federal and State laws. | ||||||
16 | (405 ILCS 49/20.10 new) | ||||||
17 | Sec. 20.10. Definitions. In Sections 20.1 through 20.30 of | ||||||
18 | this Act: | ||||||
19 | "Base level funding" means funding received from State, | ||||||
20 | federal, or local sources and expended across the local system | ||||||
21 | of care in fiscal year 2018 for children's mental health | ||||||
22 | services, for special education services, and for other | ||||||
23 | services for children with emotional or behavioral | ||||||
24 | disturbances and their families.
In subsequent years, base | ||||||
25 | level funding may be adjusted to reflect decreases in the |
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1 | numbers of children in the target population. | ||||||
2 | "Child" means a person under 18 years of age. | ||||||
3 | "Children with emotional or behavioral disturbances" | ||||||
4 | includes children with emotional disturbances as defined in | ||||||
5 | this Section, and children with emotional or behavioral | ||||||
6 | disorders as defined in this Section. | ||||||
7 | "Department" means the Department of Human Services. | ||||||
8 | "Emotional or behavioral disorders" means an established | ||||||
9 | pattern of one or more of the following emotional or behavioral | ||||||
10 | responses: | ||||||
11 | (1)
withdrawal or anxiety, depression, problems with | ||||||
12 | mood, or feelings of self-worth; | ||||||
13 | (2)
disordered thought processes with unusual behavior | ||||||
14 | patterns and atypical communication styles; or | ||||||
15 | (3) aggression, hyperactivity, or impulsivity. | ||||||
16 | The established pattern of emotional or behavioral | ||||||
17 | responses must adversely affect educational or developmental | ||||||
18 | performance, including intrapersonal, academic, vocational, or | ||||||
19 | social skills; be significantly different from appropriate | ||||||
20 | age, cultural, or ethnic norms; and be more than temporary, | ||||||
21 | expected responses to stressful events in the environment. The | ||||||
22 | emotional or behavioral responses must be consistently | ||||||
23 | exhibited in at least 3 different settings, 2 of which must be | ||||||
24 | educational settings, and one other setting in either the home, | ||||||
25 | child care, or community. The responses must not be primarily | ||||||
26 | the result of intellectual, sensory, or acute or chronic |
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1 | physical health conditions. | ||||||
2 | "Emotional disturbance" means an organic disorder of the | ||||||
3 | brain or a clinically significant disorder of thought, mood, | ||||||
4 | perception, orientation, memory, or behavior that: | ||||||
5 | (1) is detailed in a diagnostic codes list published by | ||||||
6 | the Secretary ; and | ||||||
7 | (2) seriously limits a child's capacity to function in | ||||||
8 | primary aspects of daily living such as personal relations, | ||||||
9 | living arrangements, work, school, and recreation. | ||||||
10 | "Emotional disturbance" is a generic term and is intended | ||||||
11 | to reflect all categories of disorder described in the clinical | ||||||
12 | code list published by the Secretary as usually first evident | ||||||
13 | in childhood or adolescence. | ||||||
14 | "Family" means a child and one or more of the following | ||||||
15 | persons whose participation is necessary to accomplish the | ||||||
16 | child's treatment goals: | ||||||
17 | (1) a person related to the child by blood, marriage, | ||||||
18 | or adoption; | ||||||
19 | (2) a person who is the child's foster parent or | ||||||
20 | significant other; or | ||||||
21 | (3) a person who is the child's legal guardian or | ||||||
22 | custodian. | ||||||
23 | "Family community support services" means services | ||||||
24 | provided under the clinical supervision of a mental health | ||||||
25 | professional and designed to help each child with severe | ||||||
26 | emotional disturbance to function and remain with the child's |
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1 | family in the community. Family community support services do | ||||||
2 | not include acute care hospital inpatient treatment, | ||||||
3 | residential treatment services, or regional treatment center | ||||||
4 | services. Family community support services include: | ||||||
