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| | HB4035 Engrossed | | LRB098 15592 RPM 50623 b |
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1 | | AN ACT concerning health.
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2 | | Be it enacted by the People of the State of Illinois, |
3 | | represented in the General Assembly:
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4 | | Section 5. The Illinois Health Statistics Act is amended by |
5 | | changing Section 4 as follows:
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6 | | (410 ILCS 520/4) (from Ch. 111 1/2, par. 5604)
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7 | | Sec. 4. (a) In carrying out the purposes of this Act, the |
8 | | Department may:
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9 | | (1) Collect and maintain health data on:
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10 | | (i) The extent, nature, and impact of illness, |
11 | | including factors relating to obesity and disability |
12 | | on the population
of the State;
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13 | | (ii) The determinants of health and health hazards |
14 | | including obesity;
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15 | | (iii) Health resources, including the extent of |
16 | | available manpower and resources;
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17 | | (iv) Utilization of health care;
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18 | | (v) Health care costs and financing; and
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19 | | (vi) Other health or health-related matters ; and .
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20 | | (vii) The connection between the long-term effects |
21 | | of childhood cancer and the original cancer diagnosis |
22 | | and treatment. |
23 | | (2) Undertake and support research, demonstrations, |
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1 | | and evaluations respecting
new or improved methods for |
2 | | obtaining current data on the matters referred
to in |
3 | | subparagraph (1).
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4 | | (b) The Department may collect health data under authority |
5 | | granted by
any unit of local government and on behalf of other |
6 | | governmental or not-for-profit
organizations, including data |
7 | | collected by local schools and the State Board of Education |
8 | | relating to obesity on the health examination form required |
9 | | pursuant to Section 27-8.1 of the School Code. The data shall |
10 | | be de-identified and aggregated pursuant to rules promulgated |
11 | | by the Department to prevent disclosure of personal identifying |
12 | | information.
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13 | | (c) The Department shall collect data only on a voluntary |
14 | | basis from individuals
and organizations, except when there is |
15 | | specific legal authority to compel
the mandatory reporting of |
16 | | the health data so requested. In making any collection
of |
17 | | health data from an individual or organization the Department |
18 | | must give
to such individual or organization a written |
19 | | statement which states:
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20 | | (1) Whether the individual or organization is required |
21 | | to respond, and
any sanctions for noncompliance;
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22 | | (2) The purposes for which the health data are being |
23 | | collected; and
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24 | | (3) In the case of any disclosure of identifiable |
25 | | health data for other
than research and statistical |
26 | | purposes, the items to be disclosed, to whom
the data are |
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1 | | to be disclosed and the purposes for which the data are to |
2 | | be disclosed.
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3 | | (d) Except as provided in Section 5, no health data |
4 | | obtained in the course
of activities undertaken or supported |
5 | | under this Act may be used for any purpose
other than the |
6 | | purpose for which they were supplied or for which the |
7 | | individual
or organization described in the data has otherwise |
8 | | consented.
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9 | | (e) The Department shall take such actions as may be |
10 | | necessary to assure
that statistics developed under this Act |
11 | | are of high quality, timely, comprehensive,
as well as |
12 | | specific, standardized and adequately analyzed and indexed.
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13 | | (f) The Department shall take such action as is appropriate |
14 | | to effect
the coordination of health data activities, including |
15 | | health data specifically relating to obesity collected |
16 | | pursuant to Section 27-8.1 of the School Code, within the State |
17 | | to eliminate
unnecessary duplication of data collection and |
18 | | maximize the usefulness of
data collected.
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19 | | (g) The Department shall (1) participate with state, local |
20 | | and federal
agencies in the design and implementation of a |
21 | | cooperative system for producing
comparable and uniform health |
22 | | information and statistics at the federal,
state, and local |
23 | | levels; and (2) undertake and support research, development,
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24 | | demonstrations, and evaluations respecting such cooperative |
25 | | system.
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26 | | (Source: P.A. 93-966, eff. 1-1-05.)
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