5 | (1) client outreach to each child with severe emotional | ||||||
6 | disturbance and the child's family; | ||||||
7 | (2) medication monitoring when necessary; | ||||||
8 | (3) assistance in developing independent living | ||||||
9 | skills; | ||||||
10 | (4) assistance in developing parenting skills | ||||||
11 | necessary to address the needs of the child with severe | ||||||
12 | emotional disturbance; | ||||||
13 | (5) assistance with leisure and recreational | ||||||
14 | activities; | ||||||
15 | (6) crisis assistance, including crisis placement and | ||||||
16 | respite care; | ||||||
17 | (7) professional home-based family treatment; | ||||||
18 | (8) foster care with therapeutic supports; | ||||||
19 | (9) day treatment; | ||||||
20 | (10) assistance in locating respite care and special | ||||||
21 | needs day care; and | ||||||
22 | (11) assistance in obtaining potential financial | ||||||
23 | resources, including those benefits. The county board must | ||||||
24 | offer help to a child with severe emotional disturbance and | ||||||
25 | the child's family in applying for federal benefits, | ||||||
26 | including Supplemental Security Income, medical |
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1 | assistance, and Medicare. | ||||||
2 | "Individualized rehabilitation services" means | ||||||
3 | alternative, flexible, coordinated, and highly individualized | ||||||
4 | services that are based on a multiagency plan of care. These | ||||||
5 | services are designed to build on the strengths and respond to | ||||||
6 | the needs identified in the child's multiagency assessment and | ||||||
7 | to improve the child's ability to function in the home, school, | ||||||
8 | and community. Individualized rehabilitation services may | ||||||
9 | include, but are not limited to, residential services, respite | ||||||
10 | services, services that assist the child or family in enrolling | ||||||
11 | in or participating in recreational activities, assistance in | ||||||
12 | purchasing otherwise unavailable items or services important | ||||||
13 | to maintain a specific child in the family, and services that | ||||||
14 | assist the child to participate in more traditional services | ||||||
15 | and programs. | ||||||
16 | "Integrated fund" is a pool of both public and private | ||||||
17 | local, State, and federal resources, consolidated at the local | ||||||
18 | level, to accomplish locally agreed-upon service goals for the | ||||||
19 | target population. The fund shall be used to help the local | ||||||
20 | children's mental health collaborative to serve the mental | ||||||
21 | health needs of children in the target population by allowing | ||||||
22 | the local children's mental health collaboratives to develop | ||||||
23 | and implement an integrated service system. | ||||||
24 | "Integrated service system" means a coordinated set of | ||||||
25 | procedures established by the local children's mental health | ||||||
26 | collaborative for coordinating services and actions across |
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1 | categorical systems and agencies that results in: | ||||||
2 | (1) integrated funding; | ||||||
3 | (2) improved outreach, early identification, and | ||||||
4 | intervention across systems; | ||||||
5 | (3) strong collaboration between parents and | ||||||
6 | professionals in identifying children in the target | ||||||
7 | population, facilitating access to the integrated system, | ||||||
8 | and coordinating care and services for these children; | ||||||
9 | (4) a coordinated assessment process across systems | ||||||
10 | that determines which children need multiagency care | ||||||
11 | coordination and wraparound services; | ||||||
12 | (5) multiagency plan of care; and | ||||||
13 | (6) individualized rehabilitation services. | ||||||
14 | Services provided by the integrated service system must | ||||||
15 | meet the requirements set out in this Law. Children served by | ||||||
16 | the integrated service system must be economically and | ||||||
17 | culturally representative of children in the service delivery | ||||||
18 | area. | ||||||
19 | "Local children's mental health collaborative" or | ||||||
20 | "collaborative" means an entity formed by the agreement of | ||||||
21 | representatives of the local system of care including mental | ||||||
22 | health services, social services, correctional services, | ||||||
23 | education services, health services, and vocational services | ||||||
24 | for the purpose of developing and governing an integrated | ||||||
25 | service system. | ||||||
26 | "Local system of care" means a coordinated network of |
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1 | community-based services and supports designed to meet the | ||||||
2 | challenges of children and youth with serious mental health | ||||||
3 | needs and their families. These partnerships of families, | ||||||
4 | youth, public organizations, and private service providers | ||||||
5 | work to more effectively deliver mental health services and | ||||||
6 | supports that build on the strengths of individuals and fully | ||||||
7 | address children's and youths' needs. | ||||||
8 | "Mental health services" has the meaning ascribed to it in | ||||||
9 | Section 1-115 of the Mental Health and Developmental | ||||||
10 | Disabilities Code. | ||||||
11 | "Multiagency plan of care" means a written plan of | ||||||
12 | intervention and integrated services developed by a | ||||||
13 | multiagency team in conjunction with the child and family based | ||||||
14 | on their unique strengths and needs as determined by a | ||||||
15 | multiagency assessment. The plan must outline measurable | ||||||
16 | client outcomes and specific services needed to attain these | ||||||
17 | outcomes, the agencies responsible for providing the specified | ||||||
18 | services, funding responsibilities, timelines, the judicial or | ||||||
19 | administrative procedures needed to implement the plan of care, | ||||||
20 | the agencies responsible for initiating these procedures and | ||||||
21 | designate one person with lead responsibility for overseeing | ||||||
22 | implementation of the plan. | ||||||
23 | "Respite care" means planned routine care to support the | ||||||
24 | continued residence of a child with emotional or behavioral | ||||||
25 | disturbance with the child's family or long-term primary | ||||||
26 | caretaker. |
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1 | "Secretary" means the Secretary of Human Services. | ||||||
2 | "Service delivery area" means the geographic area to be | ||||||
3 | served by the local children's mental health collaborative and | ||||||
4 | must include at a minimum a part of a county and school | ||||||
5 | district or a special education cooperative. | ||||||
6 | "Target population" means children under 18 years of age | ||||||
7 | with an emotional or behavioral disturbance or who are at risk | ||||||
8 | of suffering an emotional or behavioral disturbance as | ||||||
9 | evidenced by a behavior or condition that affects the child's | ||||||
10 | ability to function in a primary aspect of daily living | ||||||
11 | including personal relations, living arrangements, work, | ||||||
12 | school, and recreation, and a child who can benefit from: | ||||||
13 | (1) multiagency service coordination and wraparound | ||||||
14 | services; or | ||||||
15 | (2) informal coordination of traditional mental health | ||||||
16 | services provided on a temporary basis. | ||||||
17 | Persons between the ages of 18 and 21 who meet these | ||||||
18 | criteria may be included in the target population at the option | ||||||
19 | of the local children's mental health collaborative. | ||||||
20 | "Therapeutic support of foster care" means the mental | ||||||
21 | health training and mental health support services and clinical | ||||||
22 | supervision provided by a mental health professional to foster | ||||||
23 | families caring for children with severe emotional disturbance | ||||||
24 | to provide a therapeutic family environment and support for the | ||||||
25 | child's improved functioning. |
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1 | (405 ILCS 49/20.15 new) | ||||||
2 | Sec. 20.15. Local children's mental health collaborative. | ||||||
3 | (a) In order to qualify as a local children's mental health | ||||||
4 | collaborative and be eligible to receive start-up funds, the | ||||||
5 | representatives of the local system of care and nongovernmental | ||||||
6 | entities such as parents of children in the target population; | ||||||
7 | parent and consumer organizations; community, civic, and | ||||||
8 | religious organizations; private and nonprofit mental and | ||||||
9 | physical health care providers; culturally specific | ||||||
10 | organizations; local foundations; and businesses, or at a | ||||||
11 | minimum one county, one school district or special education | ||||||
12 | cooperative, one mental health entity, and one juvenile justice | ||||||
13 | or corrections entity, must agree to the following: | ||||||
14 | (1) to establish a local children's mental health | ||||||
15 | collaborative and develop an integrated service system; | ||||||
16 | (2) to commit resources to providing services through | ||||||
17 | the local children's mental health cooperative; and | ||||||
18 | (3) to develop a plan to contribute funds to the | ||||||
19 | children's mental health collaborative. | ||||||
20 | (b) Two or more children's mental health collaboratives may | ||||||
21 | consolidate decision making, pool resources, and collectively | ||||||
22 | act on behalf of the individual collaboratives, based on a | ||||||
23 | written agreement among the participating collaboratives. | ||||||
24 | (c) Each local children's mental health collaborative | ||||||
25 | must: | ||||||
26 | (1) notify the Secretary within 10 days of formation by |
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1 | signing a collaborative agreement and providing the | ||||||
2 | Secretary with a copy of the signed agreement; | ||||||
3 | (2) identify a service delivery area and an operational | ||||||
4 | target population within that service delivery area. The | ||||||
5 | operational target population must be economically and | ||||||
6 | culturally representative of children in the service | ||||||
7 | delivery area to be served by the local children's mental | ||||||
8 | health collaborative. The size of the operational target | ||||||
9 | population must also be economically viable for the service | ||||||
10 | delivery area; | ||||||
11 | (3) seek to maximize federal revenues available to | ||||||
12 | serve children in the target population by designating
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13 | local expenditures for services for these children and
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14 | their families that can be matched with federal dollars; | ||||||
15 | (4) design, develop, and ensure implementation of an | ||||||
16 | integrated service system that meets the requirements for | ||||||
17 | State and federal reimbursement and develop interagency | ||||||
18 | agreements necessary to implement the system; | ||||||
19 | (5) expand membership to include representatives of | ||||||
20 | other services in the local system of care including | ||||||
21 | prepaid health plans under contract with the Secretary to | ||||||
22 | serve the needs of children in the target population and | ||||||
23 | their families; | ||||||
24 | (6) create or designate a management structure for | ||||||
25 | fiscal and clinical responsibility and outcome evaluation; | ||||||
26 | (7) spend funds generated by the local children's |
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1 | mental health collaborative as required in this Law; | ||||||
2 | (8) explore methods and recommend changes needed at the | ||||||
3 | State level to reduce duplication and promote coordination | ||||||
4 | of services including the use of uniform forms for | ||||||
5 | reporting, billing, and planning of services; | ||||||
6 | (9) submit its integrated service system design to the | ||||||
7 | Department for approval within one year of notifying the | ||||||
8 | Secretary of its formation; | ||||||
9 | (10) provide an annual report and the collaborative's | ||||||
10 | planned timeline to expand its operational target | ||||||
11 | population to the Department; and | ||||||
12 | (11) expand its operational target population. | ||||||
13 | (d) The members of a local children's mental health | ||||||
14 | collaborative may share data on persons being served by the | ||||||
15 | collaborative or its members if the person gives written | ||||||
16 | informed consent and the information sharing is necessary in | ||||||
17 | order for the collaborative to carry out its duties under this | ||||||
18 | Section. Data on persons shared under this subsection (d) | ||||||
19 | retain the original classification as to each member of the | ||||||
20 | collaborative with whom the data is shared.
If a federal law or | ||||||
21 | regulation impedes information sharing that is necessary in | ||||||
22 | order for a collaborative to carry out duties under this | ||||||
23 | Section, the appropriate State agencies shall attempt to obtain | ||||||
24 | a waiver or exemption from the applicable law or regulation. | ||||||
25 | (405 ILCS 49/20.20 new) |
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1 | Sec. 20.20. Integrated local service system. The | ||||||
2 | integrated service system established by the local children's | ||||||
3 | mental health collaborative must: | ||||||
4 | (1) include a process for communicating to agencies in the | ||||||
5 | local system of care eligibility criteria for services received | ||||||
6 | through the local children's mental health collaborative and a | ||||||
7 | process for determining eligibility. The process shall place | ||||||
8 | strong emphasis on outreach to families, respecting the family | ||||||
9 | role in identifying children in need, and valuing families as | ||||||
10 | partners; | ||||||
11 | (2) include measurable outcomes, timelines for evaluating | ||||||
12 | progress, and mechanisms for quality assurance and appeals; | ||||||
13 | (3) involve the family, and when appropriate the child, in | ||||||
14 | developing multiagency service plans to the extent required by | ||||||
15 | law; | ||||||
16 | (4) meet all standards and provide all mental health | ||||||
17 | services as required in this Law, and ensure that the services | ||||||
18 | provided are culturally appropriate; | ||||||
19 | (5) spend funds generated by the local children's mental | ||||||
20 | health collaborative as required in this Law; and | ||||||
21 | (6) encourage public-private partnerships to increase | ||||||
22 | efficiency, reduce redundancy, and promote quality of care. | ||||||
23 | (405 ILCS 49/20.25 new) | ||||||
24 | Sec. 20.25. Revenue enhancement; authority and | ||||||
25 | responsibilities. The children's mental health collaborative |
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1 | shall have the following authority and responsibilities | ||||||
2 | regarding federal revenue enhancement: | ||||||
3 | (1) the collaborative must establish an integrated fund; | ||||||
4 | (2) the collaborative shall designate a lead county or | ||||||
5 | other qualified entity as the fiscal agency for reporting, | ||||||
6 | claiming, and receiving payments; | ||||||
7 | (3) the collaborative or lead county may enter into | ||||||
8 | subcontracts with other counties, school districts, special | ||||||
9 | education cooperatives, municipalities, and other public and | ||||||
10 | nonprofit entities for purposes of identifying and claiming | ||||||
11 | eligible expenditures to enhance federal reimbursement; | ||||||
12 | (4) the collaborative shall use any enhanced revenue | ||||||
13 | attributable to the activities of the collaborative, including | ||||||
14 | administrative and service revenue, solely to provide mental | ||||||
15 | health services or to expand the operational target population. | ||||||
16 | The lead county or other qualified entity may not use enhanced | ||||||
17 | federal revenue for any other purpose; | ||||||
18 | (5) the collaborative or lead county must develop and | ||||||
19 | maintain an accounting and financial management system | ||||||
20 | adequate to support all claims for federal reimbursement, | ||||||
21 | including a clear audit trail and any provisions specified in | ||||||
22 | the contract with the Secretary; | ||||||
23 | (6) the collaborative or its members may elect to pay the | ||||||
24 | nonfederal share of the medical assistance costs for services | ||||||
25 | designated by the collaborative; and | ||||||
26 | (7) the lead county or other qualified entity may not use |
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1 | federal funds or local funds designated as matching for other | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
2 | federal funds to provide the nonfederal share of medical | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
3 | assistance. | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
4 | (405 ILCS 49/20.30 new) | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
5 | Sec. 20.30. Additional federal revenues. Each local | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
6 | children's mental health collaborative shall report | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
7 | expenditures eligible for federal reimbursement in a manner | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
8 | prescribed by the Secretary. The Secretary shall pay all funds | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
9 | earned by each local children's mental health collaborative to | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
10 | the collaborative. Each local children's mental health | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
11 | collaborative must use these funds to expand the operational | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
12 | target population or to develop or provide mental health | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
13 | services through the local integrated service system to | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
14 | children in the target population. Funds may not be used to | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
15 | supplant funding for services to children in the target | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
16 | population.
For purposes of this Section, "mental health | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
17 | services" are community-based, nonresidential services, which | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
18 | may include respite care, that are identified in the child's | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
19 | multiagency plan of care.
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